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Re: Can you help me here/

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Narice- I guess I would not get too excited by those platelet

counts. Mild drops in platelet counts are common with oxaliplatin.

My oncologist says that since platelet counts don't come back up as

quickly as WBCs, that they can gradually decline. My oncologist told

me that it can require a short break if they get too low. He said he

hesitates to treat if they are below below 75,000. Mine got down to

about 89,000 once (they still treated me) and the count was back up

to 135,000 2 wks later. It is not uncommon for the results to vary

20,000 or so just from variation in the machine counting.

There is a drug, Neulasta which can raise platelet counts, that

someone here mentioned once, and I also mentioned recently after I

checked into it. It has more side effects than Procrit or Neupagin,

so they only recommend it to avoid a platelet transfusion if the

platelet count gets to the danger point where bleeding could occur.

The impression I get from the docs is that people feel really ill

with most of the other things that cause platelet counts to drop

dramatically.

Kris

> The way they measure platelets at our cancer center seems to be by

using

> units 1-200

> for example rather than 1,000-200,000 Currently Phil is at 145 not

bad but

> the last 3 weeks he's been:

> 1/7 200

> 1/14 120

> 1/21 145

>

> The onc. said this is due to the chemo.

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Narice-Oops - I just read the comments from Nickie and realized I had

made a mistake. Neulasta, like Neupogen works predominately to

increase WBCs. It is fairly commonly used. Like Nickie said, one of

the common side effects is bone pain. It does not result in a

dramatic change in platelet counts, but that is OK if they are not

critically low.

When my oncologist commented that there was a drug that could elevate

platelet counts, and that he had only used a couple of times, I got

curious. It is Neumega (oprelvekin) an interleukin 11 like drug that

has been used to try to reduce the need for platelet transfusions

when platelet counts get critically low. According to Wyeth's

website though, it can cause marked edema, fever and much more scary

side effects. So this is a drug they would not consider using except

when there is real trouble.

Sorry I got names mixed up-I didn't mean to scare anyone. Neupogen

and Neulasta have been a big help to allow a number of people

continue chemotherapy without a break.

Kris

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