Re: Re: verbal stimming

[Guest guest]

I wish it was that easy. This has been going on for months now, and its getting to the point to where that is HOW she talks. So, she isn't...just practicing.

Karmen

Re: verbal stimming

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

I guess that's a verbal equivalent of how doing bonsai helped me develop hand-eye coordination.I needed supplements to talk better. Subject: Re: verbal stimmingTo: mb12 valtrex Date: Saturday, October 31, 2009, 11:10 PM

Hi Karmen,

My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation. " So there you have it...they are just practicing!!

(BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)

Liz

>

> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.)

and even try to give me an explanation of what her 'phrase' meant.

>

> Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.

>

> Karmen

>

[Guest guest]

they may be reciting hyperlexic things, or ST drills, on a side note my son ONLY does this in PANDAS flares. is it something that comes and goes or all the time

Re: verbal stimming

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

I say this about once a week.I sort of wish the newbies wouldn't ask anymore,High dose fish oil,CoQ10,leucovorin,and MB12 in that order,It is probably the accumulated effect of being on them a while.Now if something could help me with my GI and immune disease,and multiple forms of non verbal apraxia,I would have all I need.

From: Liz <elizabethsoliday@ yahoo.com>Subject: Re: verbal stimmingTo: mb12 valtrex@ yahoogroups. comDate: Saturday, October 31, 2009, 11:10 PM

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation. " So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

Hi Karmen,

My 6yo son does this too. And I just learned that it has a name...palilalia when you repeat yourself vs. echolia when you repeat someone else. It seems more frequent when he's having trouble with yeast or bacteria (clostridia/strep) overgrowth which we treat with Diflucan (anti-fungal) and Flagyl (antibiotic). He repeats himself in a whisper tone when he talks to me and also reiterates things that he's heard previously in a whisper tone, for instance lines from a cartoon or something that a classmate said to him at school earlier. When I asked him why he does it, he quickly said "i don't know" and seemed embarrassed, so I dropped it.

I find it interesting that your daughter's whispering is decreasing now that she's on antibiotics. It makes me feel more than ever that my son's whispering is more related to the clostridia/strep more than anything else. Would you mind sharing what antibiotic she is on? Thanks. M

To: mb12 valtrex Sent: Mon, November 2, 2009 8:43:41 AMSubject: Re: Re: verbal stimming

I have asked her why she does this, but she doesn't really understand why questions, so I get different answers that don't actually answer anything, each time I ask. Sometimes she repeats, in a whisper tone, something she just said to me. But oftentimes, she is in a room by herself, talking in both regular and whisper tones.

Here is something odd. She has been on an antibiotic since Friday night for a sinus infection. Today, Sunday, she has whispered less than she has in months. Noticeably less. I am wondering if there is a correlation. Sound like something to you?

Thank you for the supplement suggestions and detailed info. Much appreciated.

Karmen

Re: verbal stimming

Have you asked her why she does it? Does she whisper about everything or is it a certain topic she is ruminating over? When she talks to you, does she immediately whisper the same thing she just told you? This is what my son did and what I thought you were talking about. If you feel it is obsessive, I would try some Inositol/Choline. My son also improved socially on MB-12 injections. My gut feeling is that she is anemic and full of aluminum. I would supplement magnesium malate daily. Aluminum takes the place of iron on transferrin receptors, so iron supplementation won't correct anemia in this case. When children are magnesium deficient, their cellular energy processes will use aluminum instead. I have a lot of info on this. Here are three of my references:1. Title: Iron deficiency anaemia and child development.Personal Authors: Hokama, T., Ken, M. G., Nosoko, N.Author Affiliation: Maternal & Child and Global Health, School

of Health Science, Faculty of Medicine, University of the Ryukyus, Okinawa, Japan.Editors: No editorsDocument Title: Asia-Pacific Journal of Public HealthAbstract: A developmental test was carried out to evaluate the effect of iron deficiency anaemia on child, development, in Japan, by using Scale of Infant Development (BSID) and Enjoji Scale of Infant Analytical development (ESID). The participants submitted to regular health examinations and screening between March 2000 and October 2003. The subjects were 54 children, divided into 3 groups. Group 1 consisted of 15 infants with anaemia; Group 2: 10 infants with a past history of anaemia and Group 3: 29 healthy normal infants without anaemia formed the control group. The characteristics of infants and their family background were not different among the three groups except for the male/female ratio. The mean mental developmental index (MDI) and psychomotor developmental index

