Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Hello: My husband Nick,is 72(73 St Patty's Day) and is currently on more or less the same schedule but he has a double port. He also gets OXY,5FU,LV,+ Avastin. Originally he has just the Salz regimine. Second time they added the camptosar, now the Oxy and the Avastin. The camptosar and Avastin worked for a while,make 8 moths,the liver mets shranl..Then it stopped working and they came back on both sides. He had a C.A.T. & a P.E.T. in Dec. Mixed reactions. He lost weight,they decreased amt of medication. He had one severe reaction and stopped for three weeks. Now we are on the same schedule that you appear to be. The Oxy reactions are fairly easy to manage if you keep away from cold of any kind and follow a white(no red like beets,tomato,meat etc etc diet.) His hair thinned but he did not lose lases or brows. First dx was May 1999,today 2/2/04 and we find strength in prayer,family and in sharing..There are many different reasons for some reactions,his B/P went a little up/his cholesterol also,but it is controlled by medication. Sometimes you just go with the flow. They give you premeds for Nausea and loose stools. He gets lots of mucus bt that lasts about four days. He gets the pump for 46 hours and then goes back but they do not give him a push at that time. We enquired if we might stretch the period over three days butthey say it is not the protocol. We go back the 10th,have the pump for two days after a three hour to three and a half hour treatment. Counts are good. Protien every time we go,so there is not to much more to add. No two people exhibit the same reactions,age,weight,gen.health play a lot. Hope this helps,wish you the est hugs and prayers Nick & Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 > Jennie--I'm on the same regime with Oxaliplatin that you are--have had just two treatments, but here's how things have gone so far: The Oxaliplatin side effects of cold sensitivity wear off in 5 days or so. (I'm in N. Micihgan--a scarf over my mouth does the trick.) I can feel the neuropathy starting, mostly in my feet, but not bad so far. That's what I'm most concerned about since we're taking a 3-week vacation that'll include as much walking as I can do...The 5FU/Leucovorin hasn't set off hand-foot or mouth trouble, but it's at 75% since I didn't tolerate it well before. Overall I feel better than the first 8 month run of treatment. (recurrence is liver and upper-body lymph nodes.)Also, there are several co-patients in the infusion clinic that are much farther along with the Oxaliplatin than I and they seen pretty comfortable, functional. Katy > > > I am a little scared about the Oxaliplatin. I have read so many > posts about this and it's side effects. I did very well on the CPT- > 11, leucovorin and 5FU on the Saltz regimen. I hope that it goes > that way with the FOLFOX. They say I will get Oxaliplatin, 5-FU, lV > injected into a vein every other week. Oxaliplatin over 2 hrs > followed the next day by LV over 2 hrs. I will the get continuous 5- > FU for 22hrs after that. Is this common. > > Is anyone on this Phase III trial? > > Thanks, > > Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Hi, My brother is on the same trial, he is near the end of his 2nd cycle, he is doing well, he goes in for 2 days for chemo (he has a port), then gets 12 days off. He will take new scans at the end of the month. He is sensitive to the cold for 4 or 5 days. God Bless, Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Don't be to concerned about oxaliplatin. The cold sensitivity was the worst side effect I had with 10 treatments. Everyone is different though and some people do experience nueropathy from it. Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Hi Jennie: My mother is taking a Folfox treatment now. So far she's had some minor muscular " qwerks " -- Her face " morphes " into what could only be described as a kiss! A clerk at a local store got quite the kick out of it! As did we -- we found it's better to roll with the 'inert' side effects. It's happened about 3 or 4 times. Other than that and fatique she's been okay. Did you have a port installed? Hers is administered through her port. The pump is a bit clunky and hums away doing its work but you get used to it. She, however like you, is new to this. She's only been taking it a month. We'll keep you posted... > Hi all, > I went to the oncologist today. > > (A little history first) > > I was diagnosed with stage III colon cancer in 4/02 had > hemicolectomy followed by 6 months of chemo. I had a Pet scan in > 8/03 that was questionable and 1/04 that said they are now saying > has 2 liver mets in the right side of my liver. > > Today my oncologist said I will have Folfox for 3 to six months and > he wants me to be in the Phase III trial for PTK787 then a liver > resection within the 3-6 months. > > I am a little scared about the Oxaliplatin. I have read so many > posts about this and it's side effects. I did very well on the CPT- > 11, leucovorin and 5FU on the Saltz regimen. I hope that it goes > that way with the FOLFOX. They say I will get Oxaliplatin, 5-FU, lV > injected into a vein every other week. Oxaliplatin over 2 hrs > followed the next day by LV over 2 hrs. I will the get continuous 5- > FU for 22hrs after that. Is this common. > > Is anyone on this Phase III trial? > > Thanks, > > Jennie Quote Link to comment Share on other sites More sharing options...
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