Re: verbal stimming in response to a mom who commented

[Guest guest]



Maybe someone else on the board can advise you on this. I just asked our DAN doctor for a copy of the test so I will know more of the information I see written on the these posts.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



thank you, it was most helpful.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



I've never made the yogurt. Maybe someone else can answer that question.

Sorry.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

When following the Specific Carb Diet, they want you to make the yogurt from scratch...including the almond milk. So we don't make yogurt from store-bought Almond Breeze. I have not made it in almost a year, and before I try again I'd like to find a yogurt starter without strep strains. Anyone?

Almond milk in general is delicious (I think), but if you want the benefits of adding probiotics to your son's diet (Bernice), you need to change it into yogurt.

Hope that helps.

To: mb12 valtrex Sent: Thu, November 5, 2009 7:15:17 PMSubject: Re: Re: verbal stimming in response to a mom who commented

 I've never made the yogurt. Maybe someone else can answer that question.

Sorry.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear

her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any

suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

Okay, so understand that I could be talking out of my rear end on this one as I've never made yogurt before! But I always thought you could make yogurt with any kind of probiotic, not necessarily something that was specifically labeled a "yogurt starter". *If* this is true, and there's no guarantee it is, then you could have one made through Custom Probiotics or you could use the probiotic that you normally use without strep strains. I'm sure someone with more yogurt knowledge can step in here better than I can! Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ When following the Specific Carb Diet, they want you to make the yogurt from scratch...including the almond milk. So we don't make yogurt from store-bought Almond Breeze. I have not made it in almost a year, and before I try again I'd like to find a yogurt starter without strep strains. Anyone? Almond milk in general is delicious (I think), but if you want the benefits of adding probiotics to your son's diet (Bernice), you need to change it into yogurt.Hope that helps.From: kcboone <kcboonecomcast (DOT) net>To: mb12 valtrex Sent: Thu, November 5, 2009 7:15:17 PMSubject: Re: Re: verbal stimming in response to a mom who commented I've never made the yogurt. Maybe someone else can answer that question. Sorry. Re: verbal stimming I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

What is PANDAS?? ThxSent from my BlackBerry® smartphone from Sinyal Bagus XL, Nyambung Teruuusss...!Date: Wed, 4 Nov 2009 23:13:47 -0500To: <mb12 valtrex >Subject: Re: Re: verbal stimming in response to a mom who commented it's a natural antibiotic and works well with PANDAS. you don[t get rid of PANDAS you have to live with it but be in constant preventive mood as you will reflare with exposure to strep, and strep based probiotics Re: verbal stimming I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

My daughter always seems beter on antibiotics!Gotta check for lyme but how?Deb k

> > > > >

> > > > > My 7 yr. old daughter has a verbal stim that is becoming more

pronounced. She talks under her breath, in a whisper tone, nearly all the time.

I can hear her doing this whether I'm in the same room as her or in another room

in the house. It seems that she can't help it, or stop herself for more than a

few moments. She does this even when someone is speaking, either to her or to

someone else nearby. It is constant, from the time she wakes up until she goes

to sleep. She is verbal, but does not have typical spontaneous speech. She

answers questions, makes requests, can tell you an event that occurred during

the day, but again, not spontaneous conversational speech. Her comprehension is

delayed, and often when I hear her talking in that whisper tone, what she is

saying doesn't make sense to me, just a few words mixed with sounds strung

together. When I ask her what she said, she will repeat it for me ( " go tell

them " , " cross the street " , etc.) and even try to give me an explanation of what

her 'phrase' meant.

> > > > >

> > > > > Does this sound familiar to anyone else? Any suggestions or

advice would be GREATLY appreciated. I am at my wits end with this.

> > > > >

> > > > > Karmen

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My daughter always seems beter on antibiotics!Gotta check for lyme but how?Deb k

> > > > >

> > > > > My 7 yr. old daughter has a verbal stim that is becoming more

pronounced. She talks under her breath, in a whisper tone, nearly all the time.

