Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Hi Lynn, When you have time, could you do me a favor? My friend's husband has been having myositis-like symptoms ever since he went on Lipitor quite a while ago. He's on prednisone now, but the doctors still haven't diagnosed him. His legs bother him, but they took a muscle biopsy from his arm. (wouldn't ya know?) Well, if you could just briefly list all your symptoms in brief form, I'd like to show it to my friend for when she goes to the rheumatologist with her husband next time. Thanks so much, Annette Lab Results Well, my CPK is down to 466 and my C-reactive protein (don't know this one) is normal. I stay on the 60 mg of prednisolone until the CPK is normal! So, maybe it was the Lipitor. I wonder, tho, if it was - could the myositis always be with me now...in remission or flare. Guess that's another question. Lynn ===== " If life deals you lemons, make lemonade; if it deals you tomatoes, make Bloody s. But if it deals you a truckload of hand grenades...now THAT'S a message! " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Lynn... wow, lets hope an pray it was drug induced... very good question for the doctor because I really don't know. Hope you continue to have your cpk fall. Are you feeling any better? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Yes, Vicki...I'll admit it...I didn't know how bad I felt until I started taking the Pred and started to feel better. I was downstairs boogying with my son to some tapes he and his band made...I couldn't have done that a month ago! Course, I'm a little sore, but nothing like before! Wow...viva la difference, but I'm not taking anything for granted! Hugs, Lynn --- anzavic@... wrote: > > > Lynn... wow, lets hope an pray it was drug > induced... very good question > for the doctor because I really don't know. Hope > you continue to have > your cpk fall. Are you feeling any better? > > Vicki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 I'll try, Annette... 1) Rash on hands started Oct 2000 2) Rash spreads to chest, knees, rear, back, arms - all joints except ankles. Never really made it onto my face except for a very slight redness on nose onto my cheek, just barely. 3) Some difficulty getting up in during those months 4) Sun was my enemy...the rash was angry, swollen 5) August the muscle weakness hit in a rush 6) Upper arms and upper thighs. Sore, hurt 7) Came off Lipitor on my own in mid Sept. 8) CPK was 3600 9) ANA was very elevated, too 10: Sed rate only 7 11) The testing began! EMG & muscle biopsy says muscle damage consistent with myopathy or myositis. 12) Enzymes keep falling without meds...down to 777. After two weeks on 60mg of Prednisolone, CPK is 446. Does that help? Lynn --- Annette Flamand wrote: > Hi Lynn, > When you have time, could you do me a favor? My > friend's husband has been > having myositis-like symptoms ever since he went on > Lipitor quite a while > ago. He's on prednisone now, but the doctors still > haven't diagnosed him. > His legs bother him, but they took a muscle biopsy > from his arm. (wouldn't > ya know?) > Well, if you could just briefly list all your > symptoms in brief form, I'd > like to show it to my friend for when she goes to > the rheumatologist with > her husband next time. Thanks so much, Annette > > Lab Results > > > Well, my CPK is down to 466 and my C-reactive > protein > (don't know this one) is normal. I stay on the 60 > mg > of prednisolone until the CPK is normal! > > So, maybe it was the Lipitor. I wonder, tho, if it > was - could the myositis always be with me now...in > remission or flare. Guess that's another question. > > Lynn > > ===== > " If life deals you lemons, make lemonade; > if it deals you tomatoes, make Bloody s. > But if it deals you a truckload of hand > grenades...now THAT'S a message! " > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 thanks so much, Lynn. I'm going to print this out for my friend. Annette Lab Results > > > Well, my CPK is down to 466 and my C-reactive > protein > (don't know this one) is normal. I stay on the 60 > mg > of prednisolone until the CPK is normal! > > So, maybe it was the Lipitor. I wonder, tho, if it > was - could the myositis always be with me now...in > remission or flare. Guess that's another question. > > Lynn > > ===== > " If life deals you lemons, make lemonade; > if it deals you tomatoes, make Bloody s. > But if it deals you a truckload of hand > grenades...now THAT'S a message! " > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 I meant to mention that I have been on statins for years, starting with Lopid, Zocor, Mevacor (I think) and finally Lipitor (which was a great drug.) Started on 10 mg of it, was boosted to 20mg for a year or more at least without any incidence of muscle pain ever. Most of what I've read says the muscle pain starts 1-6 months after beginning the statin. Now, I'm on Questran (icky stuff, but oh well.) Your friend might want to mention that to his doc as well! Give him my best! Lynn --- Annette Flamand wrote: > thanks so much, Lynn. I'm going to print this out > for my friend. Annette > > Lab Results > > > > > > Well, my CPK is down to 466 and my C-reactive > > protein > > (don't know this one) is normal. I stay on the 60 > > mg > > of prednisolone until the CPK is normal! > > > > So, maybe it was the Lipitor. I wonder, tho, if > it > > was - could the myositis always be with me > now...in > > remission or flare. Guess that's another > question. > > > > Lynn > > > > ===== > > " If life deals you lemons, make lemonade; > > if it deals you tomatoes, make Bloody s. > > But if it deals you a truckload of hand > > grenades...now THAT'S a message! " > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 >Jade was taking 40mcg of t3 when these results were done a week ago. She is now up to 50mcg.I need to know her ratio. And if she is better how does she swap over to naturethroid. Would the high tsh explain why she has actually put on weight. The ratio is 24 but that doesn't actually mean much at this point in the treatment cycle as she will still have RT3 stuck in the T3 receptors causing resistance. A month is not long enough for re receptors to clear, 12 weeks is a more normal period. She will need to keep increasing the T3 for a few weeks yet as residual T4 and it's conversion clears from her system. The ratios in her blood numbers will get better before the receptors and resistance clears. Did she take any T3 on the day of that blood draw? from the TSH she was hypo and from the FT3 she shouldn't have been, this may well just be showing she has resistance still or that she took T3 too near the blood draw. A slow steady increase as her own levels decay aiming to be on 75 after 8 weeks or so suits most people (but depends on what she was on before the T3). After 8 weeks she can adjust dose a little every 3 to 5 days to try and clear hypo symptoms. At the stage where there is resistance this can need a LOT of T3 and as long as her adrenals and ferritin are OK she will probably be able to take it. Spreading the T3 through the day keeps the stress on the adrenals lower. Pulse and temperature are the best indicators of what is happening, blood tests are fairly useless during this stage. If she sticks with this around the 11-12 week mark she may suddenly go hyper, if she watches out for it and stops T3 for a day or so and ramps back in again as her pulse drops then this will be a very short term thing. The signs of this are fast pulse and a temperature over normal plus maybe some heart palps. After that she can reestablish a stable dose of T3 and stay on that for a while before deciding whether to transition to Natural again. Most people settle on somewhere between 75 and 125 of T3 AFTER resistance clears. Dose before clearance to relieve hypo symptoms can be twice that depending on symptoms and pulse/temperature, people ramp up to that level of course, not jump in on it! If temperatures are unstable that's a sign of adrenal issues and needs resolving before increasing T3. If ferritin is under 70 then that also needs resolving. Good luck Nick Quote Link to comment Share on other sites More sharing options...
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