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I also tried acupuncture at a point when all else was failing. As

acupuncture can bring your body into total balance in order that all your

organs, systems, etc. function most efficiently, I feel it was helpful in

bringing me to where I am today. I feel that the combination of

Biaxin/plaquenil AND acupuncture AND supplements and vitamens AND rest when

needed , all helped. I have been symptomless for a year TODAY :o) after

fighting this thing since 1993. I think the acupuncture was helpful in

bringing my immune system to a point where it was functioning at its peak,

thus allowing my body to utilize the medication and fight these spiros the

very best it could. Mona

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At 11:49 PM 5/4/99 EDT, you wrote:

>From: Prinny328@...

>

>Hi everyone,

>I have a few questions... Has anyone tried an herblists or acupucherist?

>

>

Herbs and/or acupunctures may help you to feel better, but they will not

kill the spirochetes.

Colby Van Atta

>

>

>

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Hi ,

I did try and acupuncturist twice, the first visit was great, the second

so-so, plus it was too expensive for me at the time. I know when I

mentioned it to my doctor, he encouraged me to continue, he said that often

this can help with Lyme symptoms. I am sorry you were not able to keep the

herbs down, I wonder if the capsule form would be better? If you recall

what herbs were given to you, I would be very curious to know.

Hugs,

Marta

-

>From: Prinny328@...

>

>Hi everyone,

>I have a few questions... Has anyone tried an herblists or acupucherist?

I

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In a message dated 5/5/1999 9:36:31 AM Eastern Daylight Time,

mlmccoy@... writes:

<< Happy Anniversary Mona >>

Thank you so much.......I feel like I have been given another chance at

life.........I wish and pray every day that it can happen to every one :o)

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Prinny328@... writes:

> I have a few questions... Has anyone tried an herbalists or Acupuncturist?

> went to someone in Philly that does both. He is supposed to by great!!!

My

> Uncle had a client who had Lyme Disease (Wheelchair bound) and she swears

> that he got her better!!!

Hi everyone,

That's a mighty big claim! Both my husband and I use an excellent

Acupuncturist

and Chiropractor. She does both and she uses Chinese herbs (if you want them

.... she doesn't push them if it's not for you) Here is her new site:

http://www.bcmedicine.com/

I've been there twice this last few week as I knocked out my back --

really, really bad! I got so well (from the IV treatment) that I went back to

my regular life. One of those parts was being dragged around by my beautiful

121 LB Akita Boo-Boo for grooming and we attending the Petsmart Adoptathon

together over the weekend.

Dr. Kate Belko has never been able to MAKE me or Jerry better from

Lyme, nor has she ever promised she could. She HAS made the pain bearable,

she has given me Chinese herbs for a nasty yeast infection that didn't get

cured from the regular methods of prescriptions. She has made me feel better

when I was in so much pain ,,, not so very long ago ,,, that I just laid on

her table with tears running down my face

and cried during the whole treatment.

She is expensive and does NOT take insurance --- but that proves to

me just how good she is. Why would Jerry and I write her out checks from our

limited funds UNLESS we found improvement?

Not everyone is as good as she is --- and we jokingly say " We pass

her around like a joint! " <g> I would be interested to know who this man in

Philadelphia is and I would suggest that anyone give it a few tries but not

looking for cures, just improvement.

What we really like about Kate is she does NOT keep you sick. I've

known family members who go a Chiro 3 x a week for 6 months with little

improvement but say but he takes my insurance! If it doesn't work what good

does it do to use your insurance? We seldom have to go back to Kate more then

twice per incident. Then we can go months without having to go.

My best to everyone,

Marleen

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I think that herbs are a good thing to try,but be wary. Some of them are

actually dangerous and because they are not recognized by the FDA, we never

know exactly what we are getting. I still think it is worth a shot. Have you

ever heard Jurnigan Nutracudicals and their protocol containing that herbal

mixture borrelegen. It may be another protocol to look into. I would

definately try alternatives though. Give it at least a month if you are

tolerating well and see what happens. By the way are you planning on staying

on abx while doing the alternatives. I don't know if they will interfere. Let

me know what you think about that because i never know if taking both at the

same time will screw one up. Wishing you much luck and health with whatever

treatment -Val

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Martha,

He gave me so many herbs. I don't even know what he gave me. He is very

reasonable only $45.00 a office visit and that includes the herbs and

ancupuntiure. He was also sooo nice and compassanaite. There were articles

written about him all over his office. He also comes from 5 generations of

herblist/acpuntists doctors. I'm calling him today to see if he can give me

a pill instead of tea.

