Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 : I am not familiar with your symptoms but i read a post where someone had a similar problem and it sort of wore off. Seems she had an alergic reaction. Who told you that it was terminal and how are your blood panel readings.? I would seek a second opinion. Where do you live? Any major Cancer Center or University associated hospital? You should not have to suffer the pain you are feeling. This is the miracle season,lets hope all the prayers on the board will help you find your miracle. We will start right now,peace and hope. Have faith so many people here have survived that someone may be able to answer you. Hugs and God Bless Nick & Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Joyce: were you using celebrex? Long term was good for R/A instead of Vioxx but hard on the thought process. Sometimes STRESS is to blame and you need to stop and smell the roses a bit. This is a beautiful but hectic season and we all need r & r. Sometimes small clots are to brain or a small stroke that you hardly notice. Do you have a personal or primary physician? Sometimes someone who doesn't see you all the time will see something different and can help solve the problem. Just a thought. hugs,peace,hope and faith They keep us going. Nick & Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 , I'm sorry to hear of your situation. Especially that it appeared you might have been out of the woods! That's how this nasty disease seems to work. i was Dx 12-2002 as stage IV with mets to the liver. I also experienced the lack of concentration and forgetfulness while on 5fu,leucocarin and cpt11. by the way i'm only 44 yrs old. In Oct. I started a drug called Oxaliplatin by IV thru a port implant in my chest and Xeloda(a pill). The side-effects are very minor for me campared to the cpt11. I have cold-sensitivity for a few days. Some patients have numb fingers and/or feet also. I havn't experienced that problem yet after 6 treatments. Has your oncologist mentioned these drugs to you? Dale M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Don't forget the green & yellow veggies. They are always telling Phil that. Just knock off them if there is diarrhea involved. Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Hi , welcome aboard! You have come to the right place, very knowledgeable folks on the list, excluding myself! I too am from Ontario! new member Hello , my name is . I am 46 yrs old, type one since 8 yr old. I was a pump user and am now just starting on Lantis and novo-rapid. I lost my sight 18 yrs ago. I am a guide dog user living in a small town in Ontario, Canada. I am trying to learn how to count my carbohydrates and calculate my insulin dosages. As an aside I also have a wheat allergy so my diet is a limited menu. (frown) I hope to learn a lot of tricks and solutions for managing my diabetes from this list. I welcome any questions about myself. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 hi donald, were in ontario do you live. i too am living in ontario and a diabetic for forty years, type one for all that time. karen new member Hello , my name is . I am 46 yrs old, type one since 8 yr old. I was a pump user and am now just starting on Lantis and novo-rapid. I lost my sight 18 yrs ago. I am a guide dog user living in a small town in Ontario, Canada. I am trying to learn how to count my carbohydrates and calculate my insulin dosages. As an aside I also have a wheat allergy so my diet is a limited menu. (frown) I hope to learn a lot of tricks and solutions for managing my diabetes from this list. I welcome any questions about myself. Thanks. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.7/1152 - Release Date: 11/26/2007 10:50 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Hello Kay, I live near Owen Sound, Ontario. I have lived in other cities and provinces/states as well. Bye for Now :-) {smile} Dave & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Hi , Welcome to the list. I'm 25 (almost 26) and have had type 1 diabetes since I was 9 years old. I'm from British Columbia, so it's nice to see another Canadian on the list! *smile* I just started using an insulin pump this year and *love* it. I'm curious, why did you go from a pump back to injections? Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Welcome , I too am a type 1-for 63 years. I just had my 65tth birthday. I live in California and use and insulin pump and a guide dog. Counting carbs is the best favor you can do for yourself as well as doing requent glucose tests! Welcome again. new member Hello , my name is . I am 46 yrs old, type one since 8 yr old. I was a pump user and am now just starting on Lantis and novo-rapid. I lost my sight 18 yrs ago. I am a guide dog user living in a small town in Ontario, Canada. I am trying to learn how to count my carbohydrates and calculate my insulin dosages. As an aside I also have a wheat allergy so my diet is a limited menu. (frown) I hope to learn a lot of tricks and solutions for managing my diabetes from this list. I welcome any questions about myself. Thanks. __________ NOD32 2687 (20071126) Information __________ This message was checked by NOD32 antivirus system. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Hi , Welcome to the list! I am Danny from Dunwoody, I am a type 1 and have been since I was 6 years old. I'm now 53 years old. Danny Georgia. new member Hello , my name is . I am 46 yrs old, type one since 8 yr old. I was a pump user and am now just starting on Lantis and novo-rapid. I lost my sight 18 yrs ago. I am a guide dog user living in a small town in Ontario, Canada. I am trying to learn how to count my carbohydrates and calculate my insulin dosages. As an aside I also have a wheat allergy so my diet is a limited menu. (frown) I hope to learn a lot of tricks and solutions for managing my diabetes from this list. I welcome any questions about myself. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 , Welcome to this knowledgeable list. People here are very friendly and willing to answer questions as well as give support. Connie new member Hello , my name is . I am 46 yrs old, type one since 8 yr old. I was a pump user and am now just starting on Lantis and novo-rapid. I lost my sight 18 yrs ago. I am a guide dog user living in a small town in Ontario, Canada. I am trying to learn how to count my carbohydrates and calculate my insulin dosages. As an aside I also have a wheat allergy so my diet is a limited menu. (frown) I hope to learn a lot of tricks and solutions for managing my diabetes from this list. I welcome any questions about myself. Thanks. