Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 In a message dated 6/30/00 9:40:18 AM Eastern Daylight Time, cac@... writes: << an EEG was done, which came back abnormal. She has seizure discharges when she sleeps. Is it possible the gluten and casein would have this type of effect on the brain? >> A few weeks ago at a HFS I met a lady who has an 11 year old non-verbal autistic girl. The girl had seizures, and this mom told me that after going GFCF, the seizures reduced drastically. Just thought I'd mention it since you had the question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 Dear Aimee, What were the signs that she was having a seizure? I had suspected absence seizures before. Then once going GFCF 5 weeks ago we saw a horrible reaction to a gluten slip up, he was rolling his eyes back to the right upper corner over and over ALL day. Once I took out these gluten offenders (calcium supplements that were supposedly safe) the eye rolling has decreased tremendously but not completely gone. It has only been 3 days since I stopped the supplement however. Thanks for your info, Re: Abnormal EEG > Hi Carol, In my experience, my 3yo daughter was diagnosed with absence > seizures which she was having all day and during sleep. I can recognize > them now that I know what I'm looking at. She went on Tegretol 3 x day > in March. I started her gfcf April 10. She was still having them the > first month once in a while, then I stopped noticing them. We had a > major diet slip up and the next day I saw her have about 3 seizures even > on the med. Now that we're nearing 3 months the fog is lifting I never > see her have one unless we have a gluten slip up. She's still on the > med. and I want to take her off as I believe the gluten was causing her > seizures but I can't until I talk to the neurologist, who isn't > supportive of my diet effort at all. Anyway, in 's case I believe > the diet has helped her seizures more than the medication. Hope this > helps. > > Aimee in Atlanta > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 In a message dated 6/30/00 1:39:32 PM Eastern Daylight Time, aimees_kids@... writes: << Hi Carol, In my experience, my 3yo daughter was diagnosed with absence seizures which she was having all day and during sleep. I can recognize them now that I know what I'm looking at. >> Can you tell me what these seizures look like? Thanks, and good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 Hi Carol, In my experience, my 3yo daughter was diagnosed with absence seizures which she was having all day and during sleep. I can recognize them now that I know what I'm looking at. She went on Tegretol 3 x day in March. I started her gfcf April 10. She was still having them the first month once in a while, then I stopped noticing them. We had a major diet slip up and the next day I saw her have about 3 seizures even on the med. Now that we're nearing 3 months the fog is lifting I never see her have one unless we have a gluten slip up. She's still on the med. and I want to take her off as I believe the gluten was causing her seizures but I can't until I talk to the neurologist, who isn't supportive of my diet effort at all. Anyway, in 's case I believe the diet has helped her seizures more than the medication. Hope this helps. Aimee in Atlanta On Fri, 30 Jun 2000 13:15:16 -0000 cac@... writes: > Is it possible the gluten and casein would have this type of effect on the brain? Has > anyone else heard of this? Thanks for your replies. > Carol Cozad ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 My son has nightime seizures - resulting in bedwetting and excessive drooling. They are called Rolandic seizures. He is now taking Tegretol and they are beginning to get under control. We are still working on dosage. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 My son has nightime seizures - resulting in bedwetting and excessive drooling. They are called Rolandic seizures. He is now taking Tegretol and they are beginning to get under control. We are still working on dosage. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2000 Report Share Posted July 1, 2000 This response is mainly for Kathy and . Starting about 9 mos. she started zoning out and we wouldn't be able to reach her and she would visibly snap out of it and start screaming. We would check everything and never find anything wrong. As she got older she got even spacier and very off balance, extremely low tone, laying on the floor all day. She would still have episodes where we would totally lose her for 30 seconds or so. The doc. always said not to worry she's just a little spacey!!! Well, it took me 2 peds. and my own recommendation to get her to the neurologist and sure enough it was seizures. Since being on the diet she's no longer got that spacey look. Her eyes are very clear so when she has one she usually leans over and her mouth drops open and she drools a little and no matter what you do you can't get a reaction from her and now she just snaps out of it and resumes whatever she was doing. We used to wonder how she fell down the stairs as much as she did but she was probably seizing. I haven't seen one since our last infringement about a month ago. I want her off the med. but don't know quite how to go about it! Kathy did you go off of the med. with your docs. support or not? I know her neuro will protest as she's already anti-diet and thinks I'm a nut as it is. Thanks in advance. Any other questions feel free to ask away. Aimee in Atlanta On Fri, 30 Jun 2000 14:07:41 -0000 " Alan " writes: > Dear Aimee, > > What were the signs that she was having a seizure? ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2000 Report Share Posted July 3, 2000 Aimee, I took off the meds without really getting a yes or no from her neurologist. I just called his office one day and said that things were pretty unbearable and I wanted off the Lamictal and could he give me a schedule for how to do it. The nurse left one on my machine that afternoon. I never regretted doing it, even though her seizures, which had gone down to one every night or two, got a little worse - maybe two or three /night. But her behavior improved. When I put her on the diet,I wasn't expecting much seizure wise, but either the diet or the DMG, or both, have certainly had a positive effect. Now she's back to having one a night, or sometimes not at all. And they are much less severe. Kathy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.