Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Hello everyone! I am a new addition to your group. I am a student, but I hope I can listen and hear from everyone. See ya later!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Welcome !! val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 , Welcome to our group. If you had PLS for 25 years I guess you are the one that has it the longest in our group of PLS Friends. We have one lady who has it for 20 years. Did they call it PLS back them or has it been a long journey for you getting the diagnosis? ....................... Flora, Florida USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 welcome , my hubby dorian has pls for seven years, and we find a lot off info in this group.we hpe you enjoy this place as we do .every one is so friendly. laura mellon Hello Hello all, I have had PLS for about 25 years, so I am not new to what it is. I am always looking for new ways to get things down and so I would love to hear form you. A Breaux mabreaux@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 I AM SORRY TRHAT YOU HAVE SUFFERED WITH THIS STUFF FOR SO LONG, HOWEVER, IT MAKES ME FEEL BETTER TO KNOW THAT I CAN BE AROUND FOR THAT LONG.. I WAS ONLY DIAGNOSED IN AUGUST of 2002 AND MY SYMPTOM IS LACK OF SPEECH FOR WHICH I AM GETTING A MECHANICAL DEVICE. IF YOU ARE NEW TO PLS FRIENDS, YOU WILL ENJOY IT IMMENSELY. EVERYONE IS VERY KIND AND WELL INFORMED Ann H Queens NYC Hello > Hello all, > > I have had PLS for about 25 years, so I am not new to what it is. I am > always looking for new ways to get things down and so I would love to hear > form you. > > A Breaux > mabreaux@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Welcome to the group. I too would be interested to hear about your journey to diagnosis. Cheers Jaycee Re: Hello > , Welcome to our group. If you had PLS for 25 years I guess you are > the one that has it the longest in our group of PLS Friends. We have one > lady who has it for 20 years. Did they call it PLS back them or has it been > a long journey for you getting the diagnosis? ....................... > > Flora, Florida USA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 No, they called it Upper Motor Neuron Disease. A Breaux mabreaux@... -- Re: Hello , Welcome to our group. If you had PLS for 25 years I guess you are the one that has it the longest in our group of PLS Friends. We have one lady who has it for 20 years. Did they call it PLS back them or has it been a long journey for you getting the diagnosis? ....................... Flora, Florida USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 , Oh yes you right, I'm red faced.sorry ............Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Welcome . Flora, if my memory is correct I think Levy has racked up 30+ years with it. belgium46@... wrote: > , Welcome to our group. If you had PLS for 25 years I guess > you are > the one that has it the longest in our group of PLS Friends. We have one > lady who has it for 20 years. Did they call it PLS back them or has > it been > a long journey for you getting the diagnosis? ....................... > > Flora, Florida USA -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hello : I am like you, even though I was DX in 1986, I had this disease almost 10 years prior to my diagnosis. I am 66 now and still going strong, aren't we lucky? Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Hi , I should let Levy chime in on this himself, but I believe he actually has HSP, based on a message he put in the PLS newsletter a while back. Since he's never developed anything symptoms above the waist, and he has family history, HSP is much more likely for him. Thomson Solana Beach, Ca Visit www.als-pls.org and www.geocities.com/mdmfoo/pls.html Quote Link to comment Share on other sites More sharing options...
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