I can hear her doing this whether I'm in the same room as her or in another room

in the house. It seems that she can't help it, or stop herself for more than a

few moments. She does this even when someone is speaking, either to her or to

someone else nearby. It is constant, from the time she wakes up until she goes

to sleep. She is verbal, but does not have typical spontaneous speech. She

answers questions, makes requests, can tell you an event that occurred during

the day, but again, not spontaneous conversational speech. Her comprehension is

delayed, and often when I hear her talking in that whisper tone, what she is

saying doesn't make sense to me, just a few words mixed with sounds strung

together. When I ask her what she said, she will repeat it for me ( " go tell

them " , " cross the street " , etc.) and even try to give me an explanation of what

her 'phrase' meant.

> > > > >

> > > > > Does this sound familiar to anyone else? Any suggestions or

advice would be GREATLY appreciated. I am at my wits end with this.

> > > > >

> > > > > Karmen

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My daughter always seems beter on antibiotics!Gotta check for lyme but how?Deb k

> > > > >

> > > > > My 7 yr. old daughter has a verbal stim that is becoming more

pronounced. She talks under her breath, in a whisper tone, nearly all the time.

I can hear her doing this whether I'm in the same room as her or in another room

in the house. It seems that she can't help it, or stop herself for more than a

few moments. She does this even when someone is speaking, either to her or to

someone else nearby. It is constant, from the time she wakes up until she goes

to sleep. She is verbal, but does not have typical spontaneous speech. She

answers questions, makes requests, can tell you an event that occurred during

the day, but again, not spontaneous conversational speech. Her comprehension is

delayed, and often when I hear her talking in that whisper tone, what she is

saying doesn't make sense to me, just a few words mixed with sounds strung

together. When I ask her what she said, she will repeat it for me ( " go tell

them " , " cross the street " , etc.) and even try to give me an explanation of what

her 'phrase' meant.

> > > > >

> > > > > Does this sound familiar to anyone else? Any suggestions or

advice would be GREATLY appreciated. I am at my wits end with this.

> > > > >

> > > > > Karmen

> > > > >

> > > >

> > >

> >

>

[Guest guest]



yes typically the PANDAS Is beta, BUT we are seeing patterns in kids with PANDAS showing signs FIRST with gamma in the stools. VERY consitantly. infact I don't think I have found ONE kid with out it showing up first. not sure why or how it corrilates just a pattern I have noticed. where did you find yours??? it can be the body just stops fighing and winning against strep so it shows up first with a weak one and then moves onto others???OLE is olive leaf extract. 500 mgs 3 times a day did the trick in our house for awhile

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



oh you can use any probiotics for starters, we have used klare's baby one as well as therabiotic detox support

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

OLE won't get rid of PANDAS but will get rid of strep and calm a flare. if you have PANDAS you have it for life, it just flares and calms. it takes 6-8 weeks for titers to skyrocket for testing after onset of symptoms. it calms after taking meds....which you would retest in about 6-8 weeks again to see what is working\\

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

you don't get rid of it but you can be prevenetive or treat flares

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

yes no probiotics with strep lines

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



vit A got rid of it for us in our house in 4 hours

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



last I checked that one contained soy

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



if you have a child with an opoiate they will only drink something they get a high off of which may be why they won't take another. you can do the 25/75 50/50 75/25 wean off to something else. alm,ond breese contains soy so he may be getting his drug fix

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

I guess the old theory about PANDAS going away with puberty is pretty much discredited. Subject: Re: Re: verbal stimming in response to a mom who commentedTo: mb12 valtrex Date: Friday, November 6, 2009, 10:06 PM

you don't get rid of it but you can be prevenetive or treat flares

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

strep based over night OCD, ODD, autoimmune strep reaction attacking the brain, lungs and heart.....you can read more on NIMH

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]



no joke, I have an aspie friend not dxed till age 30

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

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My son caught a cold and I believe it was bacterial. His stimming increased

dramatically. Would that be PANDAS. His probiotics do not contain any strep

lines.

