Re: Shakey Hands

[Guest guest]

Hello Jody;I hate saying this but no I dont keep records of my bloodwork.I know

I should,Ive been reading posts here for about a year.My GP and Endo have a

slightly diffrent openion on where I should be.According to my newest Endo I

have indeed been on the low end of the(NORMAL#@!)range for a long time.I had my

dosage increased approx.1 year ago to the higher end by my Endo.and got quit a

bit more stable .My problem seems to be that I fluxuate alot,possably my

thyroids still working a little???I have had RAI twice so I dont see how that

could be but Ive never went more then 6 months without haveing to change my dose

of synthroid.I have bloodtests done every 2-3 months.My symptoms are usually

hyper sympitoms weight loss, hair loss,sanity loss.(anxiaty,depression)the

rage...oh the rage! Ive also been told the depression isnt from graves,Ive taken

6-7 diffrent antidepressents with no change.I have asked ALL the Drs Ive been to

to let me try Armoral,or a T3/t4 replacement ,I did that after reading the

Thyriod solution.but they all say my t3 is normal and I dont need more.Im sick

of Drs and even sicker of this disease!All I know for sure is Im not normal or

anywhere close to it and this is my life from now on! I do appricate this

group,one thing for sure its the only place I dont feel alone.I know from

reading.I shouldnt complain becouse I know I could be alot worse I can work and

fuction somewhat normaly most the time and since Ive had the orbital

decompression I no longer look like a freak,I can pass for normal too.I guess I

just need to not feel sorry for myself and take ownership of this god awful

disease....but its sooo hard! thanks for letting me vent.Cheryl

Shakey Hands

Hi Cheryl,

What blood tests do they do on you and how often? Do you have copies of

your blood work? If not GET THEM for as far

back as you can...they are yours and you have a right to a copy of them.

I am just guessing here, but would say that your numbers, according to your

drs. are in the *normal* range...by the drs.

standards. It is how it was with me. It wasn't until I found my new endo,

who understands we need to be on the low (or below)

range in TSH and upper ends in other tests.

I was left hypO for almost 4 years by my primary and 3 fired endos...they

all said the same thing, my depression was not from

my GD, it must be something else...here take a prozac (one even gave me 6

weeks worth of prozac to lose weight...boy was I

gullible, I quit taking it after the 6 weeks). My depression got so bad

that 18 months ago I was suicidal, which is something I

have never thought about in my life, no matter what was going on! Since

getting my TRH increased, that helped...what has

helped me even more is a T3/T4 replacement hormone.

Get copies of you blood work, share them here, Elaine is wonderful at

explaining what we don't understand in layman's

terms...then if your current dr. refuses to listen to you, fire their

behinds and get one that will....it will get better.

As I said though, I am just guessing this is what is going on from my own

personal experience.

Take care and hang in here,

Jody

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