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Re: Hospital stay

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  • 23 years later...

Hi ,

So sorry to hear of your hospital ordeal. Hopefully, it was a one time

thing and will not repeat itself.

How do I get to the page that has the PLS counts by state/country? I can't

seem to find it today!

, we really need to thank you for your efforts on the PLS website. It

really means so much to so many.

Thomson

Solana Beach, Ca

Visit www.als-pls.org

and www.geocities.com/mdmfoo/pls.html

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Dear ,

I hope that you are on the mend now and will improve steadily. That was

such a scary thing to happen. Your positive outlook seems unscathed. You

are such an inspiration!

I love what you have done on your web-site. It is such a good source of

information. Wouldn't it be nice if more folks would include photographs?

The photos help to get to know each other better. Thank you for your hard

work--it is much appreciated.

Dolores

Hospital stay

> Dear PLS-FRIENDS,

>

>

>

> The following is what happened to me, it may have been a brain overload

> from computer problems I had.

>

> On wednesday Jan 8/03, I woke up with a headache, my wife Joanne gave me

>

> some tylenol, as it was not too bad she then left and the daycare nurse

> Leona stayed with me. I had some computer problems that stressed me out

> and by noon time the headache was so bad that the nurse gave more

> tylenol and put me in bed as I felt awful.

>

> Joanne came home at 2 (what happened is vague to me) I was clammy, ashen

>

> and the headache was unbearable, she called 911, the ambulance came,

> they took my blood pressure etc. ,put me on oxygen and took me to the

> hospital, in the E.R. they told my wife that I had high blood pressure

> 210/108 they did all the tests, other then High blood pressure I had low

>

> potassium ,there was no explanation for the severe head ache, the

> head ache stayed and Joanne was told to prepare herself for the worst

> and

> I was put me on morphine every 4 hrs. After a week they considered to

> put me

> in palliative care, as I was told by my M.D. apparently I told him

> that I was not ready to give up the fight against ALS. at that point the

>

> headache subsided and went away. They put a tube through my nose for

> feeding me and after two and a half weeks they put a peg tube into my

> stomach for feeding I am not as strong as I was before this happened and

>

> tire very easily. They send me home on Valentine's day Friday the 14th

> of February.

>

> I am home for two weeks now to continue the fight against ALS.

> Even tough they put in a stomach feed tube in me I am back to eating the

>

> normal way again.

> I fixed all the computer problems I was having, Up dated the PLS Web

> Site, read over 400 emails and updated the PLS data base which has now

> 477

> members from 17 different countries.

>

> --

> Regards and best wishes, your ALS Pal

>

> Reyerse

> jreyerse@... tel:

> Primary Lateral Sclerosis Web Site

> http://www.geocities.com/freyerse/index.html

> ALS Society of British Columbia Web Site

> http://members.shaw.ca/alsbc/index.html

>

>

>

>

>

>

>

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Guest guest

,

What a terrible time you have had! I'm so sorry to hear of your illness. I

didn't know you have ALS, I thought you had PLS. I hope you are back to what

WE would call normal and won't have any more episodes like that. I will keep

you in my prayers.

Vivian in MD

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Guest guest

Dear :

Your hospital stay sounds very scary, glad to hear you're home & on the mend

Your work on your websites is so incredible, thank you for spending so

much of your time to provide us with this. The BC site was of particular

interest as there's a small possibility I may be moving from Ontario to

to be closer to family. Please take the time to care for yourself

as well. You'll be in my prayers.

Jen L.

Ottawa, Ontario

Hospital stay

> Dear PLS-FRIENDS,

>

>

>

> The following is what happened to me, it may have been a brain overload

> from computer problems I had.

>

> On wednesday Jan 8/03, I woke up with a headache, my wife Joanne gave me

>

> some tylenol, as it was not too bad she then left and the daycare nurse

> Leona stayed with me. I had some computer problems that stressed me out

> and by noon time the headache was so bad that the nurse gave more

> tylenol and put me in bed as I felt awful.

>

> Joanne came home at 2 (what happened is vague to me) I was clammy, ashen

>

> and the headache was unbearable, she called 911, the ambulance came,

> they took my blood pressure etc. ,put me on oxygen and took me to the

> hospital, in the E.R. they told my wife that I had high blood pressure

> 210/108 they did all the tests, other then High blood pressure I had low

>

> potassium ,there was no explanation for the severe head ache, the

> head ache stayed and Joanne was told to prepare herself for the worst

> and

> I was put me on morphine every 4 hrs. After a week they considered to

> put me

> in palliative care, as I was told by my M.D. apparently I told him

> that I was not ready to give up the fight against ALS. at that point the

>

> headache subsided and went away. They put a tube through my nose for

> feeding me and after two and a half weeks they put a peg tube into my

> stomach for feeding I am not as strong as I was before this happened and

>

> tire very easily. They send me home on Valentine's day Friday the 14th

> of February.

>

> I am home for two weeks now to continue the fight against ALS.

> Even tough they put in a stomach feed tube in me I am back to eating the

>

> normal way again.

> I fixed all the computer problems I was having, Up dated the PLS Web

> Site, read over 400 emails and updated the PLS data base which has now

> 477

> members from 17 different countries.

>

> --

> Regards and best wishes, your ALS Pal

>

> Reyerse

> jreyerse@... tel:

> Primary Lateral Sclerosis Web Site

> http://www.geocities.com/freyerse/index.html

> ALS Society of British Columbia Web Site

> http://members.shaw.ca/alsbc/index.html

>

>

>

>

>

>

>

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Guest guest

FRANK SO SORRY TO HEAR ABOUT YOUR PROBLEMS. I DON'T KNOW WHAT IT IS ABOUT THAT

HEADACHE THING. I WENT THROUGH THAT A COUPLE WEEKS AGO BUT NEVER WENT TO THE

DR. TOOK ABOUT A WEEK TO GET OVER IT. WORST HEADACHE I EVER HAD. I THINK

THERE IS SOME KIND OF VIRUS OR SOMETHING GOING AROUND. MY DAUGHTER HAD IT

BEFORE ME.

ARE YOU USING THE TUBE FOR HYDRATION? THAT IS WHAT WE ARE DOING WITH DON.

HE HAS A PRETTY BAD UNTIL RIGHT NOW AND HE HATES THICKENED CRANBERRY JUICE SO I

KEEP PUMPING IT IN THE TUBE. HE SHOULD BE FLOATING. THEY FINALLY PUT HIM ON

CIPRO AFTER WAITING FOR THREE DAYS UNTIL THE CULTURE GREW AND THEY DECIDED WHAT

TO DO. HE COULDN'T GO ON HIS OWN ANYMORE THERE AND THEY WANTED ME TO TAKE HIM

TO THE HOSPITAL TO BE CATHED WHEN HE NEEDED. IT WOULD TAKE AN AMBULANCE TO DO

THAT AND I AM SURE NO ONE WILL PAY FOR THAT. WELL I FINALLY GOT THEM TO SEND A

HOME HEALTH NURSE OUT AND TEACH ME HOW. DON NOW HAS A NEW WORD FOR RELIEF.

TAKE CARE AND I HOPE YOU GET YOUR STRENGTH BACK SOON. DON REGAINED MOST IS HIS

BUT HE DID HAVE SOME PERMANENT LOSS. KEEP UP THE FIGHT.

LOVE

BONNIE

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