Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Lynn,There are times when all we can do is watch and wait . . . and say a prayer for them.I see it all the time!Love,Rogene- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hello Sweet Lea ~ How are you doing? and ? How did your testing come out you all had last week? I have been worried about you two ! ! I hope you all are feeling better this week ! Sending you lots of love and healing energy, and hugs ~ DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Darling Dede: Thank you for all of the support that you give each day. Bless your heart for taking care of your precious father, he will never forget this gift of love. Sending love and prayers to you both...Lea and Superman ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````` Re: Re: Lupus Board The antiphospholipid antibody disorder i believe is the sticky blood disorder. Bless her heart, sounds like she is one of us..... I bet she has silicone in her........ love D See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Lynda, When you were diagnosed with Lupus in 1994, what were the results of your blood tests? Are those results now back to normal after you detoxed? Did you have any kidney involvement with lupus? Did you decide to stay away from all doctors and diagnosis's? Sorry about all the questions... I'm just curious to hear about the stories of total recovery where test results and symptoms are reversed. How is your RSD? I do hope you can find some therapies that help. > > >I wonder if it is the same think blood thing I have? > > > >Lynn > > > > > > Re: Re: Lupus Board > > > >The antiphospholipid antibody disorder i believe > >is the sticky blood disorder. > >Bless her heart, sounds like she is one of us..... > >I bet she has silicone in her........ > >love D > > > > > > > >See what's new at > ><http://www.aol.com/?NCID=AOLCMP00300000001170>AOL.com and > ><http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > >Your Homepage. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 My tests showed 9 of the 13 indicators for lupus. Don't remember the exact figures. ANA was positive, lots of positive things, very low white blood count, peripheral neuropathy, extreme sun sensitivity, facial rash from sun exposure, etc. Lynda At 11:18 AM 11/19/2007, you wrote: >Lynda, > >When you were diagnosed with Lupus in 1994, what were the results of >your blood tests? Are those results now back to normal after you >detoxed? Did you have any kidney involvement with lupus? > >Did you decide to stay away from all doctors and diagnosis's? > >Sorry about all the questions... I'm just curious to hear about the >stories of total recovery where test results and symptoms are reversed. > >How is your RSD? I do hope you can find some therapies that help. > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > >Lynn > > > > > > > > > Re: Re: Lupus Board > > > > > >The antiphospholipid antibody disorder i believe > > >is the sticky blood disorder. > > >Bless her heart, sounds like she is one of us..... > > >I bet she has silicone in her........ > > >love D > > > > > > > > > > > >See what's new at > > ><<http://www.aol.com/?NCID=AOLCMP00300000001170>http://www.aol.co > m/?NCID=AOLCMP00300000001170>AOL.com and > > ><<http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>http: > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > >Your Homepage. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi Lynda, Does the facial rash go away quickly or does it stay there? > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > >Lynn > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > >The antiphospholipid antibody disorder i believe > > > >is the sticky blood disorder. > > > >Bless her heart, sounds like she is one of us..... > > > >I bet she has silicone in her........ > > > >love D > > > > > > > > > > > > > > > >See what's new at > > > ><<http://www.aol.com/? NCID=AOLCMP00300000001170>http://www.aol.co > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > ><<http://www.aol.com/mksplash.adp? NCID=AOLCMP00300000001169>http: > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > >Your Homepage. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I had open running sores, took 6 weeks to go away last time. The red sometimes goes away in a few days to a week. Lynda At 11:26 AM 11/19/2007, you wrote: >Hi Lynda, Does the facial rash go away quickly or does it stay >there? > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > >Lynn > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > >is the sticky blood disorder. > > > > >Bless her heart, sounds like she is one of us..... > > > > >I bet she has silicone in her........ > > > > >love D > > > > > > > > > > > > > > > > > > > >See what's new at > > > > ><<<http://www.aol.com/?