Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Thanks Cookie, I look forward to reading your input. Cheers Cole welcome > So glad you found us . I found the group only about three months ago. I > have been recently diagnosed with PLS. I have fasciculations, clonus, hyper > reflexes, and abnormal MR Spectroscopy. > > This group has been a blessing. It is a wealth of information, a support and > encouragement for those " down days " , and when you see some of the folks tease > and banter one another it does nothing but make you laugh. > > No question is ever silly. No tear or frustration is ever unnoticed. > > I often think of those folks who are diagnosed with ALS and say thank you God, > as I know anyone of them would do anything to change places with me. > > So welcome , nice to have another friend in the group. > > Cookie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Jaycee, If you ever do make it here, maybe you'll know far enough in advance that you could attend one of our PLS/HSP " connections " . The last 3 years, we've had them in several places across the country. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 I'm sorry, . When I posted my welcome to Corrine, I didn't realize that you were also new to the list. Please accept my apologies for slighting you--it was not intentional. Somehow, I missed seeing your " arrival " . You will find that this wonderful group of caring, knowledgeable and generous people will offer support--immeasurable. Dolores (PLSer in CT) Welcome > I'm sorry you have this $#% & mess, but you aren't the alone now. > This group has been the best at helping with my problems. There is > something for everyone here. We even have a Data page for each > persons progression. > All My Best, > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Welcome Moshe: I thoroughly enjoyed reading your history and admire you for your positive attitude and determination. I feel that is what gets many of us through these trying times with this disease. I was diagnosed in May/02 and am using a four-wheel walker to get around. I am in the process of looking for something motorized for longer jaunts as my legs seem to be tiring much more. I also go to therapy to help maintain my muscles and am a real fighter and not about to give into this disease. Keep up the positive attitude and will look forward to hearing from you again. If you ever make a trip to Ontario, Canada please get in touch. I would love to make a trip to Israel but unfortunately I find it too difficult to travel alone. My best to you. Jo! Quote Link to comment Share on other sites More sharing options...
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