hi all

April 16, 2001

a,

I have to admit, although I was thrilled to see bellybean in utero, it did not stop the worrying at all. And what you said about the feeling your cervix was dilating and needing the cerclage...my mouth just dropped open as those are my thoughts exactly. I so hope it's just a part of the pg experience. They were pretty frequent during the time I would have had AF, but then kinda went away, then they are back. less frequent but there. And I feel like I have this balloon in my uterus,,,ok and as far as nausea...whoa buddy do I have it!! I haven't actually thrown up but a couple of times, but around 3 in the afternoon, I feel like I could throw up my toenails. However at this point it doesn't last but until about 7 or 8 so I just eat dinner late. In fact, as far as weird goes, I had fritos with melted cheese and marshmallows last night. It was so good at the time.

Dana

April 16, 2001

Hi Dana -

Happy graduation!

Hey, I warned you the worrying does not stop with seeing your baby in

uterus, but I guess you knew that already.

I have experienced both AF-like cramps (until about 6w, now it is

sharp ligament stretching pains in my sides) and cervix type pain like

you are describing. Since I did not see an OB until 9.5w, and my RE

never did internal exam, I was convinced my cervix was dilating, that

I would need cerclage, etc. Well, everything is fine. I never did ask

OB about those pains, but I don't get them anymore. Plus, there are

more things to worry about.

How are you feeling? What's you due date? Has nausea hit yet, or are

you one of the lucky ones?

a

December 23, 2003

Was found i had colon cancer back in oct,2003. Just got back from the

hospital today after exploritory surgery , removed a foot of my

colon , they found a spot on my liver,And used laser to brun it out

and it did spread to the limp nodes.

So i guess it is off to a kemo doctor and see what he can do.

You all have a Merry Christmas and happy New Year, and may God be

with us all.

Does any one out there know how long of a time period this all would

have taken. LIKE FROM THE START OF MY CANCER to spreading to the

limp nodes ?

thank you

December 23, 2003

Hi Tommy,

I tried asking about " how long " cancer takes to spread...from primary

colon tumor, to lymph nodes, to liver...and beyond...

But no one seems to know (beyond a guess as to how long a primary

tumor takes to develop). I guess it differs for every person. The

INITIAL development of a primary rectal tumor from a polyp seems to

take a VERY long time (maybe 5-10 years!), so if this damn stuff can

just be caught early, there is such a good chance of cure!

Good luck with your oncologist appointment. Please let us know what

he says!

Best Wishes & Merry Christmas!

> Was found i had colon cancer back in oct,2003. Just got back from

the

> hospital today after exploritory surgery , removed a foot of my

> colon , they found a spot on my liver,And used laser to brun it out

> and it did spread to the limp nodes.

> So i guess it is off to a kemo doctor and see what he can do.

> You all have a Merry Christmas and happy New Year, and may God be

> with us all.

> Does any one out there know how long of a time period this all

would

> have taken. LIKE FROM THE START OF MY CANCER to spreading to the

> limp nodes ?

> thank you

February 15, 2008

Hi Annette, )

The post wasn't so long at all. ) Though the colors might throw some into a bit of After Effects. LOL

When you wrote of the 18 year difference in our children I had to pull out the calculator (lol). I was surprised at the thought that my oldest and youngest were 18 years apart. They're just under that, making 17½ years. LOL

The first symptom I remember was fatigue. It hit me so hard and I remember trying to figure out what the heck it could be. It wasn't too long after a big change, though not immediately after. A few months after graduating college, I was hired on with the County and left a very active job waitressing. I wondered if the change in activity had any bearing, so I walked as much as I could during the day, taking my breaks to go outside and walk quickly. I found myself falling asleep and came to staying put for my lunch break and closing my office door. I could not stay awake. I tried altering my diet a bit, I tried everything I could think of.

