Christy-wiping butt post back surgery

[Guest guest]

I've been through the back surgery. Get a pair of tongs. Yes the kind you BBQ with. You will use that to wipe your butt with. It works! Don't get real long tongs. lol, that just doesn't sound right...lol It's early/late and I'm getting goofy...lol But I'm serious about the butt tongs. As for showering it's a slow process. Ronnie will have to help you. Make sure you have a shower chair. See if you will need a hospital bed at home. The surgeon can help you with the answers. When you see him in his office before the surgery, ask him what you will need to do at home afterwards. If you want to shave your legs in the shower then duck tape a razor to a long pole. Test the lenght before surgery.

That's all I can think of at the moment. But talk to the surgeon. He's done the surgery before so he knows what you'll need to do.

x0x0x0

Shiley

-- Re: It gets worse was sucky day

The only time I'll be alone is from 12 (when Ronnie goes to work) until 3 (when gets home) and even now I've pretty much gotten it scheduled that I sleep during that time because Ronnie is so worried about me falling or hurting myself while he's gone. Actually my big concern is wiping my butt and showering. I guess if those are my worst sorries, I'm probably doing ok. LOL

sucky day

I'm going to hide under the covers for the rest of the week.

Just came home from my rheumatologists office. OK, I got home 4 hours ago and I have been bawling ever since.

The humira is NOT working. All of my labs are haywire and my sed rate has gone to 45. EVERYTHING is high. My doc has always been straight with me and I love him for it but today I cried like a baby and I know he wished he had lied to me. We're running out of options, in his words. I've tried, and failed, everything known for RA and it's either made me worse, didn't work at all or created new problems. My lung tumor is growing, the good news is the kidney tumor is still the same. My nerves are shot (I've always known that with 2 teenagers but now it's really true! Literally!) I see the nerve doc on Thursday though I don't know why I'm bothering!!

We're going to go to every week on the Humira (if my damned insurance agrees! We have to fight them first!) We thought of trying the Arava (the ONLY thing we haven't tried) but it's too hard on the liver and my liver is going bonkers too! My liver labs are bad and my upper abdomen is swollen so much I look like a snowman. I guess I hadn't wanted to notice but he noticed today and freaked. My edema is worse but we can't go any higher on the lasix. If the Humira every week doesn't help or if my insurance won't approve I'm screwed. Unless something new (and safe for my other stuff) comes out soon, I'm finished.

The only thing we can increase is my prozac and he offered (damn near insisted) but I reminded him about my group here and told him I'd get my support here, not from yet another pill. OK, send it already! LOL

He gave me a prescription for a lift chair (I told him we were shopping for a comfortable recliner I could get out of easily) but I think he would have given me a prescription for anything in the world right then!

We increased my Vicodin and he's calling my pain management doc to see what else they can do on that end to "keep me comfortable." He said his reasoning is that he knows I'm still young and he wants me to still have some quality of life when I'm older. I told him that my quality of life right now sucks and I don't even want to think about getting older.

OK enough whining. I need to go read emails and see what else is up. You guys have been chatty. I hope everything is ok.

I love you guys and I would be completely lost without all of you by my side. It's nice to have someone there to talk to and chat with and laugh with but it's also nice to know that when life sucks and you can't take anymore, someone will be there to hold your hand and hug you until you can continue on. Thank you guys for the hugs and for holding my hand!

Christy

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