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.9/1155 - Release Date: 11/27/2007 8:30 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 i live in ny close to the canadian border like 20 miles away. yes i have seen alot of drs and had every blood test done and a spinal drainage but he said if im in remission it wouldnt show up. so i got no answers again.i was tested for lyme desease and every other thing you can imagine so its frustrating.well i guess i know what i dont have lol.everymri i have had concludes to demylating desease so im sure it is ms. new member hello everyone! im not sure how this works but my name is debby im 45 years old.imi a co owner of a florist. im not sure if i have ms yet. all my mri results lead to that since i keep getting spots on my brain. but its been almost six years and i still dont know its kinda upseting not knowing but its nice not getting that final yes you have ms. then what? im so not a medacine person. i only take vitamins so that will be hard if i have to take meds. or even worse shots.i love to walk. i have been doing that for years but its cold out here so im noy doing that right now.has enyone had face numbness???? ???????? thats a new symptom i have been getting latley. not sure what it is but i get it alot. ____________ _________ _________ _________ _________ _________ _ Never miss a thing. Make Yahoo your home page. http://www.yahoo. com/r/hs Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 i live in ny close to the canadian border like 20 miles away. yes i have seen alot of drs and had every blood test done and a spinal drainage but he said if im in remission it wouldnt show up. so i got no answers again.i was tested for lyme desease and every other thing you can imagine so its frustrating.well i guess i know what i dont have lol.everymri i have had concludes to demylating desease so im sure it is ms. new member hello everyone! im not sure how this works but my name is debby im 45 years old.imi a co owner of a florist. im not sure if i have ms yet. all my mri results lead to that since i keep getting spots on my brain. but its been almost six years and i still dont know its kinda upseting not knowing but its nice not getting that final yes you have ms. then what? im so not a medacine person. i only take vitamins so that will be hard if i have to take meds. or even worse shots.i love to walk. i have been doing that for years but its cold out here so im noy doing that right now.has enyone had face numbness???? ???????? thats a new symptom i have been getting latley. not sure what it is but i get it alot. ____________ _________ _________ _________ _________ _________ _ Never miss a thing. Make Yahoo your home page. http://www.yahoo. com/r/hs Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Hi Carel I am also going to write you off list but wanted to welcome you to this list. We discuss diabetes and various strategies for dealing with it on this list. So I'll write to you off list to discuss other issues. Becky _____ From: blind-diabetics [mailto:blind-diabetics ] On Behalf Of rodandcarel Sent: Wednesday, July 02, 2008 1:00 PM To: blind-diabetics Subject: new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husband works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 carol, to start with try the talking books contact your c n i b . they mail them to your home. call them and they will help you set it up. and if you are interested i can give your more information on joining a couple of classes. one is on computers and the other is adjusting to blindness. karen from canada new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husb and works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 The Hadley School in Winetka, Illinois has some great courses tha tyou can take through the mail. If you are interested E-mail me off list and I can give you the information. My address is: bcmaster@... Re: new member carol, to start with try the talking books contact your c n i b . they mail them to your home. call them and they will help you set it up. and if you are interested i can give your more information on joining a couple of classes. one is on computers and the other is adjusting to blindness. karen from canada new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husb and works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Hi Carol, Where do you live? I live in the L.A. area, so have lots of things to do, but I know more rural areas probably do not the advantages we have here in L.A. For entertainment at home, I am addicted to the computer! I also read and daily try to take a walk. The local Dial-a-ride can take me most anywhere locally and the County Para transportation system can and does take me anywhere in L.A. county. I am also active in a national blind organization. There are 2 national blind organizations and they have chapters in most every State. Congrats on the kidney/pancreas transplant. I have not gone into kidney failure (despite 63 years of type 1 diabetes), so don't have that option, but I use a pump. new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husband works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Carol, wlcome aboard! There is adjustments as you know that will come about. Do you cook? At least you have a computer that is some company. Do you have talking books yet? Where do you live? Depending on the state you are in lots of time Blind Services can help or there may be a Club that help others who are blind. Take care for now. and Joe new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husband works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 Carel, Welcome to our group. Congratulations on not being a diabetic any longer. I'm 46 and enjoy spending time with our 8-year-old son, reading, cooking, and spending time on this computer. Once in a while my husband and I take a bike ride. with our son. Of course, Dennis and I ride a tandem. HTH. I'm looking forward to getting to know you. Connie new member Hi, everyone. I'm Carel or talkietalkie talk. I am 48,blind for 4 years, no longer a diabetic thanks to a kidney pancreas transplant. Have been diabetic for 35 years before that. I am looking for some nice people who have tips or experiences to share about being blind. My big question is " what the heck do you do for fun? " It's hard for me to really enjoy much any more. It frustrates my husband to no ind. Me too!! I get bored and frustrated and need some advice. Rod,My husband works long hours and I spend most of my time alone and need something to do. I used to be an artist,drawing,painting,and crafting things,now I don't know what to do. So, anyone wants to help me out mail me.I'd prefer to get advice from women of my own age group, but any age is OK. Or if you just want to talk, that's good too. P.S. Glad to be a member of this great group!! Carel Quote Link to comment Share on other sites More sharing options...
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