I had forgotten until more recently, and still forget more than I remember (lol), that it would have been around this time when I'd get home from work (about an hour's drive) and was so hot I was miserable. I would strip, use a wet cloth (one of my ex-dh's endearing moments... He came in with a wet cloth to cool me off...), and I'd just lay on top of my sheets, unable to function at all for hours. I grew up in Arizona. Outside of Phoenix. I was used to heat. While waitressing, it wasn't cool most of the year. Suddenly the heat just killed me. The way it does now.

Anyway, the fatigue continued until and after I'd left that job. On and on it went. That would have been '96 when it began. Late spring? I first went online at the end of May '97 and I know I ended up researching CFS trying to find some answers. More symptoms came and they really hit me harder around October '99 and they just got worse from there (it was Oct, because I was sick with a bad cold and using a lot of Ecchinacea, as well as Zinc -- I stopped that -- I was also pg with my third when the symptoms got worse and worse... not the usual way you hear it goes). That's when the pain and numbing began in the one spot in my back, the numbing on the side of my face, the... lots of stuff. lol

I'm sorry your first Neuro was a weenie, too. There are far too many of them out there. I hate to hear of anyone who has encountered those Docs who so easily tell people "you need to see a Psych", and other such things.

That first Neuro of mine did try to tell me "none" of my symptoms were MS symptoms and that Depression can cause those symptoms I was having. I told him depression was not the cause of my symptoms but the effect of them. Weenie. lol

Oh yeahhh... and the Student Doc-to-be who came in and talked to me before the WeenieDoc... I was having some bladder issues then. He explained to me that with have several children, this happens. I chuckled and raised an eyebrow. I'm not sure what exactly I said, or how I said it, but I've wondered how he took the fact that I've been working Kegel's since I was 16. LOL

Challis

~See why your post didn't seem so long to me? LOL

Re: Hi all

hi challis,yeah, i guess my math about the difference in ages wasn't that great, i just meant between the oldest and the youngest. my children are unusual only because (sorry, can't get the color right!) i didn't have any in between. after lily was born i had a major attack, with fatigue being the worst and not being able to care a bit about the house, dinner, taking lily out or fussing over her, etc. at first i thought it was post-partum depression, but as the years went by, i realized i was really sick. in november of 2003 my eyes went really blurry, a symptom i was having more and more. in december i couldn't pee right, in january i started hurting with my first sign of spasticity, and then the tinglies on my

entire right side and the left side going completely numb in the spring of 04. so, by using my merk medical handbook i knew i probably had ms before the doctors did! i needed to see two neuros before i finally started being treated. I "failed" the spinal, evoked potentials, the brain mri (at first) and it was only when we did a spinal mri that there was objective "proof" of the disease. thank god my second neuro just did his job and actually acted like a doctor by using his training and experience to go by my SYMPTOMS. i believe that is the old-fashioned and time-honored method for diagnosing illnesses. doctors are too dependent on tests nowadays, and if you get a really lousy doctor, he/she will blame your symptoms on anxiety, breastfeeding (what the hell?), being bipolar (like me), being a crazy, hysterical female, witches, whatever. it would be funny if they (doctors, not witches, i know some and they are the

nicest people) didn't just about destroy people's lives. i think being in limbo and being told i had an anxiety disorder by my first neuro made me feel the most helpless i have ever felt. i was terrified that no one would take care of me, i was hurting, and i knew i wasn't that crazy. my sense of self was actually affected, and to this day i hate that woman for her snotty, cavalier attitude. she has a horrible reputation and her waiting room is always crammed like the worst welfare clinic in the country. i never did follow up on the complaint i was going to make to the ama and whoever else would listen. this is tulsa, and the doctors stick together, so i am afraid to make too much of a stink.anyway, my ordeal till i was dxed only lasted a couple of months. i literally cannot imagine being in limbo for years like so many of us are. the medical system has a lot to answer for here, it's

outrageous.sorry for the long post, i guess it just needed to come out!hugs and hugs,annetteSmyelin groovy <smyelingroovy@ yahoo.com> wrote:

Hi Annette,

I noticed your and Lily (can't remember if I have the spelling right for her name) had a few years between them. )

It's been a bit different raising the girls than it was the boys. It wasn't that many years between, but I can feel the difference in age. Though maybe it isn't all age? Maybe I should consider this Mystery Syndrome I'm not yet dx'd with, eh?

