Have a ?

[Guest guest]

Hi, Yesterday I sent a post and hoped to hear from at least a couple other Lupies. I need some opinions. Yesterday I said forever I have liked warm or hot sunshine and, if I had to have winter then could it please be short and sweet? This summer things have drastically changed for me. I can't go out in the sun for more than 5 minutes without getting physically ill. I'm talking about 90degrees or above. I get totally red in the face, my heart races, I sweat (perspire is too light a word for what I do), I get an intense headache or a migraine, I get nauseated and often vomit. This all sounds like symptoms of heatexhaustion or heatstroke to me, but 5 minutes or less won't do that. Then I can pretty much count on blossoms of facial lesions, mouth and nose sores, increased pain in joints and muscles and the fog really rolls in bad.

I have lived in this exact same home for the past 7 years having both Lupus and Fibromyalgia the whole time. My lab values aren't any worse than they have been in the past. I just feel so much worse unless I stay inside the house with the airconditioning on.

Can you see why I want snow?? Or at least a lot cooler weather??

Now I am hoping to hear from any of you. What do you think? I have been seeing my doctor at least every 3 weeks or more often ever since the temperature started to go up, so he is very aware. He says he thinks that I am becoming more heat intollerant and it is causing problems with Lupus. I want off prednisone, but he seems to think I should hold off for a while and stay on 15-20mg a day until it is cooler and then try to decrease. I dropped to 8mg yesterday. I never believed 1mg would make a difference, but it really does. When I was on about my 5th day of dropping to 9mg I felt like I hit a wall. Yesterday was still bad, but I dropped to 8mg anyway. Today I am feeling a bit better so put of calling the doctor. I will call him tomorrow.

Hugs - a B