Re: Beth - Allowing Dr's to contribute

[Guest guest]

> I think if we allowed dr's access to our little group they'd

> undermine what we're trying to do here. Just my humble opinion.

FWIW, physicians may join if they care to, and none of us would be

the wiser. The only way to prevent it would be to restrict

membership and screen everyone trying to join up. But my thought on

this, aside from not wanting to screen joiners, is that any physician

joining up would be doing so to gain perspective from MA sufferers

rather than to dispense advice. A physician would probably lurk very

lightly, this not being a peer/professional forum.

About hearing from doctors: I have this web page on PCOS, and part of

the narrative crabs about my having gotten rather superficial

treatment in the past from my doctors. I complained that OB-GYNs

tended to dismiss the seriousness of PCOS, offer mere cosmetic

solutions, etc. I wrote that in 1999, when it was truer than it is

today. In spite of the frustration I expressed on that page, I have

received some really nice e-mail from several REs over the

years . . . and one really sarcastic one from an OB-GYN, which he

finished up by offering me cosmetic advice, LOL.

From my perspective, it just served to reinforce my high opinion of

REs. :-)

Beth

SU

[Guest guest]

>In spite of the frustration I expressed on that page, I have

> received some really nice e-mail from several REs over the

> years . . . and one really sarcastic one from an OB-GYN, which he

> finished up by offering me cosmetic advice, LOL.

>

That's pretty cool that some MDs wrote to you for your PCOS website.

Have any sent you an email about this site?

Dr. Valle kept telling me that he wants one of his med

students to do a project on the support that women receive on the

internet. I was wary to give him this website, but I had mentioned

it to him. In retrospect, after his failed handiwork, I'm glad that

I can speak freely here about my experience. Although it would be

nice to have a professional opinion when we are uncertain, I think

that my most burning questions have been able to be answered here by

other women who have already experienced it and I am able to hear how

different each dr approaches a certain problem.

Sara

[Guest guest]

>In spite of the frustration I expressed on that page, I have

> received some really nice e-mail from several REs over the

> years . . . and one really sarcastic one from an OB-GYN, which he

> finished up by offering me cosmetic advice, LOL.

>

That's pretty cool that some MDs wrote to you for your PCOS website.

Have any sent you an email about this site?

Dr. Valle kept telling me that he wants one of his med

students to do a project on the support that women receive on the

internet. I was wary to give him this website, but I had mentioned

it to him. In retrospect, after his failed handiwork, I'm glad that

I can speak freely here about my experience. Although it would be

nice to have a professional opinion when we are uncertain, I think

that my most burning questions have been able to be answered here by

other women who have already experienced it and I am able to hear how

different each dr approaches a certain problem.

Sara

[Guest guest]

Well, I should probably follow up my post from yesterday by saying I

have yet to see an RE (my appt is Dec 11!), so I may have a bit of a

jaded view here. I mean, I like my OB, but it's been a bit

frustrating, asking for tests he's saying " no " to, etc.

Beth, you make a good point that anyone can sign up for the group, so

for all any of us know, we already have doctors in our midsts! I

think it might actually be helpful for OBs and even REs to read what

we write, and to hear our perspective on things. Maybe it would help

them as they give care to other women with MA's.

Tina

31, 2 m/c, dx BU

[Guest guest]

Well, I should probably follow up my post from yesterday by saying I

have yet to see an RE (my appt is Dec 11!), so I may have a bit of a

jaded view here. I mean, I like my OB, but it's been a bit

frustrating, asking for tests he's saying " no " to, etc.

Beth, you make a good point that anyone can sign up for the group, so

for all any of us know, we already have doctors in our midsts! I

think it might actually be helpful for OBs and even REs to read what

we write, and to hear our perspective on things. Maybe it would help

them as they give care to other women with MA's.

Tina

31, 2 m/c, dx BU

[Guest guest]

> That's pretty cool that some MDs wrote to you for your PCOS

website.

> Have any sent you an email about this site?

A UK OB-GYN (Danny Tucker) wanted to list this as a resource link on

his web page, intended for patients. He did not join, just

approached me for more information. His consuming interest right now

seems to be to encourage fellow physicians how to deal with net

citations and how to communicate with patients in a better way than

is currently happening. He thinks too many alienated women are

turning away from consulting doctors to consulting " junk " information

on the web.

I agree. It's really too bad when people trust sources that go no

deeper than a teenager typing in her room, or take anecdotes from

bulletin boards to their doctors as " proof " of what they need.

My impression was that Tucker wanted better Dr./Pt. communications

and greater recognition of genuinely solid medical information to be

found on the web.

Beth

SU

[Guest guest]

> That's pretty cool that some MDs wrote to you for your PCOS

website.

> Have any sent you an email about this site?

A UK OB-GYN (Danny Tucker) wanted to list this as a resource link on

his web page, intended for patients. He did not join, just

approached me for more information. His consuming interest right now

seems to be to encourage fellow physicians how to deal with net

citations and how to communicate with patients in a better way than

is currently happening. He thinks too many alienated women are

turning away from consulting doctors to consulting " junk " information

on the web.

I agree. It's really too bad when people trust sources that go no

deeper than a teenager typing in her room, or take anecdotes from

bulletin boards to their doctors as " proof " of what they need.

My impression was that Tucker wanted better Dr./Pt. communications

and greater recognition of genuinely solid medical information to be

found on the web.

Beth

SU

[Guest guest]

>

> My impression was that Tucker wanted better Dr./Pt. communications

> and greater recognition of genuinely solid medical information to

be

> found on the web.

>

I found this site by searching on Uterine Septum, finding one of

those " ask the doc " sites where people were e-mailing in questions

to a doctor. A doctor recommended this site as a good support

network to someone who had discovered they had a septum. I assumed

the doctor had been to this group, and I also assume there may be a

few lurking in the group already. It's not that docs aren't

welcome, I think, as much as the imbalance or alienation it might

cause if anyone felt that they were being overruled or belittled by

a medical professional, which seems to be a sore spot with many of

us here. It seems logical that this forum is mainly meant for women

who suffer from this congenital condition, with the aim to better

manage our situations as patients and find support from other women

who understand our pain. We all have our own docs whom we have

searched for and found mainly due to their experience and knowledge

and understanding of our conditions. We can share both our good and

bad experiences with others who may or may not be getting the care

they need. In this group we genuinely profit from hearing what

other people's docs have done, how they've managed things, surgical

techniques, etc. I am certainly not for banning docs from the

group. But I certainly don't feel that there's a need for a

resident doc dispensing advice either, because in my opinion the

ladies here have collectively covered more of the bases than any one

doc could ever cover. Mes deux centimes ...

xo,

p.s. This group is one of the blessings I am counting this year!