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Hello everyone. I went to ob's today!! I didn't expect to have an u/s since she said ins. co. would no longer allow it in office, but she did one anyway!!! I was thrilled, though sad because my dh wasn't there. I told him since I was going for exam not to worry about it. Anyway, I go to see and hear the heartbeat!!! I still can't believe it!!!! My question is though, I thought they went by the date of your last af, which was March 21st. They said I would of been 8wks today, but tech said I am 7wk today and gave me an edd of Jan. 1, 2002! I didn't think to ask how they figured that out, I guess I was still shocked about having u/s today!! I wasn't sure I would hear and see the heartbeat since she said I was only 7wks but I did!!! I am really trying to enjoy the moment!!! I made it through one more hurdle. I know I have many, many more to go and I know I will freak out about alot of things, but today I was glad things went well. I have to catch up on the posts here. I am sorry. I had school and I am so tired, it is way pst my bedtime. I hope everyone is doing ok and thank you so much for being here for me. I have alll of you in my thoughts and prayers!!! Take care. ep 12-00 7wk.......not 8wks?????? I guess! (darn) Hope you get good news at the dr today! Well, you've probably already been there so I should say 'got good news'. Post an update as soon as you can. I am anxiously waiting to hear all about it. I'm going to live vicariously through your appt (okay?!) so that I can hopefully make it to my appt on Friday without going bonkers!!-AmyR

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susan,

I am sooooo happy for you sweetie! Isn't that just the most beautiful

sound you've ever heard!!!!! Congrats!

elle

> Hello everyone. I went to ob's today!! I didn't expect to have an

u/s since she said ins. co. would no longer allow it in office, but

she did one anyway!!! I was thrilled, though sad because my dh wasn't

there. I told him since I was going for exam not to worry about it.

Anyway, I go to see and hear the heartbeat!!! I still can't believe

it!!!! My question is though, I thought they went by the date of your

last af, which was March 21st. They said I would of been 8wks today,

but tech said I am 7wk today and gave me an edd of Jan. 1, 2002! I

didn't think to ask how they figured that out, I guess I was still

shocked about having u/s today!! I wasn't sure I would hear and see

the heartbeat since she said I was only 7wks but I did!!! I am really

trying to enjoy the moment!!! I made it through one more hurdle. I

know I have many, many more to go and I know I will freak out about

alot of things, but today I was glad things went well.

>

> I have to catch up on the posts here. I am sorry. I had school and I

am so tired, it is way pst my bedtime. I hope everyone is doing ok and

thank you so much for being here for me. I have alll of you in my

thoughts and prayers!!! Take care.

>

>

> ep 12-00

> 7wk.......not 8wks?????? I guess! (darn)

>

>

>

>

>

>

> Hope you get good news at the dr today! Well, you've probably

> already been there so I should say 'got good news'. Post an update

> as soon as you can. I am anxiously waiting to hear all about it.

> I'm going to live vicariously through your appt (okay?!) so that I

> can hopefully make it to my appt on Friday without going bonkers!!

>

> -AmyR

>

>

>

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susan,

oh...HAPPY NEW YEAR'S TOO!!!!!!!!!!!!!

elle

> Hello everyone. I went to ob's today!! I didn't expect to have an

u/s since she said ins. co. would no longer allow it in office, but

she did one anyway!!! I was thrilled, though sad because my dh wasn't

there. I told him since I was going for exam not to worry about it.

Anyway, I go to see and hear the heartbeat!!! I still can't believe

it!!!! My question is though, I thought they went by the date of your

last af, which was March 21st. They said I would of been 8wks today,

but tech said I am 7wk today and gave me an edd of Jan. 1, 2002! I

didn't think to ask how they figured that out, I guess I was still

shocked about having u/s today!! I wasn't sure I would hear and see

the heartbeat since she said I was only 7wks but I did!!! I am really

trying to enjoy the moment!!! I made it through one more hurdle. I

know I have many, many more to go and I know I will freak out about

alot of things, but today I was glad things went well.