> > > > >

> > > > > My 7 yr. old daughter has a verbal stim that is becoming

more pronounced. She talks under her breath, in a whisper tone, nearly all the

time. I can hear her doing this whether I'm in the same room as her or in

another room in the house. It seems that she can't help it, or stop herself for

more than a few moments. She does this even when someone is speaking, either to

her or to someone else nearby. It is constant, from the time she wakes up until

she goes to sleep. She is verbal, but does not have typical spontaneous speech.

She answers questions, makes requests, can tell you an event that occurred

during the day, but again, not spontaneous conversational speech. Her

comprehension is delayed, and often when I hear her talking in that whisper

tone, what she is saying doesn't make sense to me, just a few words mixed with

sounds strung together. When I ask her what she said, she will repeat it for me

( " go tell them " , " cross the street " , etc.) and even try to give me an

explanation of what her 'phrase' meant.

> > > > >

> > > > > Does this sound familiar to anyone else? Any suggestions or

advice would be GREATLY appreciated. I am at my wits end with this.

> > > > >

> > > > > Karmen

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Colds are almost always viral. He could have caught something called Mycoplasma

PANDAS is from strep it is associated with an acute onset of OCD like behavior

so its unlikely PANDAS Any infection can cause increases in stimming Try Olive

leaf extract for a week or two

> > > > > >

> > > > > > My 7 yr. old daughter has a verbal stim that is becoming

more pronounced. She talks under her breath, in a whisper tone, nearly all the

time. I can hear her doing this whether I'm in the same room as her or in

another room in the house. It seems that she can't help it, or stop herself for

more than a few moments. She does this even when someone is speaking, either to

her or to someone else nearby. It is constant, from the time she wakes up until

she goes to sleep. She is verbal, but does not have typical spontaneous speech.

She answers questions, makes requests, can tell you an event that occurred

during the day, but again, not spontaneous conversational speech. Her

comprehension is delayed, and often when I hear her talking in that whisper

tone, what she is saying doesn't make sense to me, just a few words mixed with

sounds strung together. When I ask her what she said, she will repeat it for me

( " go tell them " , " cross the street " , etc.) and even try to give me an

explanation of what her 'phrase' meant.

> > > > > >

> > > > > > Does this sound familiar to anyone else? Any suggestions

or advice would be GREATLY appreciated. I am at my wits end with this.

> > > > > >

> > > > > > Karmen

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Almond Breeze does have soy. The Pacific foods Almond milk is Soy free. Look for the orange box.To: mb12 valtrex From: christelking1@...Date: Sat, 7 Nov 2009 00:08:12 -0500Subject: Re: Re: verbal stimming in response to a mom who commented last I checked that one contained soy Re: verbal stimming I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>Hotmail: Trusted email with powerful SPAM protection. Sign up now.

[Guest guest]

Thank you

From: kcboone <kcboonecomcast (DOT) net>Subject: Re: Re: verbal stimming in response to a mom who commentedTo: mb12 valtrex@ yahoogroups. comDate: Thursday, November 5, 2009, 7:46 AM

I appreciate any thoughts on what it might be. If its PANDAS, has anyone been successful at getting rid of PANDAS? If so, what route did they take?

Karmen

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely.. I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or

in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at

my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

colds are viral, strep would be bacteria, and stimming with strep or OCD things can be PANDAS so always good to test. it would also require antibiotics to go away....it wouldn't go away on it's own

Re: verbal stimming in response to a mom who commented

My son caught a cold and I believe it was bacterial. His stimming increased dramatically. Would that be PANDAS. His probiotics do not contain any strep lines.> > > > >> > > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > > > Karmen> > > > >> > > >> > >> >>