Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 I avctually think it depends on who you listen to , someone that has tried to optimize thyroid with lwo ferritinor someone that has had problems from Hemochromatosis. Thre are two VERY differnt courts out there and I deal wiht Hypothyroid peole almopst exclusively on all my groups that I ahve been on for the last 15+ years. Fotr MOST hypothyroid peolel thye need a bare minimum of 50 for ferritin to not get horrid anxiety from any med with T3 in ti either Cytomel or natural thyroid. And for it to work best I htink 70-90 is VERY reasonable levels to aim for. I thng tryingot keep ferritin at 40 is DANGEROUS for a hypothyroid person. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 > >> Folks...I know Ferritin is important for us struggling against thryoid issues...All of you have been so helpful to me...and I feel a bond with you as we are struggling together. The biochemists I consult with are cautioning me on the issue of ferritn...thought I would share this with you....Dr. Lauffer at Harvard has studies iron extensively...he has concerns about Ferritin levels in excess of 40... > There is an interesting article published in the JAMA in 2004 " Body Iron Stores in Relation to Risk of Type 2 Diabetes in Apparently Healthy Women " about the link between higher ferritin and risk of developing type 2 diabetes. The data is from the Nurses Health Study, and the women with higher ferritin had already developed diabetes when the article was written, so it is not a speculation about who will or will not develop diabetes. Most intersting to me is that the mean (median) ferritin level of the women with diabetes was only 109, while for the non-diabetic women the mean (median) ferritn level was 71. It can be tricky to find the entire JAMA article (at least I could not find it again just now) but I have it saved as PDF and can send it to anyone who wants to read it. There are thyroid " experts " and iron " experts " , the problem is when it comes to safe ferritin levels who do we trust? Because the two camps do not agree. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 wrote: I thng tryingot keep ferritin at 40 is DANGEROUS for a hypothyroid > person. There are hypothyroid folks on the iron list I belong to who keep their ferritin around that level and they are fine with their meds. So everyone has to do what they believe, but I just don't believe ferritin of 40 is dangerous for a hypothyroid person. What I DO believe is that they have something else going on and they haven't found it. THAT could be dangerous. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2009 Report Share Posted September 3, 2009 Please be careful in thinking that a ferritan of 125 is accurate. Another member had a ferritan that " looked " high, gave blood and now her ferritan is 19. It's not 19 because she gave blood but because the high ferritan was from inflammation. If you give blood and get rid of the inflammation (assuming it is) at the same time you might get your ferritan so low as to not tolerate T3 or any other for that matter. There have been a couple of posters who, after doing inflammation marker testing, found out that their ferritan was a false high.Inflammation marker tests would include fibrinogen, CRP, Sed Rate. I would highly recommend that people have these test before doing any kind of blood donating. well now this concerns me. My ferritin is 125 and my father is diabetic. My naturopath wanted to have go in for blood letting and maybe I should have done that.  I have an appt with her in Oct. I will be bringing this up. Can you put the link to what you DID find in a post please?  Thank so much! Venizia > >> Folks...I know Ferritin is important for us struggling against thryoid issues...All of you have been so helpful to me...and I feel a bond with you as we are struggling together.  The biochemists I consult with are cautioning me on the issue of ferritn...thought I would share this with you....Dr. Lauffer at Harvard has studies iron extensively...he has concerns about Ferritin levels in excess of 40... > > > There is an interesting article published in the JAMA in 2004 " Body Iron > Stores in Relation to Risk of Type 2 > Diabetes in Apparently Healthy Women " about the link between higher > ferritin and risk of developing type 2 diabetes. The  data is from the > Nurses Health Study, and the women with higher ferritin had already > developed diabetes when the article was written, so it is not a > speculation about who will or will not develop diabetes. > > Most intersting to me is that the mean (median) ferritin level of the > women with diabetes was only 109, while for the non-diabetic women the > mean (median) ferritn level was 71. > > It can be tricky to find the entire JAMA article (at least I could not > find it again just now) but I have it saved as  PDF and can send it to > anyone who wants to read it. > > There are thyroid " experts " and iron " experts " , the problem is when it > comes to safe ferritin levels who do we trust? Because