Re: Help with riding out gluten withdrawal

[Guest guest]

SUGAR SUGAR!! Almost all guten products have sugar.This may be acting up the

yeast.Also do food trials.Start taking away say..... corn,soy,eggs.My daughter

cant do all of these.WE are GF-CF egg,soy free.Thinking of getting rid of

rice.Causes viral issues. Hope this helps stay stong!

>

> we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

>

> Also, how much longer can I expect things to be worse before it gets better?

>

> Nanci

>

[Guest guest]

what IS he eating right now. it may also be other things

Help with riding out gluten withdrawal

we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?Also, how much longer can I expect things to be worse before it gets better?Nanci

[Guest guest]

Hi , my calming diet things:

Buckwheat groats (also lowers testosterone) with coconut oil and maple syrup -

(always a great day after that breakfast for my son)

Rice - brown, white, wild, whatever...not much reaction to that here.

Turkey - ah, sleepy, calming, turkey...

rice cake with almond butter and bananas on top, mmmm...

peas - no problems with these

banana-rice milk-honey- popcicles (with a little potato starch and xanthan gum

to thicken)

You truly must do everything in your power not to let him get things he isn't

supposed to have including the hidden gluten things (malt, broth, white vinegar,

modified food starch...) I do allow white vinegar with an enzyme because it's

such a small amount that the enzyme will take care of the digestion okay. Are

you doing the Houston Enzymes? I would suggest trying that too, there are a lot

of people who like them (we use Klaire Lab's Serenaid enzymes, they're good

too).

You should give me a call sometime, I understand we live pretty close to each

other- or email me if you like. (I don't use the Yahoo! email)

Liz

esoliday@...

>

> we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

>

> Also, how much longer can I expect things to be worse before it gets better?

>

> Nanci

>

[Guest guest]

I have been baking from GF cookbooks, using things like tapioca starch, potato

starch, millet flour, garbanzo flour, rice flour (brown and white). We've used

quinoa pasta, too. He likes goat cheese and rice crackers, too.

I really limit sugar for him because he does have a huge yeast problem. I wish I

could get him off juice, but that's the only way I can get any supplements in

him.

It's so frustrating because he barely eats anything to begin with. No fruits or

veggies (unless I can hide them in something).

We already did a CF trial with no changes.

Nanci

>

> what IS he eating right now. it may also be other things

>

> Help with riding out gluten withdrawal

>

>

> we are now on day 15 of GF. We have had some good days, but mostly bad

days for my son, with alot of increased rage and anger and hyperactivity. I know

this is supposed to be a good sign that he needed to be GF, so I'm keeping

positive about it, but I'm wondering if there's anything proactive I can do for

him (besides praying!) to help ease the withdrawal?

>

> Also, how much longer can I expect things to be worse before it gets better?

>

> Nanci

>

[Guest guest]

Are you talking about pre-packaged gluten products having sugar? Because we

haven't done much of that (just pretzels and rice crackers and a few cereals,

but I never buy anything with above 7g sugar and we mix it with sugarless GF

rice or corn puffs). I've been making everything else from scratch.

We should be getting our IgG results in the next 2 weeks. I don't really want to

make any more dietary changes until I see what that says.

I never heard rice causes viral issues! Do you have any more info or links on

that. I'd like to read up on that.

Nanci

> >

> > we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

> >

> > Also, how much longer can I expect things to be worse before it gets better?

> >

> > Nanci

> >

>

[Guest guest]

Hi -

We do Intestinal Repair Complex, which has some enzymes in it. Here are the

ingredients.

Ingredients:

Servings per container: 20

2 teaspoons (8 g) contains:

L-Glutamine 1500mg

N-Acetyl Glucosamine 1000mg

Deglycyrrhizinated Licorice 500mg

Plant Enzymes:

---Amylase 5,000 FCC

---Cellulase 2,500 CU

---Invertase 1,200 SU

---Lactase 500 FCC

---Maltase 100 units

Aloe leaf conc. (Aloe barbadensis) (200:1) 200mg

MSM (Methyl Sulfonyl Methane) 200mg

Slippery Elm bark 100mg

Marshmallow root (Althea officinalis) 100mg

Xylitol 4.2g

Other Ingredients: Contains crustacean fish (lobster, crab or shrimp).

