Re: Re: When the tests come back positive

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Good idea with the Lupus board. Thanks PH! Lynn

Re: When the tests come back positive

Hi ,I know what you mean about vascillating between being strong and then feeling "poor me." I think we all can relate. I'm sorry you've had positive tests but remember that many have recovered and their blood tests return to normal. Patty is one of them with her brain lesions. When I'm feeling scared I type in whatever's bothering me plus "recovery". I try to read only positive stories about overcoming disease rather than living with it. When I googled lupus recovery, the following came up. http://www.lupusrec overydiet. com/ Find someone who's recovered (lupus forums) and email them to find out what worked for them. It's great inspiration seeing and talking with someone who has triumphed and has their life back.For me, prayer helps the most with depression. I wanted to take meds yet I'm fearful

as I have enough toxins already. Only you can make that choice, as only you know what is best for you. Emotional Freedom technique is great too. In fact, I read something on it and lupus...will try to dig it up.I've had the same "What if" thoughts but remember, they're harmful. Your body reacts to your thoughts. Each time I notice I'm being negative I force myself to think healing thoughts and even tell myself I am healing at this moment. Have a mantra of "I'm stronger than this!" and truly believe it!!! It sounds as if you're doing everything you need to be doing. It just takes the body time. Hang in there, Sweetie, you can do it! Love, PH>> Most of the time I work at

having a positive attitude and being> "strong". I really try not to whine too much. It sounds mean somehow,> but I am sometimes envious of those who have all the tests and they> come back "negative" to a variety of diseases. I feel selfish too> because I know that my health right now is better than some others.> I have had many tests and symptoms that all indicate lupus. I have> been diagnosed as having lupus. This is difficult for me because I> begin to wonder if I will really be able to reverse all of this. Every> new symptom or old symptoms flaring up get me down. > Lately, I have been battling with depression because of this. I don't> do well feeling powerless over a disease. > I know others have been diagnosed with diseases and are taking meds> for them. Do you deal with depression? > Have there been others here with all the blood tests and lupus

markers> and symptoms that have recovered from this disease?> As I've said before, maybe I can reduce the effects of the disease. > It is depressing though to think that I might not be able to make this> all go away.> > >

[Guest guest]

Hi ,I know you are sad about the Lupus diagnosis. I was very sorry to hear this.Have you started a game plan on how you are going to deal with this? I did a game plan for when I had uterine cancer 10 years ago. It helped.Love ya,Tracibnincongo <bnincongo@...> wrote: Dede, Thanks. I think I can deal with things better without the depression. I need to move on from it. This has changed my life style and I was happy with the way my life was. It is difficult to adjust. You are always

so helpful and kind with your words. > > ~ > Girl, I understand where you are right now. I > have been there off and on for a good while now. > To keep me from going insane, I had to develope > things to side track me. I had to learn not to > identify myself as those diseases, but as having a body > with those diseases. A challenge... > I dont take any meds for the lupus. I did for 5 > years and it did nothing for me, or the lupus. > Depression is so hard, and I think working to > relieve that depression or cope with it will help > you alot. It is a huge battle. My biggest ! ! > I think the depression suppresses teh immune > system more, and can cause flares. Try to come > up with some

method of allowing yourself to go thru > the emotions but not get stuck there. Let yourself > have some depression time, but time-limit it, then do > things to put a smile on your face. > When you manage your time, because of the lupus, > manage in down time for you. > So that you allow for it, and if you dont need it, fill > that time with things you enjoy. > Part of living life to your fullest is managing your energy > well. One thing that use to upset me so much is having > lupus put a huge crimp into my schedule, it screwed everything > up. Then I was always stressed about that and then mad or upset > about how it has ruined my life, and followed with the oh poor me syndrome. > Only time will tell how life will be in the future. Take one day > at a time, with one foot in front of the other, and take baby steps > forward. Pause when you

need to, then move forward again. > I am so sorry you are diagnosed with lupus, and you are > going thru these emotions and depression. > Bless your heart, you are in my prayers ~ > Love Dede > So, try to manage your energy/time . > > > > ************************************** See what's new at http://www.aol.com > No hour of life is wasted that is spent in the saddle. ~Winston Churchill

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I know what you mean - it is bittersweet to know you aren't alone but hate to think of anybody going through this crap.

