Thank you to wonderful people!

[Guest guest]

Rita, Good on ya, sweetpea. Glad you are bouncing back, and hey, it's what we all need sometimes,

basic support from our friends. Loving hugs, MM

[Guest guest]

A huge hug and Thank you to everyone!!!

I'm kind of in no-mans (to be politically correct) no-person's land atm. I've not been diag'd as a Lupie, but damn I'm beginning to wonder! I am on blood thinners and will be for life as I do have congenital anti-thrombin III deficiency + APC-R (activated protein C resistance) + Raynaud's, now the thing with aphasia looms, the miagrines I've been dealing with (and not always so well) ever since I was a kid. I first noticed minor speech problems when I was an emergency operator back in the mid 80's I used to pull long shifts and think it was just me being tired so I never addressed it, or thought I'd have too (same year I had my first DVT btw).

I will be asking the neuro about mini strokes - as I wonder if that's what I had on my 35th b'day - no I didn't go to a doctor, I had an emotional breakdown at the same time and I was terrified they'd commit me or put me on drugs or both and I wasn't going there girlfriends Ever since then I have had bouts of speech dysfunction and I think it's one of the reasons I turned to writing because I couldn't speak properly and became self-conscious of it (even though everyone around me said 'don't worry about it') I would become quiet, but in writing...

Thank you all for the advise, hugs and prayers (and the links!!), it has helped me 'bounce' and I feel positive today and I'm all fired up and have a new range of emotions to explore for my writing - lol, the story I've been writing just under 5 years now is going to be a darned epic at this rate!!

You folk are the most wonderful, kindest and loving group of people I've ever been fortunate enough to meet - warm hugs back to each and every one of you!!!

Rita

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[Guest guest]

Dear Rita,

I have found in England that unless the bloods show exactly what the

Rheumies want to see then there is nothing wrong with you. Thats why

I travelled 100 miles each way to London to see Dr Graham , he

diagnoses on symptoms not blood tests and he diagnosed me with SLE

APS and Sjogrens on symptoms and inflammatory bloods only.I had

previously seen 8 Consultants prior to him.Don't despair you just

have to be persistant.

Love val

> A huge hug and Thank you to everyone!!!

>

> I'm kind of in no-mans (to be politically correct) no-person's

land atm. I've not been diag'd as a Lupie, but damn I'm beginning to

wonder! I am on blood thinners and will be for life as I do have

congenital anti-thrombin III deficiency + APC-R (activated protein C

resistance) + Raynaud's, now the thing with aphasia looms, the

miagrines I've been dealing with (and not always so well) ever since

I was a kid. I first noticed minor speech problems when I was an

emergency operator back in the mid 80's I used to pull long shifts

and think it was just me being tired so I never addressed it, or

thought I'd have too (same year I had my first DVT btw).

>

> I will be asking the neuro about mini strokes - as I wonder if

that's what I had on my 35th b'day - no I didn't go to a doctor, I

had an emotional breakdown at the same time and I was terrified

they'd commit me or put me on drugs or both and I wasn't going there

girlfriends Ever since then I have had bouts of speech

dysfunction and I think it's one of the reasons I turned to writing

because I couldn't speak properly and became self-conscious of it

(even though everyone around me said 'don't worry about it') I would

become quiet, but in writing...

>

> Thank you all for the advise, hugs and prayers (and the links!!),

it has helped me 'bounce' and I feel positive today and I'm all

fired up and have a new range of emotions to explore for my writing -

lol, the story I've been writing just under 5 years now is going to

be a darned epic at this rate!!

>

> You folk are the most wonderful, kindest and loving group of

people I've ever been fortunate enough to meet - warm hugs back to

each and every one of you!!!

>

> Rita

>

>

>

> ---------------------------------

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