I am definitely going to talk to the DAN when we go in two weeks about adding

other enzymes.

I just emailed you. I emailed you before using the yahoo email so you probably

never got it.

Nanci

> >

> > we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

> >

> > Also, how much longer can I expect things to be worse before it gets better?

> >

> > Nanci

> >

>

[Guest guest]

you can do the agave syrup as well in place of honey and maple syrup for lower glycemic, most rice cakes have gluten and casein cc issues at very least so check brands before using them

Re: Help with riding out gluten withdrawal

Hi , my calming diet things:Buckwheat groats (also lowers testosterone) with coconut oil and maple syrup - (always a great day after that breakfast for my son)Rice - brown, white, wild, whatever...not much reaction to that here.Turkey - ah, sleepy, calming, turkey...rice cake with almond butter and bananas on top, mmmm...peas - no problems with thesebanana-rice milk-honey- popcicles (with a little potato starch and xanthan gum to thicken)You truly must do everything in your power not to let him get things he isn't supposed to have including the hidden gluten things (malt, broth, white vinegar, modified food starch...) I do allow white vinegar with an enzyme because it's such a small amount that the enzyme will take care of the digestion okay. Are you doing the Houston Enzymes? I would suggest trying that too, there are a lot of people who like them (we use Klaire Lab's Serenaid enzymes, they're good too). You should give me a call sometime, I understand we live pretty close to each other- or email me if you like. (I don't use the Yahoo! email)Lizesolidaygmail>> we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > Also, how much longer can I expect things to be worse before it gets better?> > Nanci>

[Guest guest]

carbs also feed yeast. maybe why he is limiting to them

Help with riding out gluten withdrawal> > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > Also, how much longer can I expect things to be worse before it gets better?> > Nanci>

[Guest guest]

And, a shower. Who can be crabby in a nice, warm shower (ok, a really sensitive

kid)? But, it helps my sensitive kid.

CGF

> >

> > we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

> >

> > Also, how much longer can I expect things to be worse before it gets better?

> >

> > Nanci

> >

>

[Guest guest]

I can't stand showers.Too loud. Subject: Re: Help with riding out gluten withdrawalTo: mb12 valtrex Date: Thursday, October 15, 2009, 8:24 PM

And, a shower. Who can be crabby in a nice, warm shower (ok, a really sensitive kid)? But, it helps my sensitive kid.

CGF

> >

> > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?

> >

> > Also, how much longer can I expect things to be worse before it gets better?

> >

> > Nanci

> >

>

[Guest guest]

Really ? Are you gluten free because my son's main (most noticeable)

symptom of gluten intolerance is noise sensitivity.

>

> > >

>

> > > we are now on day 15 of GF. We have had some good days, but mostly bad

days for my son, with alot of increased rage and anger and hyperactivity. I know

this is supposed to be a good sign that he needed to be GF, so I'm keeping

positive about it, but I'm wondering if there's anything proactive I can do for

him (besides praying!) to help ease the withdrawal?

>

> > >

>

> > > Also, how much longer can I expect things to be worse before it gets

better?

>

> > >

>

> > > Nanci

>

> > >

>

> >

>

[Guest guest]

As I have said,I have my first ever celiac panel tomorrow.I have no idea if I am gluten sensitive or not.If I am it would not be a case of simply being sensitive,it would be a case of having advanced untreated childhood celiac.Celiac that would have caused my lifelong failure to thrive,lack of muscle and sexual development,and,if I don't have Alpha-1, autoimmune hepatitis.No doctor was ever willing to test me for celiac until now.The doctors I saw for years dismissed celiac as something that either was not real,or was nothing serious.I have only recently become aware of how serious it could be.

