Re: I've Just Talked To Val

[Guest guest]

Val, Human frailty and chronic illnesses can cause some people to behave in a rude and crude manner, but we guard against this kind of behavior in this group. I hope you will come back to us,

and participate as you are able. We miss you. Hugs, MM

[Guest guest]

Val, please believe me when I tell you that I also joined a different group,

for fibro, and the same thing happened, but it hasn't here. Even when there

was a problem the owner and other moderators took care of it quickly. This is

very nice group of people and the moderators that I see here now are sweet and

nice, just dont tell them I said that okay?

a C

[Guest guest]

Hi Val,

Alot of the ladies and gentlemen on this board work, that doesn't any more or less sick than anybody else,some can and some just have too. I respect both. I am very sorry that that other board was so mean. Everybody here has been very nice and helpful. They make me laugh and cry with there stories and I feel I can say anything I want and have the confidence to know that they will understand. Welcome Back.

Hugs,

S.

[Guest guest]

-THANKS LINDA--I WAS CONCERNED ABOUT VAL. VAL-I'm sorry you had

trouble! But, I'm glad it wasn't here. Please know that we care,

and we'd sure love to have you back!!!!Post soon!!!

-- In LUPIES , " doxiemom() " <doxiemom@s...> wrote:

> I've just talked to Val via msn messenger. And she has asked me to

send a post for

> her explaining why she hasn't been posting. It seems that she was a

member of another

> group and one of the members was very rude and ugly to her. The

member was one of

> the moderators! This has caused her to lose confidence in any

support groups. We

> talked at length and I have convinced her to give us (lupies) a

chance. I told her

> that we are all a family and would like very much for her to be a

part of the family.

> Everyone please let her know that we care about her. She has asked

me to put her

> back on individual email and I have done so. Hugs,

[Guest guest]

Dear All,

Thanks so much for the warm welcome back. Yes I will stay.

are you mainly from America, I know Rita isn't as I often chat to

her.

Are there any English girls out there--- just curious.

Love Val

> Val, please believe me when I tell you that I also joined a

different group,

> for fibro, and the same thing happened, but it hasn't here. Even

when there

> was a problem the owner and other moderators took care of it

quickly. This is

> very nice group of people and the moderators that I see here now

are sweet and

> nice, just dont tell them I said that okay?

> a C

[Guest guest]

I heard that, a C.

Hugs, L.

----- Original Message -----From: azToy2@...Sent: 8/10/2003 2:37:06 PMTo: LUPIES Subject: Re: I've Just Talked To Val> Val, please believe me when I tell you that I also joined a different group, > for fibro, and the same thing happened, but it hasn't here. Even when there > was a problem the owner and other moderators took care of it quickly. This is > very nice group of people and the moderators that I see here now are sweet and > nice, just dont tell them I said that okay?> a C> >

[Guest guest]

Dear ,

Yes I choose to keep going for as long as I can but i also like my

lifestyle and home so i struggle on for that too. On bad days it

would be easy to give up but I am a fighter.

My family know that when I get home at 4.0pm I go straight to bed

until 5.0PM then i can cope with tea.

Well off to work tomorrow after 2 weeks holiday so must go to bed.

Love val

> Hi Val,

> Alot of the ladies and gentlemen on this board work, that doesn't

any more or

> less sick than anybody else,some can and some just have too. I

respect both.

> I am very sorry that that other board was so mean. Everybody here

has been

> very nice and helpful. They make me laugh and cry with there

stories and I feel

> I can say anything I want and have the confidence to know that

they will

> understand. Welcome Back.

>

>

Hugs,

>

S.

[Guest guest]

Dear Val, Welcome back. So glad to have you back with us. I have a friend who was born in Yorkshire, and spent the war years in the underground in London with her Mum. She was there for

eye surgery when the war broke out. She went on to become a nurse serving in your army in the

South Pacific after the war. She currently lives in Arizona, having retired from her second or third

career. Very active lady. She just returned from her latest visit to London, and York.