>http://www.aol.com/? >NCID=AOLCMP00300000001170><http://www.aol.co>http://www.aol.co > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > ><<<http://www.aol.com/mksplash.adp?>http://www.aol.com/mksplash.adp? >NCID=AOLCMP00300000001169>http: > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Is that the rash which is called the " butterfly rash? " > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > > > >Lynn > > > > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > > >is the sticky blood disorder. > > > > > >Bless her heart, sounds like she is one of us..... > > > > > >I bet she has silicone in her........ > > > > > >love D > > > > > > > > > > > > > > > > > > > > > > > >See what's new at > > > > > ><<<http://www.aol.com/?>http://www.aol.com/? > >NCID=AOLCMP00300000001170><http://www.aol.co>http://www.aol.co > > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > > ><<<http://www.aol.com/mksplash.adp? >http://www.aol.com/mksplash.adp? > >NCID=AOLCMP00300000001169>http: > > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Yep, that is it. Lynda At 11:35 AM 11/19/2007, you wrote: >Is that the rash which is called the " butterfly rash? " > > > > > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > > > > > >Lynn > > > > > > > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > > > >is the sticky blood disorder. > > > > > > >Bless her heart, sounds like she is one of us..... > > > > > > >I bet she has silicone in her........ > > > > > > >love D > > > > > > > > > > > > > > > > > > > > > > > > > > > >See what's new at > > > > > > ><<<<http://www.aol.com/?>http://www.aol.com/?>http://www.aol.com/? > > >NCID=AOLCMP00300000001170><<http://www.aol.co>http://www.aol.co>h > ttp://www.aol.co > > > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > > > ><<<<http://www.aol.com/mksplash.adp?>http://www.aol.com/m > ksplash.adp? > >http://www.aol.com/mksplash.adp? > > >NCID=AOLCMP00300000001169>http: > > > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Does it turn into the butterfly rash when your face gets red from photosensativity? > > > > > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > > > > > > > >Lynn > > > > > > > > > > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > > > > >is the sticky blood disorder. > > > > > > > >Bless her heart, sounds like she is one of us..... > > > > > > > >I bet she has silicone in her........ > > > > > > > >love D > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >See what's new at > > > > > > > ><<<<http://www.aol.com/?>http://www.aol.com/? >http://www.aol.com/? > > > >NCID=AOLCMP00300000001170><<http://www.aol.co>http://www.aol.co>h > > ttp://www.aol.co > > > > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > > > > ><<<<http://www.aol.com/mksplash.adp? >http://www.aol.com/m > > ksplash.adp? > > >http://www.aol.com/mksplash.adp? > > > >NCID=AOLCMP00300000001169>http: > > > > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Lynda, Did your sun sensitivity give you a rash anywhere besides your face? Are all your blood tests normal now after detoxing? Thanks, > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > >Lynn > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > >The antiphospholipid antibody disorder i believe > > > >is the sticky blood disorder. > > > >Bless her heart, sounds like she is one of us..... > > > >I bet she has silicone in her........ > > > >love D > > > > > > > > > > > > > > > >See what's new at > > > ><<http://www.aol.com/?NCID=AOLCMP00300000001170>http://www.aol.co > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > ><<http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>http: > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > >Your Homepage. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Lynda, How long has it been that you haven't had any symptoms? How long did you detox to become symptom free. Again...sorry about all the questions. > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > > > >Lynn > > > > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > > >is the sticky blood disorder. > > > > > >Bless her heart, sounds like she is one of us..... > > > > > >I bet she has silicone in her........ > > > > > >love D > > > > > > > > > > > > > > > > > > > > > > > >See what's new at > > > > > ><<<http://www.aol.com/?>http://www.aol.com/? > >NCID=AOLCMP00300000001170><http://www.aol.co>http://www.aol.co > > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > > ><<<http://www.aol.com/mksplash.adp?