Thanks,

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In a message dated 5/5/99 10:55:49 AM Eastern Daylight Time, ValP74@...

writes:

<< h a shot. Have you

ever heard Jurnigan Nutracudicals and their protocol containing that herbal

mixture borrelegen. It may be another protocol to look into. I would

definately try alternatives though. Give it at least a month if you are

tolerating well and see what happens. By the way are you planning on staying

on abx while doing the alternatives. I don't know if they will interfere.

Let

me know what you think about that because i never know if taking both at the

same time will screw one up. Wishing you much luck and health with whatever

treatment -Val >>

Val,

That's a good point. I'm definatyly staying on my antibotics. I would Never

give them up. I'm too scared to. Feel better,

Chrisitne

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Happy Anniversary Mona,

One full year of wellness, that's terrific. Wishing many more to

follow.

Best to you,

Marta

>From: WISHXXX@...

>

>I also tried acupuncture at a point when all else was failing. As

>acupuncture can bring your body into total balance in order that all your

>organs, systems, etc. function most efficiently, I feel it was helpful in

>bringing me to where I am today. I feel that the combination of

>Biaxin/plaquenil AND acupuncture AND supplements and vitamens AND rest when

>needed , all helped. I have been symptomless for a year TODAY :o) after

>fighting this thing since 1993.

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  • 3 months later...

you might want to look at boswellia, circumin, feverfew, ginger as just a

few possibilities. Fish Oil (Omega 3's) and MSM are other possibilities.

Some people will swear these work for them, others find no relief. I've

taken them all - can't say I know if they help me or not - You can see what

I currently take below.

Mark

http://members.tripod.com/~Mark_Holmes

RA 4/98 AP 7/98

Minocycline (Lederle generic) 100mg 2x/day MWF;Zithromax 500 mg T,Sa; Lodine

400mg 3x/daily;Zone Diet;Olive Leaf;Slippery Elm;Fish Oil(9 caps/day);Milk

Thistle;bromelain;circumin;glucosamine;Exercise - 2-3 mile walks-5

days/week(when I'm not in a big flare)

RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

ICQ 18123139

rheumatic herbs

> From: Magee <bondan@...>

>

> Hi Gang

> Just wondering if anyone has info on what herbs or combination of herbs to

> take for RA inflamation? I had stopped taking the celebrex for one day and

> I seized up so I started back on it again. I don't know if it's power of

> thought or what but the swelling of my ankles and knees have eased up.

> Anyway would appreciate the info on herbs,I would like to ween myself off

> the celebrex if possible.

> Bonnie

>

> ---------------------------

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Check out the section on controlling pain in Dr. 's protocol on

http://www.rheumatic.org

Ethel

Magee wrote:

>

> From: Magee <bondan@...>

>

> Hi Gang

> Just wondering if anyone has info on what herbs or combination of herbs to

> take for RA inflamation? I had stopped taking the celebrex for one day and

> I seized up so I started back on it again. I don't know if it's power of

> thought or what but the swelling of my ankles and knees have eased up.

> Anyway would appreciate the info on herbs,I would like to ween myself off

> the celebrex if possible.

> Bonnie

>

> ---------------------------

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  • 5 months later...

I make it a point to witness to the fact that plantlife is full of

healing properties pertaining to specific ailments. When I was pregnant

1981 and had high alkaline test for the bladder, the naturopath/midwife

gave me instructions; brew juniper berries into a jug of 1 gallon and

mix with cranberry concentrate (costly) for 1 week.

Ew! The sour concentrate and that odor of juniper berries---but it

worked. It worked!

Imagine if we grew up knowing this information how many people who have

bladder troubles would be spared. I still remember the taste of those

two together.

By the way, please watch where you pick up your plants/herbs because of

carbon dioxide from cars. I didn't believe it until I ate a punch of

blackberries along a road and became nauseous.

Eileen

" elh " <el-@...> wrote:

original article:hyperthyroidism/?start=36

16

> Herbal diuretics-the best ones I know grow wild around my house.

> Dandelions, juniper berries, plantain and cornsilk. The wonderful

thing is

> these also cleanse the blood of poisions, infections (and

micoplasmas) if we

> have any and also remove impurities from the kidneys. I make a

homemade

> vitamin from the dandelions, plantain, and dried green and yellow

vegetables

> from my garden. I add a little oregano to the mix and it clears my

chronic

> sinus congestion as well. (I breath better than I did since I was a

little

> child). The only one to use with caution on this list is juniper

berry. It

> is very strong and nasty tasting and can only be used for 1 month on

and 1

> month off. I've used it very effectively with my daughter who gets

kidney

> infections but gets serious drug fevers from most any antibiotic. I

suspect

> these would minimize bloating from the kidneys.

>

> To remove bloating from the liver, I suggest burdock (also a weed

that grows

> wild at my house) and milk thistle. Burdock and Dandelions are also

natural

> sources of copper, calcium and a whole lot of other vitamins and

minerals.