Subject: Re: Help with riding out gluten withdrawalTo: mb12 valtrex Date: Thursday, October 15, 2009, 9:40 PM

Really ? Are you gluten free because my son's main (most noticeable) symptom of gluten intolerance is noise sensitivity.

>

> > >

>

> > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?

>

> > >

>

> > > Also, how much longer can I expect things to be worse before it gets better?

>

> > >

>

> > > Nanci

>

> > >

>

> >

>

[Guest guest]

> > >

> > > we are now on day 15 of GF. We have had some good days, but mostly

bad days for my son, with alot of increased rage and anger and

hyperactivity. I know this is supposed to be a good sign that he needed

to be GF, so I'm keeping positive about it, but I'm wondering if there's

anything proactive I can do for him (besides praying!) to help ease the

withdrawal?

> > >

> > > Also, how much longer can I expect things to be worse before it

gets better?

> > >

> > > Nanci

> > >

> >Rice is not so great it has argenine in it this is also in rasins

and most nuts chocolate also! Bad for herpes I will tell you this!As I

was searching for the article I found out rice may be tainted in the US

with arsenic most of the fields used now are former cotton fields.Whats

a gluten free mom to do?? You should change it up I guess. I just tried

teff flour.Good luck with everything.

>

[Guest guest]

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> > > > we are now on day 15 of GF. We have had some good days, but mostly bad

days for my son, with alot of increased rage and anger and hyperactivity. I know

this is supposed to be a good sign that he needed to be GF, so I'm keeping

positive about it, but I'm wondering if there's anything proactive I can do for

him (besides praying!) to help ease the withdrawal?

>

> >

>

> > > >

>

> >

>

> > > > Also, how much longer can I expect things to be worse before it gets

better?

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>

> >

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> > > > Nanci

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> >

>

> > > >, are you getting the DQ2 DQ8 gene test done?? This may help.My

daughter has positive gene for DQ8. Deb K

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[Guest guest]

Nanci...Have you tried using the pill shooter to get him to take his supplements? It may sound weird but I got it from my local pet store.Just insert 1or 2 pills. Gently place it in the back of the mouth and Slowly push the plunger. Make sure the mouth is opened wide. Very simple, no pain. My 3 year old takes every dose with no resistance.ValenciaSent from my iPhone

carbs also feed yeast. maybe why he is limiting to them

Help with riding out gluten withdrawal> > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > Also, how much longer can I expect things to be worse before it gets better?> > Nanci>

[Guest guest]

Great suggestion, but not for my son. I couldn't get my son to take a shower,

LOL! He hates the feeling of the water on his skin. I can barely get him to take

a bath!

Nanci

..

> > >

> > > we are now on day 15 of GF. We have had some good days, but mostly bad

days for my son, with alot of increased rage and anger and hyperactivity. I know

this is supposed to be a good sign that he needed to be GF, so I'm keeping

positive about it, but I'm wondering if there's anything proactive I can do for

him (besides praying!) to help ease the withdrawal?

> > >

> > > Also, how much longer can I expect things to be worse before it gets

better?

> > >

> > > Nanci

> > >

> >

>

[Guest guest]

I have heard about that before.

He's almost 11 and is now so used to taking the supplements in juice that I

think it might be hard to switch him over, especially because he has issues with

change.

But I will definitely keep this in mind. Thank you Valencia

Nanci

> >

> > what IS he eating right now. it may also be other things

> >

> > Help with riding out gluten withdrawal

> >

> >

> > we are now on day 15 of GF. We have had some good days, but mostly bad days

for my son, with alot of increased rage and anger and hyperactivity. I know this

is supposed to be a good sign that he needed to be GF, so I'm keeping positive

about it, but I'm wondering if there's anything proactive I can do for him

(besides praying!) to help ease the withdrawal?

> >

> > Also, how much longer can I expect things to be worse before it gets better?

