Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 BlankThis is for Jeannie in ohio,about memory loss. I couldn't get my e-mail to go through to her so I am posting to the group. I think most of us with chiari have the memory loss. I hate it but what can we do about it. I wish your husband could be more understanding for you. This is not something we want to do. My kids joke with me and say ole crazy mom has done it again,but deep down it is really scary, because I don't know what the future holds with this. Don't ever think you are just feeling sorry for yourself, you are not crazy. (or are we ha ha). I still get harassed for leaving the oil cap off my car, I won't live that down soon. with love deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Thanks Cassy, you are so sweet! How is the little one doing with her teeth? Jolie > Hi Jolie! I am so so sorry you are going through this too. I feel so > bad for you and Kate. I know you are both strong and will be ok but I > also know how it feels and its aweful. My gma had Alzheimers and then > later Dementia too. It was real hard. One of the hardest thingsd we > have been through. You guys hang in there. Im praying for you all. > lots of luv n hugz > cassy > > > memory loss > > > > I think my grandmother might be developing some kind of dementia or > > something. We just moved her to an assisted living home. She was not > > to happy about it but it is for the best. I hope the transition is > > easy for your dad. It will turn out ok. Prayers to you and your > > family. > > Jolie > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Did you lose your hair with chemo? I had chemo when I was in the hospital, the doc said I may or may not lose it. Well, I lost most of mine...and when I got out I shaved the stragglers. It was quite freeing to be bald, plus it grows back. Will the memory loss go away? Either way, you are right about being alive, its better than the alternative. I hope your memory problems resolve themselves. Thanks for your prayers, I shall send some right back. Jolie > Jolie, > I am sorry to hear about your Grandma and her memory loss. I had chemo due > to breast cancer and it has affected my short term memory something > terrible. If you tell me something I will forget it before you are done with > the next sentence and now with my fibromyalgia and fibro fog as they call > it, it should be VERY interesting to say the least. But it beats the > alternative of not being here. > Prayers for your Grandma. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://breastcancerpatientssoulmatesforlife.bravehost.com/ > > Anxiety Depression and Breast Cancer > http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer > > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > > The Cancer Club > www.cancerclub.com > > >> memory loss >> >> I think my grandmother might be developing some kind of dementia or >> something. We just moved her to an assisted living home. She was not >> to happy about it but it is for the best. I hope the transition is >> easy for your dad. It will turn out ok. Prayers to you and your >> family. >> Jolie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 You must have REALLY enjoyed yourself for 2 hours, Anne!Wow, how wonderful that must have been. You got lost inthe conversation; nothing better than those talks!Ignore the snide ones...love to you, Kate Re: memory lossTo: MSersLife > <br>> I'm lucky - I have two sisters that read my mind and fill in the > > blanks - especially late in the week or when I have overdone.> > when my words run out and I start getting frustrated they take > there > time and understand> > I was at the shop the other day and I was talking to a friend of > > 's - is a paramedic on an oil platform in the Gulf two > weeks > on and two weeks off> > I think he has a strong psych major too!> > things got too hectic in the office so we went in the back > classroom - > I can't remember what we were talking about now - it was the > most fun > conversation I have had in a long time - he did make the comment > that > he had to pick his way through the ADD - but it got easier> > when I got tired we went back to the front of the store - > someone I > can't stand for their negativity made a snide comment - seems we > had > been back there for 2 hours> > It's been more than 5 years since I did that> > Poor - he has the patience of a saint> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 You must have REALLY enjoyed yourself for 2 hours, Anne!Wow, how wonderful that must have been. You got lost inthe conversation; nothing better than those talks!Ignore the snide ones...love to you, Kate Re: memory lossTo: MSersLife > <br>> I'm lucky - I have two sisters that read my mind and fill in the > > blanks - especially late in the week or when I have overdone.> > when my words run out and I start getting frustrated they take > there > time and understand> > I was at the shop the other day and I was talking to a friend of > > 's - is a paramedic on an oil platform in the Gulf two > weeks > on and two weeks off> > I think he has a strong psych major too!