>http://www.aol.com/mksplash.adp? > >NCID=AOLCMP00300000001169>http: > > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 , A few of my blood tests are abnormal, including white blood count low, natural killer cells low, some other abnormalities in blood count low or high. I have not had an ANA for a long time. Don't plan on doing one any time soon. I do a chem 24 which shows minor abnormalities. I have to watch my TSH. My tests have steadily improved in 15 years. Lynda At 04:51 PM 11/19/2007, you wrote: >Lynda, > >Did your sun sensitivity give you a rash anywhere besides your face? >Are all your blood tests normal now after detoxing? > >Thanks, > > > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > >Lynn > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > >is the sticky blood disorder. > > > > >Bless her heart, sounds like she is one of us..... > > > > >I bet she has silicone in her........ > > > > >love D > > > > > > > > > > > > > > > > > > > >See what's new at > > > > ><<<http://www.aol.com/?NCID=AOLCMP00300000001170>http://www.a > ol.com/?NCID=AOLCMP00300000001170>http://www.aol.co > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > ><<<http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169> > http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>http: > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I have never been totally symptom free, but it took 4-5 years before I thought I would have any kind of normal life. Lynda At 04:54 PM 11/19/2007, you wrote: >Lynda, > >How long has it been that you haven't had any symptoms? How long did >you detox to become symptom free. > >Again...sorry about all the questions. > > > > > > > > > > > > > > > > >I wonder if it is the same think blood thing I have? > > > > > > > > > > > > > >Lynn > > > > > > > > > > > > > > > > > > > > > Re: Re: Lupus Board > > > > > > > > > > > > > >The antiphospholipid antibody disorder i believe > > > > > > >is the sticky blood disorder. > > > > > > >Bless her heart, sounds like she is one of us..... > > > > > > >I bet she has silicone in her........ > > > > > > >love D > > > > > > > > > > > > > > > > > > > > > > > > > > > >See what's new at > > > > > > ><<<<http://www.aol.com/?>http://www.aol.com/?>http://www.aol.com/? > > >NCID=AOLCMP00300000001170><<http://www.aol.co>http://www.aol.co>h > ttp://www.aol.co > > > > > m/?NCID=AOLCMP00300000001170>AOL.com and > > > > > > > ><<<<http://www.aol.com/mksplash.adp?>http://www.aol.com/mksplash.ad > p?>http://www.aol.com/mksplash.adp? > > >NCID=AOLCMP00300000001169>http: > > > > > //www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169>Make AOL > > > > > > >Your Homepage. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 ~ If I get too much sun, I get a full body rash that itches and stays there a month or so.....otherwise, I have the malor rash on my face across my cheeks and nose, and now sometimes it is on my neck and a spot on my forehead.....at least the face one isnt bumpy or itchy... DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 Thanks sweet Lea. I hope you are doing well. Have you got the results of the mammo? Lynn Re: Re: Lupus Board Lynn ~ Hey Sweetie ~ Sticky blood syndrome is something quite a few implanted gals deal with. I believe Lea is one of them........ . How are you feeling? Did you go to Illinois this weekend? I am so sorry I am behind on posts so bad. I am sorry you have felt bad lately...... Love you girl ~ You are in my prayers ~ Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Honey, thank you for thinking about me. I have not had any results, they claim that it takes time to go through all the paper work. I have had the flu ever since they did the mammogram, but I am starting to feel better. My rheumatologist always calls me after a bone scan, but he has not called yet. Lynn, our health care is a mess...love you...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``` Re: Re: Lupus Board Lynn ~ Hey Sweetie ~ Sticky blood syndrome is something quite a few implanted gals deal with. I believe Lea is one of them........ . How are you feeling? Did you go to Illinois this weekend? I am so sorry I am behind on posts so bad. I am sorry you have felt bad lately...... Love you girl ~ You are in my prayers ~ Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 Oh Lea, I am so sorry you have to deal with this and then the flu on top of it! I am glad you are starting to feel better. You are in my thoughts and prayers. Please let me know what the results are. I pray they reveal the toxic gunk and you can get it removed - - it isn't fair to me that you have to wait. Love and hugs, Lynn Re: Re: Lupus Board Lynn ~ Hey Sweetie ~ Sticky blood syndrome is something quite a few implanted gals deal with. I believe Lea is one of them........ . How are you feeling? Did you go to Illinois this weekend? I am so sorry I am behind on posts so bad. I am sorry you have felt bad lately...... Love you girl ~ You are in my prayers ~ Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
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