Guest guest Posted December 25, 2003 Report Share Posted December 25, 2003 , I am so unbelievably sorry that you have to deal with the leukemia on top of iga. But I am glad that you are in remission, I will continue to pray for you and hope you get out of the hospital soon. Take care, > Sorry I've been away from the list for a while. I found out on Dec 3 > that I have acute myelogenous leukemia, and have been hospitalized > since then. Actually I'm still in the hospital, but just managed to > get the email on my laptop working. The good news is that the first > round of chemo apparently worked and I am in remission. I still > have several more rounds to go over the next several months. > > Ironically, this whole ordeal seems to have had a positive effect on > my Kidneys; my creatinine is down to 1.0 with very little protein. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2003 Report Share Posted December 25, 2003 I'm very sorry to hear about the leukemia. I'm glad you are being taken care of and it has gone into remission for you. I have an uncle whom has lived with it for many years once they managed to get his into remission...I wish you many more good years to come. " Ironically, this whole ordeal seems to have had a positive effect on my Kidneys; my creatinine is down to 1.0 with very little protein. " It's also good to see that you can find a light within a dark tunnel! Hang in there and keep us updated when you can. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2003 Report Share Posted December 25, 2003 , I am so sorry to learn of your bigger problem. Please feel free to bring this problem here - we are here to provide whatever shoulder we can for YOU. I'm very glad that the first round of chemo did the trick. Here's hoping that the AML STAYS in remission. What kind of drugs did they do in your chemo? I hope the side effects were not too awful. A good friend struggled with acute leukemia for some time.... until thankfully a bone marrow transplants put it in abeyance. Please stay in touch and let us know how you are. We missed you! I'm glad you got that labtop up and working. Here's hoping that you get out of the hospital soon! Cy Bigger Problem > Sorry I've been away from the list for a while. I found out on Dec 3 > that I have acute myelogenous leukemia, and have been hospitalized > since then. Actually I'm still in the hospital, but just managed to > get the email on my laptop working. The good news is that the first > round of chemo apparently worked and I am in remission. I still > have several more rounds to go over the next several months. > > Ironically, this whole ordeal seems to have had a positive effect on > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 That is unbelievably horrible for you, I am so very sorry to read this news. I hope you receive excellent care and advice of the next few months, and I wish you a speedy recovery, and that you stay in remission. Bless you. Bigger Problem Sorry I've been away from the list for a while. I found out on Dec 3 that I have acute myelogenous leukemia, and have been hospitalized since then. Actually I'm still in the hospital, but just managed to get the email on my laptop working. The good news is that the first round of chemo apparently worked and I am in remission. I still have several more rounds to go over the next several months. Ironically, this whole ordeal seems to have had a positive effect on my Kidneys; my creatinine is down to 1.0 with very little protein. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Hi , I am so very sorry you have been diagnosed with Leukemia. How very hard to be in the hospital that long. I am so sorry. What a terrible way to spend the holidays. I will be praying for you . I am glad that the leukemia seems to be in remission, and that at least your kidneys are doing well. Just goes to prove there is always a bright side to everything. I think your positive attitude will help you through the remaining rounds of Chemo. Take care of yourself , and may God bless you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 > , > > I am so sorry to learn of your bigger problem. Please feel free to bring > this problem here - we are here to provide whatever shoulder we can for YOU. > I'm very glad that the first round of chemo did the trick. Here's hoping > that the AML STAYS in remission. What kind of drugs did they do in your > chemo? I hope the side effects were not too awful. A good friend struggled > with acute leukemia for some time.... until thankfully a bone marrow > transplants put it in abeyance. > Please stay in touch and let us know how you are. > > We missed you! I'm glad you got that labtop up and working. Here's hoping > that you get out of the hospital soon! > > Cy > Bigger Problem > > > > Sorry I've been away from the list for a while. I found out on Dec 3 > > that I have acute myelogenous leukemia, and have been hospitalized > > since then. Actually I'm still in the hospital, but just managed to > > get the email on my laptop working. The good news is that the first > > round of chemo apparently worked and I am in remission. I still > > have several more rounds to go over the next several months. > > > > Ironically, this whole ordeal seems to have had a positive effect on > > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 > , > > I am so sorry to learn of your bigger problem. Please feel free to bring > this problem here - we are here to provide whatever shoulder we can for YOU. > I'm very glad that the first round of chemo did the trick. Here's hoping > that the AML STAYS in remission. What kind of drugs did they do in your > chemo? I hope the side effects were not too awful. A good friend struggled > with acute leukemia for some time.... until thankfully a bone marrow > transplants put it in abeyance. > Please stay in touch