Now I wonder what my anti-DNA double strand was? I will have to check when I get home. If I didn't have this tested, I may ask him to test in December.

Well my next level from ANA will be 1:640 - so, I might be right there with you. I will let you know what my results are come December. Please let me know how your appointment goes as well.

Hang in there! Lynn

When the tests come back

positive> > Most of the time I work at having a positive attitude and being> "strong". I really try not to whine too much. It sounds mean somehow,> but I am sometimes envious of those who have all the tests and they> come back "negative" to a variety of diseases. I feel selfish too> because I know that my health right now is better than some others.> I have had many tests and symptoms that all indicate lupus. I have> been diagnosed as having lupus. This is difficult for me because I> begin to wonder if I will really be able to reverse all of this. Every> new symptom or old symptoms flaring up get me down. > Lately, I have been battling with depression because of this. I don't> do well feeling powerless over a disease. > I know others have been diagnosed with diseases and are taking meds> for them. Do you deal with depression? > Have there been others

here with all the blood tests and lupus markers> and symptoms that have recovered from this disease?> As I've said before, maybe I can reduce the effects of the disease. > It is depressing though to think that I might not be able to make this> all go away.> > >

[Guest guest]

,

Your ANA is about right, considering what you've gone through . . .

It should continue coming down . . . just be careful about medications. . . Some of the side effects are worse than the disease.

After what I've see with this group, I wouldn't start getting concerned at all until your implants have been out at least a year.

I know that sounds like a long time . . . but in terms of your lifetime, it's not long.

Patience, patience, patience.

Hugs and prayers,

Rogene

[Guest guest]

,

IMHO, you're causing yourself needless stress by following the Lupus boards . . .

You won't know if you have Lupus until you've had time to get over your explant and detox for a while.

Many of our women have seen their Lupus markers reverse.

Hugs,

Rogene

[Guest guest]

Stephie,

I don't think modern, conventional medicine has a lot of answers for Lupus . . . If they understood it, they would know that modern diet and medications do more to cause autoimmune problems than they do to treat it.

Look for alternative medicine . . . like that Dr. Mercola practices. . .

Naturopaths treat the body as a whole, not just to mask symptoms.

If you can find a good naturopath, you would do well.

Hugs,

Rogene

[Guest guest]

~

I have to agree. It is life changing and

very hard to deal with. Almost like

something you would see in a science

fiction movie. One day you are well, and

life is good, then you wake up one day

and can barely move, and you are given

this diagnoses right out of the blue that

is life altering/shattering, and you are

having all this stuff come at you quicker

than you can digest it, and all the unknown

to top it off. It is no wonder that when

this happens, it causes depression......

For me, the only way to survive it was to

keep finding ways to pull me out of it.

It was something I had to do, cuz nothing

anyone said helped much.... they really

didnt know how to help, just as I wasnt

sure how to help me either. I actually started

talking to myself......became my best friend,

sort of. I had to have my well self encourage

my ill body/self to do things.

I hope that you work thru the depression

soon. Your body has been through so much

in such a short time. It is still trying to recognize

and digest the changes that have been made

in the last few months ( surgery ). Ya know

implants become part of your body, even if

it is treated like a foreign object while they are

in there. So, when you have them removed, it

is like an amputation, and it just takes time for

your body to re-adjust.

I hope today is better for you, you are in my

prayers ~ Love DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Oh, , please do not allow the Lupus to take over your life. My ANA was 1.1800 (not sure, but it was high at one point; however, it has come down. I wish I had my records, but I threw everything in the garbage. At that time I was diagnosed with SLE.

