Odd question

[Guest guest]

Elvira,I really can't help you a whole lot but here it goes.A friend of mine

has a son that is 8 years old.He has ODD and has been in therapy for quite a

while.He doesn't have any other diagnosis or any other mental condition.His

mom has put him on enzymes and has noticed a tremendous difference with his

attitude and his self esteem.She says he is a completely different kid.She

refuses to put him on Risperadol or any other kind of drug because of the

side effects.ne

[Guest guest]

--Elvira,

My son was Classic ODD and with the treatment of yeast/bacteria and

the Houston enzymes and no-fenol he has greatly stopped being ODD. We

also took him off of the gf/cf diet after 9 months and that has helped

too.

Patti

- In @y..., AhJhawk@a... wrote:

> Elvira,I really can't help you a whole lot but here it goes.A friend

of mine

> has a son that is 8 years old.He has ODD and has been in therapy for

quite a

> while.He doesn't have any other diagnosis or any other mental

condition.His

> mom has put him on enzymes and has noticed a tremendous difference

with his

> attitude and his self esteem.She says he is a completely different

kid.She

> refuses to put him on Risperadol or any other kind of drug because

of the

> side effects.ne

>

>

>

[Guest guest]

not an odd question. we had this discussion when I was new here some time ago.

I don't think there is any data supporting that failure to breast feed was

indicitive to apraxia but my son had a hard time nursing and he has apraxia. a

coupla other mom said the same thing but then other moms with children with

apraxia nursed fine. sooo who knows

don't blame yourself you had twins you tried your best. I was sooo heart broken

when my son did not nurse but he and i were a lot happier when that bottle came.

chris

nkytwins <carquines@...> wrote:

I have 4 year old twins in speech therapy. They've never been

officially diagnosed but they probably have some form of apraxia.

Things have been going well lately, they are up to 5-6 word

sentences.

My question is whether their apraxia could have been any factor in

them having a difficult time breastfeeding when they were born. Could

their difficulty in getting the muscles in their mouths organized to

talk correctly also made it difficult to get enough breastmilk? They

just never did well with it. But it's entirely possible that that was

my fault too for some other reason. It's just something that I have

always wondered. Has anyone ever heard of any connections?

[Guest guest]

Could be - if they are diagnosed with oral and verbal apraxia there definitely

could be a connection. Josh was diagnosed with verbal and oral apraxia as well

as dysarthria. He was adopted but I had tried to nurse him (did all sorts of

prep for that) but he couldn't latch on. When we realized he was very, very

sick at birth (we adopted him at 4 days) and had not been taking a bottle well

during the first four days, then couldn't latch on to nurse, then had a very

weak suck on the bottle, we knew there must have been a problem. He wasn't

diagnosed with the two apraxias and dysarthria until much later but I'm sure

there was a connection.

Sherry

nkytwins <carquines@...> wrote:

I have 4 year old twins in speech therapy. They've never been

officially diagnosed but they probably have some form of apraxia.

Things have been going well lately, they are up to 5-6 word

sentences.

My question is whether their apraxia could have been any factor in

them having a difficult time breastfeeding when they were born. Could

their difficulty in getting the muscles in their mouths organized to

talk correctly also made it difficult to get enough breastmilk? They

just never did well with it. But it's entirely possible that that was

my fault too for some other reason. It's just something that I have

always wondered. Has anyone ever heard of any connections?

[Guest guest]

Hi all!!

I had this same question for a long time. I had a breast reduction

and was told that I may not be able to breast feed. I had and

it seems we had trouble from the beginning. We suffered (and I mean

suffered!!) for six months because I had the whole guilt trip going

that I really needed to breast feed. He was diagnosed Failure to

Thrive and was told he had a very weak suck. But in the end all the

blame was on me and my decision to have a breast reduction years

earlier.

2 years later my younger son was born and WOW - no problems with

breast feeding. I never realized how strong a child's suction was

supposed to be!! I had plenty of milk and he was always satisfied.

