[Guest guest]

Yes, Sue share that bread recipe!!!!

Elaine

[Guest guest]

Hi,

I have just taken my son off sporinox. I was going to put him on a

round of nystatin and then change over to something more natural.

However, this is the hardest kid to get anything into. I know there is no

way that he would take the nystatin 4x per day. Since he has been off

the sporinox, he has gone 1.5 weeks with no bowel movement despite

laxatives, is more stimmy, and doesn't want to eat anything except GFCF

pretzels and chips.

I have a list of natural yeast fighters like cranberry extracts and

yeast fend, but are they gfcf and does anyone have a good one that I can

mix into water or open a capsule into his dinner? Please dont send me

names of any that contain nut products as he is allergic to nuts.

Thanks,

Phyllis

Also, is psyllium seed husk GF?

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

----- Original Message -----

From: enydam

To: GFCFKidsegroups

Sent: Friday, June 23, 2000 8:46 AM

Hi,

I was wondering if there has been any longitudinal or cross sectional studies

conducted on chelation therapy or vitamin therapies to prove their efficacy in

the treatment of autism?

Sincerely

Sue Nydam

Auburn, Mass

[Guest guest]

Thanks Nikki!

I hope baby dust comes our way very soon!!!!

[Guest guest]

> I am sending many ++++++++++++++++++++++++++++++++++++++++++++++

your

> way!

Thanks, ,

I need all the help I can get! I'll let you know.

Sara

35, SU resected

[Guest guest]

Thanks for sharing your story with me. I just can't believe that you

want to go through all that again...whoa!

I'm expecting AF on Thursday/Friday but hoping that perhaps, just

perhaps, we've conceived.

Nikki

UU

[Guest guest]

In a message dated 10/24/2002 8:00:15 AM Eastern Daylight Time,

MullerianAnomalies writes:

> <<Thanks for thinking of me ... somedays I'm good, somedays I'm not :-/

> I'm still lurking tho :-)>>

>

You're welcome. I just wanted you to know we think of you. Here's hoping

for more good days than bad. ((((Hugs))))

Becki

25, UU

[Guest guest]

Kyu

[Guest guest]

I have been exactly where you are twice. The first time was in 1995 when I was first diagnosed with a brain tumor and in the process of having a baseline hearing test the ENT found that I also had a tumor on my Thyroid. The needle biopsy also came back suspicious. I had brain surgery first and two weeks later they removed half of my thyroid. With half of my thyroid remaining, I was put on a maintenance dose of synthroid that seemed to work until 3 years ago when my new doctor lowered the dosage I was taking. Within 6 months I was noticing a growth and tenderness in my throat. It took me nearly 2 1/2 years to convince doctors that something was wrong, and only when my ob-gyn noticed it did they believe me. I was experiencing the choking, coughing, and it was pressing against my trachea. I had one 5.8 cm tumor on the front and another 2.6 on the back of my remaining thyroid. I went back to the same ENT who removed my 1st one. He sent me to an endro and they both agreed that the tumors were too big to be shrunk and must be removed. Again the needle biopsy was suspicious. This time one of the tumors was precanceous. The tumors had also grown into my parathyroids and had caused my trachea to move out of place. They had a hard time getting the tube down my throat for the surgery. I was told that it will always have curve that should not be there due to the displacement. Following the surgery, I was in the hospital for over a week. Due to the damage caused to my parathyroid during the removal, my calcium levels bottomed and I had to receive interveinous calcium for nearly a week. When your calcium level drops, your hands and feet will go numb, your face will go numb and start to twitch around your eyes and lips. Tell someone immediately. They told me this right after I came out of surgery, but I was OK from Friday until Sunday when my feet started to feel like they were going numb. I thought it was from laying in the bed for too long and just go up to move around. I then had a sezier. I am now 10 months after the last surgery. I am still going to the doctor for blood work every 6 weeks. They continue to raise the amount of Synthroid that I am taking. My TSH is still at 11.67 and my doctor wants it between .02 - .05. I am feeling better than I did 10 months ago, but I still have a ways to go. Sometimes we just don't have a choice about having them removed. I'm not going to tell you it is easy, but I am getting better and this group has been very helpful.

Jeannie

Met with the SurgeonMessage-ID: <cscsqk+rmhaeGroups>User-Agent: eGroups-EW/0.82MIME-Version: 1.0Content-Type: text/plain; charset=ISO-8859-1Content-Length: 1209X-Mailer: Yahoo Groups Message PosterX-Originating-IP: 4.156.108.134X-Yahoo-Newman-Property: groups-composeX-Yahoo-GPoster: QQ9XPO6XLVZw2DYcI have met with the surgeon and was told that since I have a multinodular goiter..which is twice the size of a normal thyroid... and since the fine needle aspiration came back "suspicious for Hurthle cell neoplasm...that it is recommended that I have a total thyroidectomy. I was also told I do not have any healthly throid tissue left.(For the past several months, I have also had problems with choking, a horse voice, excessive coughing and a general feeling that my thyroid is pressing on my trachea.)I have decided on the surgery...partially because I am afraid of the benign vs. malegnant possibilities with Hurthle cells and because my goiter is quite large, noticable and causing me some discomfort. I am also afraid that if it gets too much larger I may have further problems with breathing and eating.So, here is my question...what is life like after your thyroid is gone and you need to take a thyroid hormone pill each day for the rest of your life?Please.. I am looking for positive encouragement here. Once I have the surgery..there is no turning back. I need to know I will begin to feel more like my energenic self, even if it takes a while.Thank you for your reply.

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.300 / Virus Database: 265.6.12 - Release Date: 1/14/2005

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.6.12 - Release Date: 1/14/2005

[Guest guest]

LoL - that's fine with me. Especially seeing as I haven't much idea what I'm doing with this, I'll need all the mother/father hen help I can get on where we're going after the endo appt. What vitamins, etc.

