Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi Lori, Did your doc give you a beta blocker to help reduce your heart rate? It sounds like you may have had some trigger. I remember having problems when she ate garlic, and people mentioning problems after eating seafood. For me it's gluten and sugar overload. Or could you have taken your ATD with calcium and it wasn't properly absorbed? I'm glad you're feeling better and hope you can figure out what caused this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi Lori, Food, especially if it has a high iodine content, can trigger symptoms. The ca/mg should be helpful, but don't take them together with your ATDs or they can block its absorption. Space them out, taking them at least two hours from the time you take the ATDs. Yes, ATDs will help reduce your thyroid hormone levels and that will cause a reduction of all your symptoms, including your cardiac symptoms. But first the thyroid hormone stored in your gland must be used up so you won't notice a maximum effect from your ATDs until then (usually 4-8 weeks from starting ATDs). The beta blockers help reduce symptoms until then. Some people even use them much longer, depending on their symptoms. Some people do get really tired or sluggish from them, but sometimes a smaller dose or a different beta blocker can be helpful. You might want to keep a food diary to see if certain symptoms increase when you eat certain foods. Many people have found this helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Lori: Congratulations! I remember how amazing it was to finally have a good day .. . . my heart continued to sporadically race - 125 sitting, for the first year on PTU, but at steadily decreased frequencies. If I started to get a cluster of high heart rates, I took it as an indication that I was too hyper - a blood test can confirm. For me, deep breathing and relaxation techniques really helped to slow my heart. Have you ever done the exercise where, while breathing steadily and deeply, you draw your attention to your body, starting with the toes, and breath into that part of your body, and then slowly move your attention up through the body to the top of your head? I find that extremely useful for anxiety and fast heart rate. Good luck! At 08:39 AM 10/14/2001 -0400, you wrote: >Hi everyone. I have been on the PTU for four weeks and yesterday was one >of my first good days- I went out to our boat, got some fresh air it was >glorius! But last night about 12:00 am my heart rate just shot up to 120. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi Ruthie, Gluten sensitivity is associated with grains that have gluten protein, including wheat, rye, barley and oats, although some people do not react to oats. I'm also sensitive to sugar and eat too much of it. I remember Dawn describing her unusual addiction to candy and have to admit I'm much worse. My cousin with GD has the same problem. Once we start eating it, we literally cannot stop. Since most candy has wheat in it ( I checked all the labels in a store once) this could be the reason. I think the small amounts have me addicted where the big amounts of gluten make me sick. Usually, though, after a good (bad) candy binge, I feel sick. Val reminded me recently that many of the alcohol grains have gluten, which is probably why I have odd reactions to alcohol too. If I drink more than 4 oz. of wine, I end up with insomnia and most all other forms of alcohol have gluten so end up making me sick. When I keep a food diary, it becomes very obvious why I feel like I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi. I tried the beta blockers. I just couldn't torlerate them. Well, I did overstuff myself with chicken fried tacos and have noticed if I eat too much it can cause my heart rate to go up. I didn't realize food could trigger this. I figured the ATD's would sort of block the fast heart rate from happening. I took the magnesium and calcuim later to help slow my heart down ( which I think it did- that and a xanax!). Elaine, the vitamins wouldn't trigger it would they ? I thought the vitamins were part of the reason I was feeling better yesterday. Lori -- Original Message -- >Hi Lori, >Did your doc give you a beta blocker to help reduce your heart rate? >It sounds like you may have had some trigger. I remember having problems > >when she ate garlic, and people mentioning problems after eating seafood. >For >me it's gluten and sugar overload. >Or could you have taken your ATD with calcium and it wasn't properly >absorbed? I'm glad you're feeling better and hope you can figure out what > >caused this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Kind of like guided imagery? I do those types of things, but sometimes it's hard when you get scared! I remember one of the Docs saying any heart rate over 100 wasn't good so of course that is indented in my brain as I check my heart rate. Thank-you though I thought the ATD's would just automatically slow the heart rate down. Patience, I keep forgetting patience! Lori -- Original Message -- >Lori: > >Congratulations! I remember how amazing it was to finally have a good day > >. . . my heart continued to sporadically race - 125 sitting, for the first > >year on PTU, but at steadily decreased frequencies. If I started to get >a >cluster of high heart rates, I took it as an indication that I was too >hyper - a blood test can confirm. For me, deep breathing and relaxation > >techniques really helped to slow my heart. Have you ever done the exercise > >where, while breathing steadily and deeply, you draw your attention to your > >body, starting with the toes, and breath into that part of your body, and > >then slowly move your attention up through the body to the top of your >head? I find that extremely useful for anxiety and fast heart rate. > >Good luck! > >At 08:39 AM 10/14/2001 -0400, you wrote: >>Hi everyone. I have been on the PTU for four weeks and yesterday was one >>of my first good days- I went out to our boat, got some fresh air it was >>glorius! But last night about 12:00 am my heart rate just shot up to 120. > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement >of >the listowner. I have no input as to what ads are attached to emails. >-------------------------------------------------------------------------------\ ------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi Lori...I still get the pounding heart after eating sugar and grain together...like cereal..is that the gluten Elaine? But I always had this...I thought it might be some sort of food allergy but never pursued it. Also, mine races after any alcohol...wine does not make me relaxed. Ruthie Re: Yikes! > Hi Lori, > Did your doc give you a beta blocker to help