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2nd Surgery is Tougher?

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Hi Guys,

Danny continues to do well, however at a much slower pace, compared to

surgery #1. He has has a hard time sitting up for more than 10-15 minutes at

a time and is constantly laying down and resting for a minute or two, then

resuming activity.

I spoke with the doc today and he assured me that a slower recovery is normal

for a repeat decompression. He told me that cutting through scar tissue

makes for tough recuperation. In addition, nausea has really been an issue.

Inserting a 4th ventricular stent involves going right into " nausea control "

and it is very common for patients to feel nauseous for days, even weeks

after surgery. :(

The weirdest complaints are his right ear feeling like *ice* and at other

times his forehead feeling very *hot*. Doc could not explain this!

I do recall reading a post one time that quirky symptoms appear post-op and

that it takes a little time for all the kinks to work out --- am I

remembering this correctly?

Thanks for any input,

Suzanne L.

(Danny Boy's Mom) 6 yrs. old

ACM 1, SM

Decompressed 9/15/98 & 5/07/01 --- Children's Boston

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