the two camps do > not agree. > sol > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Rainbow - I wonder if you made a big mistake donating blood. Your numbers didn't look that bad and if you donated and the ferritan did come down 30 points you will be in trouble with T3 only. I know Sol will disagree and of course everyone is different but generally...this is not work. I'm not sure why you rushed to donate. If your numbers were over the limit that's another story but they weren't. I know you're not on very much T3 yet but take my word for it, you will pay the price when you get up there. Please rethink this and please keep this in mind when you start have T3 tolerance problems.Dorothy will tell you that donating was the worst thing she ever did and is having a very hard time. My ferritan is 49 and I'm barely able to tolerate 65 of T3. I haven't been able to optimize for almost a year because of this ferritan situation. I know Val is constantly talking about ferritan but I don't think folks are taking it serious enough. Just MVHO. I would encourage you to read through this site:http://www.ironoverload.org/You can even call the guy who runs the site and run your numbers by him. He's not a doctor, but has been trying to raise awareness of iron overload for many years. My last iron labs were as follows: 07.09.09 Iron – 128 (range 35 – 155)07.09.09 Iron Saturation (SAT) – 48 (range 15 – 55)07.09.09 Iron TIBC – 264 (range 250 – 450)07.09.09 Iron UIBC – 136 L (range 150 – 375) 07.09.09 Ferritin – 50 (range 10 – 291)As you can see, my saturation was too high, my UIBC was too low and my serum iron was creeping towards the top of the range - even though my ferritin was normal. My doctor of course said I was " fine " and there was nothing to worry about, but I went ahead and donated blood anyway. From what I've read, one blood donation typically decreases your ferritin by 30 points, and I'm still not experiencing any anxiety. I plan to recheck in a month or so and then keep tabs on it on a regular basis. There's no history of hemochromatosis in my family, so I don't think that's my issue...I think my body just likes to hang onto iron a bit more than it should. ~Rainbow~29 year old Female 5'6 " 130lbsDx: Hashi's, AF, Wheat SensitivityRx/OTC: Cynomel 37.5mcg, HC 27.5mg, Potassium Cl 20meq, Sea Salt 1.75tsp My Log: http://tinyurl.com/pvgjmbMy Blog: http://hyporainbow.wordpress.com >> How did they know you had iron overload disease? Were your iron levels high and ferritin low? This is how my levels came out after the last blood test. I was supplemnting a lot of iron at the time so I don't know if I can still supplement or not. I don't know if it was just from the supplements still in my system after 2 days. > My doctor said that you cannot have iron overload disease with low ferritin. Is this not true?> It is really confusing.> Liz W> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Well, we always say ferritan but personally, I think it's both iron and ferritan. My ferritan is not horrific (49) but no iron is low and I'm anemic and I think that's what's keeping me from optimizing. We say a minimum of 50 so I'm barely there but I really think there's something to this issue of needing good iron numbers as well. Birrdyy, I've been wondering about this: Isn't it just iron in general, not specifically ferritin, that helps us tolerate thyroid? Isn't ferritin just a storage iron? I've read that ferritin is just actually a protein that's only 20% iron...so wouldn't that make it less potent? I sort of think now that people who are going solely by ferritin may be making a mistake without looking at the rest of the picture. Kind of like how measuring T4 only isn't the best way to assess thyroid function. It's just a thought, any ideas? I'm confused here! Thanks, Harper > > > > > > How did they know you had iron overload disease? Were your iron levels > > high and ferritin low? This is how my levels came out after the last blood > > test. I was supplemnting a lot of iron at the time so I don't know if I can > > still supplement or not. I don't know if it was just from the supplements > > still in my system after 2 days. > > > My doctor said that you cannot have iron overload disease with low > > ferritin. Is this not true? > > > It is really confusing. > > > Liz W > > > > > > > > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I hope it works out for you. I really do. I'm just worried with a ferritan of 20 you will most likely be in a world of hurt when you try to raise T3. I'm not trying to say anything mean, you certainly have to do what you feel is right but I'm worried for you especially since you're on T3 only.  