IgA-Carla

[Guest guest]

HI Carla,

That is just absolutely fantastic news that your kidney function is so great!

Wow, we are full of good news lately :-)

Your protein does need to come down a little more though,

The weight loss is concerning, so please do let us know how they follow up on

that Carla.

Overall a great report though!

[Guest guest]

Carla,

I just got your second email about the depression. If you did not talk to

your doctor about that specifically, please do call and let him know the

medication does not seem to be working ok?

Let us know about that.

[Guest guest]

Hey Carla,

And computer problems to boot??? What a capper! I had a brief run of a sea

of pop-ups once. It was awful! I spent more time closing those darn

windows than I did getting any work done.

Glad to hear your numbers aren't too bad. Good luck with the furosemide. I

do hope you don't get edema in your feet. That happened to once and

it was no fun.

Maybe we can trade our weight problems. After this Thanksgiving, I'm right

up there with . Her line about needing a padlock for her fridge stayed

with me all day! More seriously, do you have any hunch where the weight

loss is coming from? Is is related to the depression? Something else?

Several people here have had postive experiences with antidepressants.

Hopefully, one of them will have some words of wisdom.

Cy

IgA-Carla

> Hi, everyone!

> I hope everyone had a nice Thanksgiving. It was ok for me. I was

> just in pain. Well, I went to the Nephrologist Doctor today. He

> saids everything looks well. But he is concerned about me losing

> weight so fast. So, we are trying to find a reason for it.

> Here are the numbers.

> Creatine: 1.1

> Kidney Function: 74%

> Hemogoblin (msp?) 11.6

> Protein: 1.3 gram

> So, all in all he said I was doing well. The doctor took me off of

> Furosemide, because I have been having a lot of dizziness and

> headaches. He wants me to see if that will help. But He will

> reevaluate me in 2 months to see if that helps and to see if I get

> any water build up in my feet like I did. That is something I am

> worried about. But he said he will monitor that it will not get so

> bad.

> Ok, I will write again soon. I am just having computer problems.

> It just keeps freezes on me and getting annoying popups.

> Also, I been very depressed. The medicine for that is not

> helping. So, I am trying to find other ways to help me.

> Pierre, Thank you and your moderators for this great support

> group. It has helped me a lot.

> Sincerely,

> Carla

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Hi Carla.

Too much water is bad for people on dialysis, and sometimes for people who

are are approaching dialysis and retaining fluid. But anyone else can

usually drink as much as they are thirsty for. There isn't much point in

drinking more, because it just passes out as urine.

Pierre

IgA-Carla

> Hi! I have a question. I have heard different people say

> different responses. So, I want to ask you all input. Is water good

> for your kidney function? I always thought that it was. But I was

> told by a technichan that worked in a dialysis clinic and he said

> too much water is bad for you? Is that correct? I hope not, because

> I love drinking water.

> I hope everyone is having a great Monday. Take Care. I hope

> everyone has a great week.

> Sincerely,

> Carla

>

>

[Guest guest]

Drinking water is a good habit... but it doesn't have any particular benefit

for kidney patients. Creatinine and BUN are both someone responsive to

dehydration so obviously staying well hydrated helps there, but it doesn't

affect the long run outcome of kidney disease.

Some dialysis patients who no longer make urine have to watch their total

liquid intake - but hopefully that won't be a problem for you for a long

time.

Cy

IgA-Carla

> Hi! I have a question. I have heard different people say

> different responses. So, I want to ask you all input. Is water good

> for your kidney function? I always thought that it was. But I was

> told by a technichan that worked in a dialysis clinic and he said

> too much water is bad for you? Is that correct? I hope not, because

> I love drinking water.

> I hope everyone is having a great Monday. Take Care. I hope

> everyone has a great week.

> Sincerely,

> Carla

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Hi everyone,

Just wanted to say hi and wish everyone a Merry Christmas and a

Happy Holidays.

