Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 > Hi Cari > > When I put in the age group for 13 and up, I got to thinking that it > would leave out people like yourself. I've been trying to change it > ever since but OneList has been having some terrible problems. It will > be changed but I'm so happy you went ahead and joined. Tell me, do you > read the Myositis Forum on the internet? And also Sharon's Myositis > Page.... these two forums are so informative. If you don't have the URL > for these please let me know and I'll forward them on to you. I'm so > happy to hear your son is doing much better. I can't begin to imagine > how rough it must be on a parent. This is such a terrible disease and > especially when it hits the young kids. I'm in southern California and > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I am > doing so much better and I have found that support from individuals like > yourself and having a great sense of humor of my own has really helped. > The doctors have me talk to some of there other patients because they > are so down in spirits. After talking to me and hearing what I have > they look at the disease in a whole new light. I really believe we can > beat this thing. I also belong to the research part of this. I give my > plasma once a month in hopes they can find a cure. Oooops ... sometimes > I can be a chatty kathy...sorry! Please let me know if you have been to > the sites. Hope you have a wonderful day. > > Vicki Hi Vicki, I liked your long message! Do you go to DR. Robt. Fox?? I go to hin at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist once a month there too. Dr . Bernstein. All my wonderful Doc's are there. We are so blessed aren't we? But, we gotta figure out how to come together, raise monry, and find a CURE!!!! Also, get media attention, so regular Dr.'s will know what Myositis is and isn't, and how to treat it, and to give us the pain meds we need when we need them, etc!!! Any ideas??? Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You and Zanna and I have GOT to feel good enough to get together. Wanna come to my house?? Am I typing this in the right place, or is it supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM janiejanie2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Janie, This is the first e-mail message Vicki ever sent me. It must be from March 1999. How did you manage to forward that one? Cari > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: (no subject) >Date: Sun, 03 Mar 2002 02:31:13 -0000 > > > > Hi Cari > > > > When I put in the age group for 13 and up, I got to thinking that it > > would leave out people like yourself. I've been trying to change it > > ever since but OneList has been having some terrible problems. It >will > > be changed but I'm so happy you went ahead and joined. Tell me, do >you > > read the Myositis Forum on the internet? And also Sharon's Myositis > > Page.... these two forums are so informative. If you don't have >the URL > > for these please let me know and I'll forward them on to you. I'm >so > > happy to hear your son is doing much better. I can't begin to >imagine > > how rough it must be on a parent. This is such a terrible disease >and > > especially when it hits the young kids. I'm in southern California >and > > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I >am > > doing so much better and I have found that support from individuals >like > > yourself and having a great sense of humor of my own has really >helped. > > The doctors have me talk to some of there other patients because >they > > are so down in spirits. After talking to me and hearing what I have > > they look at the disease in a whole new light. I really believe we >can > > beat this thing. I also belong to the research part of this. I >give my > > plasma once a month in hopes they can find a cure. Oooops ... >sometimes > > I can be a chatty kathy...sorry! Please let me know if you have >been to > > the sites. Hope you have a wonderful day. > > > > Vicki >Hi Vicki, >I liked your long message! Do you go to DR. Robt. Fox?? I go to hin >at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist >once a month there too. Dr . Bernstein. All my wonderful Doc's are >there. We are so blessed aren't we? But, we gotta figure out how to >come together, raise monry, and find a CURE!!!! Also, get media >attention, so regular Dr.'s will know what Myositis is and isn't, and >how to treat it, and to give us the pain meds we need when we need >them, etc!!! Any ideas??? >Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but >I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You >and Zanna and I have GOT to feel good enough to get together. Wanna >come to my house?? Am I typing this in the right place, or is it >supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM >janiejanie2@... > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Janie, This is the first e-mail message Vicki ever sent me. It must be from March 1999. How did you manage to forward that one? Cari > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: (no subject) >Date: Sun, 03 Mar 2002 02:31:13 -0000 > > > > Hi Cari > > > > When I put in the age group for 13 and up, I got to thinking that it > > would leave out people like yourself. I've been trying to change it > > ever since but OneList has been having some terrible problems. It >will > > be changed but I'm so happy you went ahead and joined. Tell me, do >you > > read the Myositis Forum on the internet? And also Sharon's Myositis > > Page.... these two forums are so informative. If you don't have >the URL > > for these please let me know and I'll forward them on to you. I'm >so > > happy to hear your son is doing much better. I can't begin to >imagine > > how rough it must be on a parent. This is such a terrible disease >and > > especially when it hits the young kids. I'm in southern California >and > > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I >am > > doing so much better and I have found that support from individuals >like > > yourself and having a great sense of humor of my own has really >helped. > > The doctors have me talk to some of there other patients because >they > > are so down in spirits. After talking to me and