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Hi Lynn,

When you have time, could you do me a favor? My friend's husband has been

having myositis-like symptoms ever since he went on Lipitor quite a while

ago. He's on prednisone now, but the doctors still haven't diagnosed him.

His legs bother him, but they took a muscle biopsy from his arm. (wouldn't

ya know?)

Well, if you could just briefly list all your symptoms in brief form, I'd

like to show it to my friend for when she goes to the rheumatologist with

her husband next time. Thanks so much, Annette

Lab Results

Well, my CPK is down to 466 and my C-reactive protein

(don't know this one) is normal. I stay on the 60 mg

of prednisolone until the CPK is normal!

So, maybe it was the Lipitor. I wonder, tho, if it

was - could the myositis always be with me now...in

remission or flare. Guess that's another question.

Lynn

=====

" If life deals you lemons, make lemonade;

if it deals you tomatoes, make Bloody s.

But if it deals you a truckload of hand grenades...now THAT'S a message! "

__________________________________________________

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Lynn... wow, lets hope an pray it was drug induced... very good question

for the doctor because I really don't know. Hope you continue to have

your cpk fall. Are you feeling any better?

Vicki

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Yes, Vicki...I'll admit it...I didn't know how bad I

felt until I started taking the Pred and started to

feel better. I was downstairs boogying with my son to

some tapes he and his band made...I couldn't have done

that a month ago! Course, I'm a little sore, but

nothing like before!

Wow...viva la difference, but I'm not taking anything

for granted!

Hugs,

Lynn

--- anzavic@... wrote:

>

>

> Lynn... wow, lets hope an pray it was drug

> induced... very good question

> for the doctor because I really don't know. Hope

> you continue to have

> your cpk fall. Are you feeling any better?

>

> Vicki

>

>

>

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I'll try, Annette...

1) Rash on hands started Oct 2000

2) Rash spreads to chest, knees, rear, back, arms -

all joints except ankles. Never really made it onto

my face except for a very slight redness on nose onto

my cheek, just barely.

3) Some difficulty getting up in during those months

4) Sun was my enemy...the rash was angry, swollen

5) August the muscle weakness hit in a rush

6) Upper arms and upper thighs. Sore, hurt

7) Came off Lipitor on my own in mid Sept.

8) CPK was 3600

9) ANA was very elevated, too

10: Sed rate only 7

11) The testing began! EMG & muscle biopsy says

muscle damage consistent with myopathy or myositis.

12) Enzymes keep falling without meds...down to 777.

After two weeks on 60mg of Prednisolone, CPK is 446.

Does that help?

Lynn

--- Annette Flamand wrote:

> Hi Lynn,

> When you have time, could you do me a favor? My

> friend's husband has been

> having myositis-like symptoms ever since he went on

> Lipitor quite a while

> ago. He's on prednisone now, but the doctors still

> haven't diagnosed him.

> His legs bother him, but they took a muscle biopsy

> from his arm. (wouldn't

> ya know?)

> Well, if you could just briefly list all your

> symptoms in brief form, I'd

> like to show it to my friend for when she goes to

> the rheumatologist with

> her husband next time. Thanks so much, Annette

>

> Lab Results

>

>

> Well, my CPK is down to 466 and my C-reactive

> protein

> (don't know this one) is normal. I stay on the 60

> mg

> of prednisolone until the CPK is normal!

>

> So, maybe it was the Lipitor. I wonder, tho, if it

> was - could the myositis always be with me now...in

> remission or flare. Guess that's another question.

>

> Lynn

>

> =====

> " If life deals you lemons, make lemonade;

> if it deals you tomatoes, make Bloody s.

> But if it deals you a truckload of hand

> grenades...now THAT'S a message! "

>

> __________________________________________________

>

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thanks so much, Lynn. I'm going to print this out for my friend. Annette

Lab Results

>

>

> Well, my CPK is down to 466 and my C-reactive

> protein

> (don't know this one) is normal. I stay on the 60

> mg

> of prednisolone until the CPK is normal!

