Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 Lynne: Don't feel that you failed as a mother. We do the best we can and make the best decisions we can, given the information we have at the time. Hindsight is always 20/20! Thanks so much for your support. I am so glad that Brent's transplant went well and everybody is doing fine. You guys are so inspiring to me and I'll stay on this list, even though for now Rob is not being treated. I will be a lurker! Thanks again. and Rob On Wed, 10 Dec 2003 06:22:50 -0500 " Lynne " writes: > Hi > I am also sorry about your young son. Brent (our recent transplant) > was systematic at age 15 (14 years ago). At that time we really did > not know what was happening. Doctors were saying it was an > infection that would clear up. He had a biospy in 2000 and we found > IGA. I was sick. I felt like I had failed as a mother for not > following through with other doctors. I do feel your pain, but be > thankful that you are aware of the situation and do monitor closely. > As others have said this support group can assist in providing you > wonderful information to seek the right type of medical attention. > Use the members of this group to help you. I have never found so > much strenght for dealing with my son's situation than this group. > As said once we are really not strangers, but a group of folks > who really understand. Good luck to you and your family. If I can > help just ask. > > YEA to . I agree, don't get off your soapbox. We all need to > join you. Brent will qualify for assistance for 3 years but he is > only 29. There will be alot of years to follow with just his > insurance paying a certain percentage of the cost. When I see the > difference already in his quality of life it makes me sick to think > others may not have this experience because of funding. The one > question that was asked to Brent over and over prior to his > transplant was, " Are you going to be able to commit to the cost of > the medication that will be required post transplant? " Isn't that > sad? Oops , you got me started!!!!!! > > Everyone have a great day and remember Fisher today as she > receives her new kidney. > > Lynne > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.