and let us know how you are. > > We missed you! I'm glad you got that labtop up and working. Here's hoping > that you get out of the hospital soon! > > Cy > Bigger Problem > > > > Sorry I've been away from the list for a while. I found out on Dec 3 > > that I have acute myelogenous leukemia, and have been hospitalized > > since then. Actually I'm still in the hospital, but just managed to > > get the email on my laptop working. The good news is that the first > > round of chemo apparently worked and I am in remission. I still > > have several more rounds to go over the next several months. > > > > Ironically, this whole ordeal seems to have had a positive effect on > > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Cy: First, thanks to everyone for the words of encouragement. I've been amazed by the support that my family and I have received from friends & family! The drugs they gave me were Cytarabine, Daunorubicin and Etoposide. They gave me some pretty good drugs to prevent the side effects, so treament was not nearly as bad as I expected. Today there are some indications that my blood counts are coming up. Thanks again for the nice thoughts. > , > > I am so sorry to learn of your bigger problem. Please feel free to bring > this problem here - we are here to provide whatever shoulder we can for YOU. > I'm very glad that the first round of chemo did the trick. Here's hoping > that the AML STAYS in remission. What kind of drugs did they do in your > chemo? I hope the side effects were not too awful. A good friend struggled > with acute leukemia for some time.... until thankfully a bone marrow > transplants put it in abeyance. > Please stay in touch and let us know how you are. > > We missed you! I'm glad you got that labtop up and working. Here's hoping > that you get out of the hospital soon! > > Cy > Bigger Problem > > > > Sorry I've been away from the list for a while. I found out on Dec 3 > > that I have acute myelogenous leukemia, and have been hospitalized > > since then. Actually I'm still in the hospital, but just managed to > > get the email on my laptop working. The good news is that the first > > round of chemo apparently worked and I am in remission. I still > > have several more rounds to go over the next several months. > > > > Ironically, this whole ordeal seems to have had a positive effect on > > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Cy: First, thanks to everyone for the words of encouragement. I've been amazed by the support that my family and I have received from friends & family! The drugs they gave me were Cytarabine, Daunorubicin and Etoposide. They gave me some pretty good drugs to prevent the side effects, so treament was not nearly as bad as I expected. Today there are some indications that my blood counts are coming up. Thanks again for the nice thoughts. > , > > I am so sorry to learn of your bigger problem. Please feel free to bring > this problem here - we are here to provide whatever shoulder we can for YOU. > I'm very glad that the first round of chemo did the trick. Here's hoping > that the AML STAYS in remission. What kind of drugs did they do in your > chemo? I hope the side effects were not too awful. A good friend struggled > with acute leukemia for some time.... until thankfully a bone marrow > transplants put it in abeyance. > Please stay in touch and let us know how you are. > > We missed you! I'm glad you got that labtop up and working. Here's hoping > that you get out of the hospital soon! > > Cy > Bigger Problem > > > > Sorry I've been away from the list for a while. I found out on Dec 3 > > that I have acute myelogenous leukemia, and have been hospitalized > > since then. Actually I'm still in the hospital, but just managed to > > get the email on my laptop working. The good news is that the first > > round of chemo apparently worked and I am in remission. I still > > have several more rounds to go over the next several months. > > > > Ironically, this whole ordeal seems to have had a positive effect on > > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Hi , I confess, I asked for a completely self-serving reason: my first research job was as a lab tech in a leukemia lab. I'm familiar with daunorubicin, but am not familiar with the other two drugs (I will get out there and bring myself up-to-date!). Was one of the other drugs used to minimize side effects leukovorin? You were on my mind all day. This is a nasty card to be dealt. Cy Bigger Problem > > > > > > > Sorry I've been away from the list for a while. I found out on > Dec 3 > > > that I have acute myelogenous leukemia, and have been hospitalized > > > since then. Actually I'm still in the hospital, but just managed > to > > > get the email on my laptop working. The good news is that the > first > > > round of chemo apparently worked and I am in remission. I still > > > have several more rounds to go over the next several months. > > > > > > Ironically, this whole ordeal seems to have had a positive effect > on > > > my Kidneys; my creatinine is down to 1.0 with very little protein. > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 : Thanks. I really appreciate the encouragement and prayers. > Hi , > > I am so very sorry you have been diagnosed with Leukemia. How very hard to > be in the hospital that long. I am so sorry. What a terrible way to spend the > holidays. > > I will be praying for you . I am glad that the leukemia seems to be in > remission, and that at least your kidneys are doing well. Just goes to prove > there is always a bright side to everything. > > I think your positive attitude will help you through the remaining rounds of > Chemo. > > Take care of yourself , and may God bless you! > > > > > Quote Link to comment Share on other sites More sharing options...
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