> > things got too hectic in the office so we went in the back > classroom - > I can't remember what we were talking about now - it was the > most fun > conversation I have had in a long time - he did make the comment > that > he had to pick his way through the ADD - but it got easier> > when I got tired we went back to the front of the store - > someone I > can't stand for their negativity made a snide comment - seems we > had > been back there for 2 hours> > It's been more than 5 years since I did that> > Poor - he has the patience of a saint> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 I forgot everything after I walked out the door I got home and had a 3 hour nap it was worth it though Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 oh brother, can I relate to that!A 3 hour nap sounds great!With your cpap I'm sure!love, Kate Re: memory lossTo: MSersLife > <br>> I forgot everything after I walked out the door> > I got home and had a 3 hour nap> > it was worth it though> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 my unscheduled ones during the day are in the den no control over them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 my unscheduled ones during the day are in the den no control over them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Hey everyone, Yes, those 3 hour naps are great, except that I only sleep 2-3 hours at a time anyway. What I hate is the way people say the memory loss is related to my age. Now here's the great thing about that, I'm only 51. Don't you love the way you can say only when you are in your 50's! And n, don't say a word, I never think of you as 71.5. I remember being totally shocked, in a good way, when finding out your age. Went to my niece's 5th birthday party earlier, got to listen to her dad and his family discuss the issue of MS being genetic because my younger brother and 2 cousin's in NY also have MS. I thought I was the first one in the family to be diagnosed, until about 5 years after I was diagnosed and my mom told me about 1 of the cousins having been diagnosed for at least 20 years and was now wheelchair bound. Now back to the memory issue, I left home without her present and my soda. Now, I knew I was going to her birthday party, why would I not reember to take her present? Oh, I also left without my jacket. Even when I got outside, it didn't dawn on me to go back into my apt and at least get my jacket. I went to Wally World after-wards and when I left there, the temp had dropped about 20 degrees with a strong wind and sleet. Not fun. Oh, and what is the first thing Gracie said, "Where's my present?" And my sister said she wouldn't notice. lol. Luv and blessings to everyone, Tina Subject: Re: memory lossTo: MSersLife Date: Sunday, April 5, 2009, 1:26 PM You must have REALLY enjoyed yourself for 2 hours, Anne! Wow, how wonderful that must have been. You got lost in the conversation; nothing better than those talks! Ignore the snide ones...love to you, Kate Re: memory lossTo: MSersLife@yahoogrou ps.com> <br>> I'm lucky - I have two sisters that read my mind and fill in the > > blanks - especially late in the week or when I have overdone.> > when my words run out and I start getting frustrated they take > there > time and understand> > I was at the shop the other day and I was talking to a friend of > > 's - is a paramedic on an oil platform in the Gulf two > weeks > on and two weeks off> > I think he has a strong psych major too!> > things got too hectic in the office so we went in the back > classroom - > I can't remember what we were talking about now - it was the > most fun > conversation I have had in a long time - he did make the comment > that > he had to pick his way through the ADD - but it got easier> > when I got tired we went back to the front of the store - > someone I > can't stand for their negativity made a snide comment - seems we > had > been back there for 2 hours> > It's been more than 5 years since I did that> > Poor - he has the patience of a saint> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Hi Jolie! She is good, thanks so much for asking. They are still healing some, like some of the capped ones are sensitive to cold or chewy stuff. But were they pulled the tooth is doing fine so thats a good thing, as long as no caps are falling off. and no more pain! Yayyy! How are you!? Lots of hugzzz memory loss & gt; & gt; & gt; & gt; I think my grandmother might be developing some kind of dementia or & gt; & gt; something. We just moved her to an assisted living home. She was not & gt; & gt; to happy about it but it is for the best. I hope the transition is & gt; & gt; easy for your dad. It will turn out ok. Prayers to you and your & gt; & gt; family. & gt; & gt; Jolie & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; ------------------------------------ & gt; & gt; Quote Link to comment Share on other sites More sharing options...
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