Joyce: Re: Thank You

[Guest guest]

Hi ,

I started to post this to you a couple of days ago but decided

against it. Well, I am going to do it anyway and as you know I am

not a doctor so ask the Onc. tomorrow.

was plagued with the runs so bad when he was on the 5 FU that

he was miserable.

On WEB MD, Judy a nurse posted a formula recommeded by MD .

I did some research for myself and found the same thing. They said

to take Immodium a couple of times a day. In addition to take

Metamusil diluted with only about 4 oz of water instead of eight. He

took the Metamusis 2 to 3 times a day. tried it and it really

seemed to help.

My fear in posting this was if someone with a obstruction would take

it I don't know if it could cause more of a blockage. This was

strictly for diareah caused by chemo. We diluted 's with

cranberry juice and got the smooth version of Metamusil.

Merry Christmas

Joyce

> > I would like to say thanks to everyone who replied about our

good

> > news. I have been doing a lot of thinking these last few days.

I

> > really think that the rise in 's CEA was mostly from the

> > chronic infection. I don't think the Onc realized how bad he

was

> > really hurting and how infected he was. That is mostly 's

> > fault because as I have said before, he goes into the doc's

offices

> > talking about air boats or just tries to be funny. I know deep

> down

> > he is really scared and does not want to hear what they might

have

> > to say. All I hear from him for about a week before our

> > appointments is " I don't want to go and I don't want to hear

what

> > they are going to say this time. " I guess if it were me in his

> > shoes I might not want to hear either. I have always had my

> > questions written down to ask, but he has yet to ask anything.

> > I am not stupid and I know the cancer is still floating around

> > waiting for another site to attack. I know the CT's in the

> hospital

> > still showed lung involvemenet. We see the Radioloogist Dec.

30th

> > and hopefully they can tell us if the IMRT was somewhat

succesful.

> > The thing that makes me the happiest is that he might still be

able

> > to continue the Xeloda since the CEA did the dramatic drop with

the

> > surgery and all the antibiotic that has been pumped into him for

> the

> > last six weeks. He finished his last antibiotic pill yesterday.

> > I would like to wish everyone here a Very Merry Christmas and

> > Hopefully a better New Year.

> > Joyce