Fear

[Guest guest]

Ok Ed...FEAR...darned tootin'

I have a confession to make...I am super paranoid

about walking on snow and ice. Have always had

balance problems anyway. I walk so stiffly. Now with

the myositis, I'm absolutely petrified...and here it

is in the 50s, no sign of the white stuff...but the

anticipation is like awful. Ain't I silly?? But good

grief, I still can't get down on the floor and back up

by myself. So, paranoia, here I am.

Yes, Ed, Bonkers is now our middle name, I think! So

how are you today? Isn't it interesting, how each day

things are different for us? Makes planning really

hard! Talk about flying by the seat of your pants,

sometimes!

Lynn

--- " BMCM(EOD) Ed Rodgers " wrote:

> I think what I've learned is not pacing, it's fear,

> fear that at any time

> things could go bonkers LOL!!

>

> Have a great day!!

>

> Ed

> (unknown)

> >

> >

> > I was afraid Endora was just trying to spare my

> > feelings LOL!! *darn

> > her* Today has actually been a wierd day (yea

> like

> > we don't have

> > those ALL THE TIME). My upper arms and forearms

> > have actually felt

> > weaker than my legs. The lower back is still

> acting

> > up quite a bit

> > and the hips seem to be feeling a little weaker

> > every day. Tired.

> > Tired of being tired. Tired of being tired of

> being

> > tired. It just

> > goes on and on ....

> >

> > Good news!! The Clonazepam I was given for the

> > restless leg business

> > seems to work pretty good. It's take as needed.

> >

> > Geez. Seems like just when we get used to one

> part

> > being weak it

> > goes and moves on us. It's not fair!!!

> >

> > Ed

> >

> >

> > > No, I didn't get to see Oprah. Was it about,

> > perhaps, holiday

> > stress

> > > or something along those lines? Just taking a

> wild

> > guess.

> > > Yes, Vicki, what I read was part of this

> year's

> > conference. Another

> > > thing the doctor said was that -more or less-

> once

> > a myositis

> > > patient, one should always be considered a

> > myositis patient,

> > > remission or no. I found THAT interesting!

> Sort a

> > conflicts with

> > > doctors I've seen. At least, I think it does.

> Boy,

> > I felt kind

> > > of " weaker " today, but my lower back and legs

> > still bothering me.

> > > I di dmake a batch of cookies this afternoon-

> > butter cookies, to be

> > > exact, in the shape of Santas and trees. They

> > turned out wonderful,

> > > and I only ate 2. So far. Seems like when I

> bake

> > cookies, the

> > process

> > > takes up much of the day- make dough, chill,

> roll,

> > etc. Is it worth

> > > it? Most of the time 11 more days-yikes.

> > > Ed, Eudora lied to you. She really did. She

> told

> > me so. How, you

> > ask?

> > > Well, that's my secret:) And why would she,

> you

> > ask? So your bubble

> > > won't burst. How are you feeling today? <3

>

> >

> >

> >

> >

> >

> >