(PDI) of Group 1 and Group 2 were lower than that of control group using the BSID test. The mean speech development quotients of Group 1 and Group 2 were lower than that of control group in ESID. These tendencies were observed after subjects were stratified by sex. Therefore, the results of the study suggests that iron deficiency anaemia may affect child development especially speech development.2. Iron absorption in erythropoietin- treated haemodialysis patients: effects of iron availability, inflammation and aluminium.Kooistra MP, Niemantsverdriet EC, van Es A, Mol-Beermann NM, Struyvenberg A, Marx JJ.Division of Nephrology and Hypertension, University Hospital, Utrecht, The Netherlands.BACKGROUND: The response to recombinant human erythropoietin (rHuEpo) is determined primarily by the availability of iron. In contrast to i.v., iron, oral iron supplementation is often insufficient for an optimal response. METHOD: We studied

iron absorption and the effects of iron status, aluminium status and inflammation in 19 chronic haemodialysis patients on maintenance rHuEpo therapy. Iron mucosal uptake after 24 h, iron retention after 2 weeks and mucosal transfer of iron were determined with a whole-body counter using an oral dose 59Fe. Iron absorption was measured once without, and once after the ingestion of 2 g aluminium hydroxide. RESULTS: On the basis of transferrin saturation, two groups of dialysis patients were distinguished: a group with a functional iron deficiency (n = 9), and an iron-replete group (n = 10). In the iron-deficient dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 49.9% +/- 29.4, 0.73 +/- 0.29, and 41.6% +/- 32.2, being significantly lower than in a non-uraemic iron deficient population (P < 0.01, P < 0.05, P < 0.01 respectively) . In the iron-replete dialysis patients group, mucosal uptake, mucosal transfer, and iron

retention were 20.0 +/- 12.3, 0.59 +/- 0.18, and 11.1 +/- 6.7, mucosal uptake and iron retention being lower than in a normal iron-replete population (P < 0.0005 and P < 0.003 respectively) . Dialysis patients with high C-reactive protein (CRP) values showed lower iron absorption. Iron absorption data correlated significantly with transferrin saturation and CRP in the iron-deficient group, and with serum ferritin in the iron-replete group. Iron absorption decreased after an aluminium hydroxide challenge in the iron-deficient patients to the lower levels of the iron-replete subjects. Body aluminium stores, estimated by the desferrioxamine test, did not correlate with parameters of iron absorption. CONCLUSION: The absorption of iron in dialysis patients is decreased in haemodialysis patients, which may, at least in part, be due to inflammation. Aluminium ingestion further reduces absorption in functional iron-deficient patients.3. Magnesium

Malate prevents further damage:<http://www.healinge dge.net/pdf/ p_atp_plus. pdf>> >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in

the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> >

> > Karmen> >>

[Guest guest]

if your child is like mine (he has PANDAS) and we only see it in a flare the antibiotics would be treating it. watch for that pattern (reduction in it if on antibiotics) if you continue to see the pattern or even if you don't I would test for PANDAS

Re: verbal stimming> > > Hi Karmen, > > My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! > > (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)> > Liz> > > >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

Hello ,

What supplements did you take to talk better?

Karmen

Re: verbal stimmingTo: mb12 valtrex Date: Saturday, October 31, 2009, 11:10 PM

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation. " So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

It's ALL THE TIME.

Re: verbal stimming

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

I have asked her why she does this, but she doesn't really understand why questions, so I get different answers that don't actually answer anything, each time I ask. Sometimes she repeats, in a whisper tone, something she just said to me. But oftentimes, she is in a room by herself, talking in both regular and whisper tones.

Here is something odd. She has been on an antibiotic since Friday night for a sinus infection. Today, Sunday, she has whispered less than she has in months. Noticeably less. I am wondering if there is a correlation. Sound like something to you?

Thank you for the supplement suggestions and detailed info. Much appreciated.