>

> I have to catch up on the posts here. I am sorry. I had school and I

am so tired, it is way pst my bedtime. I hope everyone is doing ok and

thank you so much for being here for me. I have alll of you in my

thoughts and prayers!!! Take care.

>

>

> ep 12-00

> 7wk.......not 8wks?????? I guess! (darn)

>

>

>

>

>

>

> Hope you get good news at the dr today! Well, you've probably

> already been there so I should say 'got good news'. Post an update

> as soon as you can. I am anxiously waiting to hear all about it.

> I'm going to live vicariously through your appt (okay?!) so that I

> can hopefully make it to my appt on Friday without going bonkers!!

>

> -AmyR

>

>

>

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  • 2 years later...

Hi :

I am really sorry to hear about the tumours on your spine. You are

right, the news comes at a bad time. Like you have told many others

here, you will get through this.

The silver lining I think is that your oncologist really seems to be

on top of things. I have come to develop a real appreciation of your

wisdom and the incredible gift you give us by spending your time

answering all the questions on this board. I worry about you the way

I do my own family, so I am comforted by knowing that your onc is so

on top of things.

The tumours are relatively small and there is no reason to think that

the radiation won't do the trick quite nicely. You have my hopes and

prayers that everything goes as smoothly and as comfortably as

possible.

In the meantime, keep your chin up enough to enjoy those around you

and all that the season has to offer (including some yummy food and

continued success with your weight gain).

Best wishes. I know you have the prayers and warmest wishes of

everyone here.

Laurie

> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more than

I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112 now

> and don't have a lot of " padding " on my back! But I managed to get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

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Hi ,

I am really happy for your good news but so sorry for the bad one. I

second what Laurie said about you - you truly are an amazing

individual. Every time I talked to my brother, I mentioned you and

other cancer survivors from this board. I want him to know how hard

everyone is fighting this disease so he could do the same. I am sure

you will be fine. I think you do have some advantages fighting this

battle - your advance knowledge about the disease and treatments, an

Onc seems to be ontop of thing, plus everyone on this board who will

be praying for you.

Best wishes and hang in there, I too will be praying for you.

Loc

> > Hi All,

> >

> > Well, this past Monday I went back in to see the onc. And, as

> usual,

> > a mixture of good and bad news.

> >

> > The good news is, I have overall been feeling fairly well the

past

> > few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

> (very

> > happy about that - for awile it seemed the weight was dropping

with

> > no end in sight!). Bilirubin had decreased to .9, finally

> > within " normal " range.

> >

> > My second cycle of Xeloda started yesterday. I have not had " too

> > severe " side effects from the Xeloda, although it seems to have

> > caused my stools to loosen up/increase in frequency a bit more

than

> I

> > would like. This morning I had to go to the bathroom 3 or 4

times

> (!)

> >

> > But overall that is tolerable...so far so good...

> >

> > HOWEVER - there was unfortunately a negative side here too.

> >

> > I had been noticing a bit of lower back pain, along

with " weakness "

> > in my legs. Feels like it does if you do too much yardwork or

> > something - just an aching soreness. Getting up out of chairs/bed

> and

> > such has been a little bit harder these past couple weeks.

> >

> > When I told the onc about this, he started to look a bit

> concerned.

> > He said that I needed a MRI of the spine " right away! " to see if

> > these symptoms were caused by lumbar metastases pressing on the

> > spine. So he set me up for the MRI on Wed. night (!).

> >

> > The scan was miserable, mainly because it lasted an hour and the

> > table was VERY hard. You have to keep in mind I only weigh 112

now

> > and don't have a lot of " padding " on my back! But I managed to

get

> > thru the whole thing without having to stop or otherwise screw it

> up.

