Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Dana, Welcome to the group sweetie! I'm sure you recognize a lot of the ladies! Congratulations on your pg! Love & hugs, Jo-Ann new member Hi, all! We have a new member to the group today. I think most of you probably know her, it is Dana from the ectopic pregnancy group that Krista owns. Please welcome her!Amywife to ~2/14/97~mommy to ~6/18/97~ and one on the way ~EDD 11/8/01~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Yea Dana! Welcome to the group! I'm so glad you were able to make it over here. {{{HUGS}}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 , I was just laughing and telling that great minds think alike as I had just joined the PBAEP right as you were suggesting I join. How funny. Hope this finds you well and not working to hard!! BellyBean said to tell Peanut Hi back!! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Dana, Good to see you over here!! No we are not pg yet I am very comfortable with these and believe it of not I *just* came out of hibernation myself a few weeks ago!! CONGRATS!! Keep us posted on how things are going!! e >From: gradstu12@... >Reply-To: PregnancyBabiesAfterEctopic >To: PregnancyBabiesAfterEctopic >Subject: Re: new member >Date: Mon, 16 Apr 2001 08:49:29 EDT > >JoAnn. > >Thanks alot, you know I really appreciate you holding my hand through the >whole process of finding out (that took a week). Your words of encouragement >helped me get through that incredibly stressful time. Thanks so much for just >being here. > >Dana Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Hi Dana, I'm so glad you joined this group also!!!! Actually, I just sent you a message asking you to join! Tell Belly Bean Peanut says hello!!!! maria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Thank you for all the replies to my concerns. Actually, the PTU probably didn't work because I only took 1/2 the dosage, that stuff scared me also. I'm going to go back to the first of the 4 doctor's I've seen, he actually returned a phone call and spoke to me for 10 minutes. That is better than I've gotten from anyone. I'm going to try the PTU again at the correct dose. Interestingly enough, when I was diagnosed a year ago, I had alot of symptoms- hand tremors, sweating, diarrhea, ravenous appetite, dizziness, blurred vision, etc. I went to a network chiropracter (not like regular chiropractic), I started going to a chi gung class, started acupuncture and I quit caffiene. I now have no sypmtoms except an elevated heart rate, between 84-88. I have no pain anywhere (at 43, I was getting achy), and feel great. The problem is my labs still suck. My TSH is .01 and t4 is 3 times higher than normal. Does anyone have success with a high protein diet? I'm going to try to do a modified atkins diet. All I want to do is stay a size 14 and not have my thin hair fall out entirely.. I hate gyms and can't jog (bad ankle). I'm just hoping if I follow a reasonable diet that I won't gain weight anyway. I have always ate alot of junk food which I will happily give up. Are there any studies on thyroid level and clinical depression? Throughout this hyperthyroid period, I have not been at all depressed like I was at times in the past. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Hi , I'm glad to here your going to give the ATD's another shot, and at the correct dose That dose will lower quickly as your thyroid numbers respond. You just want to make sure you don't go hypo, so get your labs! Find out what your FT3 and FT4 are, they are the best indicators. Also ask that he do your auto-antibodies tests. I wish I had that done prior to RAI. As for the depression, mine was the worst when I was left hypO for 4 years...of course the ONLY test my former drs. used was a TSH which was in the *normal* range so my meds were never increased...and all my symptoms were in my head...NOT! I have a great dr. now and am doing better than I have in many years...though not great...yet When you get your labs, always ask for a copy of them...you have that right (at least in most places) I get mine directly from the lab now. Share the numbers here and Elaine can let you know what you are looking at. Take care, hang in here! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Hi . Welcome and ditto to everything Jody just wrote. I have a question: what scared you about the PTU? Someone from another list wrote me how she eventually had RAI (and is now a plus size) because she was so hesitant about the ATD's causing her to put on weight and she was a dancer. Take care, Fay ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hi Anise, Welcome to the group. I don't think you want to have a total thyroidectomy just to decrease thyroid antibodies. Besides, the common practice today is to leave a small amount of thyroid tissue. The idea here is that you'll have less functional thyroid tissue. And that means less thyroid cells that can make thyroid hormone. If you've been reading the posts you'll see that partial thyroidectomy is exactly what Caroline had done before getting pregnant and having her new baby. However, a simpler, less invasive procedure would be to try Antithyroid drugs. these will start reducing your symptoms in about a week, and you'll notice maximum effects in 6-8 weeks. Then, they lower your dose. Once you're euthyroid (have normal thyroid levels) you stay on the drug until you go into spontaneous remission. GD has a natural self-limiting course; in some people it's a few months and for others it takes much longer. The