Should I start him on a multi-vitamin now? Or should I wait on doing anything until after we go in next week? Also, will the school be required to comply with allowing him a couple breaks in the day in order for him to do the mini-meals you've talked about? Is that something he SHOULD be doing? Or is it mainly important for those who are over weight with hypo? ( barely weighs 40 pounds at nearly 7 years old.)

Questions, questions, questions. By the time we go next Thursday, I'll be telling the doc what to do, instead - LoL.

Ami

-- Re:

Ohhh keep us posted... we've all adopted him now, you know that don't you!!! *wink*

Topper ()

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.0 - Release Date: 1/17/2005

[Guest guest]

If the school is supportive I'd have him have snacks... Keeping energy levels up will help with conversion and help the body to normalize. He's a growing boy and has some catching up to do it's important that his body have everything it needs to catch up, IMHO. Just a half a peanut butter Sandwich or something (no soy) would be a good choice, I think. Or PB & J. Things that don't require special storage and won't be hurt if the weather is really hot or really cold and can sit at room temp... I have no idea what the school security stuff would be, they may not want food anywhere but in the cafeteria.....

Let them run the tests first.. that way they will be able to check for B levels, iron.. etc... find out where he is at right now. Then you will know what types of supplements will be needed.

Okay moms.... who knows the best vitamins for kids? I'm not up on that....

Topper ()

On Thu, 20 Jan 2005 22:45:01 -0600 (Central Standard Time) "Foxes" writes:

LoL - that's fine with me. Especially seeing as I haven't much idea what I'm doing with this, I'll need all the mother/father hen help I can get on where we're going after the endo appt. What vitamins, etc.

Should I start him on a multi-vitamin now? Or should I wait on doing anything until after we go in next week? Also, will the school be required to comply with allowing him a couple breaks in the day in order for him to do the mini-meals you've talked about? Is that something he SHOULD be doing? Or is it mainly important for those who are over weight with hypo? ( barely weighs 40 pounds at nearly 7 years old.)

Questions, questions, questions. By the time we go next Thursday, I'll be telling the doc what to do, instead - LoL.

Ami

[Guest guest]

Okay, sounds good. The cardiologist was the one who ordered the blood tests to be done before going to see the endo, so she only ordered the Ft4, TSH, and antibodies. How long does it take to get B levels, ferritin, iron, calcium tests back? (Iron I know is a matter of seconds and a finger prick - I don't worry much about that as my kids and I always have fabulous iron, more on the high side, never needed iron in my pre-natals even) If the endo does them (or I request them), will those results be back before we leave that day?

And will be happy as sh** gettin to eat pb & j all day - LoL. I'm sure his teacher will be cooperative, even without a doctor's note. And we live in a small enough town, we don't have security stuff to worry about, esp in elementary. They only JUST started making parents come in to sign there kids out if picked up early in the last 5 years or so.

Ami

-- Re:

If the school is supportive I'd have him have snacks... Keeping energy levels up will help with conversion and help the body to normalize. He's a growing boy and has some catching up to do it's important that his body have everything it needs to catch up, IMHO. Just a half a peanut butter Sandwich or something (no soy) would be a good choice, I think. Or PB & J. Things that don't require special storage and won't be hurt if the weather is really hot or really cold and can sit at room temp... I have no idea what the school security stuff would be, they may not want food anywhere but in the cafeteria.....

Let them run the tests first.. that way they will be able to check for B levels, iron.. etc... find out where he is at right now. Then you will know what types of supplements will be needed.

Okay moms.... who knows the best vitamins for kids? I'm not up on that....

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.0 - Release Date: 1/17/2005

[Guest guest]

Iron in the blood is not the test you want.. ferritin, storage iron, is the one that we need tested.

Watch you PB to make sure there is no soy.. many of the cheaper ones have soy.... and for the jelly/jam... watch to make sure no High Fructose Corn syrup... then he'll be getting a pretty decent snack for a kid... flavors he likes, protein and fruit sugar.. good stuff, really.

I'm not sure how fast the other tests come back..... Through Health Check it's 3 days and that is all done by mail.... so it's not a long involved test.... it's just gonna be a matter of where they send the samples, I would guess....

Good deal for you school... Perhaps you could do low dose vitamins and have him take a vitamin at lunch time, mid day... I know the schools around here won't let students take ANY pills, they have to go to the nurse..... Just a though.. I'm really big with splitting vitamin doses and spreading them out during the day.. I learn that when I was body building.....

Topper ()

On Fri, 21 Jan 2005 07:57:28 -0600 (Central Standard Time) "Foxes" writes:

Okay, sounds good. The cardiologist was the one who ordered the blood tests to be done before going to see the endo, so she only ordered the Ft4, TSH, and antibodies. How long does it take to get B levels, ferritin, iron, calcium tests back? (Iron I know is a matter of seconds and a finger prick - I don't worry much about that as my kids and I always have fabulous iron, more on the high side, never needed iron in my pre-natals even) If the endo does them (or I request them), will those results be back before we leave that day?

And will be happy as sh** gettin to eat pb & j all day - LoL. I'm sure his teacher will be cooperative, even without a doctor's note. And we live in a small enough town, we don't have security stuff to worry about, esp in elementary. They only JUST started making parents come in to sign there kids out if picked up early in the last 5 years or so.

Ami

[Guest guest]

Good for you - you have inspired me to push through this day. Thanks and way to go!

Kim

--

I wanted to overeat SO BAD last night- but instead I sat on the couch, and lived with my emotional feelings, and boy, was it NOT fun. But I know the more I do this, the less likely it will be for me to binge each time.