> Plant sources of these things are more absorbable and your body can

use them

> easily and thus doesn't need as much. I'm a bit wary of using rock

forms of

> minerals, though at this point many of the herbs I used for my calcium

> sources also have Iodine in them-Nettle and Horsetail (Also a great

source

> of silica). So I may have to go with some Calcium and Magnesium

from some

> other sources until I build up my copper. My iron has always been

very

> high, probably why my copper is probably low. We have well water

that is

> full of iron. I'm now filtering it with a home-made (very

affordable, but

> very effective) filter because I suspect pesticides in our water

> contributing to our " family " immune problems, so now I suspect that it

> tastes so wonderful that I won't be getting all this iron anymore.

These

> herbs you can make into a tea or grind them in your blender into a

powder

> and encapsulate them. You can also make them into a tincture by

using vodka

> or vinegar and the herbs will last indefinitely. I beieve these may

also

> reverse and heal some kidney damage. I 'm amazed at how effective our

> Creator has made herbs for healing. They are a gift from him, not to

be

> worshiped but to point us to the Creator who is worthy of all our

praise. I

> see this disease as a good thing for myself. I have learned to be

more

> dependent on Him and less dependent on myself. If my outward

appearance

> gets " ugly " as it appears to be starting, then I will be forced to

work on

> the inner beauty which is something eternal and will never fade away.

The

> one thing I know is that I can easy obsess about all this especially

when

> the symptoms get bad. After 24 hours with only twilight sleep I

decided to

> simply forget about my self and praise the different qualities I know

about

> God. I continued to do this everytime I woke up " perky " in the

middle of

> the night and would you believe I fell back asleep (something I

haven't been

> able to do in a long time without heavy herbal sedatives). I woke up

> refreshed, etc. So I've decided to allow myself 1 hour a day to

research

> and figure out my plan for treating this and refuse to think of it

any more

> in the day. Hopefully once I get on a regime I can reduce this to

about 15

> minutes a day!

>

> Liver sources of bloating-I believe every one of us would benefit

from milk

> thistle. I plan to grow a whole lot of it here this year. It is the

best

> liver detoxifier I know and I recommended it to a man in our church

who had

> liver cancer and most of his liver cut out, who's liver enzymes were

> climbing and dangerously high. After about 6 months on the milk

thistle the

> Dr. couldn't understand why his liver enzymes were dropping, but the

man

> decided the Dr. wouldn't believe him if he told him anyway, so he just

> shrugged his shoulders. He's a happy customer! I was told after my

2nd

> miscarriage that my liver is probably involved and I'd take the milk

thistle

> on and off. However, now I am realizing that I really do have a

serious

> problem and should get serious about taking the milk thistle. I think

it

> would also remove any mercury from our body as well, if fillings are

the

> problem. You can buy it bulk, encapsulate a 1 month supply at a time

and

> get the most effective form available. What you get encapsulated in

the

> stores could have been there a long time. It's expensive and loses

some of

> it's potency after 1 month. I have just begun doing this as a " side

> business " but until I am growing enough of everything, I will have to

> purchase my herbs bulk. If anyone is interested in doing this

themselves, I

> have sources for cheap gelatin capsules and affordable and high

quality

> herbs or would appreciate a little help encapsulating them, let me

know.

> I'm cheaper than any sources I know because I see this more as a

ministry

> than a business. Just write me personally at elh@... .

>

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  • 1 year later...
  • 6 months later...

linda can u gv me a website whr i can research sum herbs?

>From: ljohnson@...

>Reply-

>

>Subject: [ ] Herbs

>Date: Fri, 28 Sep 2001 09:55:47 -0000

>

>Sue,

>What herbs were you taking specifically? I know my gastro did not

>recommend taking some at GNC for the immune system. Since our immune

>system is in overdrive we need something to calm it down. My mom

>is sending me some info from Canada about liver-detox stuff. I will

>have to do some research to see exactly what is what on this. There

>are some sites on the internet for herbs which give basic adverse

>reactions etc. and persons who should not take them. It has been

>helpful to me so far.

>LC AIH (0701)

>

_________________________________________________________________

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I want to just throw in my two cents worth regarding herbs. While we were waiting and going through the evaluation we were cautioned not to take any drug, over the counter medicine or herbs without checking with the tx team first. They told us that herbs specifically are not regulated and the anethesiologist told me they have more and more complications with people who have been taking herbs and then need to be anesthesized. Some of these herbs are residual for 30 days in your body. They can cause serious complications to both your liver and your health if you should get the call for the gift of life and have been taking them. As with all things during this time, I would check with my tx team before beginning any type of regime not prescribed by them. This also shows non compliance in their eyes. JMHO.....

