Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hey Ginger and group! I hate when I see statistics like that 20%.Sure it's scary!I have a syrinx.I was told by 3 nsg's it was gone.Now Dr.Paschall says it is very much there.It's shriveled.So does that put me in that % thing?Probably not. I was born with acm and it went undetected until I was 41.I was a clumsy kid.I remember crying in pain and Mom saying it was growing pains.I stunk at sports. Cody was detected and treated early.That's a plus.From what you write about him he's a tough kid.I live each day to the fullest.One just never knows. Sometimes when I read some of the posts I wonder should I stay ignorant to my disease.Not!Some things are disturbing.What we have is real!We also have each other.That's the miracle. I have been looking into syringomylia,not finding much on shriveled syrinx though.Any info would be appreciated.Much love to all! Hugs, Lee __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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