Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 He just wants to have a way to know whats in store for him..........he wants quality not quantity. when the doc told him he cold go on like this for 2 to 3 years.....his reaction was "I'll take it!! That would make me 90!!" even the doc had a chuckle. My Dad is out tonight with his girlfrend......a spring chicken at 72! I told him he was robbing the cradle! I want him to be as prepared for whats ahead as can be, so he can plan on doing the things he wants. Hugs Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 In a message dated 10/7/01 10:44:20 AM Pacific Daylight Time, tdcc2000@... writes: Harper, are you saying that people have to take prednisone for the rest of our lives? debby My doctor strongly recommends that all AIH patients stay on maintenance Prednisone dosages throughout their lifetime; some other doctors do not. I think that doctors disagree as to the best general course of action, and also that each patient is different. Dr. Palmer's book says that 14% to 50% of people who go into remission stay in remission after medication is discontinued. (I don't understand that statement --14 to 50 is a big percentage spread!) The text then elaborates on which patients are most likely to relapse. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 In a message dated 10/7/01 11:13:53 AM Pacific Daylight Time, tdcc2000@... writes: Interesting....I just don't understand how come we can't get into remission and stay...but then I am so new at all of this. The literature that I have read also said there are few that maintain remission. I hope I am one of those who make it, but I am just new at the meds, and I guess it won't happen for several years. debby To cite Palmer's book again, "It takes about a year-and-a-half to two years for most people to go into remission. Some people respond much faster -- perhaps within six months -- while others take years. Approximately 14 to 50 % of these people remain in long-tgerm remission after medications are discontinued. People who remain in remission usually have a normal life expectancy. . . Up to 20% of people with AIH do not respond to conventional treatment. The reason for this is unclear and is subject to differing opinions among researchers . . ." Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Harper, are you saying that people have to take prednisone for the rest of our lives? debby Re: [ ] re:herbs In a message dated 10/5/01 4:46:29 PM Pacific Daylight Time, pattyeady@... writes: But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though. My doctor says he generally has about a dozen AIH patients, and he's never had anyone who quit prednisone and was able to stay in remission permanently. However, statistics show that some people are lucky and succeed at it! Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 Interesting....I just don't understand how come we can't get into remission and stay...but then I am so new at all of this. The literature that I have read also said there are few that maintain remission. I hope I am one of those who make it, but I am just new at the meds, and I guess it won't happen for several years. debby Re: [ ] re:herbs In a message dated 10/7/01 10:44:20 AM Pacific Daylight Time, tdcc2000@... writes: Harper, are you saying that people have to take prednisone for the rest of our lives? debby My doctor strongly recommends that all AIH patients stay on maintenance Prednisone dosages throughout their lifetime; some other doctors do not. I think that doctors disagree as to the best general course of action, and also that each patient is different. Dr. Palmer's book says that 14% to 50% of people who go into remission stay in remission after medication is discontinued. (I don't understand that statement --14 to 50 is a big percentage spread!) The text then elaborates on which patients are most likely to relapse. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 has anyone tried Bromelain - also the cream called Boswella. Also can someone help me understand about herbs such as ginseng and others to boost our immune system, I'm confused on which is good and bad. I'm also taking seledium, green tea, Vit E - b-complx. - I was told by a friend this week that her Dad takes odor free Garlic and works out in the garden and the mostqitoes don't even bother him, they were eating her up. he claims they use to bother him but not anymore. I've had my 2nd treatment of Remicade and also on a small dose of MTX. 6 ultracet's a day and 20mg of Bextra, just wasn't getting it. had a shot of corti. last Friday. so Again I'm checking out herbs, to try and replace the ultracet and bextra. Thanks for anyone's help. Jan in Dothan, AL [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 I am interested in boswella cream too. Is that something to stay away from? A friend of mine used it for swelling arthritic knees and it was amazingly helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 There are not a lot of herbs that work with PA.... and what's more, most of your herbalists and homeopathic " Doctors " are absolutely clueless when it comes to PA. My fruit-cake sister in law is totally " natural " and keeps coming at me with this crap and that garbage.... Whenever she comes with it, I have to ask her, " Where did you get it, and what does that person know about PA? " But other than that, most herbals are bunk and any snake-oil salesman that would convince you that you need glucosemin