Karmen

Re: verbal stimming> > > Hi Karmen, > > My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! > > (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)> > Liz> > > >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

,

I am NOT a newbie. Been on this website for YEARS. The breakdown lies in the fact that this is a very active board, many posts are not read if they don't pertain to you personally because of the amount of volume, and as a parent of an child on the spectrum, its hard enough for me to keep HER supplements in my mind, let alone the supplements that others take.

Next time, just don't answer back if its too bothersome. Sorry for the inconvenience.

Karmen

mother of a GREAT autistic kid

Re: verbal stimmingTo: mb12 valtrex@ yahoogroups. comDate: Saturday, October 31, 2009, 11:10 PM

Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation. " So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

Hi Marie,

Thanks for the info. I'll look up palilalia. My daughter is on Azythromycin (Z-Pac for short). Unfortunately, today she was back to her chatty whispering self again. So, any theories about the antibiotic just went out the window.

Karmen

Re: verbal stimming

Have you asked her why she does it? Does she whisper about everything or is it a certain topic she is ruminating over? When she talks to you, does she immediately whisper the same thing she just told you? This is what my son did and what I thought you were talking about. If you feel it is obsessive, I would try some Inositol/Choline. My son also improved socially on MB-12 injections. My gut feeling is that she is anemic and full of aluminum. I would supplement magnesium malate daily. Aluminum takes the place of iron on transferrin receptors, so iron supplementation won't correct anemia in this case. When children are magnesium deficient, their cellular energy processes will use aluminum instead. I have a lot of info on this. Here are three of my references:1. Title: Iron deficiency anaemia and child development.Personal Authors: Hokama, T., Ken, M. G., Nosoko, N.Author Affiliation: Maternal & Child and Global Health, School of Health Science, Faculty of Medicine, University of the Ryukyus, Okinawa, Japan.Editors: No editorsDocument Title: Asia-Pacific Journal of Public HealthAbstract: A developmental test was carried out to evaluate the effect of iron deficiency anaemia on child, development, in Japan, by using Scale of Infant Development (BSID) and Enjoji Scale of Infant Analytical development (ESID). The participants submitted to regular health examinations and screening between March 2000 and October 2003. The subjects were 54 children, divided into 3 groups. Group 1 consisted of 15 infants with anaemia; Group 2: 10 infants with a past history of anaemia and Group 3: 29 healthy normal infants without anaemia formed the control group. The characteristics of infants and their family background were not different among the three groups except for the male/female ratio. The mean mental developmental index (MDI) and psychomotor developmental index (PDI) of Group 1 and Group 2 were lower than that of control group using the BSID test. The mean speech development quotients of Group 1 and Group 2 were lower than that of control group in ESID. These tendencies were observed after subjects were stratified by sex. Therefore, the results of the study suggests that iron deficiency anaemia may affect child development especially speech development.2. Iron absorption in erythropoietin- treated haemodialysis patients: effects of iron availability, inflammation and aluminium.Kooistra MP, Niemantsverdriet EC, van Es A, Mol-Beermann NM, Struyvenberg A, Marx JJ.Division of Nephrology and Hypertension, University Hospital, Utrecht, The Netherlands.BACKGROUND: The response to recombinant human erythropoietin (rHuEpo) is determined primarily by the availability of iron. In contrast to i.v., iron, oral iron supplementation is often insufficient for an optimal response. METHOD: We studied iron absorption and the effects of iron status, aluminium status and inflammation in 19 chronic haemodialysis patients on maintenance rHuEpo therapy. Iron mucosal uptake after 24 h, iron retention after 2 weeks and mucosal transfer of iron were determined with a whole-body counter using an oral dose 59Fe. Iron absorption was measured once without, and once after the ingestion of 2 g aluminium hydroxide. RESULTS: On the basis of transferrin saturation, two groups of dialysis patients were distinguished: a group with a functional iron deficiency (n = 9), and an iron-replete group (n = 10). In the iron-deficient dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 49.9% +/- 29.4, 0.73 +/- 0.29, and 41.6% +/- 32.2, being significantly lower than in a non-uraemic iron deficient population (P < 0.01, P < 0.05, P < 0.01 respectively) . In the iron-replete dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 20.0 +/- 12.3, 0.59 +/- 0.18, and 11.1 +/- 6.7, mucosal uptake and iron retention being lower than in a normal iron-replete population (P < 0.0005 and P < 0.003 respectively) . Dialysis patients with high C-reactive protein (CRP) values showed lower iron absorption. Iron absorption data correlated significantly with transferrin saturation and CRP in the iron-deficient group, and with serum ferritin in the iron-replete group. Iron absorption decreased after an aluminium hydroxide challenge in the iron-deficient patients to the lower levels of the iron-replete subjects. Body aluminium stores, estimated by the desferrioxamine test, did not correlate with parameters of iron absorption. CONCLUSION: The absorption of iron in dialysis patients is decreased in haemodialysis patients, which may, at least in part, be due to inflammation. Aluminium ingestion further reduces absorption in functional iron-deficient patients.3. Magnesium Malate prevents further damage:<http://www.healinge dge.net/pdf/ p_atp_plus. pdf>> >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

