Re: just diagnosed after 20 yrs.

[Guest guest]

I am 60 I was dx ed in late 2004 at 55 - I had my first MS

flare with fibro at age 17 - I went from fine to flat on my

back in 8 hours - literally overnight - the fibro was dx ed

in 6 weeks and the 4 1/2 months

just diagnosed after 20 yrs.

Date: Fri, 09 Jan 2009 20:44:53 -0000

>I'm in bad shape & haven't had any treatment yet. Brain

>scans a mess and in a lot of pain. My question is does

>treatment/meds really help the pain? I can't take much

>more of this, I'm 55 and it's been a long time since I've

>been pain free. Thanks.

>

>

[Guest guest]

This does cause one to wonder what other

lovely conditions, fibromyalgia being one of them,

that one can have along with MS--I have peripheral

neuralgia, neuralgia of the peripheral nerves, mosly

feet and legs, and Tri-Geminal neuralgia, currently

behaving itself, on one side of my face.

Tell your neurologist about all this pane, Geremy,

and perhaps more can be done.

Love to all of you in our group,

n

To: MSersLife Sent: Saturday, January 10, 2009 9:58:22 AMSubject: Re: just diagnosed after 20 yrs.

I am 60 I was dx ed in late 2004 at 55 - I had my first MSflare with fibro at age 17 - I went from fine to flat on myback in 8 hours - literally overnight - the fibro was dx edin 6 weeks and the 4 1/2 months just diagnosed after 20 yrs.Date: Fri, 09 Jan 2009 20:44:53 -0000>I'm in bad shape & haven't had any treatment yet. Brain>scans a mess and in a lot of pain. My question is does>treatment/meds really help the pain? I can't take much>more of this, I'm 55 and it's been a long time since I've>been pain free.

Thanks.>>

[Guest guest]

There are many prescition meds that may help:

Rebif, Betaseron, Avonex, Copaxone, and for the

nerve pain, sometimes Neurontin.

Othes will have many more suggestions.

Can you tell us a bit about yourself, where you

get your MS care, and how you came (finally) to

be accurately diagnosed.

Love to you, Connie,

n Rojas, wMS

>

> I'm in bad shape & haven't had any treatment yet. Brain scans a mess

> and in a lot of pain. My question is does treatment/meds really help

> the pain? I can't take much more of this, I'm 55 and it's been a long

> time since I've been pain free. Thanks.

>

[Guest guest]

>

> I'm in bad shape & haven't had any treatment yet. Brain scans a mess

> and in a lot of pain. My question is does treatment/meds really help

> the pain? I can't take much more of this, I'm 55 and it's been a long

> time since I've been pain free. Thanks.

>

[Guest guest]

Sorry about the blank post--

Dear Connie, please do tell us as much

as you can about your MS, and how it af

fects you. We will do all we can to help.

Sometimes, I send links to web sites that

can help--whatever we can do, we are happy

to do it.

Love to you,

n

> >

> > I'm in bad shape & haven't had any treatment yet. Brain scans a

mess

> > and in a lot of pain. My question is does treatment/meds really

help

> > the pain? I can't take much more of this, I'm 55 and it's been a

long

> > time since I've been pain free. Thanks.

> >

>

[Guest guest]

Sorry so late in answering, I tried Avonex first for 3 months and was in pain allot, more then I was out of it, even during my sleep I was in pain. (DH said I groaned while sleeping) Then I tried Rebif and again was in none stop pain. I felt sick like the flu all the time and was told that would go away but I didn't give it a chance to go away before I stopped the Rebif and went on to LDN. I can't say that I am always pain free but I sure know I am so much better then I was.

Love as Always,Sometimes lurking, mostly reading, always caring.(with an i) from OK

Subject: Re: just diagnosed after 20 yrs.To: MSersLife Date: Sunday, January 11, 2009, 1:42 PM

>> I'm in bad shape & haven't had any treatment yet. Brain scans a mess > and in a lot of pain. My question is does treatment/meds really help > the pain? I can't take much more of this, I'm 55 and it's been a long > time since I've been pain free. Thanks.>