BTW, I was diagnosed by my first Neuro. It's Breastfeeding Syndrome. Several of us here have it. So, if you ever had breasts, male or female, you are at risk.

LOL No, of course he didn't say "Breastfeeding Syndome", but upon realizing I was nursing my youngest at the time he pegged all my symptoms on that. Never mind the symptoms began between my second and third child (who were nine years apart), or that I've not been breastfeeding for a while now and my lips ar still numb... and never mind it's the biggest mess of horsepooey.. . LOLOL

Hugs,

Challis

-

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February 15, 2008

hi challis,thanks for writing back at length. from what i can tell our experiences were very similar in that we both didn't know what the hell was wrong with us for years at a time and that doctors weren't very sympathetic. did you have any problems with family members calling you lazy or a hypochondriac (i did).annetteSmyelin groovy wrote: Hi Annette, ) The post wasn't so long at all. ) Though the colors might throw some into a bit of After Effects. LOL When you wrote of the 18 year difference in our children I had to pull out the calculator (lol). I was surprised at the thought that my oldest and youngest were 18 years apart. They're just under that, making 17½ years. LOL The first symptom I remember was fatigue. It hit me so hard and I remember trying to figure out what the heck it could be. It wasn't too long after a big change, though not immediately after. A few months after graduating college, I was hired on with the County and left a very active job waitressing. I wondered if the change in activity had any bearing, so I walked as much as I could during the day, taking my breaks to go outside and walk quickly. I found myself falling asleep and came to staying put for my lunch break and closing my office door. I could not stay awake. I tried altering my diet a bit, I tried everything I could think of. I had forgotten until more recently, and still forget more than I remember (lol), that it would

have been around this time when I'd get home from work (about an hour's drive) and was so hot I was miserable. I would strip, use a wet cloth (one of my ex-dh's endearing moments... He came in with a wet cloth to cool me off...), and I'd just lay on top of my sheets, unable to function at all for hours. I grew up in Arizona. Outside of Phoenix. I was used to heat. While waitressing, it wasn't cool most of the year. Suddenly the heat just killed me. The way it does now. Anyway, the fatigue continued until and after I'd left that job. On and on it went. That would have been '96 when it began. Late spring? I first went online at the end of May '97 and I know I ended up researching CFS trying to find some answers. More symptoms came

and they really hit me harder around October '99 and they just got worse from there (it was Oct, because I was sick with a bad cold and using a lot of Ecchinacea, as well as Zinc -- I stopped that -- I was also pg with my third when the symptoms got worse and worse... not the usual way you hear it goes). That's when the pain and numbing began in the one spot in my back, the numbing on the side of my face, the... lots of stuff. lol I'm sorry your first Neuro was a weenie, too. There are far too many of them out there. I hate to hear of anyone who has encountered those Docs who so easily tell people "you need to see a Psych", and other such things. That first Neuro of mine did try to tell me "none" of my symptoms were MS symptoms and that Depression can cause those symptoms I was having. I told him depression was not the cause of my symptoms but the effect of them. Weenie. lol Oh yeahhh... and the Student Doc-to-be who came in and talked to me before the WeenieDoc... I was having some bladder issues then. He explained to me that with have several children, this happens. I chuckled and raised an eyebrow. I'm not sure what exactly I said, or how I said it, but I've wondered how he took the fact that I've been working Kegel's since I was 16. LOL Challis ~See why your post didn't seem so long to me? LOL Re: Hi all hi challis,yeah, i guess my math about the difference in ages wasn't that great, i just meant between the oldest and the youngest. my children are unusual only because (sorry, can't get the color