> >

> > Well anyway, this morning, the onc called with the results of the

> > scan. I was dismayed (but not really surprised) to learn that I

> have

> > 2 small tumors (about 2 cm each) pressing on the spine. The onc

> told

> > me I need to get an appt with the radiation

> > oncologist " immedidately " , because permanent paralysis can result

> > should these tumors be allowed to grow unchecked. He helped me

get

> > an appointment scheduled for first thing Monday morning (8:30!).

> >

> > So...looks like I will end up having to do some type of radiation

> > over the Xmas holidays. Not exactly a great Christmas present,

eh?

> >

> > Oh well...

> >

> >

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, so sorry to hear about this new development and another pot

hole on the road of your journey..but I know that your car will just

drive right over it...get a little knocked around maybe, but keep

right on going. The tumors are small and should very easily be taken

care of by radiation. Heck, if radiation fried the S _ _ t out of my

mother's rather large lung tumor, what the heck are two little

ones...right!

I wish you and yours a great holiday and pray for a HEALTHY and good

New Year.

Hugs,

Monika

> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more than

I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112 now

> and don't have a lot of " padding " on my back! But I managed to get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

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> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more than

I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112 now

> and don't have a lot of " padding " on my back! But I managed to get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

,

Keep good thought,s. radiation will take care of this. enjoy your

family and this time of year, good food. Be glad your doctor is on

top of thing,s. sometime,s I think good doctor,s are hard to come by.

I will keep you and your family in my prayers.

Hugs and prayers Jana

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> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping

with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more

than I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along

with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112

now

> and don't have a lot of " padding " on my back! But I managed to

get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me

get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

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Dear : Please keep your faith. Yes, it is not the best news,

but you are here-now and you can get to your computer and send

messages and offer condolences to me for my husband. I have thought

of you so much while watching my husband go through this. Everyone

has their way of coping with what life deals them. My husband felt

that if he felt lousy, he should remain in bed and rest because

that's what his body needed and I respected that (most of the

time). THe dr. said to walk at least 1/2 hour a day during his

treatment whether he felt like it or not. I believe that he just

felt lousy and maybe could have gotten around but needed to conserve

his energy. THe thing of it is is that he also cut off a bit and

missed out on his life to a great extent during the time he had

left. I don't beleive he ever thought he'd see the day when the dr.

would say there's nothing more that could be done. Whether that

could have been different I'll never know and I can't judge how he

handled his situation because I simply don't know what it's like to

have a late stage cancer and feel what that does to the body. Just

know what you mean to so many of us and how much you are admired for

being a part not only of your own life but of all our our lives

too. It's an incredible sacrifice and gift.

SIncerely,

ka

> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping

with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more

than I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along

with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112

now

> and don't have a lot of " padding " on my back! But I managed to

get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me

get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

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Hi -

I am so sorry to hear about the spine mets, but I am glad that your

oncologist acted quickly on your symptoms, and has gotten you set up

for radiation therapy pronto. That is really important, and I'll bet

will give you a really good shot at eliminating your symptoms and

preventing further problems there.

I am glad to hear that you have been feeling pretty well. Golly 112

lb is up 9 lb from 3 wks ago..... You must have felt horrible. I

don't know how much you lost total, but I am a pretty small person,

and I did not feel like moving when I fell to 104 lb from 118. Here

is hoping that you continue feeling well and gaining weight.

I guess that I forget a bit about diarrhea as a frustating side

effect of chemo these days, although I should know better, since I

dealt with really bad diarrhea with CPT 11 before I got my

ileostomy..There are advantages to having an ostomy! Imodium slows

down my diarrhea. Have you been using that?

I know all of us are fervently hoping that all goes well.

Best wishes,

Kris

P.S. I always look forward to reading your posts. I learn lots from

yours, and am so impressed at how much information you manage to find

to help answer people's questions, even when you are going through

rough times yourself. You are so good at explaining data to those of

us who are not so used to dealing with that information. That takes a

great deal of time and thought.

> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual,

> a mixture of good and bad news.

