Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 OK Clearly it is not the single, whole of body spasm I sometimes experience just as I am drifting into sleep. Thanks for your reply. Cole Dorothy/fasciculations/spasms > > > > > > > Hi Dorothy, > > > > > > I see you found us. Welcome to the group. I knew you would get an > > answer. is the best. You will meet her at the Fling. As Cookie > > said these things might all be different from person to person. I rarely > > get fasciculations but when I do it is usually around my ankle and I > > describe it as the same feeling I felt when as a child I would dangle my > > feet all the edge of the boat dock and the little sunfish would come up > and > > nibble on my toes. > > > > > > I started getting muscle spasms about two years ago in the thigh area. > My > > muscles would spasm causing my whole leg to stiffen and it would feel like > > the muscles wre being ripped off my back. I started baclofen last > > Septemember and have not had a problem with that since. I do, however, > get > > some clonus in that leg. I guess that's what it is. It wakes me up with > a > > pretty hefty jerk. Mostly, just getting up and making a trip to the > > bathroom will stop it but if not then a couple of trips to the kitchen and > > back are usually enough to walk it off. > > > > > > You will find lots of answers and opinions here. I'm glad you found us. > > Ask away. > > > > > > Ronnie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Ronnie does the clonus look like parkinsons (sp) movement? > Hi , > > Welcome to the group. > > What I am thinking of may very well be called Nocturnal Myoclonus which is > described as a benign type of muscle contraction that occurs at the onset of > sleep. It has recently been recognized to be associated with fibromyalgia. > It occurs as a twitch or sometimes as a vigorous jerk of the leg or legs. > The problem may first be noticed by your sleep partner, but in any case, it > interrupts the path to sleep. Myoclonus can be treated with a drug called > Klonopin (clonazepam), if necessary. > > I'm no expert on this. It is an explanation I picked up from Tip of the Day > from InnumeSuppot.com and I think it describes what I experience exactly. I > think plain clonus is the same thing; a sort of rythmic jerking of the > muscle. I don't have pain with this but it is very annoying and there is no > way you can go to sleep when your leg is jerking like crazy. > > Ronnie > Dorothy/fasciculations/spasms > > > > > > > Hi Dorothy, > > > > > > I see you found us. Welcome to the group. I knew you would get an > > answer. is the best. You will meet her at the Fling. As Cookie > > said these things might all be different from person to person. I rarely > > get fasciculations but when I do it is usually around my ankle and I > > describe it as the same feeling I felt when as a child I would dangle my > > feet all the edge of the boat dock and the little sunfish would come up > and > > nibble on my toes. > > > > > > I started getting muscle spasms about two years ago in the thigh area. > My > > muscles would spasm causing my whole leg to stiffen and it would feel like > > the muscles wre being ripped off my back. I started baclofen last > > Septemember and have not had a problem with that since. I do, however, > get > > some clonus in that leg. I guess that's what it is. It wakes me up with > a > > pretty hefty jerk. Mostly, just getting up and making a trip to the > > bathroom will stop it but if not then a couple of trips to the kitchen and > > back are usually enough to walk it off. > > > > > > You will find lots of answers and opinions here. I'm glad you found us. > > Ask away. > > > > > > Ronnie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 My question is ...is it this muscle jerk that can make the paper on your lap jump?? the water ripple in the water?? your pants jerk in one area outward like someone just thumped you with their finger from the inside of your pant leg??? Find it happening when you rest the muscle..???? The ones that drive you nuts???? Is that what we call clonus???? Sherry Re: /Clonus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Hi Cole, Welcome to the group, I hope you benifit from it as much as I have. I'm Donna and I had a problem chasing my grandaughter 3 years ago. I could outrun the little long legged bugger at one time. I sounded drunk to everyone who knew me too. I was finally dx. June 2002. I knew I had PLS or MS, but it was a relief to find out it was only upper motor neuron. I hope your second opinion turns up a lighter dx. too. I hope you dance again, Donna > OK > > Clearly it is not the single, whole of body spasm I sometimes experience > just as I am drifting into sleep. > > Thanks for your reply. > > Cole > > > Dorothy/fasciculations/spasms > > > > > > > > > > Hi Dorothy, > > > > > > > > I see you found us. Welcome to the group. I knew you would get an > > > answer. is the best. You will meet her at the Fling. As > Cookie > > > said these things might all be different from person to person. I > rarely > > > get fasciculations