How much T3 are you on now? As far as taking iron without testing....that's why we always always say to test before supplementing. I hope no one understands any differently. We always say ferritan and that it's very important to have an iron panel as well. I think anyone who supplements something like iron before testing is making a big mistake, just as you mentioned. I don't think I made a mistake at all. My thyroid numbers didn't look " that bad " for the 15 years before I was diagnosed with hypothyroidism, but I'd had the disease for at least that long. And leaving it untreated has caused all kinds of issues. I know better than to wait around for things to get bad before doing something about them. You don't excrete iron. So my numbers were never going to go down on their own. They were only going to continue to rise. And I'd rather not wait until my organs are full of iron before taking steps to correct the issue. I'm sure you know as well as I do that the normal ranges labs use are crap. Every hemochromatosis website I found said that iron saturation should be no higher than 35-40% - so by that measure, yes I was above the range. I understand that ferritin is important, but it's dangerous for people to supplement iron if they don't need it. When I first joined these groups, I assumed that most people with thyroid/adrenal issues had low iron and started supplementing before doing any iron testing...because I'd heard SO many people talk about it. Now, that was a stupid decision on my part - I'm not blaming anyone but me. But it's an easy trap for newbies to fall into and I'd hate to see someone get harmed down the road by making the same mistake I did. ~Rainbow~29 year old Female 5'6 " 130lbsDx: Hashi's, AF, Wheat SensitivityRx/OTC: Cynomel 37.5mcg, HC 27.5mg, Potassium Cl 20meq, Sea Salt 1.75tsp My Log: http://tinyurl.com/pvgjmbMy Blog: http://hyporainbow.wordpress.com >> How did they know you had iron overload disease? Were your iron levels high and ferritin low? This is how my levels came out after the last blood test. I was supplemnting a lot of iron at the time so I don't know if I can still supplement or not. I don't know if it was just from the supplements still in my system after 2 days. > My doctor said that you cannot have iron overload disease with low ferritin. Is this not true?> It is really confusing.> Liz W> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 EXCELLENT EXCELLENT EXCELLENT. That's some great info and better than I could've said. You will feel horribly hyper without being hyper. It's horrid. I've done it twice and that was with 40ish ferritan. I would totally agree...if her ferritan when down to 20 she'll be in trouble. Hopefully, the one donation doesn't do to much damage. So basically the symptoms you can look forward to are those associated with hyperthyroidism because on a blood serum level your body will interepret the pooled thyroid (because it can't bind)as hyper. On a tissue level, you will also remain hypoT. This is because the thyroid can't contribute to usable forms of energy(ATP). Its not a fun ride. BTDT. With a ferritin of 15. Get infusions:) ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Very good question, Rainbow. I hope she will respond because I have no clue. For me my ferritan 49 doesn't correspond to iron 52. My ferritan isn't horrific but iron almost at the bottom of range (40-152). It's a very good question. Is it the iron or the ferritan or both. If your ferritan did drop to 20 you will know in about 20mcg of T3 if that's going to be a problem. Hopefully not. So it's iron that the body is using - not ferritin. But typically a person's iron levels will coincide with their ferritin level - is that about right?But that wouldn't apply to a person like me who had lowish ferritin with highish iron and high iron saturation. So, in my case, I would need to rely more on iron levels than ferritin levels. Correct? ~Rainbow~29 year old Female 5'6 " 130lbsDx: Hashi's, AF, Wheat SensitivityRx/OTC: Cynomel 37.5mcg, HC 27.5mg, Potassium Cl 20meq, Sea Salt 1.75tsp My Log: http://tinyurl.com/pvgjmbMy Blog: http://hyporainbow.wordpress.com >> How did they know you had iron overload disease? Were your iron levels high and ferritin low? This is how my levels came out after the last blood test. I was supplemnting a lot of iron at the time so I don't know if I can still supplement or not. I don't know if it was just from the supplements still in my system after 2 days. > My doctor said that you cannot have iron overload disease with low ferritin. Is this not true?> It is really confusing.> Liz W> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I agree with you on those numbers but Rainbow has already donated once. I'm worried now that she will have a hell of a time with T3. Let's keep our fingers crossed.  