> >

> > Nanci

> >

>

[Guest guest]

you can have other issues with gluten besides just celiac. you can have IGG or IGE or opiate issues with gluten and not have celiac and STILL have to take it out for those reasons

Re: Help with riding out gluten withdrawalTo: mb12 valtrex Date: Thursday, October 15, 2009, 9:40 PM

Really ? Are you gluten free because my son's main (most noticeable) symptom of gluten intolerance is noise sensitivity.> > > >> > > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > > > > > > > Also, how much longer can I expect things to be worse before it gets better?> > > > > > > > Nanci> > > >> > >>

[Guest guest]

in our house sound issues would be related to yeast and opiate issues

Re: Help with riding out gluten withdrawalTo: mb12 valtrex Date: Thursday, October 15, 2009, 8:24 PM

And, a shower. Who can be crabby in a nice, warm shower (ok, a really sensitive kid)? But, it helps my sensitive kid.CGF> >> > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > > > Also, how much longer can I expect things to be worse before it gets better?> > > > Nanci> >>

[Guest guest]

Yes,but how would you know if this was the cause while the behavior was going on ? Once you were able to get to the lab,or doctors office to have the tests,the meltdown, severe stimming spell,or whatever might be gone,because the IgG or IgE would have returned to normal,and the opiates would not be detectable.

From: Liz <elizabethsoliday@ yahoo.com>Subject: Re: Help with riding out gluten withdrawalTo: mb12 valtrex@ yahoogroups. comDate: Thursday, October 15, 2009, 9:40 PM

Really ? Are you gluten free because my son's main (most noticeable) symptom of gluten intolerance is noise sensitivity.> > > >> > > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > > > > > > > Also, how much longer can I expect things to be worse before it gets better?> > > > > > > > Nanci> > > >> > >>

[Guest guest]

if you do opiate (peptide testing) you do it when eating gluten, casein, soy, ect.... IGE testing dose not change result wise if you are eating it or not eating it, it's a mounted responce. IGG testing you DO have to be eating it for it to show on blood testing. TOTAL IGE, IGG, and IGA levels don't change as well, it is measureing how your immune system IS reponding. for example. if you are low on IGA total levels and test for celiac and IGA doesn't show as active then they will say you are not celiac, BUT if you levels are treated and up to normal and retested you may then show at high level responces to IGA to gluten and WOULD get a dx of celiac. so JUST testing for celiac isn't good enough, knowing your immune system is responding as it should is an important factor to throw in, as many of our kids immune system are NOT responding normal or have burnt out and overworking and then start underworking. same is true for over. lets say your total IGE is HIGH, working in hyper immune phase. then you do IGE testing and back with 14 anaphyatic allergy reactions. if you get total IGE levels to normal (*lets say via LDN) then all the sudden you LOOSE those allergies as numbers would in turn also go down for IGE testing. does that make sence. if not let me know and I can do actual numbers with this and give you an example!

Re: Help with riding out gluten withdrawalTo: mb12 valtrex@ yahoogroups. comDate: Thursday, October 15, 2009, 9:40 PM

Really ? Are you gluten free because my son's main (most noticeable) symptom of gluten intolerance is noise sensitivity.> > > >> > > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > > > > > > > Also, how much longer can I expect things to be worse before it gets better?> > > > > > > > Nanci> > > >> > >>

[Guest guest]

All I know is I had blood and urine tests for gluten opiates that came back normal.It was not done while eating gluten.I did make sure to eat a whole Dolly Madison Coffee Cake a few hours before I had my celiac test.If I do have celiac,my doctor will probably want to redo the opiates.The supplements I am using are doing such a great job.I just realized the other day,it had been four months since I had an episode of head banging,and about a year,since my last eloping spell.This is amazing for me.I would like to get my eye contact back (I lost it when I stopped stimming.),and the sensory stuff under control,but the main thing I want is to get physically well,and for the first time in my life,I have a doctor that will help me do just that.The worst thing here is of course GI disease.The next thing I want to have done,is a paracentesis,to find out

