us rehabilitation centers for spinal cord injury /TBI ect

May 20, 2001

This web page has a map with links to info on the 16 spinal cord injury

projects currently funded by the federal gov as main research /tx centers .

At an asap confrence a couple years back ....Dr Milhorat brainstormed with

some of us what to do , when the neurosurgeons handywork is good , but

problems remain . Many times , finding a neurologist or primary care doctor

with good understanding of our problems , is difficult .

He sugested seeking a neurologist at one of the federal model tramatic brain

injury or spinal cord injury centers ....and I called the one closest to my

home , explaining I had acm and ms , and sought a doctor who could guide the

care of both .

I was assigned to a physiatrist , who specialises in the care of folks with

ms and post polio syndrome ....but have seen another there too , when my

doctor was out ill ...who had a great grasp too . ....I've posted before

about the holestic health focus a rehabilitation physician takes ...its my

belief that helps me optimise whats working well ....and find ways around the

glitchy stuff as much as possible .

I like too , that he sends me back to the neurosurgeon if he feels uncertian

about anything ...it takes that burden of full decision making about whats a

true probem , from my shoulders , lol . He also sends me to consultaions with

specialists , if he feels they may be able to help shed light on problems

....then helps me decide what things I'd like to try .

If your through surgery ..or not a good canidate ect ....but are having

problems , I think this is an excelent resource to explore .

in Paradise

( ps ...to all doing the reconnections project ...this is another good

resource to bookmark , and sugest to members needing post op help too

......airlifeline and angel flights ect , will provide transportation if

needed too ) .

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