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Re: real recovery this one has the kids talking

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It's all about making them happy and it's obvious that they are more happy when

they can communicate. I don't think anyone will argue on that point, so yeah,

we all do what it takes to make it happen :)

>

> Okay I think I got the right one with the children talking and the befores. I

don't want to start a fight but if my son could be like this I don't care what

medications he has to take if it works!

>

> http://www.youtube.com/watch?v=iGuSVBVEU3I & feature=related

>

>

>

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A before video would be good.Recovery from mild or uncomplicated autism,without regression,is no big deal. Subject: real recovery this one has the kids talkingTo: mb12 valtrex Date: Tuesday, November 3, 2009, 2:18 PM

Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!

http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

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This link isn't working. What is the name of the video, and we can go to YouTube and search to bring it up.

Love and prayers,

Heidi N

Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

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For a parent, a child getting better from any illness, no matter how mild IS a

big deal.

>

>

> Subject: real recovery this one has the kids talking

> To: mb12 valtrex

> Date: Tuesday, November 3, 2009, 2:18 PM

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> Okay I think I got the right one with the children talking

and the befores. I don't want to start a fight but if my son could be like this

I don't care what medications he has to take if it works!

>

>

>

> http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

>

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>

>

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Huh???? It's a huge deal!

A before video would be good.Recovery from mild or uncomplicated autism,without regression,is no big deal. From: marlenekragen <marlenekragen>Subject: real recovery this one has the kids talkingTo: mb12 valtrex Date: Tuesday, November 3, 2009, 2:18 PM

Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!

http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

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paste it in your browser window then take out the spaces and it should work...

 

This link isn't working.  What is the name of the video, and we can go to YouTube and search to bring it up.

 

Love and prayers,

 

Heidi N

 

 

 

Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

-- Debby , Otter Babies, LLCwww.otterblotter.comhttp://twitter.com/otterbabies

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I think what is pointing out though is the cases of recovery from mild

autism/Asperger's are a dime a dozen and so not as relevant or convincing as

recovering from severe autism TO HIM. They might be relevant and convincing to

others, but I am kind of with on this one, my older son with mild symptoms

who regressed after MMR was able to pull out of it mostly on his own with early

intervention and lots of 1 on 1 teaching on my part, while my younger more

severe son has required tons of therapy, biomed and dietary intervention to get

where he is at. So what people think is a big deal is a matter of their

perception.

What I was looking for were kids that still weren't communicating at an older

age (4-5) and who had sensory issues, aggression, self-harm behaviors, etc. who

were able to overcome, these are much more rare cases. It is discouraging to

find a lot of cases of recovery from mild symptoms when you are dealing with a

severe case.

> >

> > From: marlenekragen <marlenekragen@>

> > Subject: real recovery this one has the kids talking

> > To: mb12 valtrex

> > Date: Tuesday, November 3, 2009, 2:18 PM

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> > Okay I think I got the right one with the children talking

and the befores. I don't want to start a fight but if my son could be like this

I don't care what medications he has to take if it works!

> >

> >

> >

> > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

> >

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my sons story was extream, non verbal till 3 therapy didn't work, so self abusive they were suggeting to institutionalize him, or pad the walls of his room, take out all toys and furniture and make him wear a helmet and not come out. tons of sensory issues, and wouldn't eat more then just animal crackers and gram crackers and a gallon of milk, just touching or looking at wet things like veggies, fruits or meats and he would gag. toe walking, hand flapping, walking around just going laddle laddle laddle all day and spinning a phone for 8 hours at a time. he lost his dx in 2007...he now is left with PANDAS being our issue to fight....his recovery was followed by the news in 2008 I think it was and his films are on YOUTUBE as well, it's under levi and autism recovery. it shows his before autism normal before his MMR< his regression and his recovery, he is talking, and riding his bike, and interacting and playing games with his sister on it

real recovery this one has the kids talking> > To: mb12 valtrex > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > >>

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My son was severe as well. Self abusive behaviors, toe walking, no social

skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom

to a mattress with a few stuffed animals. He would run into walls, extremely

hyper, would dive off play sets or stairs, and his noise was the " ticka ticka "

all day. All we have done is concentrate on biomed, no therapy whatsoever.