Thanks Cristel,

If you don't mind me asking, what kind of test is a PANDAS test (blood, stool, urine)?

Karmen

Re: verbal stimming> > > Hi Karmen, > > My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! > > (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)> > Liz> > > >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

She does eat SOME dairy, but not a lot. She's basically a bland food eater because she has such an acute sense of smell. Nothing can have a smell or she won't touch it.

She has done that hysterical laugh from time to time. She has been on rotating probiotics now for several years, along with previously taking Diflucan, Nystatin and Caprylic acid. She still takes enzymes, CLO, vit. C., mag. sulfate cream, daily epsom salt baths and other supplements. I know some are suppose to be good detox supps. but I feel she needs more to help detox. We've never done chelation, but I am teetering on trying it at some point down the road. Maybe that will help with some of the toxins that are still prevelant in her system.

Thanks for your ideas.

Karmen

Re: verbal stimming

Does she eat/drink dairy products? Milk, cheese, yogurt...all caused recurrent sinus infections in me. I think it was lactose intolerance, possibly a dairy allergy. I would get a runny nose, would sneeze or get congested when eating dairy and if I kept it up over a short period of time (multiple insults on my system), it would turn into a full-blown sinus infection. I think my children's ear infections were due to the same thing. All I can gather is that maybe the antibiotic got rid of some of the bacterial overgrowth that accompanies malabsorption. Undigested food in the intestines will cause candida. One of the biproducts of candida is ethanol, and ethanol will intoxicate and has potential to cause schizophrenic-type behavior. I can tell my younger son has candida overgrowth when he laughs hysterically and I know he is intoxicated from ethanol. I suppose it could affect different people different ways. Just some ideas,Liz> > >> > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > Karmen> > >> >>

[Guest guest]

blood, titers, ASO, and B antanase

Re: verbal stimming> > > Hi Karmen, > > My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation." So there you have it...they are just practicing!! > > (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)> > Liz> > > >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

Christel,

What is ASO? And when you say titers, do you mean viral titers?

Thanks

To: mb12 valtrex Sent: Mon, November 2, 2009 6:46:54 PMSubject: Re: Re: verbal stimming

blood, titers, ASO, and B antanase

Re: verbal stimming

Have you asked her why she does it? Does she whisper about everything or is it a certain topic she is ruminating over? When she talks to you, does she immediately whisper the same thing she just told you? This is what my son did and what I thought you were talking about. If you feel it is obsessive, I would try some Inositol/Choline. My son also improved socially on MB-12 injections. My gut feeling is that she is anemic and full of aluminum. I would supplement magnesium malate daily. Aluminum takes the place of iron on transferrin receptors, so iron supplementation won't correct anemia in this case. When children are magnesium deficient, their cellular energy processes will use aluminum instead. I have a lot of info on this. Here are three of my references:1. Title: Iron deficiency anaemia and child development.Personal Authors: Hokama, T., Ken, M. G., Nosoko, N.Author Affiliation: Maternal & Child and Global Health, School

of Health Science, Faculty of Medicine, University of the Ryukyus, Okinawa, Japan.Editors: No editorsDocument Title: Asia-Pacific Journal of Public HealthAbstract: A developmental test was carried out to evaluate the effect of iron deficiency anaemia on child, development, in Japan, by using Scale of Infant Development (BSID) and Enjoji Scale of Infant Analytical development (ESID). The participants submitted to regular health examinations and screening between March 2000 and October 2003. The subjects were 54 children, divided into 3 groups. Group 1 consisted of 15 infants with anaemia; Group 2: 10 infants with a past history of anaemia and Group 3: 29 healthy normal infants without anaemia formed the control group. The characteristics of infants and their family background were not different among the three groups except for the male/female ratio. The mean mental developmental index (MDI) and psychomotor developmental index