>

> So, maybe it was the Lipitor. I wonder, tho, if it

> was - could the myositis always be with me now...in

> remission or flare. Guess that's another question.

>

> Lynn

>

> =====

> " If life deals you lemons, make lemonade;

> if it deals you tomatoes, make Bloody s.

> But if it deals you a truckload of hand

> grenades...now THAT'S a message! "

>

> __________________________________________________

>

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I meant to mention that I have been on statins for

years, starting with Lopid, Zocor, Mevacor (I think)

and finally Lipitor (which was a great drug.) Started

on 10 mg of it, was boosted to 20mg for a year or more

at least without any incidence of muscle pain ever.

Most of what I've read says the muscle pain starts 1-6

months after beginning the statin.

Now, I'm on Questran (icky stuff, but oh well.) Your

friend might want to mention that to his doc as well!

Give him my best!

Lynn

--- Annette Flamand wrote:

> thanks so much, Lynn. I'm going to print this out

> for my friend. Annette

>

> Lab Results

> >

> >

> > Well, my CPK is down to 466 and my C-reactive

> > protein

> > (don't know this one) is normal. I stay on the 60

> > mg

> > of prednisolone until the CPK is normal!

> >

> > So, maybe it was the Lipitor. I wonder, tho, if

> it

> > was - could the myositis always be with me

> now...in

> > remission or flare. Guess that's another

> question.

> >

> > Lynn

> >

> > =====

> > " If life deals you lemons, make lemonade;

> > if it deals you tomatoes, make Bloody s.

> > But if it deals you a truckload of hand

> > grenades...now THAT'S a message! "

> >

> > __________________________________________________

> >

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  • 7 years later...

>Jade was taking 40mcg of t3 when these results were done a week ago. She is now

up to 50mcg.I need to know her ratio. And if she is better how does she swap

over to naturethroid. Would the high tsh explain why she has actually put on

weight.

The ratio is 24 but that doesn't actually mean much at this point in

the treatment cycle as she will still have RT3 stuck in the T3

receptors causing resistance.

A month is not long enough for re receptors to clear, 12 weeks is a

more normal period. She will need to keep increasing the T3 for a few

weeks yet as residual T4 and it's conversion clears from her system.

The ratios in her blood numbers will get better before the receptors

and resistance clears.

Did she take any T3 on the day of that blood draw? from the TSH she

was hypo and from the FT3 she shouldn't have been, this may well just

be showing she has resistance still or that she took T3 too near the

blood draw.

A slow steady increase as her own levels decay aiming to be on 75

after 8 weeks or so suits most people (but depends on what she was on

before the T3).

After 8 weeks she can adjust dose a little every 3 to 5 days to try

and clear hypo symptoms. At the stage where there is resistance this

can need a LOT of T3 and as long as her adrenals and ferritin are OK

she will probably be able to take it. Spreading the T3 through the day

keeps the stress on the adrenals lower.

Pulse and temperature are the best indicators of what is happening,

blood tests are fairly useless during this stage.

If she sticks with this around the 11-12 week mark she may suddenly go

hyper, if she watches out for it and stops T3 for a day or so and

ramps back in again as her pulse drops then this will be a very short

term thing. The signs of this are fast pulse and a temperature over

normal plus maybe some heart palps. After that she can reestablish a

stable dose of T3 and stay on that for a while before deciding

whether to transition to Natural again.

Most people settle on somewhere between 75 and 125 of T3 AFTER

resistance clears. Dose before clearance to relieve hypo symptoms can

be twice that depending on symptoms and pulse/temperature, people ramp

up to that level of course, not jump in on it!

If temperatures are unstable that's a sign of adrenal issues and needs

resolving before increasing T3.

If ferritin is under 70 then that also needs resolving.

Good luck

Nick

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