Cheryl & Randy

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What exactly is a tx team? Just wondering...never have heard that term before. debby

Re: [ ] Herbs

I want to just throw in my two cents worth regarding herbs. While we were waiting and going through the evaluation we were cautioned not to take any drug, over the counter medicine or herbs without checking with the tx team first. They told us that herbs specifically are not regulated and the anethesiologist told me they have more and more complications with people who have been taking herbs and then need to be anesthesized. Some of these herbs are residual for 30 days in your body. They can cause serious complications to both your liver and your health if you should get the call for the gift of life and have been taking them. As with all things during this time, I would check with my tx team before beginning any type of regime not prescribed by them. This also shows non compliance in their eyes. JMHO..... Cheryl & Randy

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tx team = transplant team

This team is made up of everyone you saw during the evaluation and who will monitor you as you come closer to a transplant and after. Usually the surgeon, the transplant coordinator nurse, the social worker, psyche doctor, aneth. doctor, hepatologist, bioethics doctor, and anyone else depending on your certain set of circumstances. All of these people play an important role in your care.

Cheryl & Randy

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Hi --

I was taking milk thistle which I know has been discussed before -- and

vitamins, magnesium, and calcium, BUT, in big doses. In addition to that

she had me taking two herbs (Sorry, I can't find the name) to build up my

immune system, again in mega doses. She (the accupuncturist) thought it

was faulty thinking that my immune system didn't need building up and I

think that is where I got into trouble.

Anyway, I have backed way off. I still take a general vitamin, plus

magnesium and calcium and these all have the blessing of my gastro.

I hope this helps.

Sue (Oregon)

[ ] Herbs

Sue,

What herbs were you taking specifically? I know my gastro did not

recommend taking some at GNC for the immune system. Since our immune

system is in overdrive we need something to calm it down. My mom

is sending me some info from Canada about liver-detox stuff. I will

have to do some research to see exactly what is what on this. There

are some sites on the internet for herbs which give basic adverse

reactions etc. and persons who should not take them. It has been

helpful to me so far.

LC AIH (0701)

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Hi Everyone, I was told by my dr. (internal specialist is the one who

finally diagnosed me right) that he thought it would be a good idea to take

milk thistle, but that was the only one he thought would be okay to take. I

think stress has been a factor for me and getting better. I tried alot of

different things over the last 3 years but recently I made the decision to

quit my job, I was coming off prednisone and having a pretty tuff time. But

I came off prednisone and am still in remission so I know I made the right

decision. I am still concerned that I may not stay in remission though.

Thanks for the ear.

peady

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In a message dated 10/5/01 4:46:29 PM Pacific Daylight Time, pattyeady@... writes:

But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though.

My doctor says he generally has about a dozen AIH patients, and he's never had anyone who quit prednisone and was able to stay in remission permanently. However, statistics show that some people are lucky and succeed at it!

Harper (AIH 5/00)

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Ohhhh I am so happy for you! I hope that one day I too will be in remission!

Thanks for the encouragement...hey, if one person can do it, then others can too!

debby

[ ] re:herbs

Hi Everyone, I was told by my dr. (internal specialist is the one who finally diagnosed me right) that he thought it would be a good idea to take milk thistle, but that was the only one he thought would be okay to take. I think stress has been a factor for me and getting better. I tried alot of different things over the last 3 years but recently I made the decision to quit my job, I was coming off prednisone and having a pretty tuff time. But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though. Thanks for the ear.peady_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Dear Harper,

Our tx team say AIH patients stay on prednisone after transplant -- the reason, the AIH is not removed when the transplant is done. It can reoccur and since they know going in that you have it, they keep you on the preventative to help keep it in remission. Every person we have spoken with or chatted with that had AIH and came completely off prednisone had a flare up within a year. Not worth the risk to us -- Randy takes 5/mg a day. They may lower it a bit in another year or so but he will always be taking it.

Just our 2 cents worth...

Cheryl & Randy

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Question for all:

Would taking the Prednisone (alone) help the AIH? The Imuran has to many side effects for a 87 year old. Just searching...ALL opinions welcome. If you'd rather not post openly email me at JudieV@...

Thanks for being here!

Judie

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In a message dated 10/6/01 12:31:07 PM Pacific Daylight Time, JudieV@... writes:

Would taking the Prednisone (alone) help the AIH? The Imuran has to many side effects for a 87 year old. Just searching...ALL opinions welcome. If you'd rather not post openly email me at JudieV@...

Thanks for being here!

Judie

You certainly don't HAVE to take both Prednisone and Imuran. Imuran makes it possible to lower the dose of Prednisone, as I understand it, and Imuran lessens some of Prednisone's side effects (osteoporosis, glaucoma, cataracts, emotional disturbances, etc.)

Harper

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