right!) i didn't have any in between. after lily was born i had a major attack, with fatigue being the worst and not being able to care a bit about the house, dinner, taking lily out or fussing over her, etc. at first i thought it was post-partum depression, but as the years went by, i realized i was really sick. in november of 2003 my eyes went really blurry, a symptom i was having more and more. in december i couldn't pee right, in january i started hurting with my first sign of spasticity, and then the tinglies on my entire right side and the left side going completely numb in the spring of 04. so, by using my merk medical handbook i knew i probably had ms before the doctors did! i needed to see two neuros before i finally started being treated. I "failed" the spinal, evoked potentials, the brain mri (at first) and it was only when we did a spinal mri that there was objective "proof" of the disease. thank god my

second neuro just did his job and actually acted like a doctor by using his training and experience to go by my SYMPTOMS. i believe that is the old-fashioned and time-honored method for diagnosing illnesses. doctors are too dependent on tests nowadays, and if you get a really lousy doctor, he/she will blame your symptoms on anxiety, breastfeeding (what the hell?), being bipolar (like me), being a crazy, hysterical female, witches, whatever. it would be funny if they (doctors, not witches, i know some and they are the nicest people) didn't just about destroy people's lives. i think being in limbo and being told i had an anxiety disorder by my first neuro made me feel the most helpless i have ever felt. i was terrified that no one would take care of me, i was hurting, and i knew i wasn't that crazy. my sense of self was actually affected, and to this day i hate that woman for her snotty, cavalier attitude. she has a horrible

reputation and her waiting room is always crammed like the worst welfare clinic in the country. i never did follow up on the complaint i was going to make to the ama and whoever else would listen. this is tulsa, and the doctors stick together, so i am afraid to make too much of a stink.anyway, my ordeal till i was dxed only lasted a couple of months. i literally cannot imagine being in limbo for years like so many of us are. the medical system has a lot to answer for here, it's outrageous.sorry for the long post, i guess it just needed to come out!hugs and hugs,annetteSmyelin groovy <smyelingroovy@ yahoo.com> wrote: Hi Annette, I noticed your and Lily (can't remember if I have the spelling right for her name) had a few years between them. ) It's been a bit different raising the girls than it was the boys. It wasn't that many years between, but I can feel the difference in age. Though maybe it isn't all age? Maybe I should consider this Mystery Syndrome I'm not yet dx'd with, eh? BTW, I was diagnosed by my first

Neuro. It's Breastfeeding Syndrome. Several of us here have it. So, if you ever had breasts, male or female, you are at risk. LOL No, of course he didn't say "Breastfeeding Syndome", but upon realizing I was nursing my youngest at the time he pegged all my symptoms on that. Never mind the symptoms began between my second and third child (who were nine years apart), or that I've not been breastfeeding for a while now and my lips ar still numb... and never mind it's the biggest mess of horsepooey.. . LOLOL Hugs, Challis - Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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February 16, 2008

I'll jump in here Annette. I think you know Challis is my daughter, right? Anyway, I never had anyone call me a hypochondriac to my face but I know my brother and sister-in-law thought it a lot and probably said it to other people. After I was dxed with MS and I was talking to that SIL she said something like "and we just thought you were lazy all those years" and then she chuckled. I'm sure there were a lot of people who thought I was lazy. My house was a mess and my yard was a mess. I was divorced when my baby was just a year old (and have never remarried) and I worked from home doing a home day care. It was hard on me but it would have been much worse if I worked away from home when my children were small. I did do that briefly but

it was hard on me and very hard on them. I wanted to be home for my own children so I ran a home day care and always reported my income, paid self employment tax and built up my points for SS.Wait... this was about being called lazy and a hypochondriac. LOL I did have doctors tell me there wasn't anything wrong with me. But I KNEW there was a reason for my fatigue and various pains. It wasn't until I had my big major attack in 1997 that I finally was taken seriously. It reminds me of the story of the guy who always was sick and no one, especially his wife, believed him. His tombstone said "I TOLD you I was sick". I think we can all relate to that one, can't we??? LOLhugs))Sharon This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Hi all hi challis,yeah, i guess my math about the difference in ages wasn't