Pierre, Thank you for sharing your news. For me, being diagnos

last year with IgA, this has helped me out a lot with information,

and support. I am so thankful I have found this group.

Thank you to everyone for your support and helping me understand

and to help me cope with this better.

The increase in Furosemide has helped with the headaches and has

help me with the swelling of my feet.

Take care. I will write again shortly.

Carla

[Guest guest]

Hi Carla,

I am so sorry you are not feeling well. It just burns me up that you can't

get the meds you need. It just is not right that you are limited to three meds

a month. Have your called your Neph? It may be that he has some samples

that he can give you to tide you over. It is certainly worth a try.

Feel better soon Carla. I sure can understand your frustration. I feel

frustrated for you too!

Good luck with it!

[Guest guest]

Pierre,

Thank you for that suggestion. I didn't realize that. I just have

one more day left until the new month so I can get the prescription

filled.

I ran out of FUROSEMIDE (sub for LASIX). I mean, my feet are

swelling up with fluid again and it is just painful.

Carla

> What is the medication you are living without?

>

> I think phoning the local chapter of the Kidney Foundation is a

very good

> idea. At the very least, they should be able to advise you on

which agency

> to contact for help. They might even have some kind of emergency

fund for

> things like this. However, you might want to ask your doctor

first. You

> might be able to get some free samples to tide you over. Usually,

among the

> meds commonly taken by kidney patients, it's easiest to get free

samples of

> blood pressure medication, since the drug companies give a lot of

samples

> out to doctors in order to gain market share, and doctors often

have a

> cabinet full of them.

> Pierre

>

> IgA-Carla

>

>

> > Hi everyone,

> > I am so sorry I haven't emailed the group in a while. I am

just

> > so upset and sorting out problems in my mind. My feet is swelling

> > again and they hurt so bad. I ran out of medication for the month

> > and Medicaid (The state insurance) allows only 3 medications per

> > month. So, on my last medication, I needed to make a decision on

> > which one to get the refil for. So, I got my blood pressure

> > medication. So, now my feet is suffering. UGH! Then trying to

move

> > around is very difficult and getting much harder for me. UGH!

> > Ok, I am just counting down the days until the new year so I

can

> > get the medication I need.

> > I am so sorry to rumble on, but I feel terrible. I just

needed to

> > let out my frustrations. Thanks for listening.

> > I think I will call the Kidney foundation in the morning

where I

> > live to see if there is a program in the US to try to pay for

more

> > medications when you already use the amount up. My luck, there is

> > probably not. But it is worth the try.

> > I am also feeling down because I am tired of hurting. I am so

> > independent of myself and it is so hard to ask for some help. I

just

> > can't do that. I mean, I take care of everything. But these

days, I

> > just feel tired and feel like I have no energy. So, it is hard

> > managing my daily living. But I still do the best I can.

> > For all newcomers in the group. I am 33 years old. I have

> > Cerebral Palsy and IgA nephropathy. I found out last year I have

IgA

> > thru a kidney biospy.

> > Ok, Sorry for the long post. But I just needed to talk and I

am

> > just being so closed in that I just needed to talk with you all.

> > Just to try to bring my self out of this depression. It is just

> > really getting to me and it is hard when you don't have a good

> > support system in your family.

> > Take Care. I will get my self out of this one way or the

another.

> > Even if I have to go back to my nephrologist and really tell him

all

> > of this and how I am feeling again. Again, I am sorry for

rumbling

> > on.

> > I hope everyone has a great week and have a Happy 2004 New

Year!

> > Sincerely,

> > Carla

> >

[Guest guest]

Carla,

I second what Pierre said. I've worked in a couple dr's offices and they would

always give the samples if someone called in and said " I just really can't

afford the meds-can I please have 2 weeks worth? " . It's definitely worth a shot

next time this happens!