(PDI) of Group 1 and Group 2 were lower than that of control group using the BSID test. The mean speech development quotients of Group 1 and Group 2 were lower than that of control group in ESID. These tendencies were observed after subjects were stratified by sex. Therefore, the results of the study suggests that iron deficiency anaemia may affect child development especially speech development.2. Iron absorption in erythropoietin- treated haemodialysis patients: effects of iron availability, inflammation and aluminium.Kooistra MP, Niemantsverdriet EC, van Es A, Mol-Beermann NM, Struyvenberg A, Marx JJ.Division of Nephrology and Hypertension, University Hospital, Utrecht, The Netherlands.BACKGROUND: The response to recombinant human erythropoietin (rHuEpo) is determined primarily by the availability of iron. In contrast to i.v., iron, oral iron supplementation is often insufficient for an optimal response. METHOD: We studied

iron absorption and the effects of iron status, aluminium status and inflammation in 19 chronic haemodialysis patients on maintenance rHuEpo therapy. Iron mucosal uptake after 24 h, iron retention after 2 weeks and mucosal transfer of iron were determined with a whole-body counter using an oral dose 59Fe. Iron absorption was measured once without, and once after the ingestion of 2 g aluminium hydroxide. RESULTS: On the basis of transferrin saturation, two groups of dialysis patients were distinguished: a group with a functional iron deficiency (n = 9), and an iron-replete group (n = 10). In the iron-deficient dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 49.9% +/- 29.4, 0.73 +/- 0.29, and 41.6% +/- 32.2, being significantly lower than in a non-uraemic iron deficient population (P < 0.01, P < 0.05, P < 0.01 respectively) . In the iron-replete dialysis patients group, mucosal uptake, mucosal transfer, and iron

retention were 20.0 +/- 12.3, 0.59 +/- 0.18, and 11.1 +/- 6.7, mucosal uptake and iron retention being lower than in a normal iron-replete population (P < 0.0005 and P < 0.003 respectively) . Dialysis patients with high C-reactive protein (CRP) values showed lower iron absorption. Iron absorption data correlated significantly with transferrin saturation and CRP in the iron-deficient group, and with serum ferritin in the iron-replete group. Iron absorption decreased after an aluminium hydroxide challenge in the iron-deficient patients to the lower levels of the iron-replete subjects. Body aluminium stores, estimated by the desferrioxamine test, did not correlate with parameters of iron absorption. CONCLUSION: The absorption of iron in dialysis patients is decreased in haemodialysis patients, which may, at least in part, be due to inflammation. Aluminium ingestion further reduces absorption in functional iron-deficient patients.3. Magnesium

Malate prevents further damage:<http://www.healinge dge.net/pdf/ p_atp_plus. pdf>> >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in

the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> >

> > Karmen> >>

[Guest guest]

sounds like some of that dairy is causein your issues

Re: verbal stimming

Does she eat/drink dairy products? Milk, cheese, yogurt...all caused recurrent sinus infections in me. I think it was lactose intolerance, possibly a dairy allergy. I would get a runny nose, would sneeze or get congested when eating dairy and if I kept it up over a short period of time (multiple insults on my system), it would turn into a full-blown sinus infection. I think my children's ear infections were due to the same thing. All I can gather is that maybe the antibiotic got rid of some of the bacterial overgrowth that accompanies malabsorption. Undigested food in the intestines will cause candida. One of the biproducts of candida is ethanol, and ethanol will intoxicate and has potential to cause schizophrenic-type behavior. I can tell my younger son has candida overgrowth when he laughs hysterically and I know he is intoxicated from ethanol. I suppose it could affect different people different ways. Just some ideas,Liz> > >> > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > Karmen> > >> >>