After a year even the other moms in my autism group struggle to see any autistic

features. We are really blessed. His tests are still high for mercury, so I

will continue until his body is completely healthy. There were regressions and

times I thought it was failing, but never give up hope. I believe God made my

little boy perfect, and gave his body the ability to heal, and I will return him

to the way God made him before the toxins. Keep fighting moms!

> > >

> > > From: marlenekragen <marlenekragen@>

> > > Subject: real recovery this one has the kids talking

> > > To: mb12 valtrex

> > > Date: Tuesday, November 3, 2009, 2:18 PM

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> > > Okay I think I got the right one with the children talking and the

befores. I don't want to start a fight but if my son could be like this I don't

care what medications he has to take if it works!

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> > >

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> > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

> > >

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What kind of biomed did you guys do? Thank you!

Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 10:51 AM

My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ >> > > Subject: real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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Hello that is amazing! I was wondering my son is 10 and still nonverbal is there still hope?

Subject: Re: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 10:04 AM

my sons story was extream, non verbal till 3 therapy didn't work, so self abusive they were suggeting to institutionalize him, or pad the walls of his room, take out all toys and furniture and make him wear a helmet and not come out. tons of sensory issues, and wouldn't eat more then just animal crackers and gram crackers and a gallon of milk, just touching or looking at wet things like veggies, fruits or meats and he would gag. toe walking, hand flapping, walking around just going laddle laddle laddle all day and spinning a phone for 8 hours at a time. he lost his dx in 2007...he now is left with PANDAS being our issue to fight....his recovery was followed by the news in 2008 I think it was and his films are on YOUTUBE as well, it's under levi and autism recovery. it shows his before autism normal before his MMR< his regression and his recovery, he is talking, and riding his bike, and interacting and

playing games with his sister on it

real recovery this one has the kids talking> > To: mb12 valtrex@ yahoogroups. com> > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > >

> Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > >>

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there is ALWAYS hope, hopefully melinda will pipe in, her son was 14 and she started making changes and has saw gains to!

the key is finding YOUR childs issues, and finding things that worked for others with those issues and trying them

real recovery this one has the kids talking> > To: mb12 valtrex@ yahoogroups. com> > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > >>

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we did diet (STRICT diet) allergy, and IGG testing and rotation, for 2 years had to remove all yeast feeders (not SCD as there are STILL yeast feeders in that...just focused on meats and veggies and pears) vit A procial low and slow, LDN, various supplimentsm, EFA's secretin, allergy shots, antifungals, antibiotics, antiinflamatories, were in alot of studies to get info, lots of testing as we could afford, lots of research and study, and finding a great dr were also key, we did do therapies BEFORE biomedical with out success, we only found success when we did them WITH biomedical, and then actually was able to DROP services with it, we have done some chelation and some HBOT, both of which I would like to do more of as we did see great things with them. but I want them to be done under the watch of a dr. we saw Buie and did scope and it did more damage then good but did back our finding via biomedical for some of his medical problems that mainestream medical gave us a hard time about. so we knew via biomed 4 years the same thing through testing through great plains and dr's data. our big wows came with diet, LDN, vit A protical, vit D as of late, HBOT, secretin, enzymes, antibiotics and antifungals.

real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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Christel, When you say antibiotics did you use minocycline? Because our dan doc wants my son to try it for brain inflamation he was on it for two months and we saw great things at school for once but I was afraid he was having a reaction from it and stopped it didnt you have trouble with the gut using the antibiotics? Thank you so much :)

From: <vegascurlsyahoo (DOT) com>Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex@ yahoogroups. comDate: Wednesday, November 4, 2009, 10:51 AM

My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ >> > > Subject: real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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Thank you so much :)

