Re: My story...

[Guest guest]

I am trying to learn about this condition. I am age 60, and 15 years ago

total testosterone was about 200. I was placed on deletesteral, but I quit

because the leg where I injected hurt for 2 or 3 days afterward.

I do not have much facial hair(shave every third day, as does my father so

thought it was inherited)or body hair, especially chest and upper legs.I was

also had fatigue, depression symptoms, and in restrospect, did not function

well.

Was unable to have sex after I stopped TR, which has now been ten or more

years. I came back from a business trip earlier this month with prostatitis,

and the doctor told me the prostate needed to be emptied regularly.

I decided to ask for some Viagara. Very pleased with the result,but I can not

achieve penetration. I do ejaculate. My family practice physician is willing

to try TR, but only after the blood tests come back. He is not sure that TR

will help make the erection stronger to the point that I can penetrate. Any

thoughts on if the TR will make the erection strong enough to penetrate. My

wife does not think there is much difference between the strength of the

erection if the dose was 25,50, or 100(we have tried all three).

I would appreciate your comments, including what might make the erections

stronger. I am very pleased that I can have an erection again!!!!

I am going to work with my fam prac doctor and my urologist for a while. If I

don't get satisfactory results, I will likely contact a referral source. At

one time I was given the names of several doctors who specialized in impotency.

Look forward to your comments.

G.K.

> My symptoms were so gradual I didn't even notice but finally I

> went to the doctor and we started drawing blood and looking for the

> problem. The symptoms were extreme fatigue, sleeping 10 or 11 hours

> a day and still taking a nap, no motivation, poor memory and unable

> to make a decision, in short, no quality of life.

> After over a year, the doctor finally said he was stumped.

> About that time I ran into a friend that said he had the same

> symptoms and the doctor perscribed Androderm. He had to change to

> Androgel because he was alergeic to the patch glue so he had a few

> left over.

> He gave the extra patches to me and after a few days, problem

> solved. I mowed the yard, fixed a tolit and was my old energetic self.

> I reported this to the doctor and he referred me to a specialist,

> an endocrinoligist that gave me more tests. (after a three month

> layoff of testosterone that make me feel like crap again)

> Test results:

> testosterone 292 (241-827)

> freee testosterone 37.1 (29-128)

> LH 3.7 (1-10.2)

> prolac 4.3 (3-16)

> In her infinite wisdom she told me I was normal, never mind the

> symptoms! She did say I might have sleep apenia and I'll have that

> checked one of these days.

> In my infinite wisdom, I found another doctor, turns out he is on

> testosterone and he did write me a prescription for Androgel. The

> patehes don't seem to stick to my body well. The problem now is the

> cost, $180 at Costco for a 30 day supply. The doctor says he takes

> the shots and I may try that soon.

> The situation now is great, high quality of life, lots of energy.

> I even get a little exercise every day. I'm 62 and don't feel my age.

> My advice; find a " good " doctor, do the blood tests and if you're

> on the low side, take testosterone and start living again!

> Jim

>

>

>

>

>

[Guest guest]

The following might be of some help for STD problems. A urologist would know

which antibiotics would be of help. It is important to have partners seek

medical help before it become infections become chronic and systemic.

_http://www.urologychannel.com/std/index.shtml_

(http://www.urologychannel.com/std/index.shtml)

_http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9899.html_

(http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9899.html)

_http://www.med.umich.edu/1libr/aha/aha_chlammen_crs.htm_

(http://www.med.umich.edu/1libr/aha/aha_chlammen_crs.htm)

[Guest guest]

~

Bless your heart ! ! !

I am so sorry you are going thru all this mess.

I believe that you finally found the right place

to share your story. Wonderful , wonderful

people here with stories just like yours, and

with proper explant and detoxing , nutrician,

and tons of patients, your body can heal itself.

Welcome to the Sisterhood !

Hugs N Prayers~

DedeCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

>Thanks DEDE, currently I am experiementing on how to reply and get

properly posted. I have started typing in the box at the very top

now instead of towards the bottom...I have also relplied using the

email option and not sure where that is getting posted...NJ

> ~

> Bless your heart ! ! !

> I am so sorry you are going thru all this mess.

> I believe that you finally found the right place

> to share your story. Wonderful , wonderful

> people here with stories just like yours, and

> with proper explant and detoxing , nutrician,

> and tons of patients, your body can heal itself.

> Welcome to the Sisterhood !

> Hugs N Prayers~

> Dede

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

NCID=aoltop00030000000001)

>

[Guest guest]

>I am still not getting posted correctly..I need to call someone,

anyone willing to give me a call to walk me through how to use this

website...I am at 480-629-4098...thanks

> ~

> Bless your heart ! ! !

> I am so sorry you are going thru all this mess.

> I believe that you finally found the right place

> to share your story. Wonderful , wonderful

> people here with stories just like yours, and

> with proper explant and detoxing , nutrician,

> and tons of patients, your body can heal itself.

> Welcome to the Sisterhood !

> Hugs N Prayers~

> Dede

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

NCID=aoltop00030000000001)

>

[Guest guest]

. . .

