Re: new to the group.

[Guest guest]

Welcome to the group, .

I don't know if I have any suggestions for you. If your BUN and creatinine

are Ok, at least you know you don't have any renal insufficiency. Have you

discussed this with another doctor besides the nephrologist? When there are

ongoing issues, sometimes it's best to discuss it with a family doctor, as

opposed to a specialist. The family doctor can sometimes see the bigger

picture that a specialist might miss or not care very much about. Perhaps a

second opinion could be arranged. How long have you been on daily aspirin?

That alone can eventually cause kidney problems.

The fact that a biospy was negative 4 years ago, but you continue to have

blood and protein in the urine seems to suggest that either the first biopsy

just didn't get enough good tissue to analyse, or else your situation has

evolved.

Anybody mention the possibility of a second biopsy? In terms of being

aggressive with your therapy, it's hard to be aggressive if they don't know

what you have.

Pierre

new to the group.

> Hi, my name is . Oh, boy, where to begin. I have'nt technically

been diagnosed with IGAN via biopsy. I had a biopsy 4 years ago that was

negative. I was brought to that point due to hematuria and proteinuria.

Since then, I've had " episodes " of gross hematuria lasting up to a month.

BUN and CREAT have always been okay, although above 1gram in 24hr urine.

Flank pain began about 1 year ago. I've been bleeding for 6 months straight

now and am very discouraged. No answers. Meds are Diovan 160mg/hctz daily,

toprol 50mg/d. ASA daily (had a stroke at age of 30), Darvocet prn

pain.(DAILY) So fatigued all the time. My nephrologist says that this is

either glomoulnephritis, or igan. Who knows. I am so tired of tests without

any answers. But still cant pee without the toilet looking like I'm having

a period. I have not had any doctor be aggressive with my therapy. Any

suggestions?

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