Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 no for bacteria issues.....for inflamation we use tumeric real recovery this one has the kids talking> > > > To: mb12 valtrex@ yahoogroups. com> > > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Dr. DeMio asked us to get some of our son's pictures together. It is so sad to see how " with it, " engaged, and happy he was pre-regression. He is so foggy post-regression and it is obvious in the photos. CGF > > not sure what kids you are talking about. but my son looked great before his autism downslide, we won modeling beauty baby contests ect before hand > > Re: real recovery this one has the kids talking > > > All three of those children were severe autism 299.0 the parents say they have videos but you can see in the photo's they were not okay before... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 thank you From: <vegascurlsyahoo (DOT) com>Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex@ yahoogroups. comDate: Wednesday, November 4, 2009, 10:51 AM My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ >> > > Subject: real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 thanks! From: <vegascurlsyahoo (DOT) com>Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex@ yahoogroups. comDate: Wednesday, November 4, 2009, 1:33 PM Before I got a DAN I did the diet for about 4 months. I am a complete natzi with the diet, and I think that was a HUGE part of my son's recovery. I mean GF shampoo, toothpaste, anything my son will come in contact with. My whole house is GFCF because my son reacts to tiny particles. I figure that even keeping food seperate, what about utensils and dish sponge contamination, so just easier to make the whole house GFCF. He also drinks the bathwater sometimes, that's why the shampoo GF too. By the time we saw the DAN, I had the diet down, so I knew if reactions were from supps. or from Gluten. Our DAN did B-12 shots, TD glutathione, antifungals with antibiotic, and some chelation. My son is a big mercury kid, double the reference range on proph. test. Although mentally he is age appropriate now, his tests still look like an affected kid, so we'll keep treating till he's clean. Sometimes now I wonder if he was really autistic, and then he will regress out of the blue from an infraction or god knows what, and I get reminded why we are doing all this. He goes from a normal kid to calling me grandma and having trouble forming sentences. The last regression lasted about 3 weeks, followed by some gains. My advice, be a diet natzi. > > > > > > > > From: marlenekragen <marlenekragen@ >> > > > Subject: real recovery this one has the kids talking> > > > To: mb12 valtrex@ yahoogroups. com> > > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Minocycline works well against Bartonella, which I believe many with autism have. The problems with Minocycline is that many report permanently stained teeth, and then there are several reports of stained bones and thyroids turning black. Google "Minocyline teeth" "Minocycline bones" "Minocycline thyroid" to learn about this. I would try to use Flagyl and Zithromax instead. Love and prayers, Heidi N So do you think I should not worry about the gut with the minocycline? Did your child have any problems from the others? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 What are you using ? Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 8:51 AM My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ > > > > Subject: real recovery this one has the kids talking > > > To: mb12 valtrex@ yahoogroups. com > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 What are you using ? Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 8:51 AM My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ > > > > Subject: real recovery this one has the kids talking > > > To: mb12 valtrex@ yahoogroups. com > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Hey , Currently treating yeast again, with Keto and Vaco (because he has had MRSA), trying B-12 nasal (used to give shots), glutathione, Optimag, UBQH, Vit. C, vit. A, vit B complex, vit. D, Cod liver oil, Klaire probiotics, and of course strict GFCF. We have chelated before, EDTA DMSA DMPS, and after we treat yeast, we'll check his blood to make sure kidneys and liver are still good, and we'll chelate again. I think his recovery was a lot of hard work, but I know many moms who try just as hard as me or more. I know some of it is just luck, and some of it is faith, but most of it is in my mind I believe God made my son perfect and healthy, and I have always believed I could return him to that. He showed signs of toxicity and neurological damage on our first well baby visit, I just didn't realize it at the time. ( I had mercury fillings removed 1 month before I conceived him.) So I have a picture in my mind of my son normal and healthy and will fight to get that. These days he is 99% that picture. It never occurred to me that kids didn't fully recover. It wasn't until I went to a meeting and talked to other moms that my heart just broke, and I felt doubt for the first time. Never give up. > > > > > > > > > > From: marlenekragen <marlenekragen@ > > > > > > Subject: real recovery this one has the kids talking > > > > > To: mb12 valtrex@ yahoogroups. com > > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 , how do you think the mercury affected your child as an infant? I am curious because I received the Hep B Vaccination series right before I conceived, so that was my mercury exposure. Was your son born late? Mine was 2 weeks late and always a quiet baby. He never met Andy Cutler's counting rules though and he and I also had lead exposure, which I think has something to do with his speech problems (along with aluminum). His dad is a welder and was VERY dirty when he came home while was little and I was breastfeeding. What is MRSA? and what is Keto and Vaco? > > > > > > > > > > > > > > From: marlenekragen <marlenekragen@ > > > > > > > > Subject: real recovery this one has the kids talking > > > > > > > To: mb12 valtrex@ yahoogroups. com > > > > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 At 39 weeks pregnant, I was sitting on the couch and my stomach tightened like a braxton hicks contraction, but didn't go away for like 2 or 3 minutes. It didn't feel like a contraction, kinda like a rock was just sitting in my uterus, so I went in and they induced me just in case. (Looking back, I think it was a seizure) Birth went fine, natural, he scored fine, got Hep B shot 3 hours after birth, and everything was fine. First well baby visit, his eyes rolled back in his head, and ped. said " Oh, I don't like the looks of that. " I reassured him my daughter did the same thing when she was a baby. (She's toxic too) Then as an infant he postured or stiffened when excited, and was extremely strong, hyper, and pain resistant. He had about 4 seizures, (last one after vaccine in docs office) and she told me they were just from breath holding. I used to give my kids chocolate milk with Hershey's syrup often as well, and have since learned it is one of the top 3 foods in the grocery store for mercury levels. Nontoxickids.net had the info. MRSA (the superbug) is the antobiotic resistant staph, when people have had this, and you give an antibiotic, it needs to be one that kills MRSA as well. Vancomyacin (Spelling?) is antibiotic, Ketoconizole is antifungal. > > > > > > > > > > > > > > > > > > From: marlenekragen <marlenekragen@ > > > > > > > > > > Subject: real recovery this one has the kids talking > > > > > > > > > To: mb12 valtrex@ yahoogroups. com > > > > > > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 It wasn't until I started taking my supplements in very large doses that they began working.This was after seeing a video of a talk given by Dr.Tim Buie,where he said this was what you had to do, if there were problems with malabsorption. Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Friday, November 6, 2009, 11:32 AM Hey , Currently treating yeast again, with Keto and Vaco (because he has had MRSA), trying B-12 nasal (used to give shots), glutathione, Optimag, UBQH, Vit. C, vit. A, vit B complex, vit. D, Cod liver oil, Klaire probiotics, and of course strict GFCF. We have chelated before, EDTA DMSA DMPS, and after we treat yeast, we'll check his blood to make sure kidneys and liver are still good, and we'll chelate again. I think his recovery was a lot of hard work, but I know many moms who try just as hard as me or more. I know some of it is just luck, and some of it is faith, but most of it is in my mind I believe God made my son perfect and healthy, and I have always believed I could return him to that. He showed signs of toxicity and neurological damage on our first well baby visit, I just didn't realize it at the time. ( I had mercury fillings removed 1 month before I conceived him.) So I have a picture in my mind of my son normal and healthy and will fight to get that. These days he is 99% that picture. It never occurred to me that kids didn't fully recover. It wasn't until I went to a meeting and talked to other moms that my heart just broke, and I felt doubt for the first time. Never give up. > > > > > > > > > > From: marlenekragen <marlenekragen@ > > > > > > Subject: real recovery this one has the kids talking > > > > > To: mb12 valtrex@ yahoogroups. com > > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 It wasn't until I started taking my supplements in very large doses that they began working.This was after seeing a video of a talk given by Dr.Tim Buie,where he said this was what you had to do, if there were problems with malabsorption. Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Friday, November 6, 2009, 11:32 AM Hey , Currently treating yeast again, with Keto and Vaco (because he has had MRSA), trying B-12 nasal (used to give shots), glutathione, Optimag, UBQH, Vit. C, vit. A, vit B complex, vit. D, Cod liver oil, Klaire probiotics, and of course strict GFCF. We have chelated before, EDTA DMSA DMPS, and after we treat yeast, we'll check his blood to make sure kidneys and liver are still good, and we'll chelate again. I think his recovery was a lot of hard work, but I know many moms who try just as hard as me or more. I know some of it is just luck, and some of it is faith, but most of it is in my mind I believe God made my son perfect and healthy, and I have always believed I could return him to that. He showed signs of toxicity and neurological damage on our first well baby visit, I just didn't realize it at the time. ( I had mercury fillings removed 1 month before I conceived him.) So I have a picture in my mind of my son normal and healthy and will fight to get that. These days he is 99% that picture. It never occurred to me that kids didn't fully recover. It wasn't until I went to a meeting and talked to other moms that my heart just broke, and I felt doubt for the first time. Never give up. > > > > > > > > > > From: marlenekragen <marlenekragen@ > > > > > > Subject: real recovery this one has the kids talking > > > > > To: mb12 valtrex@ yahoogroups. com > > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 I used to make holes in the wall from head banging.That lasted about five years, beginning about age eight.A whole gallon at a time ?I thought I was bad downing half that at once.Casein is as bad as heroin.Some of us have moneys on our backs,some have gorillas.Spinning stuff all day?I think I was twelve or thirteen when I began to tire of that.Began.It was a few more years before it went away completely. Subject: Re: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 8:04 AM my sons story was extream, non verbal till 3 therapy didn't work, so self abusive they were suggeting to institutionalize him, or pad the walls of his room, take out all toys and furniture and make him wear a helmet and not come out. tons of sensory issues, and wouldn't eat more then just animal crackers and gram crackers and a gallon of milk, just touching or looking at wet things like veggies, fruits or meats and he would gag. toe walking, hand flapping, walking around just going laddle laddle laddle all day and spinning a phone for 8 hours at a time. he lost his dx in 2007...he now is left with PANDAS being our issue to fight....his recovery was followed by the news in 2008 I think it was and his films are on YOUTUBE as well, it's under levi and autism recovery. it shows his before autism normal before his MMR< his regression and his recovery, he is talking, and riding his bike, and interacting and playing games with his sister on it real recovery this one has the kids talking> > To: mb12 valtrex@ yahoogroups. com> > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 ........ I don't know your story. At what age did you start the diet. what else have you done? I don't want to be nosey, but I'd love to hear your story and how you have triumphed if you are willing to share. > > > > > > > From: marlenekragen <marlenekragen@ > > > > > Subject: real recovery this one has the kids talking > > > > To: mb12 valtrex@ yahoogroups. com > > > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and > the befores. I don't want to start a fight but if my son could be like this I > don't care what medications he has to take if it works! > > > > > > > > > > > > > http://www.youtube. com/watch? > v=iGuSVBVEU3I & feature=related > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Thank you.In addition to severe symptoms,repeated regressions only make it worse. Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 7:41 AM I think what is pointing out though is the cases of recovery from mild autism/Asperger' s are a dime a dozen and so not as relevant or convincing as recovering from severe autism TO HIM. They might be relevant and convincing to others, but I am kind of with on this one, my older son with mild symptoms who regressed after MMR was able to pull out of it mostly on his own with early intervention and lots of 1 on 1 teaching on my part, while my younger more severe son has required tons of therapy, biomed and dietary intervention to get where he is at. So what people think is a big deal is a matter of their perception. What I was looking for were kids that still weren't communicating at an older age (4-5) and who had sensory issues, aggression, self-harm behaviors, etc. who were able to overcome, these are much more rare cases. It is discouraging to find a lot of cases of recovery from mild symptoms when you are dealing with a severe case. > > > > From: marlenekragen <marlenekragen@ > > > Subject: real recovery this one has the kids talking > > To: mb12 valtrex@ yahoogroups. com > > Date: Tuesday, November 3, 2009, 2:18 PM > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works! > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 this is good to know incase we see that with going on pulsed doses of this.... Re: real recovery this one has the kids talking Minocycline works well against Bartonella, which I believe many with autism have. The problems with Minocycline is that many report permanently stained teeth, and then there are several reports of stained bones and thyroids turning black. Google "Minocyline teeth" "Minocycline bones" "Minocycline thyroid" to learn about this. I would try to use Flagyl and Zithromax instead. Love and prayers, Heidi N So do you think I should not worry about the gut with the minocycline? Did your child have any problems from the others? Quote Link to comment Share on other sites More sharing options...
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