Come to find out - it wasn't me. had oral apraxia, verbal

apraxia, hypotonia (all undiagnosed). His suck wasn't strong enough

to pull the milk from me - therefore I didn't make a lot of milk

because he wasn't able to empty me. He also couldn't figure out how

to make his mouth work the way it needed to, to get the milk out.

Once we went to a bottle he still had a hard time, but the milk came

out much easier with less work. If you watched his little mouth it

appeared like he didn't work it the way other babies did. Of course,

this is all hindsight that I see this!!!

Don't dwell on whether it was you....more than likey all of it had to

do with his oral motor skills.

This is just my opinion though!!

Carnell

> I have 4 year old twins in speech therapy. They've never been

> officially diagnosed but they probably have some form of apraxia.

> Things have been going well lately, they are up to 5-6 word

> sentences.

>

> My question is whether their apraxia could have been any factor in

> them having a difficult time breastfeeding when they were born.

Could

> their difficulty in getting the muscles in their mouths organized to

> talk correctly also made it difficult to get enough breastmilk? They

> just never did well with it. But it's entirely possible that that

was

> my fault too for some other reason. It's just something that I have

> always wondered. Has anyone ever heard of any connections?

[Guest guest]

sorry for the late reply... I have been offline during a move..

I had trouble with breastfeeding as well. My son could just not latch on

correctly. As a former speech therapist, I kept checking to see if he was

tongue-tied because that is the only reason that I had ever heard of which

explained a baby not being able to latch on correctly. Because my son could not

latch on correctly, I bled horribly...all his newborn clothes have blood stains

on them! Due to the open sores on my nipples (sorry to be graphic) I kept

getting mastitis. The whole experience was a nightmare and now, I too, wonder

if this had anything to do with his difficulties with learning to talk. We also

had a problem getting him to transition to a sippy cup. I felt horrible guilt

at the time for giving up on breastfeeding. I kept blaming myself for not

" toughing it out " but now it makes me feel a bit better knowing that someone

else suspects the same thing I am beginning to ...that perhaps all these feeding

issues of the past are somehow connected to apraxia.

Noelle

Mommy to 20 mos. Colby

nkytwins <carquines@...> wrote:

I have 4 year old twins in speech therapy. They've never been

officially diagnosed but they probably have some form of apraxia.

Things have been going well lately, they are up to 5-6 word

sentences.

My question is whether their apraxia could have been any factor in

them having a difficult time breastfeeding when they were born. Could

their difficulty in getting the muscles in their mouths organized to

talk correctly also made it difficult to get enough breastmilk? They

just never did well with it. But it's entirely possible that that was

my fault too for some other reason. It's just something that I have

always wondered. Has anyone ever heard of any connections?

[Guest guest]

Thanks everyone for replying....it makes me feel better too that I'm not the

only one who had problems with breastfeeding.

>

> From: Noelle Roach <noelleroach@...>

> Date: 2005/06/23 Thu PM 09:43:34 EDT

>

> Subject: Re: [ ] Odd question

>

>

[Guest guest]

No.

..

odd question

<hypothyroidism/message/25155;_ylc=X3oDMTJxdnNuaTQ\

0BF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE2MDQyNTEwODIEbXNnSWQDMjUxNTUEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE1MzU5MjczNg-->

Posted by: " Christy " soulizfree@...

<mailto:soulizfree@...?Subject=Re:%20odd%20question>

soulizfree <soulizfree>

Sat Jul 22, 2006 11:16 am (PST)

Does Synthroid make your urine smell like pure amonia???

Christy

[Guest guest]

~

Have you have any back teeth removed?

Or are you haveing any back teeth problems?

Is it the skin, or the bone in your face?

I would take pics of you before it started

sinking in and now with it like that and show

your doctors.

Unusual symptom........it will give me something

to look up....lol...

Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hello,

Has anyone ever heard of anything that would cause the meat or

tissue in your cheek to deteriorate or sink in? I realize this is an

odd question but the women on here have so much knowledge in so many

different areas I figured it can't hurt to ask. I have been to

doctors and specialists and no one seems to understand what I am

talking about but the side of my cheek right under my cheek bone has

been sinking in for a while now and I can't find any conditions on

the internet even close to explaining this? The doctors keep telling

me not to worry and women pay thousands of dollars to have

cheekbones like mine. I guess I would find that funny if it wasn't

my face it was happening too. They don't understand I was not born

with this so I would like to know why it is happening and if it is

going to stop. It is not painful but it tingles up and down the side

of my face every now and then and the bone is starting to stick out.

For the life of me I can not remember if this started before or

after I got the implants but I didn't know if you had ever heard of

anything like this being related?

Thanks,

[Guest guest]

, Have you seen a dental specialist? . .. Are you taking something like Fosamax? The doctors you saw is full of it! Hugs, Rogenelisatucholski <lisatucholski@...> wrote: Hello,Has anyone ever heard of anything that would cause the meat or tissue in your cheek to deteriorate or sink in? I realize this is an odd question but the women on here have so much knowledge in so many different areas I

figured it can't hurt to ask. I have been to doctors and specialists and no one seems to understand what I am talking about but the side of my cheek right under my cheek bone has been sinking in for a while now and I can't find any conditions on the internet even close to explaining this? The doctors keep telling me not to worry and women pay thousands of dollars to have cheekbones like mine. I guess I would find that funny if it wasn't my face it was happening too. They don't understand I was not born with this so I would like to know why it is happening and if it is going to stop. It is not painful but it tingles up and down the side of my face every now and then and the bone is starting to stick out. For the life of me I can not remember if this started before or after I got the implants but I didn't know if you had ever heard of anything like this being related?Thanks,

[Guest guest]

, Maybe I've found the name of the condition - facial lipotrophy. . . . Here's what I found with a search: http://www.google.com/search?sourceid=navclient & ie=UTF-8 & rls=HPIA,HPIA:2006-31,HPIA:en & q=FACIAL+LIPOATROPHY I'm going to see what I can find in the way of support groups. Hugs and prayers, Rogene

[Guest guest]

, Implant illness has been likened to AIDS by some . . . Here's a webpage for facial lipoatrophy. http://www.thebody.com/Forums/AIDS/Lipodystrophy/Archive/Facial/index.html Hugs and prayers, Rogene

[Guest guest]

,

I thought of facial wasting but I have only heard about it with those who have HIV. I am sure it can happen to others though too, I haven't done too much research.

I hope you can find an answer and solution soon.

Hugs, Lynn

Re: Odd question

,

Maybe I've found the name of the condition - facial lipotrophy. . . .

Here's what I found with a search: http://www.google. com/search? sourceid= navclient & ie=UTF-8 & rls=HPIA,HPIA: 2006-31,HPIA: en & q=FACIAL+LIPOATROPH Y

I'm going to see what I can find in the way of support groups.

Hugs and prayers,

Rogene

[Guest guest]

Hi Rogene,

Yes i was to my dentist, I thought maybe it was TMJ because i do

grind my teeth but she did not seem to think it was related?

> Hello,

> Has anyone ever heard of anything that would cause the meat or

> tissue in your cheek to deteriorate or sink in? I realize this is

an

> odd question but the women on here have so much knowledge in so

many

> different areas I figured it can't hurt to ask. I have been to

> doctors and specialists and no one seems to understand what I am

> talking about but the side of my cheek right under my cheek bone

has

> been sinking in for a while now and I can't find any conditions on

> the internet even close to explaining this? The doctors keep

telling

> me not to worry and women pay thousands of dollars to have

> cheekbones like mine. I guess I would find that funny if it wasn't

> my face it was happening too. They don't understand I was not born

> with this so I would like to know why it is happening and if it is

> going to stop. It is not painful but it tingles up and down the

side

> of my face every now and then and the bone is starting to stick

out.

> For the life of me I can not remember if this started before or

> after I got the implants but I didn't know if you had ever heard of

> anything like this being related?

