Re: ED - Bee's

[Guest guest]

Ed...If you find a way..PLEASE let me know...LOL...I'm allergic to

bee stings..I think it was a hornet that got me this past Aug...But I

still reacted to it...To be honest with you, the scab just finally

fell off about a week ago and I think it's healed over now...But I

got stung on AUGUST 23...Can you believe it took that long for it to

heal...YIKES.I know being on Pred. slows the healing process down,

but geesh, give me a brake...that's a LOOONNNNGGGGGG time....

As far as Pred. goes, they say *it's your best friend and your worst

enemy* and I totally agree...I have strong reactions to it, but

that's good (in a way)...First time I was on it for PM, I got

congestive heart failure from retaining so much water...My CPK was

over 15,000 when I was first diagnosed, so they were pretty freaked

out...I think I was on 100 mg. pred.when it happened...It makes me

REALLY moody...I grow hair on my face and lose it on my head (I'm a

girl, so it is not real attractive either <BG>)...It makes me want to

eat anything and EVERYTHING in the kitchen and I mean ANYTHING--

doesn't matter how old it is, as long as it doesn't have mold on it,

I'll give it a try...My stomach ALWAYS feels like it has acid in it(

I mean like battery acid, not normal stomach acid), so I want to eat

bread / carbohydrate products and you know how NON-FATTENING they

are...LOL...When I'm on 40 mg or more,it makes my bowels totally

unpredictable, so I have to stay pretty close to home..if you know

what I mean...YUG...I can only sleep for 3 - 4 hrs. at a time...I

don't know if that's from pain or acid stomach or what...I'm trying

*flexiril*(sp?) right now for it...it seems to help, but I feel dopey

most of the next day...*dopey-er* than normal...LOL...I feel like

total CRAP when I'm on pred., but it certainly stops the PM

progression in it's tracks and I'm so very thankful for that...The

Imuran is less nasty to my body...I'll be on that for years again,

but that's fine...I keep thinking " Wonder if one day the drugs QUIT

WORKING for me?!?! " ...To me, that's a scarey thought...What did PM

people do 50, 75 years ago..just suffer and die?!?!...I think that's

why I push myself to do so many things and to stay as active as I

possibley can...Sorry, this is getting long...Just keep in mind

that " Pred. is your BEST friend and your worst enemy " when you're

going thru the bad side affects from it...OK, I'm going

now... ) ... Jacqui, Kodi, Casey and Timmy the Timneh--Duluth, MN

>

> That's a good one Ed.... I've got a lot of bee's during the summer.

> They hover around the house and especially around the wading pool

for my

> dogs and the water troughs for my horses. I don't mean a couple

> either.....I mean HUNDREDS of them....I've been stung but so far it

> hasn't sent me into a huge flare.... Knock on wood! Thump Thump

> (knocking on head)

>

> Vicki

[Guest guest]

Thanks, I appreciate your candid reply. Take care.

Ed

-----Original Message-----From: jacqui_kodi_casey Sent: Sunday, December 16, 2001 12:21 AMTo: OurMyositis Subject: Re: ED - Bee'sEd...If you find a way..PLEASE let me know...LOL...I'm allergic to bee stings..I think it was a hornet that got me this past Aug...But I still reacted to it...To be honest with you, the scab just finally fell off about a week ago and I think it's healed over now...But I got stung on AUGUST 23...Can you believe it took that long for it to heal...YIKES.I know being on Pred. slows the healing process down, but geesh, give me a brake...that's a LOOONNNNGGGGGG time....As far as Pred. goes, they say *it's your best friend and your worst enemy* and I totally agree...I have strong reactions to it, but that's good (in a way)...First time I was on it for PM, I got congestive heart failure from retaining so much water...My CPK was over 15,000 when I was first diagnosed, so they were pretty freaked out...I think I was on 100 mg. pred.when it happened...It makes me REALLY moody...I grow hair on my face and lose it on my head (I'm a girl, so it is not real attractive either <BG>)...It makes me want to eat anything and EVERYTHING in the kitchen and I mean ANYTHING--doesn't matter how old it is, as long as it doesn't have mold on it, I'll give it a try...My stomach ALWAYS feels like it has acid in it( I mean like battery acid, not normal stomach acid), so I want to eat bread / carbohydrate products and you know how NON-FATTENING they are...LOL...When I'm on 40 mg or more,it makes my bowels totally unpredictable, so I have to stay pretty close to home..if you know what I mean...YUG...I can only sleep for 3 - 4 hrs. at a time...I don't know if that's from pain or acid stomach or what...I'm trying *flexiril*(sp?) right now for it...it seems to help, but I feel dopey most of the next day...*dopey-er* than normal...LOL...I feel like total CRAP when I'm on pred., but it certainly stops the PM progression in it's tracks and I'm so very thankful for that...The Imuran is less nasty to my body...I'll be on that for years again, but that's fine...I keep thinking "Wonder if one day the drugs QUIT WORKING for me?!?!"...To me, that's a scarey thought...What did PM people do 50, 75 years ago..just suffer and die?!?!...I think that's why I push myself to do so many things and to stay as active as I possibley can...Sorry, this is getting long...Just keep in mind that "Pred. is your BEST friend and your worst enemy" when you're going thru the bad side affects from it...OK, I'm going now... ) ... Jacqui, Kodi, Casey and Timmy the Timneh--Duluth, MN> > That's a good one Ed.... I've got a lot of bee's during the summer.> They hover around the house and especially around the wading pool for my> dogs and the water troughs for my horses. I don't mean a couple> either.....I mean HUNDREDS of them....I've been stung but so far it> hasn't sent me into a huge flare.... Knock on wood! Thump Thump> (knocking on head)> > Vicki