Honey, it sounds like you are going through a very bad time. Things will get better.

Love you..........Lea

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When the tests come back positive> > Most of the time I work at having a positive attitude and being> "strong". I really try not to whine too much. It sounds mean somehow,> but I am sometimes envious of those who have all the tests and they> come back "negative" to a variety of diseases. I feel selfish too> because I know that my health right now is better than some others.> I have had many tests and symptoms that all indicate lupus. I have> been diagnosed as having lupus. This is difficult for me because I> begin to wonder if I will really be able to reverse all of this. Every> new symptom or old symptoms flaring up get me down. > Lately, I have been battling with depression because of this. I don't> do well feeling powerless over a disease. > I know others have been diagnosed with diseases and are taking meds> for them. Do you deal with depression? > Have there been others here with all the blood tests and lupus markers> and symptoms that have recovered from this disease?> As I've said before, maybe I can reduce the effects of the disease. > It is depressing though to think that I might not be able to make this> all go away.> > >

[Guest guest]

~

Thank you, you are so sweet.

God Bless you, you are in my

prayers.

Love DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Honey, it was close to normal....I think. It was still poitive; however, it had dropped so much...it dropped to 1:40 a few years ago, but it went up again.

Take care and try to stay positive....love you......Lea

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When the tests come back positive> > > > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds meansomehow,> > but I am sometimes envious of those who have all the tests andthey> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than someothers.> > I have had many tests and symptoms that all indicate lupus. I have> > been diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all ofthis. Every> > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this.I don't> > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are takingmeds> > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupusmarkers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of thedisease. > > It is depressing though to think that I might not be able tomake this> > all go away.> > > > > >>

[Guest guest]

,

Thank you. This means the world to me. I got my period today (Happy Thanksgiving to me) and just realized that I will be 36 before I have kids - at least. Made me sad. I remind myself that God has a plan and perhaps I am not detoxed yet.

Hugs,

Lynn

When the tests come back positive> > > > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds mean somehow,> > but I am sometimes envious of those who have all the tests and they> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than some others.> > I have had many tests and symptoms that all indicate lupus. I have> > been

diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all of this. Every> > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't> > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds> > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this> > all go away.> > > > > >>

[Guest guest]

Don't worry! I'm 37 with no biological kids yet. My cousin had her first kids at 41 (twins!) and said she's happy she waited. She thinks her and her husband appreciate them better this way than if they'd had them when everyone else did. And it gave them more time to do things with each other. She thinks it's the way to go. (having kids later) When the tests come back positive> > > > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds mean somehow,> > but I am sometimes envious of those who have all the tests and they> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than some others.> > I have had many tests and symptoms that all indicate lupus. I have> > been

diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all of this. Every> > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't> > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds> > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this> > all go away.> > > > > >>

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Thank you so much for the post Ballerina. Lynn

When the tests come back positive> > > > Most of the time I work at having a positive attitude and being> > "strong". I really try not to whine too much. It sounds mean somehow,> > but I am sometimes envious of those who have all the tests and they> > come back "negative" to a variety of diseases. I feel selfish too> > because I know that my health right now is better than some others.> > I have had many tests and symptoms that all indicate lupus. I have> > been

diagnosed as having lupus. This is difficult for me because I> > begin to wonder if I will really be able to reverse all of this. Every> > new symptom or old symptoms flaring up get me down. > > Lately, I have been battling with depression because of this. I don't> > do well feeling powerless over a disease. > > I know others have been diagnosed with diseases and are taking meds> > for them. Do you deal with depression? > > Have there been others here with all the blood tests and lupus markers> > and symptoms that have recovered from this disease?> > As I've said before, maybe I can reduce the effects of the disease. > > It is depressing though to think that I might not be able to make this> > all go away.> > > > > >>

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