average duration is 6 mo. to a year. As for RAI, the problem here is that it generally causes hypothyroidism, whereas surgery the chance is less. And hypothyroidism is associated with a slight chance of fertility problems. Don't feel as if you have to make any decisions overnite. Your doctor can give you other medications, like beta adrenergic blocking agents (propranolol, metoprolol, etc.) that will help reduce your symptoms. Do your homework, and decide what sounds best for you. I have a page on pregnancy on my web page that you might want to check out. Best wishes, Elaine Visit my Web Site at http://daisyelaine_co.tripod.com/gravesdisease/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hi Anise, There is no simple answer with GD. Both surgery and RAI are permanent forms of treatment...they both destroy the thyroid. Graves Disease is NOT a disease of they thyroid, it is a disease of the immune system. ATD's are the only form of treatment currently available that can offer a chance of remission. Several in this group have attained remission on the ATD's: Debbie R (who was on ATD's and pregnant <I think...Deb?> Caroline had her thyroid removed last October, got pregnant a month later and just gave birth on the 4th of August to a healthy and beautiful little boy! I. is due within the next 4 weeks I think... is on ATD's and Donna is also pregnant...<donna, I forget when your due?> I think about half way though. U. had RAI in her mid 20's and I'm sure will tell you her story. What form of therapy are you on now? And how much time are you giving yourself to hopefully become pregnant? Anise, again, there are no simple answers to this complicated disease, but people in this group will do their best to answer questions. The decision of which treatment to follow through with is strictly up to you. The archives are full of a wealth of information and you can use a search, found from the home page, click on messages, at the top of each message page on the right there is a place to put in things for search, use , Caroline, pregnancy, pregnant, RAI, ATD and surgery...and ask questions as they arise. Welcome to the best group I have ever found. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hi Anise, The most commonly used surgical procuedure is the bilateral subtotal tyroidectomy in which 1 to 2 grams of thyroid tissue is left on both sides (the thyroid normally weighs about 20 grams) .This is also considered the safest procedure, although there is a slight risk of injury to both the parathyroid glands and the laryngeal nerves. Permanent hypothyroidism occurs in up to 40% of patients, whereas permanent hypothyroidism occurs in about 20% of patients using ATDs in a period up to 20 years. The natural course of GD varies. Some people move onto hypothyroidism even without treatment. I do have some articles on ways to balance and strengthen (not stimulate) the immune system on www.suite101 Do a search on Graves' disease. And the chapter in my book on alternative medical options for GD explores stress reduction techniques, immunomodulators and Eastern philosophies for treating GD. You'd probably learn the answers to some of your questions on the online thyroid medical book at www.thyroidmanager.org Keep asking away until you're sure whatever decision you make is the one that best suits you. Good luck, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Elaine, thanks for your warm welcome and helpful info. Can you tell me about how much thyroid they leave for a partial thyroidectomy? And whether it means you don't need either ATDs or Replacement hormones, or if you need both but in lower doses? This thing about Graves being self-limiting is really good news. Do they have much information about this, eg does it happen to everyone within five years , or only people who don't have the eye problems too, or 70% of everyone. Any stats? If this is very likely to happen to me within a couple of years, I might just take time off and take the Antithyroid medication and try to rebuild my health, as you recommend. My husband keeps telling me to stop work altogether and really relax and de-stress. Oh and I am sorry if I sounded rude when I mentioned your old message where you said the TSI originates in the Thyroid, and that I'd found they really aren't from the Thyroid at all. Its just that I'm trying to get it all clear and I have this feeling of urgency: " Got to decide right now! " And I am so moody and all I look forward to checking your webb site > Hi Anise, > Welcome to the group. > I don't think you want to have a total thyroidectomy just to decrease thyroid > antibodies.http://daisyelaine_co.tripod.com/gravesdisease/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 HI Anise Welcome to the group. I have read the replies you have received and the your other posts. Good on you for doing the research. It is vital that you get as much information as possible. Any decision you make needs to based on as much info as you can collect, your circumstances and your future health needs. I assume you done a search of the archives (as suggested by Jody). In there you will find many posts from me where I have outlined my decision to have a sub total thyroidectomy - but I will give you a shortened version - I had a miscarriage in June 1999, I was diagnosed with Hyperthyroidism in May 2000. I'm sure I've had for some time without knowing. I commenced on PTU & a beta blocker immediately with some relief to symptoms. I had a large goitre and tested positive to Graves antibodies in June 2000. I also saw