and condroiten doesn't know their <buttocks> from their elbow - or your tendons from cartilage. [Message modified slightly by moderator, even though I agree with your sentiments ;-) -Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 HI, I agree with Meghan, plus it is a good idea to ALWAYS check with your Dr. before taking anything, especially when you're taking prescribed medications. B [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 I started using garlic for cholesteral. It lowered it about 30 points and I no longer get chigger bites. However, the mosquitoes still find me quite tasty! Ks Di [ ] Re:herbs has anyone tried Bromelain - also the cream called Boswella. Also can someone help me understand about herbs such as ginseng and others to boost our immune system, I'm confused on which is good and bad. I'm also taking seledium, green tea, Vit E - b-complx. - I was told by a friend this week that her Dad takes odor free Garlic and works out in the garden and the mostqitoes don't even bother him, they were eating her up. he claims they use to bother him but not anymore. I've had my 2nd treatment of Remicade and also on a small dose of MTX. 6 ultracet's a day and 20mg of Bextra, just wasn't getting it. had a shot of corti. last Friday. so Again I'm checking out herbs, to try and replace the ultracet and bextra. Thanks for anyone's help. Jan in Dothan, AL [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 In a message dated 08/11/2002 9:01:03 PM Eastern Daylight Time, JNJSewing@... writes: > herbs such as ginseng and others to > boost our immune system, I'm confused on which is good and bad. All herbs that BOOST the immune system are BAD for PA! Stop trying to increase your immunity - you are fighting against the PA treatments by doing so. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 In a message dated 08/13/2002 2:50:17 PM Eastern Daylight Time, popeatlarge2000@... writes: > and there is NO > EVIDENCE to suggest that using herbs and supplements > will counteract psoriatic arthritis treatment. Mike - I'm not dismissing herbs and alternative treatments. EPO works wonders for some. What I believe Meghan (I think it was Meghan) and I are saying is - Don't take any herbs that boost the immune system such as enchineca, etc. - You are then fighting against the DMARDS which lower the immune system. Lowering the immune system is how we get our bodies to stop attacking the joints, ligaments, tendons, etc. which is what is our whole problem with PA. Certainly there are many wonderful herbs and supplements to use. Just watch out for any that boost your immunity as you would be counteracting the DMARDS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 You are entitled to guide your own treatment, but I would advise you not to dismiss herbal remedies. We are, after all, dealing with a disease the cause of which is still unknown. Using herbs and supplements promotes general health, and taking specific herbs and supplements can help fight damage caused by this disease and the harsh pharmaceuticals we are forced to use. Here's what I take: — evening primrose oil reduces inflammation associated with arthritis — milk thistle reduces liver damage caused by pharmaceuticals (also, there is good reason to believe that liver dysfunction causes psoriatic arthritis) — garlic fights bacteria such as the fingernail/toenail variety associated with psoriasis — lecithin prevents virus infections (some doctors think that psoriatic arthritis may be caused by a viral infection), cleans the liver (again, the liver is damaged by pharmaceuticals such as Vioxx, Celebrex and, of course, Methotrexate) and purifies the kidneys (also damaged by pharmaceuticals). — coenzyme Q10 prevents cellular damage caused by unstable oxygen molecules called free radicals (some think this may contribute to psoriatic arthritis) It's important to remember that herbs and supplements, unlike pharmaceuticals, will not dramatically all your symptoms the day you take them — and there is NO EVIDENCE to suggest that using herbs and supplements will counteract psoriatic arthritis treatment. They are things to add to your diet to make sure your body is getting what it needs. I think of taking these the same way I do about eating spinach on a regular basis or going to the gym several times a week. Since I have been taking herbs and supplements, I feel a greater general well-being — physically and emotionally. Dismiss these if you like, but remember that each one of the items mentioned above were helping people prevent diseases for many years before Celebrex was invented. Mike Pope Tallahassee, Florida P.S. for more information about natural treatment to this disease, check out " The Psoriasis Cure. " http://www.amazon.com/exec/obidos/ASIN/0895299178/qid=1029259262/sr=1-1/ref=sr_1\ _1/102-0211447-7008141 --- TADEL630@... wrote: > In a message dated 08/11/2002 9:01:03 PM Eastern > Daylight Time, > JNJSewing@... writes: > > > > herbs such as ginseng and others to > > boost our immune system, I'm confused on which is > good and bad. > > All herbs that BOOST the immune system are BAD for > PA! Stop trying to > increase your immunity - you are fighting against > the PA treatments by doing > so. > > > [Non-text portions of this message have been > removed] ===== --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 I keep hearing conflicting things abut dried herbs: firstly, that they do have mould and should be avoided, then some people say the tiny amount you eat, and because you usually cook them (not in dressings obviously but in hot sauces and soups) makes it ok. Anyone have any thoughts? RE: Re: Salad - here i come! - michelle try adding dry mustard to the eggs before adding the additional ingredients. Also, the addition of herbs can make mayonnaise a wonderfully versatile sauce. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.529 / Virus Database: 324 - Release Date: 16/10/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Y'know, I'm rapidly coming to the conclusion that there are few things out there that DON'T have mold on them somehow, somewhere, sometime (think leftovers for instance). So I guess it's a matter of degree. IMHO this regimen is restricted enough and we have to get flavour from somewhere. So I'd go with the dried herbs. From: " Simon " > I keep hearing conflicting things abut dried herbs: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 I agree, but fresh herbs are always an option. Also, if you don't have cats that will eat them, almost all of them are really easy to grow in a sunny window in little pots. You can cut a little and use them and they grow back. Re: herbs Y'know, I'm rapidly coming to the conclusion that there are few things out there that DON'T have mold on them somehow, somewhere, sometime (think leftovers for instance). So I guess it's a matter of degree. IMHO this regimen is restricted enough and we have to get flavour from somewhere. So I'd go with the dried herbs. From: " Simon " > I keep hearing conflicting things abut dried herbs: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Dear Ralph and JoAnn, RE: Herbs. When I first visited Dr. H, he told me about a doctor who had herbs for lyme. I am sorry, but I don't recall the name now. I am sure someone else will come along with the name as I have seen it several times since on this site. I want to say Dr. Zhang, but I am not sure. When you get the information, you can call them and they will send out information. If I recall correctly, it was about $300 a month for his plan. I was taking the garlic that my doc suggested at first from this company. It was costing me $80 a month. I only took it one month and switched to eating raw garlic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > Hi everybody, > > Is there a list of herbs anyone can tell us about for lymes? > > Thank you for your help, > > Ralph & JoAnn Samento (aka Saventaro or TOA-free Cat's Claw) is probably the single best herb for Lyme. Carnivora is also excellent, but a fairly expensive. Also Artemisinin. Lesser but good synergistic herbs that can be added and aid in case of coinfections are Olive leaf extract, garlic, bitter melon. The old stand-by Colloidal Silver will also give some herxes. Also, combining Noni juice and shark liver oil (Squalene) can have a good anti-microbial as well as calming anti-depressant affect. Craig Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 And if you have used them, what are they for?? Symptoms or for killing the virus?? Barbara > Has anyone here used Milk Thistle ,Dandelion ,or Red Clover? > Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 here is a site I found http://www.skyeherbals.com/hepc/symptoms.html I had Milk Thistle suggested to me by a friend. I had an idea of taking it until I start treatment but I would love more information first Rhonda [ ] Re: Herbs > And if you have used them, what are they for?? Symptoms or for > killing the virus?? > Barbara > > > > Has anyone here used Milk Thistle ,Dandelion ,or Red Clover? > > Rhonda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I used milk thistle mainly, but I believe I had a mixture which contained burdock root and dandelion (something or other). This was before I went on treatment and I actually lowered my alt/ast counts into the normal range before starting treatment. -dz-Rhonda <rhondahudson@...> wrote: Has anyone here used Milk Thistle ,Dandelion ,or Red Clover?Rhonda BEGIN:VCARDVERSION:2.1N:Hudson;RhondaFN:Rhonda HudsonEMAIL;PREF;INTERNET:rhondahudson@...REV:20040730T152324ZEND:VCARD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Thank you Dave-heartening news! Rhonda Re: [ ] Herbs > I used milk thistle mainly, but I believe I had a mixture which contained burdock root and dandelion (something or other). This was before I went on treatment and I actually lowered my alt/ast counts into the normal range before starting treatment. -dz- > > Rhonda <rhondahudson@...> wrote:Has anyone here used Milk Thistle ,Dandelion ,or Red Clover? > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Rhonda, my husband has been using milk thistle since before treatment. What is dandelion and red clover supposed to do? Sue and gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 I was told that the milk thistle would help rejuvinate the liver, or help with its cleansing abilities. i don't know if it worked, but it didn't hurt and he's still taking it. Sue and Gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Well heck I don't know!! I was on a site where they had Milk Thistle, Dandelion Root, and Red Clover all on the same page for Hepatitis C. Of course I can't find it now Rhonda Re: [ ] Herbs > Rhonda, my husband has been using milk thistle since before treatment. What is dandelion and red clover supposed to do? > Sue and gidget > > > Quote Link to comment Share on other sites More sharing options...
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