reduce your heart rate? > It sounds like you may have had some trigger. I remember having problems > when she ate garlic, and people mentioning problems after eating seafood. For > me it's gluten and sugar overload. > Or could you have taken your ATD with calcium and it wasn't properly > absorbed? I'm glad you're feeling better and hope you can figure out what > caused this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi Elaine...you are describing me to a tee...I am such a sugar fiend...I had tried that carbohydrate addicts diet because I could truly get out of control...never over chips or any other kind of snack...but doughnuts/cereal/granola bars/jelly beans/chocolate...and of course I couldn't stop till I felt sick. The diet helped keep me in control...but if I had my way, I would eat carbs every meal. I always was this way tho...before GD. Oh well...just more to keep track of I guess...thank you for responding. Ruthie Re: Yikes! > Hi Ruthie, > Gluten sensitivity is associated with grains that have gluten protein, > including wheat, rye, barley and oats, although some people do not react to > oats. > I'm also sensitive to sugar and eat too much of it. I remember Dawn > describing her unusual addiction to candy and have to admit I'm much worse. > My cousin with GD has the same problem. Once we start eating it, we literally > cannot stop. Since most candy has wheat in it ( I checked all the labels in a > store once) this could be the reason. I think the small amounts have me > addicted where the big amounts of gluten make me sick. Usually, though, after > a good (bad) candy binge, I feel sick. > > Val reminded me recently that many of the alcohol grains have gluten, which > is probably why I have odd reactions to alcohol too. If I drink more than 4 > oz. of wine, I end up with insomnia and most all other forms of alcohol have > gluten so end up making me sick. When I keep a food diary, it becomes very > obvious why I feel like I do. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Hi Ruthie Sounds like it's a permanent part of Grave's and one has to just not freak out. I'm still working on that one. Thanks Lori -- Original Message -- >Hi Lori...I still get the pounding heart after eating sugar and grain >together...like cereal..is that the gluten Elaine? But I always had this...I >thought it might be some sort of food allergy but never pursued it. Also, >mine races after any alcohol...wine does not make me relaxed. >Ruthie > Re: Yikes! > > >> Hi Lori, >> Did your doc give you a beta blocker to help reduce your heart rate? >> It sounds like you may have had some trigger. I remember having >problems >> when she ate garlic, and people mentioning problems after eating seafood. >For >> me it's gluten and sugar overload. >> Or could you have taken your ATD with calcium and it wasn't properly >> absorbed? I'm glad you're feeling better and hope you can figure out what >> caused this. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Thanks Lori, Thankfully..I am not freaking :-) My main complaint is the weight gain and it's not coming off...but I seem to be finally feeling close to normal after almost a year on Tapazole..am down to 5 mg/day and have more energy...I think I didn't know how lethargic I was until I started feeling better...when nothing hurts, it is hard to think of oneself as sick...but I was for too long..I should have been more on top of my labs...the most aggressive I ever got was to go in for blood draws after 5 weeks when the Dr said 6. I would recommend doing the ATD's to anybody if at all possible. Thanks, Ruthie Re: Yikes! > > > > > >> Hi Lori, > >> Did your doc give you a beta blocker to help reduce your heart rate? > >> It sounds like you may have had some trigger. I remember having > >problems > >> when she ate garlic, and people mentioning problems after eating seafood. > >For > >> me it's gluten and sugar overload. > >> Or could you have taken your ATD with calcium and it wasn't properly > >> absorbed? I'm glad you're feeling better and hope you can figure out > what > >> caused this. > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Ruthie: You know what's interesting about this disease and I'm just catching on to it- is how proactive one has to be regarding the symptoms and treatment! If we listened just to our Doctors I think most people on this board would be in the looney bin! Did you just suddenly put on weight or is a gradual thing. Lori -- Original Message -- >Thanks Lori, >Thankfully..I am not freaking :-) My main complaint is the weight gain >and it's not coming off...but I seem to be finally feeling close to normal >after almost a year on Tapazole..am down to 5 mg/day and have more >energy...I think I didn't know how lethargic I was until I started feeling >better...when nothing hurts, it is hard to think of oneself as sick...but >I >was for too long..I should have been more on top of my labs...the most >aggressive I ever got was to go in for blood draws after 5 weeks when the >Dr >said 6. I would recommend doing the ATD's to anybody if at all possible. >Thanks, >Ruthie > Re: Yikes! >> > >> > >> >> Hi Lori, >> >> Did your doc give you a beta blocker to help reduce your heart rate? >> >> It sounds like you may have had some trigger. I remember having >> >problems >> >> when she ate garlic, and people mentioning problems after eating >seafood. >> >For >> >> me it's gluten and sugar overload. >> >> Or could you have taken your ATD with calcium and it wasn't properly >> >> absorbed? I'm glad you're feeling better and hope you can figure out >> what >> >> caused this. >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Hi Lori...the first month I gained back all I had lost...about 12 lbs....and when I saw that happening..I really tried everything...high fiber/low fat...low carb/high protein...low cal...and managed to only gain another 10 lbs over the rest of the time...if I can continue to exercise..I really only have felt like it in the last month or so..I think it will stop the gaining...but how to lose when one is eating less than everybody else already...hmmm?? Re: Yikes! > >> > > >> > > >> >> Hi Lori, > >> >> Did your doc give you a beta blocker to help reduce your heart rate? > >> >> It sounds like you may have had some trigger. I remember having > >> >problems > >> >> when she ate garlic, and people mentioning problems after eating > >seafood. > >> >For > >> >> me it's gluten and sugar overload. > >> >> Or could you have taken your ATD with calcium and it wasn't properly > >> >> absorbed? I'm glad you're feeling better and hope you can figure out > >> what > >> >> caused this. > >> >> > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
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