that great, i just meant between the oldest and the youngest. my children are unusual only because (sorry, can't get the color

right!) i didn't have any in between. after lily was born i had a major attack, with fatigue being the worst and not being able to care a bit about the house, dinner, taking lily out or fussing over her, etc. at first i thought it was post-partum depression, but as the years went by, i realized i was really sick. in november of 2003 my eyes went really blurry, a symptom i was having more and more. in december i couldn't pee right, in january i started hurting with my first sign of spasticity, and then the tinglies on my entire right side and the left side going completely numb in the spring of 04. so, by using my merk medical handbook i knew i probably had ms before the doctors did! i needed to see two neuros before i finally started being treated. I "failed" the spinal, evoked potentials, the brain mri (at first) and it was only when we did a spinal mri that there was objective "proof" of the

disease. thank god my

second neuro just did his job and actually acted like a doctor by using his training and experience to go by my SYMPTOMS. i believe that is the old-fashioned and time-honored method for diagnosing illnesses. doctors are too dependent on tests nowadays, and if you get a really lousy doctor, he/she will blame your symptoms on anxiety, breastfeeding (what the hell?), being bipolar (like me), being a crazy, hysterical female, witches, whatever. it would be funny if they (doctors, not witches, i know some and they are the nicest people) didn't just about destroy people's lives. i think being in limbo and being told i had an anxiety disorder by my first neuro made me feel the most helpless i have ever felt. i was terrified that no one would take care of me, i was hurting, and i knew i wasn't that crazy. my sense of self was actually affected, and to this day i hate that woman for her snotty, cavalier attitude. she

has a horrible

reputation and her waiting room is always crammed like the worst welfare clinic in the country. i never did follow up on the complaint i was going to make to the ama and whoever else would listen. this is tulsa, and the doctors stick together, so i am afraid to make too much of a stink.anyway, my ordeal till i was dxed only lasted a couple of months. i literally cannot imagine being in limbo for years like so many of us are. the medical system has a lot to answer for here, it's outrageous.sorry for the long post, i guess it just needed to come out!hugs and hugs,annetteSmyelin groovy <smyelingroovy@ yahoo.com> wrote: Hi Annette, I noticed your and Lily (can't remember if I have the spelling right for her name) had a few years between them. ) It's been a bit different raising the girls than it was the boys. It wasn't that many years between, but I can feel the difference in age. Though maybe it isn't all age? Maybe I should consider this Mystery Syndrome I'm not yet dx'd with, eh? BTW, I was diagnosed by my first

Neuro. It's Breastfeeding Syndrome. Several of us here have it. So, if you ever had breasts, male or female, you are at risk. LOL No, of course he didn't say "Breastfeeding Syndome", but upon realizing I was nursing my youngest at the time he pegged all my symptoms on that. Never mind the symptoms began between my second and third child (who were nine years apart), or that I've not been breastfeeding for a while now and my lips ar still numb... and never mind it's the biggest mess of horsepooey.. . LOLOL Hugs, Challis - Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage.

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February 16, 2008

hi sharon,i assume when we reply to someone's email that the whole group just "jumps in" whenever someone feels it is pertinent to their life. no? i hope my jumping in all the time hasn't been resented, i would hate to piss off this great group!anyway, i have to go to walmart with lily in a bit, so i will just say that my house has been a complete disaster a lot, and i have heard about it. also my brother said years ago that i was just lazy. it all hurts, even just knowing that people don't talk much to you because you are not very available to do things... well, duty calls, gotta take my lazy ass shopping!annetteSharon wrote: I'll jump in here Annette. I think you know Challis is my daughter, right? Anyway, I never had anyone call me a hypochondriac to my face but I know my brother and sister-in-law thought it a lot and probably said it to other people. After I was dxed with MS and I was talking to that SIL she said something like "and we just thought you were lazy all those years" and then she chuckled. I'm sure there were a lot of people who thought I was lazy. My house was a mess and my yard was a mess. I was divorced when my baby was just a year old (and have never remarried) and I