Serum ferritin level - Ferritin is an indicator of stored iron in the body. Ferritin is the main protein that stores iron for areas that need it, especially the liver and the bone marrow where red blood cells are made. The iron ferritin level is the first in line to drop if the individual suffers any iron insufficiency from diet,hypothyroidism, malabsorption or loss during heavy or menstruation lasting more than 5 days. A drop in the iron ferritin level occurs before any depletion in serum iron (as seen in iron-deficient anemia) and may decrease significantly without any obvious symptoms whatsoever. While the serum ferritin level at which a deficiency can be claimed is hotly argued by different schools of doctors, an excess of serum ferritin is generally agreed to be a bad thing. So no, iron levels don't always coinside with ferritin levels. Often, ferritin levels go low before iron serum levels do. If ferritin didn't directly effect tissues (not just total iron serum levels), high ferritin (above 150) wouldn't be so dangerous. If that was the case, only high iron serum levels would be be dangerous. Iron serum levels can change rapidly, so I believe ferritin to be more accurate of a steady state. 07.09.09 Iron – 128 (range 35 – 155) > >>> 07.09.09 Iron Saturation (SAT) – 48 (range 15 – 55) > >>> 07.09.09 Iron TIBC – 264 (range 250 – 450) > >>> 07.09.09 Iron UIBC – 136 L (range 150 – 375) > >>> 07.09.09 Ferritin – 50 (range 10 – 291) I see no levels that are out of range high- am I missing something here??? All this last test means is that you are not clinically anemic YET. An elevated transferrin-iron saturation percentage is usually greater than 50%. Just as early signs of adrenal fatigue are HIGH cortisol, this may be your bodies way of compensating for low storage iron (resulting in a higher - but NOT high saturation level). Also, transferrin levels are highly genetic and NOT the sole way to diagnose iron overload. Of course all this is your decision but I think it would be foolish to put yourself at risk for anemia before taking at least one more blood test. > >>> > > >>> > How did they know you had iron overload disease? Were your iron levels > >>> high and ferritin low? This is how my levels came out after the last blood > >>> test. I was supplemnting a lot of iron at the time so I don't know if I can > >>> still supplement or not. I don't know if it was just from the supplements > >>> still in my system after 2 days. > >>> > My doctor said that you cannot have iron overload disease with low > >>> ferritin. Is this not true? > >>> > It is really confusing. > >>> > Liz W > >>> > > >>> > >> > >> > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Can I ask you since you seem to know a whole bunch about iron. Why would someone have a not horrid ferritan but low iron panel and be anemic? That's me. I meant ferritin under 60. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I feel fine and re-started and am tolerating my thyroid med perfectly well---all with a ferritin of 11. sol birrdyy wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Yes, Sol for sure the exception. HOw much T3 are you on now? If it's low do you think you'll still be okay once you go up on the T3? I sure hope so. I feel fine and re-started and am tolerating my thyroid med perfectly well---all with a ferritin of 11. sol birrdyy wrote: EXCELLENT EXCELLENT EXCELLENT. That's some great info and better than I could've said. You will feel horribly hyper without being hyper. It's horrid. I've done it twice and that was with 40ish ferritan. I would totally agree...if her ferritan when down to 20 she'll be in trouble. Hopefully, the one donation doesn't do to much damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Yes, Sol for sure the exception. HOw much T3 are you on now? If it's low do you think you'll still be okay once you go up on the T3? I sure hope so. I feel fine and re-started and am tolerating my thyroid med perfectly well---all with a ferritin of 11. sol birrdyy wrote: EXCELLENT EXCELLENT EXCELLENT. That's some great info and better than I could've said. You will feel horribly hyper without being hyper. It's horrid. I've done it twice and that was with 40ish ferritan. I would totally agree...if her ferritan when down to 20 she'll be in trouble. Hopefully, the one donation doesn't do to much damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 iron 52 (40-175)IBC 301 (250-450)% sat 17 (15-50)ferritan 49I know iron isn't at the bottom but shouldn't it be a heck of a lot better with a ferritan of almost 50Oh, also I'm anemic. RBC 3.88 (3.8-5.10)Hemoglobin 10.9 (11.7-15.5)Hematocrit 32.36 (35-45)This is not the first time I've been anemic or had a low iron panel.Any insight would be much appreciated. This is stumping me and I'm having a hard time getting optimized on thyroid meds. Been trying for almost a year. What's your panel look like? > > > I meant ferritin under 60. > > > > > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 birrdyy wrote: Can I ask you since you seem to know a whole bunch about iron. Why would someone have a not horrid ferritan but low iron panel and be anemic? That's me. There are all kinds of variations of iron anomalies. One book I read stated that approx 25% of people with hemochromatosis are also anemic (as in at the same time). Those people are storing iron in body tissues at the same time as having a low ferritin. So low ferritin alone doesn't mean someone isn't storing iron in their organs. I meant to add in my earlier post repeating my low ferritin, that I just do not believe that I'm that much of an anomaly. When I get my complete iron panel and vit