for new members and all of us who lurk

[Guest guest]

It has occurred to me, that as each of us has good

and bad days, wonderful and horrid days, weeks or

even months to years, and different variations and

stages of MS, it is good for new members to know

a few things about our apparently cheerful group.

Most of us are suffering far more than we are ready

to acknowledge--at least on a frequent basis. That

does not mean that some of us are not on a very

slippery and downhill slope, possibly an avalanche.

However, every single one of the hundreds of us who

belong to this group enjoys the freedom to moan,

groan, complain, gripe, criticise physicians, family

members, the dog--and the absolute worst that will

happen to any of us as we produce "the whine of

the month"--kind of like a monthly period, is that the

other members will rally round us and offer us some

"cheese" to go with our "whine."

We each feel that we suffer enough with MS, without

causing suffering to others. We do not criticise others

for being positive, nor chastise them for being really

down and negative. It all goes with MS. To put it

bluntly, we are just all "MSed up," and we are in the

"same boat," with more in common than not with our

"Multiple Surprises."

No one who drops in on a Saturday or a Sunday should

just assume that we are a group of people with only the

mildest of MS, who just chat mindlessly and without meaning.

Far from it; just because we are stalwart and endure, does

not mean that we are not, at least emotionally, and possibly

physically, falling apart.

Of course, rapidly progressive MS, which gallops, is a

tragedy of uncounted proportions, and we are all here

to help in any way we can, including being silent and

invisible, but present. We are HERE for all new members,

long-standing (sitting) members, and even the most mildly

affected. We are here for men, women, children, spouses,

relatives, and the dogs and cats and other pets among us.

O.K. 'nuff said.

Love to you all,

n

[Guest guest]

Yeah, I say each day when I get up. "Thanks to the one(s) who helped me get to this day". I don't know when the other shoe is going to drop nor do I want to know. If you would of meet me in the first days or weeks after my first attack you would of thought...she will only be here a few weeks then she will be gone. (from earth) I had MS and it was over. But then I found out that it was only the beginning of another obstacles in this game called life and I was going to get past it. I do not look forward to the day when I am like so many of us has been before flat on our back with our legs up in the air just waiting for that last sigh of breath. MS is not a death sentence any more...... it's just another thing we have to find our own way of working around or not. Thanks for the encouraging words!!! and I think of you as always smiling for some

reason, but I know you have your days too. Love, Love, Love (with an i) from OK

Subject: for new members and all of us who lurkTo: MSersLife Date: Saturday, January 10, 2009, 12:26 PM

It has occurred to me, that as each of us has good

and bad days, wonderful and horrid days, weeks or

even months to years, and different variations and

stages of MS, it is good for new members to know

a few things about our apparently cheerful group.

Most of us are suffering far more than we are ready

to acknowledge- -at least on a frequent basis. That

does not mean that some of us are not on a very

slippery and downhill slope, possibly an avalanche.

However, every single one of the hundreds of us who

belong to this group enjoys the freedom to moan,

groan, complain, gripe, criticise physicians, family

members, the dog--and the absolute worst that will

happen to any of us as we produce "the whine of

the month"--kind of like a monthly period, is that the

other members will rally round us and offer us some

"cheese" to go with our "whine."

We each feel that we suffer enough with MS, without

causing suffering to others. We do not criticise others

for being positive, nor chastise them for being really

down and negative. It all goes with MS. To put it

bluntly, we are just all "MSed up," and we are in the

"same boat," with more in common than not with our

"Multiple Surprises."

No one who drops in on a Saturday or a Sunday should

just assume that we are a group of people with only the

mildest of MS, who just chat mindlessly and without meaning.

Far from it; just because we are stalwart and endure, does

not mean that we are not, at least emotionally, and possibly

physically, falling apart.

Of course, rapidly progressive MS, which gallops, is a

tragedy of uncounted proportions, and we are all here

to help in any way we can, including being silent and

invisible, but present. We are HERE for all new members,

long-standing (sitting) members, and even the most mildly

affected. We are here for men, women, children, spouses,

relatives, and the dogs and cats and other pets among us.

O.K. 'nuff said.

Love to you all,

n

[Guest guest]

Well said n!

Jolie