From: Christel King <christelking1@ myfairpoint. net>Subject: Re: Re: real recovery this one has the kids talkingTo: mb12 valtrex@ yahoogroups. comDate: Wednesday, November 4, 2009, 10:04 AM

my sons story was extream, non verbal till 3 therapy didn't work, so self abusive they were suggeting to institutionalize him, or pad the walls of his room, take out all toys and furniture and make him wear a helmet and not come out. tons of sensory issues, and wouldn't eat more then just animal crackers and gram crackers and a gallon of milk, just touching or looking at wet things like veggies, fruits or meats and he would gag. toe walking, hand flapping, walking around just going laddle laddle laddle all day and spinning a phone for 8 hours at a time. he lost his dx in 2007...he now is left with PANDAS being our issue to fight....his recovery was followed by the news in 2008 I think it was and his films are on YOUTUBE as well, it's under levi and autism recovery. it shows his before autism normal before his MMR< his regression and his recovery, he is talking, and riding his bike, and interacting and

playing games with his sister on it

real recovery this one has the kids talking> > To: mb12 valtrex@ yahoogroups. com> > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > >>

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Before I got a DAN I did the diet for about 4 months. I am a complete natzi

with the diet, and I think that was a HUGE part of my son's recovery. I mean GF

shampoo, toothpaste, anything my son will come in contact with. My whole house

is GFCF because my son reacts to tiny particles. I figure that even keeping food

seperate, what about utensils and dish sponge contamination, so just easier to

make the whole house GFCF. He also drinks the bathwater sometimes, that's why

the shampoo GF too. By the time we saw the DAN, I had the diet down, so I knew

if reactions were from supps. or from Gluten. Our DAN did B-12 shots, TD

glutathione, antifungals with antibiotic, and some chelation. My son is a big

mercury kid, double the reference range on proph. test. Although mentally he is

age appropriate now, his tests still look like an affected kid, so we'll keep

treating till he's clean. Sometimes now I wonder if he was really autistic, and

then he will regress out of the blue from an infraction or god knows what, and I

get reminded why we are doing all this. He goes from a normal kid to calling me

grandma and having trouble forming sentences. The last regression lasted about

3 weeks, followed by some gains. My advice, be a diet natzi.

> > > >

> > > > From: marlenekragen <marlenekragen@ >

> > > > Subject: real recovery this one has the kids talking

> > > > To: mb12 valtrex@ yahoogroups. com

> > > > Date: Tuesday, November 3, 2009, 2:18 PM

> > > >

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> > > >

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> > > >

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> > > >

> > > >

> > > >

> > > > Okay I think I got the right one with the children talking and the

befores. I don't want to start a fight but if my son could be like this I don't

care what medications he has to take if it works!

> > > >

> > > >

> > > >

> > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

> > > >

> > > >

> > > >

> > > >

> > > >

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> >

>

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All three of those children were severe autism 299.0 the parents say they have

videos but you can see in the photo's they were not okay before. It's a pain to

look at all the videos on utube but I can't believe what I see apparently its

diet antiviral, anti-fungal and some other stuff including some new amino acid

peptide. I'm calling the docs office today!

> > > > >

> > > > > From: marlenekragen <marlenekragen@ >

> > > > > Subject: real recovery this one has the kids talking

> > > > > To: mb12 valtrex@ yahoogroups. com

> > > > > Date: Tuesday, November 3, 2009, 2:18 PM

> > > > >

> > > > >

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> > > > >

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> > > > > Okay I think I got the right one with the children talking and the

befores. I don't want to start a fight but if my son could be like this I don't

care what medications he has to take if it works!