So, not having much luck with finding effective medications you can tolerate? Sounds a lot like some

of us, here. We have run the gamut of known agents, and are now looking for new drugs, or new

combinations of drugs. I wish you well in that search.

Please keep writing, let us know how you are doing, what you think about things, share a joke, vent

when angry frustration gets the better of you, whine (we offer cheese with that...teehee), add a

prayer to the general multitude, if you go for that sort of thing. And, most importantly, keep the

communication lines open, as we are here for each other 24/7. Someone is almost always online, and although our time zone differences rarely let us put a chat group together, you are more than

welcome to enter the chat room and ask others to join you at any time.

I'm so sorry the other group wasn't nice, but don't let that stop you from trying again. Hugs, MM aka: Mike, one of the moderators

[Guest guest]

, Thanks for letting us know about Val. I am so pleased with this group - because of the collective knowledge - the offer of sincere support - the humor - and the fact that for the 4 or so months I have been a member I have not known of anyone being in sincere disagreement with anyone. I hope you post soon Val - and - please don't feel you owe any explaination because you sure don't - just start writing posts like you had never been away. Hugs - a B"doxiemom()" wrote:

I've just talked to Val via msn messenger. And she has asked

me to send a post for her explaining why she hasn't been posting.

It seems that she was a member of another group and one of the

members was very rude and ugly to her. The member was one of the

moderators! This has caused her to lose confidence in any support

groups. We talked at length and I have convinced her to give us (lupies)

a chance. I told her that we are all a family and would like very much

for her to be a part of the family. Everyone please let her know that

we care about her. She has asked me to put her back on individual

email and I have done so.

Hugs,"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Dear mike,

Thankyou soooo much for that lovely post i feel so much better here

now, I don't have to worry that somebody will get nasty again.

You seem a very friendly bunch.

No medication is a problem Prednisolone works best for me but am

down to 5mg which does nothing, i just worry about my ESR

inflammatory blood test being up all the time.

Care here is very limited and I can only see the specialist once a

year, the local rheumies are useless and my Gp who is lovely admits

I know more about lupus than he--p I have bought him wallace

book to read lol

Well its 10.45pm here so i'm off to bed will catch up with you

tomorrow.

Love Val

> Dear Val, Welcome back. So glad to have you back with us. I

have a

> friend who was born in Yorkshire, and spent the war years in the

underground in

> London with her Mum. She was there for

> eye surgery when the war broke out. She went on to become a

nurse serving

> in your army in the

> South Pacific after the war. She currently lives in Arizona,

having retired

> from her second or third

> career. Very active lady. She just returned from her latest

visit to

> London, and York.

>

> So, not having much luck with finding effective medications you

can tolerate?

> Sounds a lot like some

> of us, here. We have run the gamut of known agents, and are now

looking for

> new drugs, or new

> combinations of drugs. I wish you well in that search.

>

> Please keep writing, let us know how you are doing, what you think

about

> things, share a joke, vent

> when angry frustration gets the better of you, whine (we offer

cheese with

> that...teehee), add a

> prayer to the general multitude, if you go for that sort of

thing. And,

> most importantly, keep the

> communication lines open, as we are here for each other 24/7.

Someone is

> almost always online, and although our time zone differences

rarely let us put a

> chat group together, you are more than

> welcome to enter the chat room and ask others to join you at any

time.

>

> I'm so sorry the other group wasn't nice, but don't let that stop

you from

> trying again. Hugs, MM aka: Mike, one of the moderators

[Guest guest]

(well me zero and a C almost zero) It would be quite a commute driving MM home and then turning around to head east to take home. Hey - we should have do it!!! Don't you think? Hugs - a B

Yep, he can help out on that one. And if we take MM home we will have to swing by Vegas and make our fortune! Hey, come to think of it, I haven't ever heard of anyone from Vegas here. Are there any?

a C