just what the cause is of the ascites I have lived with all of my life.If I have celiac,one real possibility is also pattern III eosinophilic gastroenteritis. http://www.answers.com/topic/eosinophilic-gastroenteropathiesMy GI disease has always been very bad.Nothing makes it worse.I can't recall as a child,but as an adult,my autism symptoms are always worse right after a fever goes away,or during a severe flare of an immune related problem without a fever.A few months ago,I had a test that showed I was either completely depleted,or had an isolated deficiency of both CD4 and CD8 T cells.Not to be wondered at,considering my last regression in 2007 was triggered by acute meningitis that turned septic,and after that I had a few severe rheumatic flares,that led to severe but shorter regressions.After I had my mDNA test,I started on the Tischcon CoQ10 immediately.Three

months later my T cell count is about 90% normal.If I can prevent another fever from happening,I can prevent another regression.

From: Liz <elizabethsoliday@ yahoo.com>Subject: Re: Help with riding out gluten withdrawalTo: mb12 valtrex@ yahoogroups. comDate: Thursday, October 15, 2009, 9:40 PM

Really ? Are you gluten free because my son's main (most noticeable) symptom of gluten intolerance is noise sensitivity.> > > >> > > > we are now on day 15 of GF. We have had some good days, but mostly bad days for my son, with alot of increased rage and anger and hyperactivity. I know this is supposed to be a good sign that he needed to be GF, so I'm keeping positive about it, but I'm wondering if there's anything proactive I can do for him (besides praying!) to help ease the withdrawal?> > > > > > > > Also, how much longer can I expect things to be worse before it gets better?> > > > > > > > Nanci> > > >> > >>

[Guest guest]

Sounds like you have made some great progress - I'm happy for you! When

you get the MB-12, it should help with the eye contact. Also, vitamin A would

help in that area. I use Solgar natural vit A 10000 IU from fish oil with no

allergens and it is really helping my son's language. We use Vit D and

Vinpocentine with it.

I REALLY think you will take care of your sensory stuff if you try dietary

intervention. Elimination diets would work without testing.

Good luck and I will look forward to following your progress

> >

> > > >

> >

> > > >

> we are now on day 15 of GF. We have had some good days,

but

> mostly bad days for my son, with alot of increased rage

and

> anger and hyperactivity. I know this is supposed to be a

> good sign that he needed to be GF, so I'm keeping positive

> about it, but I'm wondering if there's anything proactive

I

> can do for him (besides praying!) to help ease the

> withdrawal?

> >

> > > >

> >

> >

> > > Also, how much longer can I expect things to be

> worse before it gets better?

> >

> > > >

>

> >

> > > > Nanci

> >

> > >

> >

> >

> >

> >

> >

>

[Guest guest]

I have never been able to take in any vitamins well,because of my severe malabsorption. Subject: Re: Help with riding out gluten withdrawalTo: mb12 valtrex Date: Saturday, October 17, 2009, 11:17 PM

Sounds like you have made some great progress - I'm happy for you! When you get the MB-12, it should help with the eye contact. Also, vitamin A would help in that area. I use Solgar natural vit A 10000 IU from fish oil with no allergens and it is really helping my son's language. We use Vit D and Vinpocentine with it.

I REALLY think you will take care of your sensory stuff if you try dietary intervention. Elimination diets would work without testing.

Good luck and I will look forward to following your progress

> >

> > > >

> >

> > > >

> we are now on day 15 of GF. We have had some good days, but

> mostly bad days for my son, with alot of increased rage and

> anger and hyperactivity. I know this is supposed to be a

> good sign that he needed to be GF, so I'm keeping positive

> about it, but I'm wondering if there's anything proactive I

> can do for him (besides praying!) to help ease the

> withdrawal?

> >

> > > >

> >

> >

> > > Also, how much longer can I expect things to be

> worse before it gets better?

> >

> > > >

>

> >

> > > > Nanci

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