You certainly have found a home! We know what you're going through and we know you can get your life back!

Obviously finding the right doctor is first . . . You're already in the process of doing that. . . Next is getting your diet in order. . . I recommend "The Maker's Diet" . . . The idea is to establish a healthy digestive system so your body can get the nutrients it needs to heal itself. . .

Chances are good you have a fungal issue going on . . . Here's a test you can do at home: http://www.victorie-inc.us/Threelac_Candida_Free_Test.htm Also, read "The Yeast Connection". You'll see how fungal problems can mimic a host of diseases. Until you have it your implants out, have fungal issues under control and have time to detox, you really won't know what issues you have left. One concern is adrenal fatigue . . . but let's save that for later.

Fungal problems cause one to crave sugar, because that's what fungus lives on! . . . That's why diet is so important. You have to stop the things that feed fungus (like sugar and refined grains), and give it the materials it needs to build health cells and restore beneficial organisms your body needs to repair damaged cells.

You can do "The Maker's Diet" on line . . . Search for "Garden of Life" . . . there's a subscription fee, but our ladies tell us it's delicious.

We recently started recommending Caprylic Acid . . . it's a capsule, derived from coconut. . . available at health food stores or online. . . Start slow . . . one at night, one the next morning, then one that night . . Each with a full glass of water. . . Each day, add one more in the morning or evening until you're taking 3600 mg a day. . When you reach full dose, continue for 16 days. . .

Before you finish Caprylic Acid, start phasing in a good probiotic - like Garden of Life Primal Defense. . . Start the same way as Caprylic acid . . . work up to eight capsules a day . . . continue indefinitely. . . After your spit test looks good, you can cut back.

There are other things that can help . . . Lots of them. . . It can get really confusing if we put all them on you right now. . . You have enough to consider right now.

One question . .. How is your son's health? . . . I started a group for the families of children made sick by breast implants. . . The thing that seems to help them most is a very healthy diet too . . . The sooner the better.

Hugs and prayers,

Rogene

[Guest guest]

Welcome! What Rogene has said here is the way to go....she knows her

stuff! What I can share with you is that I just flew to Denver and

had my implants removed by Dr. Huang. She came HIGHLY recommend by

this group and she was wonderful. I live in California and did not

want to take the chance of having a doctor not remove my implants

properly. I saw the physician who inserted my implants and she was

willing to remove them however she wanted to keep all my scar tissure

in me....the ladies here told me to run from her.

It has been a large expense but worth it. Now matter who you go to

it will be costly but your health is worth it. My insurance would

not cover this so I had to put it on a charge card. I have been so

sick, I needed the implants out as soon as possible. I thought good

and long about this and I wanted a qualified and recommended doctor.

Dr. Huang is very affortable. She did a great job on me and others

here in the group. I know that " flying " to have surgery is kinda of

scary but I must tell you, it was worth it! I had a friend come with

me and she took great care of me. It was not that expensive to fly

and stay there and I even rented a car. We got a hotel with a frig

and a microwave, really helpful.

Hope all works out for you and PLEASE keep asking all the ladies

questions. Were here for you!

Hugs to you!

Cherie

>

> . . .

>

> You certainly have found a home! We know what you're going through

and we know you can get your life back!

>

> Obviously finding the right doctor is first . . . You're already in

the process of doing that. . . Next is getting your diet in

order. . . I recommend " The Maker's Diet " . . . The idea is to

establish a healthy digestive system so your body can get the

nutrients it needs to heal itself. . .

>

> Chances are good you have a fungal issue going on . . . Here's a

test you can do at home: http://www.victorie-

inc.us/Threelac_Candida_Free_Test.htm Also, read

> " The Yeast Connection " . You'll see how fungal problems can mimic a

host of diseases. Until you have it your implants out, have fungal

issues under control and have time to detox, you really won't know

what issues you have left. One concern is adrenal fatigue . . . but

let's save that for later.

>

> Fungal problems cause one to crave sugar, because that's what

fungus lives on! . . . That's why diet is so important. You have to

stop the things that feed fungus (like sugar and refined grains), and

give it the materials it needs to build health cells and restore

beneficial organisms your body needs to repair damaged cells.

>

> You can do " The Maker's Diet " on line . . . Search for " Garden of

Life " . . . there's a subscription fee, but our ladies tell us it's

delicious.

>

> We recently started recommending Caprylic Acid . . . it's a

capsule, derived from coconut. . . available at health food stores or

online. . . Start slow . . . one at night, one the next morning, then

one that night . . Each with a full glass of water. . . Each day, add

one more in the morning or evening until you're taking 3600 mg a

day. . When you reach full dose, continue for 16 days. . .

>

> Before you finish Caprylic Acid, start phasing in a good probiotic -

like Garden of Life Primal Defense. . . Start the same way as

Caprylic acid . . . work up to eight capsules a day . . . continue

indefinitely. . . After your spit test looks good, you can cut back.

>

> There are other things that can help . . . Lots of them. . . It can

get really confusing if we put all them on you right now. . . You

have enough to consider right now.

