Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hello, I never vent this might be my second time in a year,I hate it with so many having conditions they are dealing with.Mine seems so petty but I am at a complete loss.I finally go see the Neuro after 16 months all this time been getting by only on pain meds and anxiety meds. I need so much more like neurotin ect: My spine is so painful today all I want to do is cry,I dont cry at all because it uses my strength and who can afford that?I feel like little bugs are crawling on my feet and legs sometimes,Is this my imagination or what is it? You would think since I have had one decomp no shunt at that time,I would know alot. But after 12 years alot has changed they have not come very far on a cure but at least there are foundations now that are working very hard for us. WACMA has been so helpful and just fantastic for me mentally !!And sometimes that is alot,The ole hang in there is just what I need sometimes. But now I am to the point of finally seeing this neuro at the oklahoma science institute of neurosurgeons. Where do I go from there,Decisions I have to make are my concern,He has all my paperwork and I am taking my mris, I hope he doesnt crawl backwards I need help so bad,It scares me. I guess I am trying to say is there anything I should say or do to this neuro ,Or will my paperwork,mris tell him all? Sympts should I tell him all of them he might think me to be psychotic!! Sorry this is so long,Maybe that is why I never vent.I am kind of scared of the tests he may run, hugs to all KK,ACM1,10mm,SM,C1 TO T9 RSD,NMH,DISC PRO,C4,5 DECOMP FIRST TIME 1989 TRAUMA INDUCED SECOND HERN,SM,DISC PRO. ===== DADDY 4-25--99 " ' May you now fly with the Angels, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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