a great naturopathic physician who gave me a course of homeopathic medications to help re-balance my immune system. I'm sure that this helped me as much the other meds did. I had been trying to fall pregnant since Nov 1998 and was already 39yrs old, so I felt waiting for remission would take time I didn't have, besides my goitre was large and the PTU I had to take was higher in dose than I felt comfortable with in pregnancy. I chose surgery (my endo did not favour RAI for anyone except those with Thyroid cancer anyway). The surgeon wanted the remove entire thyroid (now the common practise of the college of surgeons in Australia due to the risk of repeat goitre in years to come). I refused as I felt strongly (mostly due to the experience of others in this group) that it was important to have some naturally functioning thyroid gland left. I had the surgery in Oct 2000, started on thyroid replacement medication (I had some damage to my parathyroids during surgery and had to take calcium also - this damage is now repaired, but I still take calcium for good measure) and by surprise fell pregnant in Nov 2000. I believe that I have 1gram on the right and 2 grams on the left side of my thyroid remaining. My pregnancy went well. I had 2 weeks of hypo (16 to 18 wks) and with an increase to my meds I have been stable since (in the range recommended for pregnancy). My baby is a beautiful healthy boy (scored 9 out of 10 on the apgar scale at 1 minute and then again at 5 minutes post birth, and he passed the paediatrician's examinations with flying colours). Most of the time I felt better than I have in about 4 years. Right now I'm on top of the world - getting used to sleeping in 3 to 4 parts, but loving every minute of it! I believe that this illness needs to be treated form all fronts - not just the 'symptoms' but also the cause. I started listening to my body and resting when I needed to, reducing my stress, working part time (when I needed to - fortunately my work was flexible enough to enable me to vary the hours). I also started saying no and not feeling guilty! Hope some of this has helped. Take care Cheers Caroline Anise Kennedy wrote: > hi, I am trying to find out about how this disease works and what my options > are and I feel awful and cant think straight, as I am sure many of you > understand.I have read through a lot of the archives and found someanswers > to some of my questions. We put off having our family while I did the career > tthing, miscarried and now find I have Graves. I have figured that first I > have to get my hyperthyroidism under control, and then a choice between > getting stable on the safest drug for pregnancy, or having RAI and wait > ing6months at least before trying to have a baby, or having my thyroid > removed and getting stable. But I can't find out how the Graves will affect > conception and pregnancy in each of these 3 treatment choices. I am hoping > some of the people in this group could tell me. > > In Elaine's message 3805, she says that the TSI antibodies that cause Graves > Disease originate in the Thyroid. It sounds as though removing the thyroid > should get rid of the antibodies and cure the Graves disease. But I can't > believe the answer is so simple. Or ithere some other catch? > thank you > > Anise > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 > Hi Anise, GD has a natural self-limiting course; in some people > it's a few months and for others it takes much longer. The average duration > is 6 mo. to a year. Dear Elaine, Now, if the average time spent getting Graves' diagnosed is 5 years how is it that it usually lasts only 6 months to a year? Does this time consider the fact that Graves' is most likely part of the Hashimoto's/Graves' continuum of autoantibodies and that Graves' is usually preceded by a peroid of Hashi's hypothyroidism? And often ends with it? And I wonder, are these figures only about people that are promptly diagnosed and treated? I mean, I've had hyper symptoms since 1978, sometimes extreme, and now I am finally diagnosed with Euthyroid Graves', and that is Hashi's and Graves in balance, you could say. One can be hyper and then hypo, antibody populations always fluxuating until they become, finally, hypothyroid...the usual result of the disease, isn't that correct? But that part isn't considered part of Graves' disease? Only hyperthyroidism? It is hard to get the picture here. Very confusing. Who is it that says this usually lasts 6 months to a year? Is it the same people that say the eye disease only lasts a year? (ha) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2001 Report Share Posted August 16, 2001 HI Caroline, Thank you for taking the time out to answer my questions . It is so good to hear of success stories like yours. I can understand your urgency, believe me. My Mom and her sisters all had late menopauses so perhaps I can count on having the same myself, and take the next year or two just for getting my GD under control. When you say we need to treat the cause of the disease, not just the symptoms, I am not sure what you mean exactly. The Dr tried to say that no-one knows the cause, but a lot of people say the autoimmune illnessesare all stress-induced, and are all part of flight or fright response going overboard and burning out diffferent bits in different ways. But I am really keen to hear what you do in practical terms to cut out the stress so it doesn't hit the body. I guess saying no without feeling guilty is part, maybe a big thing effectwise,-sounds small but could add up to a lot of difference. It obviously worked for you Which is wonderful. I read your question about antibodies getting through the breastmilk so I emailed a friend who goes to a Nursing Mothers Group. She said that she knows that all the antibodies you make go through the milk: thats why(in general) breast milk is so good,- most of them are good for your baby. She said that if you ring the Australian BreastfeedingAssociation (just changed its name) their trained counsellors know in detail all about exactly this sort of thing so should be able to tell you if it is a problem or not.Hope this helps. > HI Anise > I believe that this illness needs to be treated form all fronts - not just the 'symptoms' but also the cause. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Dear Anise I have just posted an answer to where I spoke a bit about what the endo said re cause of GD and what I do re stress. I do wish I had more time and didn't have to have surgery as I fear that although all is going really now it may not last. Some here had initial good responses to RAI and then sometime later experienced problems. I'm not happy about having to have life long management of my thyroid levels - but so be it - I have a beautiful baby boy who reminds everyday that the decision I made was right for me and him. I also remind myself that if we take one day at a time we can achieve anything! Thanks for the info regarding breast feeding. I hadn't thought to ring the association - it now seems so obvious. I'll give them a call on Monday. I'm sure you won't regret giving the ATDs and monitoring a chance. Have you considered also using alternative medicine approaches such as naturopathy, homeopathy and acupuncture etc. in conjunction with tradition medicine? Take Care Cheers Caroline anise_kennedy@... wrote: > HI Caroline, > Thank you for taking the time out to answer my questions . It is > so good to hear of success stories like yours. I can understand > your urgency, believe me. My Mom and her sisters all had late > menopauses so perhaps I can count on having the same > myself, and take the next year or two just for getting my GD under > control. When you say we need to treat the cause of the disease, > not just the symptoms, I am not sure what you mean exactly. The > Dr tried to say that no-one knows the cause, but a lot of people > say the autoimmune illnessesare all stress-induced, and are all > part of flight or fright response going overboard and burning out > diffferent bits in different ways. But I am really keen to hear what > you do in practical terms to cut out the stress so it doesn't hit the > body. I guess saying no without feeling guilty is part, maybe a big > thing effectwise,-sounds small but could add up to a lot of > difference. It obviously worked for you Which is wonderful. > > I read your question about antibodies getting through the > breastmilk so I emailed a friend who goes to a Nursing Mothers > Group. She said that she knows that all the antibodies you make > go through the milk: thats why(in general) breast milk is so > good,- most of them are good for your baby. She said that if you > ring the Australian BreastfeedingAssociation (just changed its > name) their trained counsellors know in detail all about exactly > this sort of thing so should be able to tell you if it is a problem or > not.Hope this helps. > > > > HI Anise > > I believe that this illness needs to be treated form all fronts - > not just the 'symptoms' but also the cause. > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Hi Amy, Welcome to the group. The symptoms of looking younger and clammy hands are well-documented symptoms. I think it has to do with our skin staying moist when we're hyper. Hypothyroidism is a different story entirely. They is a slightly less fertility rate in hyperthyroidism but fertility problems are more pronounced in hypothyroidism. Study your treatment options carefully. If you elect to use anti-thyroid drugs, you're much less likely to become hypothyroid. Even if you become hypothyroid after ATDs, it's generally much later in life. I rushed into treatment and had my thyroid gland destroyed. This I bitterly regret since for me hypothyroidism has been far worse than hyperthyrodism. Take your time and learn all that you can. Best to you, Elaine See my web site, http://daisyelaine_co.tripod.com/gravesdisease/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Hi . Thanks for the welcome. Quick intro - I'm 31, married, have a 4 year old daughter, and live in Indiana. My family doctor sent me to a hematologist/oncologist after my WBC count kept coming back low, but I've been "sick" for several years now...just the general achiness, feverish, always tired, short of breath, no energy kind of thing, plus hair loss, and skin problems that the dermatologists have never been able to clear up. And in the past year or so I've had more specific symptoms crop up, like lumps on my shins, heart problems, raynauds, etc. The hematologist went over my medical history and ordered 23 blood tests and a chest x-ray series. I went back last week to get the results and was diagnosed with Mixed Connective Tissue Disease.I had Juvenile Rheumatoid Arthritis as a kid, so I'm not new to automimmune diseases, but I've found that being a sick mom is much tougher than being a sick kid who has a mom to take care of her. Adell Welcome, adell@.... Tell us a little about yourself. I'm ; I have Crohn's Disease & all the stuff that goes with it. Right now, I'm having problems from tapering off prednisone; but the Remicade & 6-MP seem to be working for the Crohn's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Hi Adell - Welcome to the list. Feel free to join in at any time and ask any questions, we don't mind! lol Some days we're a chatty bunch and some days we're not. I have RA, OA, Gerd, High blood pressure, migraines, and a number of other troublesome symptoms. I'm married to , we've been married for 15 1/2 years, two kids - is 23, and a is 21, she's married and just had our first grandbaby! He's so cute. lol Glad you found the list! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Krein? new member Welcome, adell@.... Tell us a little about yourself. I'm ; I have Crohn's Disease & all the stuff that goes with it. Right now, I'm having problems from tapering off prednisone; but the Remicade & 6-MP seem to be working for the Crohn's. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Welcome, Adell. You sound like you've got yourself a ton of symptoms. At least it's nice that the doctors have put a name on it and haven't said IAIYH (it's all in your head). You're right that it's much nicer being sick when you have a Mom to take care of you instead of being responsible for your own care and that of your daughter and husband. My name is Jane and I have fibromyalgia, MPS, hypothyroidism, osteoarthritis, osteoporosis, ankylosing spondylitis, bulging disks, chronic bronchitis, asthma, and some symptoms that the doctors haven't defined yet. I'm soon going to be 39 for the 22nd time, married for 37 years, have 2 sons, and 5 grandchildren. I live in FL. Jane Re: new member Hi . Thanks for the welcome. Quick intro - I'm 31, married, have a 4 year old daughter, and live in Indiana. My family doctor sent me to a hematologist/oncologist after my WBC count kept coming back low, but I've been "sick" for several years now...just the general achiness, feverish, always tired, short of breath, no energy kind of thing, plus hair loss, and skin problems that the dermatologists have never been able to clear up. And in the past year or so I've had more specific symptoms crop up, like lumps on my shins, heart problems, raynauds, etc. The hematologist went over my medical history and ordered 23 blood tests and a chest x-ray series. I went back last week to get the results and was diagnosed with Mixed Connective Tissue Disease.I had Juvenile Rheumatoid Arthritis as a kid, so I'm not new to automimmune diseases, but I've found that being a sick mom is much tougher than being a sick kid who has a mom to take care of her. Adell Welcome, adell@.... Tell us a little about yourself. I'm ; I have Crohn's Disease & all the stuff that goes with it. Right now, I'm having problems from tapering off prednisone; but the Remicade & 6-MP seem to be working for the Crohn's. Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 No, I'm Parrott. Krein's the one having a birthday today. P. -- Re: new member Krein? new member Welcome, adell@.... Tell us a little about yourself. I'm ; I have Crohn's Disease & all the stuff that goes with it. Right now, I'm having problems from tapering off prednisone; but the Remicade & 6-MP seem to be working for the Crohn's. Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Hi Adell and Welcome again! Where in Indy are you? We have another one here from Indy (wake up Shirls!!!) You've come to the right place for support, caring and understanding! Christy List Mama.... along with Pam who is the List Step-Mother hehe Re: new member Hi . Thanks for the welcome. Quick intro - I'm 31, married, have a 4 year old daughter, and live in Indiana. My family doctor sent me to a hematologist/oncologist after my WBC count kept coming back low, but I've been "sick" for several years now...just the general achiness, feverish, always tired, short of breath, no energy kind of thing, plus hair loss, and skin problems that the dermatologists have never been able to clear up. And in the past year or so I've had more specific symptoms crop up, like lumps on my shins, heart problems, raynauds, etc. The hematologist went over my medical history and ordered 23 blood tests and a chest x-ray series. I went back last week to get the results and was diagnosed with Mixed Connective Tissue Disease.I had Juvenile Rheumatoid Arthritis as a kid, so I'm not new to automimmune diseases, but I've found that being a sick mom is much tougher than being a sick kid who has a mom to take care of her. Adell Welcome, adell@.... Tell us a little about yourself. I'm ; I have Crohn's Disease & all the stuff that goes with it. Right now, I'm having problems from tapering off prednisone; but the Remicade & 6-MP seem to be working for the Crohn's. Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 DEC 4???????????? Why so long???? That's horrid! I've heard of them taking a few weeks but geez... that's pushing it~ Re: new member Thanks for the warm welcome, everyone. Sorry it's taken me so long to respond, it's been a crazy week here. I haven't been started on a treatment plan yet. My first appt with the rheumatologist is Dec 4, so things are sort of on hold for a couple more months. Shirley - It looks like we might be neighbors! I live on the westside as well, in Brownsburg. Adell Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 Hi Kathy As to what " Hand-Foot Syndrome " is, see: http://info.cancer.ca/e/glossary/H/Hand-Foot_Syndrome.htm I'm sure some other posts will appear before long with more info for you. Quote Link to comment Share on other sites More sharing options...
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