hearing what I have > > they look at the disease in a whole new light. I really believe we >can > > beat this thing. I also belong to the research part of this. I >give my > > plasma once a month in hopes they can find a cure. Oooops ... >sometimes > > I can be a chatty kathy...sorry! Please let me know if you have >been to > > the sites. Hope you have a wonderful day. > > > > Vicki >Hi Vicki, >I liked your long message! Do you go to DR. Robt. Fox?? I go to hin >at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist >once a month there too. Dr . Bernstein. All my wonderful Doc's are >there. We are so blessed aren't we? But, we gotta figure out how to >come together, raise monry, and find a CURE!!!! Also, get media >attention, so regular Dr.'s will know what Myositis is and isn't, and >how to treat it, and to give us the pain meds we need when we need >them, etc!!! Any ideas??? >Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but >I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You >and Zanna and I have GOT to feel good enough to get together. Wanna >come to my house?? Am I typing this in the right place, or is it >supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM >janiejanie2@... > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Janie, This is the first e-mail message Vicki ever sent me. It must be from March 1999. How did you manage to forward that one? Cari > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: (no subject) >Date: Sun, 03 Mar 2002 02:31:13 -0000 > > > > Hi Cari > > > > When I put in the age group for 13 and up, I got to thinking that it > > would leave out people like yourself. I've been trying to change it > > ever since but OneList has been having some terrible problems. It >will > > be changed but I'm so happy you went ahead and joined. Tell me, do >you > > read the Myositis Forum on the internet? And also Sharon's Myositis > > Page.... these two forums are so informative. If you don't have >the URL > > for these please let me know and I'll forward them on to you. I'm >so > > happy to hear your son is doing much better. I can't begin to >imagine > > how rough it must be on a parent. This is such a terrible disease >and > > especially when it hits the young kids. I'm in southern California >and > > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I >am > > doing so much better and I have found that support from individuals >like > > yourself and having a great sense of humor of my own has really >helped. > > The doctors have me talk to some of there other patients because >they > > are so down in spirits. After talking to me and hearing what I have > > they look at the disease in a whole new light. I really believe we >can > > beat this thing. I also belong to the research part of this. I >give my > > plasma once a month in hopes they can find a cure. Oooops ... >sometimes > > I can be a chatty kathy...sorry! Please let me know if you have >been to > > the sites. Hope you have a wonderful day. > > > > Vicki >Hi Vicki, >I liked your long message! Do you go to DR. Robt. Fox?? I go to hin >at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist >once a month there too. Dr . Bernstein. All my wonderful Doc's are >there. We are so blessed aren't we? But, we gotta figure out how to >come together, raise monry, and find a CURE!!!! Also, get media >attention, so regular Dr.'s will know what Myositis is and isn't, and >how to treat it, and to give us the pain meds we need when we need >them, etc!!! Any ideas??? >Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but >I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You >and Zanna and I have GOT to feel good enough to get together. Wanna >come to my house?? Am I typing this in the right place, or is it >supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM >janiejanie2@... > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi Janie... I had Dr. Fox at Scripps when I lived in San Diego. He's wonderful. Good luck to you. Annette Re: (no subject) > Hi Cari > > When I put in the age group for 13 and up, I got to thinking that it > would leave out people like yourself. I've been trying to change it > ever since but OneList has been having some terrible problems. It will > be changed but I'm so happy you went ahead and joined. Tell me, do you > read the Myositis Forum on the internet? And also Sharon's Myositis > Page.... these two forums are so informative. If you don't have the URL > for these please let me know and I'll forward them on to you. I'm so > happy to hear your son is doing much better. I can't begin to imagine > how rough it must be on a parent. This is such a terrible disease and > especially when it hits the young kids. I'm in southern California and > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I am > doing so much better and I have found that support from individuals like > yourself and having a great sense of humor of my own has really helped. > The doctors have me talk to some of there other patients because they > are so down in spirits. After talking to me and hearing what I have > they look at the disease in a whole new light. I really believe we can > beat this thing. I also belong to the research part of this. I give my > plasma once a month in hopes they can find a cure. Oooops ... sometimes > I can be a chatty kathy...sorry! Please let me know if you have been to > the sites. Hope you have a wonderful day. > > Vicki Hi Vicki, I liked your long message! Do you go to DR. Robt. Fox?? I go to hin at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist once a month there too. Dr . Bernstein. All my wonderful Doc's are there. We are so blessed aren't we? But, we gotta figure out how to come together, raise monry, and find a CURE!!!! Also, get media attention, so regular Dr.'s will know what Myositis is and isn't, and how to treat it, and to give us the pain meds we need when we need them, etc!!! Any ideas??? Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You and Zanna and I have GOT to feel good enough to get together. Wanna come to my house?? Am I typing this in the right place, or is it supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM janiejanie2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi Janie... I had Dr. Fox at Scripps when I lived in San Diego. He's wonderful. Good luck to you. Annette Re: (no subject) > Hi Cari > > When I put in the age group for 13 and up, I got to thinking that it > would leave out people like yourself. I've been trying to change it > ever since but OneList has been having some terrible problems. It will > be changed but I'm so happy you went ahead and joined. Tell me, do you > read the Myositis Forum on the internet? And also Sharon's Myositis > Page.... these two forums are so informative. If you don't have the URL > for these please let me know and I'll forward them on to you. I'm so > happy to hear your son is doing much better. I can't begin to imagine > how rough it must be on a parent. This is such a terrible disease and > especially when it hits the young kids. I'm in southern California and > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I am > doing so much better and I have found that support from individuals like > yourself and having a great sense of humor of my own has really helped. > The doctors have me talk to some of there other patients because they > are so down in spirits. After talking to me and hearing what I have > they look at the disease in a whole new light. I really believe we can > beat this thing. I also belong to the research part of this. I give my > plasma once a month in hopes they can find a cure. Oooops ... sometimes > I can be a chatty kathy...sorry! Please let me know if you have been to > the sites. Hope you have a wonderful day. > > Vicki Hi Vicki, I liked your long message! Do you go to DR. Robt. Fox?? I go to hin at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist once a month there too. Dr . Bernstein. All my wonderful Doc's are there. We are so blessed aren't we? But, we gotta figure out how to come together, raise monry, and find a CURE!!!! Also, get media attention, so regular Dr.'s will know what Myositis is and isn't, and how to treat it, and to give us the pain meds we need when we need them, etc!!! Any ideas??? Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You and Zanna and I have GOT to feel good enough to get together. Wanna come to my house?? Am I typing this in the right place, or is it supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM janiejanie2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi Janie... I had Dr. Fox at Scripps when I lived in San Diego. He's wonderful. Good luck to you. Annette Re: (no subject) > Hi Cari > > When I put in the age group for 13 and up, I got to thinking that it > would leave out people like yourself. I've been trying to change it > ever since but OneList has been having some terrible problems. It will > be changed but I'm so happy you went ahead and joined. Tell me, do you > read the Myositis Forum on the internet? And also Sharon's Myositis > Page.... these two forums are so informative. If you don't have the URL > for these please let me know and I'll forward them on to you. I'm so > happy to hear your son is doing much better. I can't begin to imagine > how rough it must be on a parent. This is such a terrible disease and > especially when it hits the young kids. I'm in southern California and > I go to the Scripps Clinic in La Jolla, Ca. I was diagnosed with > Polymyositis in Oct. 98, then in Nov. 98 with two lung diseases. I am > doing so much better and I have found that support from individuals like > yourself and having a great sense of humor of my own has really helped. > The doctors have me talk to some of there other patients because they > are so down in spirits. After talking to me and hearing what I have > they look at the disease in a whole new light. I really believe we can > beat this thing. I also belong to the research part of this. I give my > plasma once a month in hopes they can find a cure. Oooops ... sometimes > I can be a chatty kathy...sorry! Please let me know if you have been to > the sites. Hope you have a wonderful day. > > Vicki Hi Vicki, I liked your long message! Do you go to DR. Robt. Fox?? I go to hin at Scripps, La Jolla. I get my IVIG's at my Hematologist/Oncologist once a month there too. Dr . Bernstein. All my wonderful Doc's are there. We are so blessed aren't we? But, we gotta figure out how to come together, raise monry, and find a CURE!!!! Also, get media attention, so regular Dr.'s will know what Myositis is and isn't, and how to treat it, and to give us the pain meds we need when we need them, etc!!! Any ideas??? Is your skin dry-er or itchie-r from the IVIG's? I'm " moulting " , but I also have Sjogren's and " Over-lapping auto-immune diseases " !!! You and Zanna and I have GOT to feel good enough to get together. Wanna come to my house?? Am I typing this in the right place, or is it supposed to be on the TOP of this post? I'm not ever sure! Janie/IBM janiejanie2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Hi Everyone, I was prescribed Armour Thyroid a couple of months ago after having blood work done which revealed a score of 310 (T3, Free). I don't know how to read these numbers, I'm just reading this off the lab paperwork. My doc put me on 30mg, one tablet each morning. I asked the pharmacist what a " grain " is after reading the website " Stop the Thyroid Madness " . I noticed the suggestion at taking a " half grain " in the morning and another half later in the afternoon. After not noticing myself feeling any better after being on the prescribed dose, I was deseperate for answers. My doc won't change the dose unless I go back in for more bloodwork and I'm uninsured at the moment since I began a new job. Can someone please explain a dose that will work?! My medicine bottle reads: 0.5GR (30mg). I was also diagnosed with exhausted adrenals after doing saliva testing through Quest Diagnostics. I just started taking Isocort today. My doc had me on " Cortitrophin " for mornings and something called " Cortisol Control " before bed. I'm hoping the Isocort will work better. I have sluggish adrenals all day and then high cortisol at night which has given me bouts of insomnia. I'm open to suggestions!? Thanks! Michele --------------------------------- Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
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