D test next month I hope I will know more. But there are a couple of things from recent blood tests-- in addition to ferritin of 11 I also have a darn good level of B12 and a high level of folate. Perhaps those are partly why I tolerate thyroid fine with such a low ferritin.........I will repeat for those not here back then that I went hyper right away when I started de-ironing and then a month later started on progesterone. So supplementing progesterone is helping me also. Another thing is copper. I came to believe that excess copper was one of my problems and have been working on that, for several months now as well, supplementing B6 (P5P) zinc, manganese, and evening primrose oil. So though I do have low ferritin NOW, high ferritin was definitely interfering with thyroid utilization before I started donating blood. Maybe I do ok with the low ferritin because I'm close to having all my OTHER ducks in a row at last. Your posts re T3 being not tolerated with low ferritin, though, tempt me to go back on straight T3 just to see how I do (on dessicated now). Common sense tells me not to mess with what is working, but I'm SO curious........ sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Oh, gosh...don't mess with things if they're going well. I wonder if the progesterone is the key here. You went hyper from de-ironing...doesn't that say it all? And then better with progest. Again,doesn't that say something? I think my ducks are in a row too. I have a very high B12 (1600) and very nice folate and am also supplementing a good amount of zinc and still I have had problems twice with low ferritan/iron and thyroid. birrdyy wrote: Can I ask you since you seem to know a whole bunch about iron. Why would someone have a not horrid ferritan but low iron panel and be anemic? That's me. There are all kinds of variations of iron anomalies. One book I read stated that approx 25% of people with hemochromatosis are also anemic (as in at the same time). Those people are storing iron in body tissues at the same time as having a low ferritin. So low ferritin alone doesn't mean someone isn't storing iron in their organs. I meant to add in my earlier post repeating my low ferritin, that I just do not believe that I'm that much of an anomaly. When I get my complete iron panel and vit D test next month I hope I will know more. But there are a couple of things from recent blood tests-- in addition to ferritin of 11 I also have a darn good level of B12 and a high level of folate. Perhaps those are partly why I tolerate thyroid fine with such a low ferritin.........I will repeat for those not here back then that I went hyper right away when I started de-ironing and then a month later started on progesterone. So supplementing progesterone is helping me also. Another thing is copper. I came to believe that excess copper was one of my problems and have been working on that, for several months now as well, supplementing B6 (P5P) zinc, manganese, and evening primrose oil. So though I do have low ferritin NOW, high ferritin was definitely interfering with thyroid utilization before I started donating blood. Maybe I do ok with the low ferritin because I'm close to having all my OTHER ducks in a row at last. Your posts re T3 being not tolerated with low ferritin, though, tempt me to go back on straight T3 just to see how I do (on dessicated now). Common sense tells me not to mess with what is working, but I'm SO curious........ sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Thanks much. That sounds about right. I hadn't even thought that my 50 might not be the same as other peoples 50. That makes a lot of sense. I also have big problem with altitude and someone said, oh are you anemic and is your iron panel bad, I said yes and she says that's why. By the way, any idea how much iron a day is to much. I'm currently taking 200 of elemental but would love to take more to get those dang numbers up. I know 250 a day sounds reasonable but how about more than that. I know we always say 150-200 a day of elemental but that's maybe for normal folks. LOL By the way, I had a saturation % of 14 and iron of 50 a year ago. I'm an iron mess. WEll your transferrin (highly genetic) sucks (%sat) so that's probably why you'll need more iron than other ppl (don't worry so do I) probably for the rest of your life. As far as ferritin goes, it might be 50 (which initially doesn't seem that bad), but your 50 may not be the same as another person's 50 with a higher saturation %. So you may need a higher ferritin than most (yeah i'm in that club too)for thyroid to be utilized better. You're anemic- that tells it all. YOU NEED MO IRON:) > > > > > > > I meant ferritin under 60. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I wonder too if all this iron business is really putting a damper on my recovery from hhhhhhhhooooorid fatigue. I noticed that other folks seem to do better fatigue wise when they become unhypo and although I'm not all the way unhypo it would seem I could make some progress in that department. I have not. That has always been my number 1 problem. WEll your transferrin (highly genetic) sucks (%sat) so that's probably why you'll need more iron than other ppl (don't worry so do I) probably for the rest of your life. As far as ferritin goes, it might be 50 (which initially doesn't seem that bad), but your 50 may not be the same as another person's 50 with a higher saturation %. So you may need a higher ferritin than most (yeah i'm in that club too)for thyroid to be utilized better. You're anemic- that tells it all. YOU NEED MO IRON:) > > > > > > > I meant ferritin under 60. > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I'm on 32.5 and have been on anything from 25 to that 32.5 for about a year. how is your cortisol. i was stopped at exactly 60mcg of T3 till i got on HC. > > > > > > > > > > > I meant ferritin under 60. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Oh, now I remember you asking about that and said you doc would do it. Now that you say that I would have to think about that and get a doctor who has a clue. I may have one lined up.I would however be very nervous about doing that as much as I'm tempted. I have weird reactions to a lot of stuff and I wouldn't want something dripping in like that. I guess people have had some horrible reactions. Any idea about how much is to much for one day? I don't know- if I were you, I'd be half tempted to get just one iron infusion and see how it goes. I " m going to do that at my ferritin of 62.4......but i'm prone to anemia so I think I just need more iron than most ppl. IMO. > > > > > > > > > > > > > > > I meant ferritin under 60. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 My mom is very very anemic and has acquired iron overload with horribly high sat/iron etc and 1200 ferritan. So, yes anemia isn't always iron for sure. I also agree with you about how someone can have iron overload and low ferritan. That wouldn't work. Yes, you can have hemochromatosis and be anemic. But again, anemia and ferritin are sometimes independent factors. However, I don't see how you can have iron overload with a low ferritin. That defies the very definition. I guess it could happen but the only way you would know is to do a liver biopsy (which is where it mostly loads). YOu can be a single carrier of hemochromatosis (heterozygote) and only display partial symptoms of it (would explain highish iron without the high ferritin (like above 150) to diagnose it)but not have it because you aren't a homozygote carrier. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Yep, you are having hyper symptoms without being hyper. Maybe you need to check into infusions too? Are you also anemic and how's your iron panel. Ouch, your FT3 is low. Poor thing. Get that ferritan up and you'll be able to raise the T3. Thank you so much for this info.  This is exactly what is happening to me at the moment.  I didn't realise it could have such an impact. Im having heart flutters, skipped beats, nervous tension, anxiety etc yet my body is puffy, ive got brain fog again and Im gaining weight (quickly).  I have started on 200mg of elemental iron a day to bring my ferritin up from 30.  It was 56 when I started cytomel three months ago but its dropped rapidly.  I can barely tolerate 20mcg of Cytomel a day (and I have no thyroid). Will starting HC help with this problem too.  I need to be taking more than 20mcg of cytomel - my FT3 is 2.2 and TSH is 38. > > So basically the symptoms you can look forward to are those associated with hyperthyroidism because on a blood serum level your body will interepret the pooled thyroid (because it can't bind)as hyper. On a tissue level, you will also remain hypoT. This is because the thyroid can't contribute to usable forms of energy(ATP). Its not a fun ride. BTDT. With a ferritin of 15. Get infusions:) > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 I have absorption issue too. I'm gluten intolerant with a pretty bad absorption problem. I do okay with most supplements except for magnesium for some reason and of course not getting that dang iron. I'm just now taking a better iron and did go up 9 points in 6 weeks. I am getting a better iron that recommended so we'll see about that. Is there a different between iron injections and IV? It's the same thing just going in differently right? I might get my doc to do half a normal dose of infusion. I just have a horrible leaky gut so anything that goes in my tummy is toast at the most. I'm gonna research it more and see which kind I like best and report back:) > > > > > > > > > > > > > > > > > > > I meant ferritin under 60. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 That mumbo jumbo to me but thanks for posting it. Here's the calculation for dextran: Total iron infusion: Dose of iron dextran (mg) = weight(kg) x [target Hb(g/L) – actual Hb(g/L)] x 0.24 + 500 mg iron for iron stores (if body weight >35 kg) And it says for clinical use of ferritin under 50 sooo.... ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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