but when I do it is usually around my ankle and I > > > describe it as the same feeling I felt when as a child I would dangle my > > > feet all the edge of the boat dock and the little sunfish would come up > > and > > > nibble on my toes. > > > > > > > > I started getting muscle spasms about two years ago in the thigh area. > > My > > > muscles would spasm causing my whole leg to stiffen and it would feel > like > > > the muscles wre being ripped off my back. I started baclofen last > > > Septemember and have not had a problem with that since. I do, however, > > get > > > some clonus in that leg. I guess that's what it is. It wakes me up > with > > a > > > pretty hefty jerk. Mostly, just getting up and making a trip to the > > > bathroom will stop it but if not then a couple of trips to the kitchen > and > > > back are usually enough to walk it off. > > > > > > > > You will find lots of answers and opinions here. I'm glad you found > us. > > > Ask away. > > > > > > > > Ronnie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 My leg will sunddenly give one quick jerk when I lay down and get relaxed at night. It's involuntary. Is that clonus? Donna > OK > > Clearly it is not the single, whole of body spasm I sometimes experience > just as I am drifting into sleep. > > Thanks for your reply. > > Cole > > > Dorothy/fasciculations/spasms > > > > > > > > > > Hi Dorothy, > > > > > > > > I see you found us. Welcome to the group. I knew you would get an > > > answer. is the best. You will meet her at the Fling. As > Cookie > > > said these things might all be different from person to person. I > rarely > > > get fasciculations but when I do it is usually around my ankle and I > > > describe it as the same feeling I felt when as a child I would dangle my > > > feet all the edge of the boat dock and the little sunfish would come up > > and > > > nibble on my toes. > > > > > > > > I started getting muscle spasms about two years ago in the thigh area. > > My > > > muscles would spasm causing my whole leg to stiffen and it would feel > like > > > the muscles wre being ripped off my back. I started baclofen last > > > Septemember and have not had a problem with that since. I do, however, > > get > > > some clonus in that leg. I guess that's what it is. It wakes me up > with > > a > > > pretty hefty jerk. Mostly, just getting up and making a trip to the > > > bathroom will stop it but if not then a couple of trips to the kitchen > and > > > back are usually enough to walk it off. > > > > > > > > You will find lots of answers and opinions here. I'm glad you found > us. > > > Ask away. > > > > > > > > Ronnie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Sherry What you are describing sounds like twitches to me. My neuro will push up fast on my foot and my foot will start a slow rhythmic tremor until I straighten out my foot. That's clonus. The fast jumps in your muscles that happen all over are twitches. I've had a twitch in my leg knock the TV remote off my lap! The way my wife and I have decided to look at it is that twitches are annoying, but we don't want to know what happens after the twitching stops! Re: /Clonus > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Ok that is simple enough...a twitch. I will go along with that . I know about the remote control thing or anything else if it gets in that right spot.. Trying to get the right words...but twitch is good... LOL>>> Sherry Re: Re: /Clonus Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 G'day Donna Thanks for your welcome and for your kind wishes. Cheers Jaycee Dorothy/fasciculations/spasms > > > > > > > > > > > > > Hi Dorothy, > > > > > > > > > > I see you found us. Welcome to the group. I knew you would > get an > > > > answer. is the best. You will meet her at the > Fling. As > > Cookie > > > > said these things might all be different from person to > person. I > > rarely > > > > get fasciculations but when I do it is usually around my ankle > and I > > > > describe it as the same feeling I felt when as a child I would > dangle my > > > > feet all the edge of the boat dock and the little sunfish > would come up > > > and > > > > nibble on my toes. > > > > > > > > > > I started getting muscle spasms about two years ago in the > thigh area. > > > My > > > > muscles would spasm causing my whole leg to stiffen and it > would feel > > like > > > > the muscles wre being ripped off my back. I started baclofen > last > > > > Septemember and have not had a problem with that since. I do, > however, > > > get > > > > some clonus in that leg. I guess that's what it is. It wakes > me up > > with > > > a > > > > pretty hefty jerk. Mostly, just getting up and making a trip > to the > > > > bathroom will stop it but if not then a couple of trips to the > kitchen > > and > > > > back are usually enough to walk it off. > > > > > > > > > > You will find lots of answers and opinions here. I'm glad > you found > > us. > > > > Ask away. > > > > > > > > > > Ronnie > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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