> > > > >

> > > > >

> > > > >

> > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

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no we are just getting ready to start that one (minocycline) as part of our biofilm protical and PANDAS continual treatements. we have used azithromyacin, clyminamiacian, the one that is a shot...my mind is going blank it starts with a R. ah rocephrin,

real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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kelly that is us to a T as well, we also did the diet prior to finding our dr, we refined OTHER items with him, all our soaps, toothpastes, art supplies, ect are also free of all things we needed, we also went on the diet with out son the whole family for over 2 years

ALL our kids are on the diet and have been allergy testing IGE and IGG, hubby and I as well.

real recovery this one has the kids talking> > > > To: mb12 valtrex@ yahoogroups. com> > > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > > > > > > >> > >> >>

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not sure what kids you are talking about. but my son looked great before his autism downslide, we won modeling beauty baby contests ect before hand

real recovery this one has the kids talking> > > > > To: mb12 valtrex@ yahoogroups. com> > > > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > > > > > > > > > > > >> > > >> > >> >>

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So do you think I should not worry about the gut with the minocycline? Did your child have any problems from the others?

From: <vegascurlsyahoo (DOT) com>Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex@ yahoogroups. comDate: Wednesday, November 4, 2009, 10:51 AM

My son was severe as well. Self abusive behaviors, toe walking, no social skills, couldn't even answer yes or no at 2 and a half. We stripped his bedroom to a mattress with a few stuffed animals. He would run into walls, extremely hyper, would dive off play sets or stairs, and his noise was the "ticka ticka" all day. All we have done is concentrate on biomed, no therapy whatsoever. After a year even the other moms in my autism group struggle to see any autistic features. We are really blessed. His tests are still high for mercury, so I will continue until his body is completely healthy. There were regressions and times I thought it was failing, but never give up hope. I believe God made my little boy perfect, and gave his body the ability to heal, and I will return him to the way God made him before the toxins. Keep fighting moms! > > > > > > From: marlenekragen <marlenekragen@ >> > > Subject: real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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Thank you! Did you use antibiotics for inflamation?

Subject: Re: real recovery this one has the kids talkingTo: mb12 valtrex Date: Wednesday, November 4, 2009, 1:33 PM

Before I got a DAN I did the diet for about 4 months. I am a complete natzi with the diet, and I think that was a HUGE part of my son's recovery. I mean GF shampoo, toothpaste, anything my son will come in contact with. My whole house is GFCF because my son reacts to tiny particles. I figure that even keeping food seperate, what about utensils and dish sponge contamination, so just easier to make the whole house GFCF. He also drinks the bathwater sometimes, that's why the shampoo GF too. By the time we saw the DAN, I had the diet down, so I knew if reactions were from supps. or from Gluten. Our DAN did B-12 shots, TD glutathione, antifungals with antibiotic, and some chelation. My son is a big mercury kid, double the reference range on proph. test. Although mentally he is age appropriate now, his tests still look like an affected kid, so we'll keep treating till he's clean. Sometimes now I wonder if he was really autistic, and then he will regress

out of the blue from an infraction or god knows what, and I get reminded why we are doing all this. He goes from a normal kid to calling me grandma and having trouble forming sentences. The last regression lasted about 3 weeks, followed by some gains. My advice, be a diet natzi. > > > > > > > > From: marlenekragen <marlenekragen@ >> > > > Subject: real recovery this one has the kids talking> > > > To: mb12 valtrex@ yahoogroups. com> > > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one

with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > > > > > > >> > >> >>

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My DAN used antifungal with antibiotic because sometimes if you treat one, the

other will crop up. We were treating yeast, but wanted to make sure bacteria

didn't crop up.

> > > > >

> > > > > From: marlenekragen <marlenekragen@ >

> > > > > Subject: real recovery this one has the kids talking

> > > > > To: mb12 valtrex@ yahoogroups. com

> > > > > Date: Tuesday, November 3, 2009, 2:18 PM

> > > > >

> > > > >

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> > > > > Okay I think I got the right one with the children talking and the

befores. I don't want to start a fight but if my son could be like this I don't

care what medications he has to take if it works!

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> > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related

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no we do proative antifungals with all antibiotics and then have no issues

real recovery this one has the kids talking> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Tuesday, November 3, 2009, 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay I think I got the right one with the children talking and the befores. I don't want to start a fight but if my son could be like this I don't care what medications he has to take if it works!> > > > > > > > > > > > http://www.youtube. com/watch? v=iGuSVBVEU3I & feature=related> > > > > > > > > > > > > > >> >>

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