worked from home doing a home day care. It was hard on me but it would have been much worse if I worked away from home when my children were small. I did do that briefly but it was hard on me and very hard on them. I wanted to be home for my own children so I ran a home day care and always reported my income, paid self employment tax and built up my points for SS.Wait... this was about being called lazy and a hypochondriac. LOL I did have doctors tell me there wasn't anything wrong with me. But I KNEW there was a reason for my fatigue and various pains. It wasn't until I had my big major attack in 1997 that I finally was taken seriously. It reminds me of the story of the guy who always was sick and no one, especially his wife, believed him. His tombstone said "I TOLD you I was sick". I think we can all relate to that one, can't we???

LOLhugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Hi all hi challis,yeah, i guess my math about the difference in ages wasn't that great, i just meant between the oldest and the youngest. my children are unusual only because (sorry, can't get the color right!) i didn't have any in between. after lily was born i had a major

attack, with fatigue being the worst and not being able to care a bit about the house, dinner, taking lily out or fussing over her, etc. at first i thought it was post-partum depression, but as the years went by, i realized i was really sick. in november of 2003 my eyes went really blurry, a symptom i was having more and more. in december i couldn't pee right, in january i started hurting with my first sign of spasticity, and then the tinglies on my entire right side and the left side going completely numb in the spring of 04. so, by using my merk medical handbook i knew i probably had ms before the doctors did! i needed to see two neuros before i finally started being treated. I "failed" the spinal, evoked potentials, the brain mri (at first) and it was only when we did a spinal mri that there was objective "proof" of the disease. thank god my second neuro just did his job and actually acted like a doctor by using his training

and experience to go by my SYMPTOMS. i believe that is the old-fashioned and time-honored method for diagnosing illnesses. doctors are too dependent on tests nowadays, and if you get a really lousy doctor, he/she will blame your symptoms on anxiety, breastfeeding (what the hell?), being bipolar (like me), being a crazy, hysterical female, witches, whatever. it would be funny if they (doctors, not witches, i know some and they are the nicest people) didn't just about destroy people's lives. i think being in limbo and being told i had an anxiety disorder by my first neuro made me feel the most helpless i have ever felt. i was terrified that no one would take care of me, i was hurting, and i knew i wasn't that crazy. my sense of self was actually affected, and to this day i hate that woman for her snotty, cavalier attitude. she has a horrible reputation and her waiting room is always crammed like the worst welfare clinic in the

country. i never did follow up on the complaint i was going to make to the ama and whoever else would listen. this is tulsa, and the doctors stick together, so i am afraid to make too much of a stink.anyway, my ordeal till i was dxed only lasted a couple of months. i literally cannot imagine being in limbo for years like so many of us are. the medical system has a lot to answer for here, it's outrageous.sorry for the long post, i guess it just needed to come out!hugs and hugs,annetteSmyelin groovy <smyelingroovy@ yahoo.com> wrote: Hi Annette, I noticed your and Lily (can't remember if I have the spelling right for her name) had a few years between them. ) It's been a bit different raising the girls than it was the boys. It wasn't that many years between, but I can feel the difference in age. Though maybe it isn't all age? Maybe I should consider this Mystery Syndrome I'm not yet dx'd with, eh? BTW, I was diagnosed by my first Neuro. It's Breastfeeding Syndrome. Several of us here have

it. So, if you ever had breasts, male or female, you are at risk. LOL No, of course he didn't say "Breastfeeding Syndome", but upon realizing I was nursing my youngest at the time he pegged all my symptoms on that. Never mind the symptoms began between my second and third child (who were nine years apart), or that I've not been breastfeeding for a while now and my lips ar still numb... and never mind it's the biggest mess of horsepooey.. . LOLOL Hugs, Challis - Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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February 16, 2008