[Guest guest]

it's antibody titers to bacteria which is what ASO is looking for antistrep titeres

Re: verbal stimming

Have you asked her why she does it? Does she whisper about everything or is it a certain topic she is ruminating over? When she talks to you, does she immediately whisper the same thing she just told you? This is what my son did and what I thought you were talking about. If you feel it is obsessive, I would try some Inositol/Choline. My son also improved socially on MB-12 injections. My gut feeling is that she is anemic and full of aluminum. I would supplement magnesium malate daily. Aluminum takes the place of iron on transferrin receptors, so iron supplementation won't correct anemia in this case. When children are magnesium deficient, their cellular energy processes will use aluminum instead. I have a lot of info on this. Here are three of my references:1. Title: Iron deficiency anaemia and child development.Personal Authors: Hokama, T., Ken, M. G., Nosoko, N.Author Affiliation: Maternal & Child and Global Health, School of Health Science, Faculty of Medicine, University of the Ryukyus, Okinawa, Japan.Editors: No editorsDocument Title: Asia-Pacific Journal of Public HealthAbstract: A developmental test was carried out to evaluate the effect of iron deficiency anaemia on child, development, in Japan, by using Scale of Infant Development (BSID) and Enjoji Scale of Infant Analytical development (ESID). The participants submitted to regular health examinations and screening between March 2000 and October 2003. The subjects were 54 children, divided into 3 groups. Group 1 consisted of 15 infants with anaemia; Group 2: 10 infants with a past history of anaemia and Group 3: 29 healthy normal infants without anaemia formed the control group. The characteristics of infants and their family background were not different among the three groups except for the male/female ratio. The mean mental developmental index (MDI) and psychomotor developmental index (PDI) of Group 1 and Group 2 were lower than that of control group using the BSID test. The mean speech development quotients of Group 1 and Group 2 were lower than that of control group in ESID. These tendencies were observed after subjects were stratified by sex. Therefore, the results of the study suggests that iron deficiency anaemia may affect child development especially speech development.2. Iron absorption in erythropoietin- treated haemodialysis patients: effects of iron availability, inflammation and aluminium.Kooistra MP, Niemantsverdriet EC, van Es A, Mol-Beermann NM, Struyvenberg A, Marx JJ.Division of Nephrology and Hypertension, University Hospital, Utrecht, The Netherlands.BACKGROUND: The response to recombinant human erythropoietin (rHuEpo) is determined primarily by the availability of iron. In contrast to i.v., iron, oral iron supplementation is often insufficient for an optimal response. METHOD: We studied iron absorption and the effects of iron status, aluminium status and inflammation in 19 chronic haemodialysis patients on maintenance rHuEpo therapy. Iron mucosal uptake after 24 h, iron retention after 2 weeks and mucosal transfer of iron were determined with a whole-body counter using an oral dose 59Fe. Iron absorption was measured once without, and once after the ingestion of 2 g aluminium hydroxide. RESULTS: On the basis of transferrin saturation, two groups of dialysis patients were distinguished: a group with a functional iron deficiency (n = 9), and an iron-replete group (n = 10). In the iron-deficient dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 49.9% +/- 29.4, 0.73 +/- 0.29, and 41.6% +/- 32.2, being significantly lower than in a non-uraemic iron deficient population (P < 0.01, P < 0.05, P < 0.01 respectively) . In the iron-replete dialysis patients group, mucosal uptake, mucosal transfer, and iron retention were 20.0 +/- 12.3, 0.59 +/- 0.18, and 11.1 +/- 6.7, mucosal uptake and iron retention being lower than in a normal iron-replete population (P < 0.0005 and P < 0.003 respectively) . Dialysis patients with high C-reactive protein (CRP) values showed lower iron absorption. Iron absorption data correlated significantly with transferrin saturation and CRP in the iron-deficient group, and with serum ferritin in the iron-replete group. Iron absorption decreased after an aluminium hydroxide challenge in the iron-deficient patients to the lower levels of the iron-replete subjects. Body aluminium stores, estimated by the desferrioxamine test, did not correlate with parameters of iron absorption. CONCLUSION: The absorption of iron in dialysis patients is decreased in haemodialysis patients, which may, at least in part, be due to inflammation. Aluminium ingestion further reduces absorption in functional iron-deficient patients.3. Magnesium Malate prevents further damage:<http://www.healinge dge.net/pdf/ p_atp_plus. pdf>> >> > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > Karmen> >>

[Guest guest]

We were off casein for over a year. Didn't work wonders for my daughter. She was not a responder to the GFCF diet.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

We were off casein for over a year. Didn't work wonders for my daughter. She was not a responder to the GFCF diet.