Dana

IgA-Carla

>

>

> > Hi everyone,

> > I am so sorry I haven't emailed the group in a while. I am

just

> > so upset and sorting out problems in my mind. My feet is swelling

> > again and they hurt so bad. I ran out of medication for the month

> > and Medicaid (The state insurance) allows only 3 medications per

> > month. So, on my last medication, I needed to make a decision on

> > which one to get the refil for. So, I got my blood pressure

> > medication. So, now my feet is suffering. UGH! Then trying to

move

> > around is very difficult and getting much harder for me. UGH!

> > Ok, I am just counting down the days until the new year so I

can

> > get the medication I need.

> > I am so sorry to rumble on, but I feel terrible. I just

needed to

> > let out my frustrations. Thanks for listening.

> > I think I will call the Kidney foundation in the morning

where I

> > live to see if there is a program in the US to try to pay for

more

> > medications when you already use the amount up. My luck, there is

> > probably not. But it is worth the try.

> > I am also feeling down because I am tired of hurting. I am so

> > independent of myself and it is so hard to ask for some help. I

just

> > can't do that. I mean, I take care of everything. But these

days, I

> > just feel tired and feel like I have no energy. So, it is hard

> > managing my daily living. But I still do the best I can.

> > For all newcomers in the group. I am 33 years old. I have

> > Cerebral Palsy and IgA nephropathy. I found out last year I have

IgA

> > thru a kidney biospy.

> > Ok, Sorry for the long post. But I just needed to talk and I

am

> > just being so closed in that I just needed to talk with you all.

> > Just to try to bring my self out of this depression. It is just

> > really getting to me and it is hard when you don't have a good

> > support system in your family.

> > Take Care. I will get my self out of this one way or the

another.

> > Even if I have to go back to my nephrologist and really tell him

all

> > of this and how I am feeling again. Again, I am sorry for

rumbling

> > on.

> > I hope everyone has a great week and have a Happy 2004 New

Year!

> > Sincerely,

> > Carla

> >

To edit your settings for the group, go to our Yahoo Group

home page:

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iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Carla,

I'm sorry things have been bad for you lately. Depression can quickly become all

consuming, it's something you might want to speak through with your doctor?

Dave

IgA-Carla

Hi everyone,

I am so sorry I haven't emailed the group in a while. I am just

so upset and sorting out problems in my mind. My feet is swelling

again and they hurt so bad. I ran out of medication for the month

and Medicaid (The state insurance) allows only 3 medications per

month. So, on my last medication, I needed to make a decision on

which one to get the refil for. So, I got my blood pressure

medication. So, now my feet is suffering. UGH! Then trying to move

around is very difficult and getting much harder for me. UGH!

Ok, I am just counting down the days until the new year so I can

get the medication I need.

I am so sorry to rumble on, but I feel terrible. I just needed to

let out my frustrations. Thanks for listening.

I think I will call the Kidney foundation in the morning where I

live to see if there is a program in the US to try to pay for more

medications when you already use the amount up. My luck, there is

probably not. But it is worth the try.

I am also feeling down because I am tired of hurting. I am so

independent of myself and it is so hard to ask for some help. I just

can't do that. I mean, I take care of everything. But these days, I

just feel tired and feel like I have no energy. So, it is hard

managing my daily living. But I still do the best I can.

For all newcomers in the group. I am 33 years old. I have

Cerebral Palsy and IgA nephropathy. I found out last year I have IgA

thru a kidney biospy.

Ok, Sorry for the long post. But I just needed to talk and I am

just being so closed in that I just needed to talk with you all.

Just to try to bring my self out of this depression. It is just

really getting to me and it is hard when you don't have a good

support system in your family.

Take Care. I will get my self out of this one way or the another.

Even if I have to go back to my nephrologist and really tell him all

of this and how I am feeling again. Again, I am sorry for rumbling

on.

I hope everyone has a great week and have a Happy 2004 New Year!

Sincerely,

Carla

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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