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Re: Viral Infections

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Hi Dave,

In answer to this question, viral illnesses normally cause a flare up of the

IgAN and it is pretty common for lab results to get worse during the course of

the illness.

However, usually after the viral illness has been fought off, normally the

lab results return to their pre-viral illness baseline.

Hope that answers your question.

In a message dated 11/26/2003 3:49:34 AM Pacific Standard Time,

garradh@... writes:

> if someone with IgA

> contacts other viral illness, 'flu etc - does/can this cause more IgA

> to find its way to kidneys and cause more damage?

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Dave:

I don't know the answer to your question, but I am curious to hear

what others have to say, because my IgAN seems to act similar to

yours. Now, approximately once a year, I get this short-duration

(24hrs) flu-like thing which invariably leads to gross hematuria.

(Actually the last one was about a year ago, so knock on wood). My

kidney numbers have stayed pretty steady over the last 3+ years

(knock on wood again), so this may be at least some anecdotal

evidence that other infections do not necessarily cause more damage.

> I know some of the posts have been a little tongue in cheek from

me

> lately - hope that's ok, we need to laugh huh?

>

> Anyway I have a couple of questions that have popped into my head

> whilst reading todays posts - I've split them into two posts

because

> they aren't at all related.

>

> Ok, first of all ... I as I understand it in laymans terms, when I

> had my nasty stomach virus (woke up one morning with 'flu like

> symptoms but was also throwing up) my body produced, amongst other

> things, Immunoglobulin A to help fight the infection. For some

reason

> (and I've read a few different theories) IgA then ends up in the

> kindneys and we are where we are now - I know that's a fairly

basic

> summary.

>

> (get on with the question I hear you say!)Ok so if someone with

IgA

> contacts other viral illness, 'flu etc - does/can this cause more

IgA

> to find its way to kidneys and cause more damage? Or am I way off

> track?

>

> Thanks

>

> Dave

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and Dave,

I believe that any infection can lead to gross hematuria. I think it is a way

that the kidney complains about you letting yourself get like that when they

already don't feel so good. But the only time that I have ever had that is when

I had a strep infection. That helped me because my docs immediately sent me to

a nephrologist and I was diagnosed. I haven't had it since and I have gotten

down low enough to be transplanted.

Re: Viral Infections

Dave:

I don't know the answer to your question, but I am curious to hear

what others have to say, because my IgAN seems to act similar to

yours. Now, approximately once a year, I get this short-duration

(24hrs) flu-like thing which invariably leads to gross hematuria.

(Actually the last one was about a year ago, so knock on wood). My

kidney numbers have stayed pretty steady over the last 3+ years

(knock on wood again), so this may be at least some anecdotal

evidence that other infections do not necessarily cause more damage.

> I know some of the posts have been a little tongue in cheek from

me

> lately - hope that's ok, we need to laugh huh?

>

> Anyway I have a couple of questions that have popped into my head

> whilst reading todays posts - I've split them into two posts

because

> they aren't at all related.

>

> Ok, first of all ... I as I understand it in laymans terms, when I

> had my nasty stomach virus (woke up one morning with 'flu like

> symptoms but was also throwing up) my body produced, amongst other

> things, Immunoglobulin A to help fight the infection. For some

reason

> (and I've read a few different theories) IgA then ends up in the

> kindneys and we are where we are now - I know that's a fairly

basic

> summary.

>

> (get on with the question I hear you say!)Ok so if someone with

IgA

> contacts other viral illness, 'flu etc - does/can this cause more

IgA

> to find its way to kidneys and cause more damage? Or am I way off

> track?

>

> Thanks

>

> Dave

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I will try to explain this better.

IgA is a normal part of the everyday immune system. With IgAN, those

molecules tend to get deposited in the kidneys. This happens on a regular basis

with

chronic IgAN, regardless of the absence or presence of illness. Of course in

response to any viral illness, the immune system gets kicked into high gear,

and that can make things flare up even more. However, after the viral illness

is gone, most often our kidney levels return to their baseline levels.

Does that make it any more clear?

I hope that helps.

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In a message dated 11/28/2003 1:55:07 PM Pacific Standard Time,

garradh@... writes:

> I may have had this for several years and it took this specific

> virus to trigger a haematuria which caught my attention?

>

This is the most likely scenario. There are many who have IgAN undetected

for many years until they experience a flare up, such as happens with a viral

illness, or by a routine urinalysis that picks up protein even though the

patient is completely unaware of any symptoms at all.

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In a message dated 11/28/2003 1:55:07 PM Pacific Standard Time,

garradh@... writes:

> I may have had this for several years and it took this specific

> virus to trigger a haematuria which caught my attention?

>

This is the most likely scenario. There are many who have IgAN undetected

for many years until they experience a flare up, such as happens with a viral

illness, or by a routine urinalysis that picks up protein even though the

patient is completely unaware of any symptoms at all.

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Thanks and others who replied :o)

Ok, I'm a wee bit confused - maybe I just mis-understood this but I thought it

was a reaction to viral illness that caused the production of IgA and ended up

with it being deposited in my kidneys! So I was wondering whether further viral

episodes would cause even more to be deposited and making things worse? Have I

grasped something wrongly here?

So much to learn, I think I'm in information overload :o(

Re: Viral Infections

Hi Dave,

In answer to this question, viral illnesses normally cause a flare up of the

IgAN and it is pretty common for lab results to get worse during the course of

the illness.

However, usually after the viral illness has been fought off, normally the

lab results return to their pre-viral illness baseline.

Hope that answers your question.

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I think tt has thanks! So basically, once whatever triggers IgA to deposit

in your kidneys, that's it, it's like there's no internal off switch and it is

continuous? So what triggers it then? Or is that the $30m question?

> I will try to explain this better.

>

> IgA is a normal part of the everyday immune system. With IgAN,

those

> molecules tend to get deposited in the kidneys. This happens on a

regular basis with

> chronic IgAN, regardless of the absence or presence of illness. Of

course in

> response to any viral illness, the immune system gets kicked into

high gear,

> and that can make things flare up even more. However, after the viral

illness

> is gone, most often our kidney levels return to their baseline levels.

>

> Does that make it any more clear?

>

> I hope that helps.

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So ... I was assuming that when I had my virus earlier in the year, that

this was when my kidneys became " infected " but .... that may not be

the case? I may have had this for several years and it took this specific

virus to trigger a haematuria which caught my attention?

> :-) Yes, that would be the million dollar question. If you can figure

that

> one out, you could be a very wealthy man!

>

>

>

> So what triggers it then? Or is that the $30m question?

>

>

>

>

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Damn, that's not really a senario I'd considered :(

>

> This is the most likely scenario. There are many who have IgAN

undetected

> for many years until they experience a flare up, such as happens with

a viral

> illness, or by a routine urinalysis that picks up protein even though

the

> patient is completely unaware of any symptoms at all.

>

>

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