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

then you may have OTHER foods you will have to pull as well. I know 2 moms that were religious about it with out results, I encouraged them both after a year to give it one more shot and do IGG and IGE testing only to find out that they had OTHER food issues as well BIG ones with rice and potatoes being higher then gluten which they increased when taking gluten out making a one for one trade so they didn;'t see changes, when they implimented the modifcations with ALL things changed both saw great responce with the diet, it's never just gfcf, it's more what your childs body needs

Re: verbal stimming

I wouldn't have even considered casein was still in your daughter's diet since you were so doing so much bio med..I think it would definitely be beneficial to stop completely..I know all our kids are different but definitely worth a try..removing it for us did wonders> > > >> > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > Karmen> > > >> > >> >>

[Guest guest]

how interesting! I wonder if i eliminate eggs? I didn't know that these things were found in vaccines. He get quite a bit of eggs. Can anybody recommend how to make pancakes without eggs? Is chicken still ok. I have been making that more lately too, maybe I should switch back to turkey. Thanks for everyone's advises. I feel if I can try each one, eliminate, or change someone one by one that I can come to some conclusion. I also have put in writting about my son's Pandas results. I don't know the specific's other than they told me they were extremely high.

Re: verbal stimming

I agree completely, my son was GFCF for 8 months without much change in him at all, I wanted to give up severals times but reintroduction of gluten and casein made him worse. I followed the advice of a grandma on another board to take out more foods and it was what was needed, he improved. So not only GFCF, but the other food ingredients found in vaccines: soy, MSG, yeast, chicken eggs had to be eliminated. He still eats eggs sometimes but prefers not to, we try to get duck eggs but they are hard to find this time of year. My son now avoids BY HIMSELF all his problem foods because he knows their effects. When you get to the point where you have eliminated the inflammation, the child actually starts to realize and feel that they have reactions to certain things. This is where you want to get, where the child has self-maintenance of a diet that feels good to him or her.> > > > >> > > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > > > Karmen> > > > >> > > >> > >> >>

[Guest guest]

Apraxia/dyspraxia can be helped with carinitine, carnosine, piracetam/aniracetam (brand matters, some don't do anything I like Cognitive Nutrition and just tried Primaforce for the first time with success), SAMe, and I'm sure I've forgotten some but that's good start.Immune issues tend to be helped with Transfer factors, antivirals, antioxidants and chelation.GI, well, that's a the mystery for everyone as each person responds so to so many different things. My son is not a gut kid so I haven't had too much of an issue there to be much help. Although, I will tell you that we found out my son was low on growth hormone (IGF 1) and that just happens to be responsible for so many things besides actual growth. But I do remember you saying you had some growth problems before (still growing). It might be something worth looking into. I don't know what you would need to do to get it covered by insurance as an adult. I barely got it covered for my son and it's usually not covered without being clinically short with bone x-rays and challenge tests. I have no idea how it is for adults. Just so you know, growth hormone affects nutrient absorption in the gut (especially protein) and sense of smell, just to name a couple things it can affect. Since starting GH, his protein absorption is slowly going up.Hope that helps a little.Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ I say this about once a week.I sort of wish the newbies wouldn't ask anymore,High dose fish oil,CoQ10,leucovorin,and MB12 in that order,It is probably the accumulated effect of being on them a while.Now if something could help me with my GI and immune disease,and multiple forms of non verbal apraxia,I would have all I need. From: Liz <elizabethsoliday@ yahoo.com>Subject: Re: verbal stimmingTo: mb12 valtrex@ yahoogroups. comDate: Saturday, October 31, 2009, 11:10 PM Hi Karmen, My 11 year old used to do this and I just called him up from the basement to ask him why he did it. At first he smiled and said it was a "weird habit", but then when I said, "well did it do something for you?" he said "it helped my pronunciation. " So there you have it...they are just practicing!! (BTW, he is completely typical now. I have only heard him do this a few times in the last couple years and I can't say why, I just point it out to him and we laugh.)Liz>> My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > Karmen>

[Guest guest]

> In addition to taking foods away that contibute to inflammation, we can

> address good oils that will not congest the already congested/poisoned

> liver.