>

> One question . .. How is your son's health? . . . I started a

group for the families of children made sick by breast implants. . .

The thing that seems to help them most is a very healthy diet

too . . . The sooner the better.

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Thanks for sharing your story, I can relate because my achalasia seemed to

behave very mildly for years.  I have had it for 22yrs now.  I'm surprised

that

Dr. Rice is telling you to wait, maybe they want to see what happens after the

botox and dilation wears off.  My biggest complaint was the swallowing....and

still is.  I am finally going to see someone about the surgery.  I think if

you

are worried about the insurance and the future, could you discuss that with

him? 

I also had no motility 17yrs ago, yet they still considered that mild???  I

think they obviously don't understand how awful it is to eat without being able

to swallow and have it go down...

Please stay in touch, I know some of the others will have more input.  

Best regards, Julee So Calif.

________________________________

From: thezisad <thezisad@...>

achalasia

Sent: Wed, August 11, 2010 2:34:37 PM

Subject: My Story...

 

Hello All,

I am a 23 year old male...2 years into this adventure.

I have been reading this forum for the past 3 months ever since I was diagnosed

(sort of) with Achalasia. About 2 years ago I began seeing a Doctor for the pain

and discomfort that I was feeling. He initially treated me as most Doctors tend

to do, as having GERD and nothing more serious. After about a year he began to

wonder if there perhaps was something additional that was occurring besides

simply GERD. Perhaps he realized that the PPI's and all other medications I was

on simply did not work.

A little over a year ago my Doctor began to search out other possible causes for

my issues. He initially did an endoscopy and biopsies to see if he could see any

problems...I came back totally normal. He then had me undergo blood tests,

x-rays and ultrasounds to see if there was any other issues...he found nothing.

3 or so moths ago my Doctor finally decided that he had used up each of his

options and that it was time for me to see the Doctors at the " Ivory Tower (i.e.

Cleveland Clinic - I am 1 hour away).

At that point I began seeing Dr. Achkar who initially did not understand why I

was there seeing him as my symptoms did not sound too serious to them. After my

initial consultation Dr. Achkar had me undergo a normal Barium Swallow test

which showed that I was not able to get the Barium to go down into my stomach

very easily. Eventually the Barium passed but it took some time and effort for

me to get it down. The strange thing about this test was that I also swallowed a

solid pill which passed straight through to my stomach with no issues what so

ever. Next I went up and had a manometry with the nurse. The manometry showed

that I had no motility in my esophagus what so ever. They were not able to get

any sort of a ready when I would swallow the water.

After this Dr. Achkar informed me that he believed I had Achalasia. He said that

while my test results for the Barium were unusual they still appeared to show

Achalasia as the manometry showed no motility.

The next step a few weeks later was an appointment with Dr. Rice who would be my

surgeon. Before meeting with Dr. Rice, I went and had a timed barium swallow so

that they could measure how backed up I was getting. This is where the fun

began...I passed the barium swallow with no issues. It appeared for the sack of

this test that I was completely normal. I went up and met with Dr. Rice and he

said that he did not believe that I had Achalasia because of the fact that if I

had Achalasia I would not be able to pass a timed barium swallow test.

Dr. Rice told me that he was very confused so he called Dr. Achkar and they

discussed my case. They agreed upon the fact that they believe I have an " early

stage " of Achalasia - that my esophagus has not motility but that my LES is

still working (at least intermittently). They then decided that the best course

of action was to do nothing and have me wait (in their opinion no more than 6

months) for my symptoms to get worse so that they could operate (Heller

Myotomy). They said that they would not operate on me if I was not at the " end

stage " of the disease.

A couple weeks went by and I started to feel much worse so I went back in to see

Dr. Achkar. He had me do another timed barium swallow and this time I had some

(about 1 inch) of barium get stuck for about 1 minute. Dr. Achkar noted that

this may be intermittent LES activity or it may truly be a worsening of my

disease. Dr. Achkar noted that because of the extreme paid that I had to deal

with it would be wise to have me do a small dilation with Botox to see if that

would help alleviate my issues.

I had the dilation and the Botox done 3 weeks ago and for the most part It has

been totally life changing. I am able to eat most anything I want and have not

had to deal with the extreme pain (I still deal with some intermittent vomiting

of liquids and breathing issues).

I was under the impression that if this Botox treatment worked that they would

have enough evidence of Achalasia advancement to operate on me...however, when I

spoke to Dr. Achkar he noted that the course of action we now need to take is to

simply allow the Botox to wear off in 6-12 months and then reset up appointments

with him at that time to figure out additions courses of action.

At this point, as you can imagine, I am getting very frustrated as I am

convinced that I need the operation as the " test procedure " worked exactly how

they needed it too. I am concerned that in 6-12 months we are just going to

start down this same road and end up with another treatment of Botox (which I am

very against)...Should I go and see another surgeon for a second opinion...I am

concerned that if I continue to simply sit and with I may lose my insurance, and

other life issues any come up.

Anyways, sorry for my rambling, I just needed to write out my story so that I

don't forget and so that I can receive some advice.

God bless!