Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Hello all, I have had PLS for about 25 years, so I am not new to what it is. I am always looking for new ways to get things down and so I would love to hear form you. A Breaux mabreaux@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 Hi , Actually, as I was writing my email I had an inkling that may have been the case. Still, we now have Corrine who has had PLS forever! Welcome Corrine and anybody else I have missed saying hi to. Also best wishes for success to those undergoing various procedures they or their carers have written about. :-) Cheers, Thomson wrote: > Hi , > I should let Levy chime in on this himself, but I believe he > actually > has HSP, based on a message he put in the PLS newsletter a while back. > Since he's never developed anything symptoms above the waist, and he has > family history, HSP is much more likely for him. > Thomson > Solana Beach, Ca > Visit www.als-pls.org > and www.geocities.com/mdmfoo/pls.html -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 - I hope you'll feel welcome here. Along the way, there have been folks who either didn't have a dx yet, thought they might have CHARGE, or had something similar. We're happy to open our arms wide enough to include others with similar issues! Michele W mom to Aubrie (6 yrs) CHaRgE and (12 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 - I hope you'll feel welcome here. Along the way, there have been folks who either didn't have a dx yet, thought they might have CHARGE, or had something similar. We're happy to open our arms wide enough to include others with similar issues! Michele W mom to Aubrie (6 yrs) CHaRgE and (12 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 - I hope you'll feel welcome here. Along the way, there have been folks who either didn't have a dx yet, thought they might have CHARGE, or had something similar. We're happy to open our arms wide enough to include others with similar issues! Michele W mom to Aubrie (6 yrs) CHaRgE and (12 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Welcome, Kay 49 year old CHARGEr melting away Hello > Hello, > > I just joined the list serv, although I have little knowlege of CHARGE. I > have a two and a half year old son who has a very different diagnosis, but has > very similar medical issues. I thought that by monitoring this board, and > maybe asking a few questions, I might learn something which would be helpful to > him. I hope that is alright with everyone. > > Just wanted to let you know I was here, and I will gladly answer any > questions. > > > (PS...I am a listserv rookie!) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Welcome, Kay 49 year old CHARGEr melting away Hello > Hello, > > I just joined the list serv, although I have little knowlege of CHARGE. I > have a two and a half year old son who has a very different diagnosis, but has > very similar medical issues. I thought that by monitoring this board, and > maybe asking a few questions, I might learn something which would be helpful to > him. I hope that is alright with everyone. > > Just wanted to let you know I was here, and I will gladly answer any > questions. > > > (PS...I am a listserv rookie!) > > > Quote Link to comment Share on other sites More sharing options...
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