Have coffee enemas been discussed on this list? The are said to help detox

the liver and other organs, without involving the rest of the body....

..

[Guest guest]

In our case, I did. For two years I kept removing and removing and removing. No change, positive or negative with anything so after 2 years, I decided to put my money where it did some good. Best choice I made. Not something I recommend to people, though. I always recommend that people try it rather than not because I know too many kids that it *does* help to even consider not going there first. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Couldn't agree more to take gfcf to the next level and keep going until all symptoms of autism are gone. Keep going rather than say diet doesn't work. Our son too tells us what is good for his body now. It's a great spot when the child starts taking their own recovery responsibility. Our son now asks for Hbot, or B12 shots, or IV glutathione, and manages his diet. (he's 6 and was severly affected at 18 months)In addition to taking foods away that contibute to inflammation, we can address good oils that will not congest the already congested/poisoned liver. Probiotic/cultured foods, minerals, and living greens can be added. I find that often families work so hard, but get into ruts where the child is still eating lots of meat, nuts, fruits combined with canola oils . Even a gfcf whole foods diet can often create problems until the body is functioning well. Often the kids will eat the same "new" foods daily and create new problems. > > > > > >> > > > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc.) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > > > > > Karmen> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

I find this most difficult for breakfast foods, so if you can recommend any ideas for breakfast that would be wonderful. Normal breakfast is pancakes (made with egg) with fruit, or scrambled, or scd nut bread. He wont eat cereals. I try not to give too much of nut bread (not more than twice a week) only because I am afraid it might be a little harder to digest (we do give digestive enzymes) and it is scd bread. I make blueberry muffin with almond flour but he is kind of really sick of this. As I am writting this maybe I can look at the naste baking stuff and replace the egg with applesauce if it calls for egg. He is a big eater, but a peanut because of the gut issues. Any other ideas are welcome??? I give fruit and vegetable with his meal at lunch too. Thank you.

Re: verbal stimming

You might consider removing eggs for 2 weeks and then if you bring back rotate them. Use good eggs, free range or duck/quail eggs too. We've found a local chicken farmer with good practices and my kids can go get their own eggs now. The kids are reacting so a good idea to stay out of patterns. Chicken everday, eggs, anything really in a reactive kid will cause inflammation. You can use soaked flax seeds to replace eggs. They'll gel up and act as a binder. We kept eggs out for about 2 years, then brought them in and rotated. I still try to rotate, but not as careful as it's not necessary any longer. We eat lots of vegetables. We strive for 80% at each meal. > > > > > >> > > > > > My 7 yr. old daughter has a verbal stim that is becoming more pronounced. She talks under her breath, in a whisper tone, nearly all the time. I can hear her doing this whether I'm in the same room as her or in another room in the house. It seems that she can't help it, or stop herself for more than a few moments. She does this even when someone is speaking, either to her or to someone else nearby. It is constant, from the time she wakes up until she goes to sleep. She is verbal, but does not have typical spontaneous speech. She answers questions, makes requests, can tell you an event that occurred during the day, but again, not spontaneous conversational speech. Her comprehension is delayed, and often when I hear her talking in that whisper tone, what she is saying doesn't make sense to me, just a few words mixed with sounds strung together. When I ask her what she said, she will repeat it for me ("go tell them", "cross the street", etc) and even try to give me an explanation of what her 'phrase' meant. > > > > > > > > > > > > Does this sound familiar to anyone else? Any suggestions or advice would be GREATLY appreciated. I am at my wits end with this.> > > > > > > > > > > > Karmen> > > > > >> > > > >> > > >> > >> >>