>

> The good news is, I have overall been feeling fairly well the past

> few weeks. I gained 9 lbs since my last onc visit 3 weeks ago

(very

> happy about that - for awile it seemed the weight was dropping with

> no end in sight!). Bilirubin had decreased to .9, finally

> within " normal " range.

>

> My second cycle of Xeloda started yesterday. I have not had " too

> severe " side effects from the Xeloda, although it seems to have

> caused my stools to loosen up/increase in frequency a bit more than

I

> would like. This morning I had to go to the bathroom 3 or 4 times

(!)

>

> But overall that is tolerable...so far so good...

>

> HOWEVER - there was unfortunately a negative side here too.

>

> I had been noticing a bit of lower back pain, along with " weakness "

> in my legs. Feels like it does if you do too much yardwork or

> something - just an aching soreness. Getting up out of chairs/bed

and

> such has been a little bit harder these past couple weeks.

>

> When I told the onc about this, he started to look a bit

concerned.

> He said that I needed a MRI of the spine " right away! " to see if

> these symptoms were caused by lumbar metastases pressing on the

> spine. So he set me up for the MRI on Wed. night (!).

>

> The scan was miserable, mainly because it lasted an hour and the

> table was VERY hard. You have to keep in mind I only weigh 112 now

> and don't have a lot of " padding " on my back! But I managed to get

> thru the whole thing without having to stop or otherwise screw it

up.

>

> Well anyway, this morning, the onc called with the results of the

> scan. I was dismayed (but not really surprised) to learn that I

have

> 2 small tumors (about 2 cm each) pressing on the spine. The onc

told

> me I need to get an appt with the radiation

> oncologist " immedidately " , because permanent paralysis can result

> should these tumors be allowed to grow unchecked. He helped me get

> an appointment scheduled for first thing Monday morning (8:30!).

>

> So...looks like I will end up having to do some type of radiation

> over the Xmas holidays. Not exactly a great Christmas present, eh?

>

> Oh well...

>

>

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: We really do not know you but we have been reading your posts,the

tributes

other board members write to honor you and we think maybe this will be your

personal miracle. This is goodnews,badnews,but you instill faith,calm people

and

amek them look at thins.. So now it would seem it's our trun to send those

little

prayers upstaurs for you. New radiation protocols make it easier,less painful

and

shorter. Put your hand,in His,he will guride you and I know your spirit will

be rejuv-

inated and you will fight back. Peace,health,faith,courage and hope. Everyone

here is pulling for yo. God Bless you Nick & Jane

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> Hi All,

>

> Well, this past Monday I went back in to see the onc. And, as

usual, a mixture of good and bad news. >

Dear , Our Hero,

I was so happy to read your good news in your UPDATE email that I

forgot that there could be bad news. I guess not bad-bad but just

unfortunate because you feel so good lately and now you will have to

have some radiation for the spine tumors....as you say, they are

small so hopefully, they will be zapped away in no time. It could be

worse, so I guess as per your email, one must accept the good news

with the bad.

I think of you and the group often and pray that your Holidays are

filled with love and better health. I just got back from Lourdes,

France and it was a wonderful experience. I said a prayer for

everyone!

Happy Holidays and Best wishes for 2004,

Kit

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  • 2 weeks later...

, I don't have a thing to add to all the wonderful suggestions

you've received for those damned side effects, but I wanted you to

know that I'm thinking of you tonight and hoping that surely some of

the suggetions will help. Many of them I had read up on - trying to

be ready when my husband went on Xeloda.

The last thing I do each night is read what has happened with all of

you that day. I always shake my head with great admiration at your

collective Goddamn-it, get-out-of-my-way, fact-gathering, helpful,

compassionate, tenacious willingness to go to any length.

My grandmother was a Methodist minister's wife and she used to say

when you did a good deed that you were " earning a star in your

crown. " Check your crowns tonight, everyone, especially you, ,

and count your stars. You must have a million. I just wish they

helped mouth sores.

Carol

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