Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 I just have to ask a stupid question, Vicki...if you are on meds to help the DM/PM/IBM..why is that self-same medicine making you feel sick??? It's like trading one sickness for another, eh? Tell me, is 30 mg. of prednisone a lot? Based on your experiences, how did you feel when you first started it...did it make you all weak like I've read? Gee... Lynn --- anzavic@... wrote: > > > Hello Bo... good to hear from you again. > I've also read the book on myositis and found it > interesting that many > times PM is diagnosed first only to find out later > on it's IBM. The > process of regaining strength and feeling better > does take a while. I > hit the 3 yr mark in Oct and I'm much better than > last year. I know I > won't gain back the muscles I've lost due to the > damage that was already > done. I also don't get nearly as sick as I use to > when I go out. Now > that is something for me.... > > Another thing to look at is your meds. If your CPK, > sed rate and > aldolese are still high then your meds need to be > adjusted. If they're > normal, like mine have been for 2.5 yrs, then maybe > backing off on the > meds might help you. I started to feel so a lot > better when I got off > the Imuran... that sick feeling stopped. > > What drugs are you currently on and what have your > labs been like? > > Take care, > > > > > Quote Link to comment Share on other sites More sharing options...
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