>

> Thanks,

>

>

[Guest guest]

Get on it Girl! ..lol I did have one tooth pulled in the back and my

wisdom teeth removed but that was years ago. It actually looks like i

have very defined cheek bones my only concern is that if it keeps

going I don't want to look like a skeleton. It has started on the

left side as well but the right is very noticable to me anyway but

you are always more aware when it is on your own face. I am just at a

loss right now becuase i have been to an ears nose and throat doctor,

my GP, my dentist and asked doctors in one of my many trips to the

ER. I am very clumsy! No one seems to know and i have no idea what

type of doctor would handle this?

>

> ~

> Have you have any back teeth removed?

> Or are you haveing any back teeth problems?

> Is it the skin, or the bone in your face?

> I would take pics of you before it started

> sinking in and now with it like that and show

> your doctors.

> Unusual symptom........it will give me something

> to look up....lol...

> Hugs Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

, Does the facial lipoatrophy description fit? I saw one treatment mentioned. . . fat injections . . . Where have we heard of that before? I'm more concerned about the cause . . . You might get more information from a doctor who sees AIDS patients. . . It sounds like a "wasting" problem . . . Surely the doctors who treat AIDS patients have an answer if anyone does. I wouldn't wait to see how bad it's going to get before seeking an answer. Have you lost a lot of weight? If so, that could be the answer . . . I can't imagine a treatment that called for pigging out on rich foods! LOL. . . after trying to ignore rich stuff for so long, I'd be in heaven! Hugs and prayers, Rogene

[Guest guest]

Hi Rogene,

Thank you for the sites. I did find through research that the only

known causes were due to AIDS. Now normally at this point I would d

be at the ER getting blood tests ran and freaking out but between

going through Invitro to have my son a couple of years ago and all

the blood work that have had done before figuring out my implants

were causing my symptoms, there is no way possible that could be the

cause although I have to say when I first read all that It scared me

half to death. That's a pretty big leap from sunken cheek to having

AIDS . I appreciate the research you did; I just figure I would

bounce it off the women in this group since you are so knowledgeable

about conditions. I think my best bet would be to figure out what

type of doctor would handle this specific area

>

> ,

>

> Maybe I've found the name of the condition - facial

lipotrophy. . . .

>

> Here's what I found with a search: http://www.google.com/search?

sourceid=navclient & ie=UTF-8 & rls=HPIA,HPIA:2006-

31,HPIA:en & q=FACIAL+LIPOATROPHY

>

> I'm going to see what I can find in the way of support groups.

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

I never thought of consulting a doctor in that field. The description

does fit although in the diagram shown it looks like that is directly

i the cheek wheras mine is back more towrds the ear. Hard to explain

but yes that genral area. I did see whhre they now do silicone

injections. I dont even know what to say to that...lol. How ironic,

Im on a breast implant support group and they recommedation getting

it shot in my cheeks next. Yea, i'll get right on that!

>

> ,

>

> Does the facial lipoatrophy description fit?

>

> I saw one treatment mentioned. . . fat injections . . . Where

have we heard of that before?

>

> I'm more concerned about the cause . . . You might get more

information from a doctor who sees AIDS patients. . .

>

> It sounds like a " wasting " problem . . . Surely the doctors who

treat AIDS patients have an answer if anyone does. I wouldn't wait to

see how bad it's going to get before seeking an answer.

>

> Have you lost a lot of weight? If so, that could be the

answer . . . I can't imagine a treatment that called for pigging out

on rich foods! LOL. . . after trying to ignore rich stuff for so

long, I'd be in heaven!

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

, I would be shocked if you had AIDS. . . But we've been told that some of the problems implant women experience are shared by some AIDS patients. . . The immune system can do some strange things! I think you would have experience many AIDS problems before getting to this one! . . . This is not be the symptom that would be used as a diagnosis! I would try to talk to an AIDS doctor though to see if they understand "wasting" to the extent that they can make some recommendations to stop it. Hugs, Rogene

[Guest guest]

Hi Rogene,

I will give that a try. If nothing else, they may be able to let me

know if this will stop or if there is anything i can do. I think i

would have seen symptoms as well. I have been with my husband over

10 years so if there is anyting, he has some explaining to do!

Thanks for the help.

>

> ,

>

> I would be shocked if you had AIDS. . . But we've been told that

some of the problems implant women experience are shared by some

AIDS patients. . . The immune system can do some strange things!

>

> I think you would have experience many AIDS problems before

getting to this one! . . . This is not be the symptom that would be

used as a diagnosis!

>

> I would try to talk to an AIDS doctor though to see if they

understand " wasting " to the extent that they can make some

recommendations to stop it.

>

> Hugs,

>

> Rogene

>

[Guest guest]

,

You did invitro? Sorry to change subjects but I have been infertile for over 5 years and we have tried almost everything but invitro. If yes, was it successful on the first try? Do you mind telling me the cost?

Thanks so much,

Lynn

Re: Odd question

Hi Rogene,Thank you for the sites. I did find through research that the only known causes were due to AIDS. Now normally at this point I would d be at the ER getting blood tests ran and freaking out but between going through Invitro to have my son a couple of years ago and all the blood work that have had done before figuring out my implants were causing my symptoms, there is no way possible that could be the cause although I have to say when I first read all that It scared me half to death. That's a pretty big leap from sunken cheek to having AIDS . I appreciate the research you did; I just figure I would bounce it off the women in this group since you are so knowledgeable about conditions. I think my best bet would be to figure out what type of doctor would handle this specific area>> ,> > Maybe I've found the name of the condition - facial lipotrophy. . . . > > Here's what I found with a search: http://www.google. com/search?sourceid=navclient & ie=UTF-8 & rls=HPIA, HPIA:2006-31,HPIA:en & q= FACIAL+LIPOATROP HY> > I'm going to see what I can find in the way of support groups.> > Hugs and prayers,> > Rogene>

[Guest guest]

Dianne, I know i know. That is not a stupid question at all. It CAN

certainly be your neck!!! i have buzzing, ringing, ear pain, popping.

And it all comes from my upper neck. i go to the chiro all the time and

after he fixes my neck its gone. Then my neck goes back out and the ear

pain is back. Upper neck is very closely related to the ears and jaw.I

think Smokey on the board had ear troubles too from his neck. Does that

help? cindy

>

>

> This may be a crazy question but I want to throw it out there. Does

anyone experience ringing in the ears and think that it might be

associated with a problem with the disks in the neck?? Obviously I ask

because I have the ringing and DDD so I'm wondering if the two have

anything in common.

>

> Dianne

>

>

>

[Guest guest]

Dianne, I know i know. That is not a stupid question at all. It CAN

certainly be your neck!!! i have buzzing, ringing, ear pain, popping.

And it all comes from my upper neck. i go to the chiro all the time and

after he fixes my neck its gone. Then my neck goes back out and the ear

pain is back. Upper neck is very closely related to the ears and jaw.I

think Smokey on the board had ear troubles too from his neck. Does that

help? cindy

>

>

> This may be a crazy question but I want to throw it out there. Does

anyone experience ringing in the ears and think that it might be

associated with a problem with the disks in the neck?? Obviously I ask

because I have the ringing and DDD so I'm wondering if the two have

anything in common.

>

> Dianne

>

>

>

[Guest guest]

At 03:47 PM 8/26/2008, you wrote:

>This may be a crazy question but I want to throw it out there. Does

>anyone experience ringing in the ears and think that it might be

>associated with a problem with the disks in the neck?? Obviously I

>ask because I have the ringing and DDD so I'm wondering if the two

>have anything in common.

>

>Dianne

No crazy questions, thanks for asking. I experience it from time to

time, but also for the last 8 months or so I've had Vertigo problems

related to inner ear problems. Related to the neck damage I have, I

don't know, but when it happens I'm chair or bed ridden until it

passes. I take Dramamine for it which appears to help. When I first

asked my Dr about it he thought it would be short term and said there

is really nothing that can be done about it, but like I said it's

been about 8 months. Dave